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Ugh- This Stinks

VydorScope

By VydorScope
in Coping with Celiac Disease

Recommended Posts

VydorScope Proficient
VydorScope
Posted

First my son get sick, prbly a cold, then Pink Eye, then my wife gets his cold, and you guess it, now has his pink eye! :(

So now Superdad sposed to sweep in and save the day right with trumpts blaring, but NO CAPE (Mr Incredible refernce sorry)! RIGHT!?! UGH So why do I feel like I am glunted!?!? Cant be superdad like this! :( Worse part about it, I ate nothing wrong today! Or in recent memory!. :( Must have been CC somehow. Im starting to wonder about the tupper ware I use for my gluten-free cearel in the AM ( I sometimes have to eat on the road so I put the ceral in a closeable tupper wear container.) I have used it for just about every kind of gluten in the pasta, pasta, bread, cearel, etc. And it has lots of groves from knife cuts in it. ITs been washed dozens od times since though. Is this a possiblity??

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gf4life Enthusiast
gf4life
Posted

Vincent,

I don't know how much contamination you can get from the tