Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffiene?

key

By key
in Coping with Celiac Disease

Recommended Posts

key Contributor
key
Posted

I am just curious if anyone else has problems with drinking caffiene? It seems to make me have abdominal pain, cause C and giving me heartburn for two weeks. At least that is what i am blaming it on. It is frustrating to not be able to drink it at all, but I was curious if others have problems with it. I quit for a week and feel SO much better. It is hard for me though to stay off of it.

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Monica.

I can't say as I join ya there. I would be lost without my daily fix. Although, I can't drink coffee to get my caffeine (that hurts), but Coke is fine......

Hugs.

Karen

Celia the Celiac Apprentice
Celia the Celiac
Posted

I drink decaf. It was hard at first to change but I got used to it. I like Carob hot drinks too. But yes in answer to your question. I can't tolerate coffee anymore for some reason.

Rachel--24 Collaborator
Rachel--24
Posted

I cant have caffeine at all. I was never a big coffee drinker....I just enjoyed Starbucks Caramel Macciato's occassionally and drank several sodas a day. Since I got sick three years ago I cant handle caffeine. It really messes me up in alot of ways but nothing GI related. I get very shaky, dizzy, migraines plus it messes up my skin for some reason. I dont need caffeine and I dont miss sodas but a couple times I ordered my Starbucks and forgot to say "decaf". :(

key Contributor
key
Posted
  • Author

OH, I love caffeine, that isn't my problem. I just think it gives me IBS problems. Very annoying. I usually have drank diet pepsi, but sometimes will drink coffee for a few weeks and then quit for awhile, etc. The latest though is that it started giving me horrible heartburn, along with the IBS symptoms. SO I quit for a week, but I am such an addict. I started taking Prilosec and that has helped me quite a bit. I am trying to figure it all out though. It seems after being gluttened, i have alot of the symptoms for a few weeks. I am already vegetarian, gluten free, don't drink alcohol and now my one vice of caffeine is being taken away too!! UGH! WHen will it ever end. I think I am going to turn into a rabbit! JK!

I am going to the GI doctor tomorrow, not sure why since I am a big whimp and don't want any testing done. He is going to think I am a nut!

Thanks guys,

Monica

num1habsfan Rising Star
num1habsfan
Posted

I can't say that I have a problem with caffeine from any source...if it wasnt for coffee I'd never get through the day. Even when i make instant coffee about 3 times normal strength, it doesnt give me the runs or nothing. (thank god lol)

Yeah i'd die without coffee. I'm a coffee-holic. Enough said :P

~lisa~

Ursa Major Collaborator
Ursa Major
Posted

I am intolerant to caffeine (it has salicylates in it), but I am theoretically allowed to drink decaf. But since I am intolerant to dairy and HATE coffee without cream, I don't bother. I never drank much coffee, because I've never felt good afterwards (and it makes me incredibly sleepy :ph34r: ), so I don't miss it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nogluten- Newbie
nogluten-
Posted
I am just curious if anyone else has problems with drinking caffiene? It seems to make me have abdominal pain, cause C and giving me heartburn for two weeks. At least that is what i am blaming it on. It is frustrating to not be able to drink it at all, but I was curious if others have problems with it. I quit for a week and feel SO much better. It is hard for me though to stay off of it.

Monica

It bothers my stomach. I dont know if that's from Crohn's or just a problem with IBS in general.

Guest cassidy
Guest cassidy
Posted

If I drink Caffeine it makes me really shaky and aggitated. I don't know if that is because I'm not used to it or because my body just doesn't like it. I drink a lot of sparkling water. It has the bubbles like soda but not the bad stuff. I also love decaf coffee. I make a pot most mornings and my husband passes it up for instant (yuck!) regular coffee.

key Contributor
key
Posted
  • Author

I think the caffeine is causing me IBS symptoms and now possibly heartburn. I have drank plenty of stuff for years with caffeine. It has been my major hangup in life and now I have to give that up too!!? Where is the fun in my life?! I know, I am taking this rather rough. Well, gotta go, I am off to the doctor. We will see what he says, but I hate going to the doctor!

Monica

jenvan Collaborator
jenvan
Posted

I can not have any caffeine--gives me bad abdominal pains also. I haven't had caffeine in over 10 years. I can't even do caffeine free teas, only herbal. No decaf coffee either.

VydorScope Proficient
VydorScope
Posted

I freely admit I am addicted to caffine, but other htat hta I ahve no problems with it. *sip* :D

zip2play Apprentice
zip2play
Posted

Well is the intolerance because of IBS or Celiac? The way we determined that I didn't have IBS is that when I gave up my Diet Pepsi, my symptoms did not get better!

I have no problem with my daily diet pepsi's! I typically have 2 a day! But I also drink 120 oz of water daily too!

Monica

key Contributor
key
Posted
  • Author

I drink a ton of water too! I am fine for awhile, but I think maybe more of my problem has to do with getting gluten. That seems to be when I have trouble. It is frustrating. I know I have celiac. My son has it and my blood tests were borderline after being gluten free for two months. I get sick when I eat wheat. Anyway, I am wondering if stress plays a role in my symptoms too. I exercise all the time and I really try and eat very healthy, so it is frustrating. THe only thing "bad" I do is drink some caffeine, which is only two diet pepsi's a day or a cup of coffee. IT is frustrating. I know some people don't have any problems with it. Just curious if I was the only one and it seems most people here seem to be ok.

Monica

jenvan Collaborator
jenvan
Posted

this wouldn't apply to your coffee if it was black, but are you always drinking diet or artificially sweetened beverages. artificial sweetners cause GI symptoms in some folks, i can't have it myself b/c of what it does to me... just another thing to think about.

GlutenFreeAl Contributor
GlutenFreeAl
Posted

Never could tolerate caffeine. I get shaky, dizzy, headachey, abdominal pains and D. Doesn't matter if it's from coffee, tea, soda...

I believe it's a combination of IBS and just plain old low tolerance that gives me the side effects. Probably, if I forced myself to down coffee every day, the symptoms would not be as bad.

I feel like a teetotaler too - no gluten, no lactose, no soy, no caffeine and no alcohol! What a loser I am!! :P

danikali Enthusiast
danikali
Posted

GlutenfreeAL, that's how I feel too! And someone else mentioned turning into a rabit......that seems to be me too! So far, I can't have gluten, dairy, soy, nuts, caffeine and most alcohol! After feeling healthy for about 2 weeks straight, I decided to try caffeine again. Just plain black Starbucks coffee, nothing in it. About a half hour after I was drinking it, the stomach aches came on like waves for about an hour. It was horrible. Never again.

thomas3000 Rookie
thomas3000
Posted

Caffeine is a drug!! The body doesn't want it. If you need a boost get some amino acid supplements with some L-tyrosine. Your body obviously doesn't want it, so why drink it? I haven't had caffeine in a year and and half don't care if I ever drink it again.

key Contributor
key
Posted
  • Author

Good for you for being able to kick the habit!@ As for me, I am terrible at quitting. I feel so much better when I am not drinking it for maybe three weeks straight and then for some reason I always fall back into the habit. Usually from a lack of sleep for a night or so and then it is a vicious cycle of being tired and not sleeping well, then more caffeine. Yeah, I don't think the diet soda is very good for me. It is hard for me for some reason. My brother teases me and says I should just quit trying to quit, but I need to for my health. It is definitely affecting my health negativily, so it is time to quit for good. I can't drink decaf coffee for some reason, that really messes up my stomach.

I figure eventually I will have success!

MOnica

Rachel--24 Collaborator
Rachel--24
Posted

Caffiene and alcohol are two of the harshest things on a sensitive gut. If you're trying to heal a leaky gut these will not do you any good at all. I'm thinking I'll do alot better with caffeine and alcohol once I'm healed. :)

covsooze Enthusiast
covsooze
Posted

I can't drink caffeine drinks either, as I get heartburn. But, I don't think it's just the caffeine - tannine (sp?) is also a problem. Interestingly, that's in red wine as well as tea, and red wine gives me migraines. I'm obviously sensitive to both caffeine and tannine. I really miss my tea, and drink fruit/ herbal teas instead. But I have to have them really weak otherwise they cause the same symptoms. Don't know what that's about :huh: But I don't want to end up just having to drink plain hot water if I want a hot drink :(

bklyn Enthusiast
bklyn
Posted

I haven't been able to drink coffee in nearly a year. A few months after going gluten free, I started having stomach pain and nausea and I had to give up all caffeine. I sorely miss it. That was the one cup a day I drank each morning. Now I have to drink herbal tea and it isn't the same. I drink 7up Zero when I want a soda. I don't have any explantation for this (neither does my doc) but since going gluten free, I've had a lot of problems with my stomach. :(

key Contributor
key
Posted
  • Author

Kathy,

I agree, I had six months of being SO much better gluten free and now I have so many problems with my stomach. It is VERY annoying. I had borderline blood results and so it is frustrating. Sometimes I wonder if I wasn't better off before, but I had horrible bloating before, C and D, bruising, exhaustion, etc., but now I am having heartburn, on and off stomach upsets and problems with C. As hard as I try, I should be in peak performance!! LOL! I know it will gett better and I do think that gluten is involved and stress.

THanks for all the replies. AT least I know I am not the only one having to give up my beloved caffeine.

Monica

jerseyangel Proficient
jerseyangel
Posted

Monica--I'm going through the exact same thing as you are right now--except I get D instead of C. The rest, I could have written myself. I guess I have no other choice but to just stick with it and hopefully things will get consistantly better again. I don't know of anything I'm doing wrong. I'm so careful when it comes to CC matters here at home, and I have not eaten out of the house in months. I, of course, do go out, but I have been bringing something to eat with me.

On the subject of caffeine--I can't tolerate it. Even decaf coffee. I do, however drink decaf tea.

slpinsd Contributor
slpinsd
Posted

I haven't been able to tolerate it for a few years now. I always get decaf coffee, but have been pretty ok with sodas. now, if i have any amount of caffeine whatsoever, i feel jittery, shaky, and anxious. this seems to have worsened after going gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748
    Pbaentine
    Newest Member
    Pbaentine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.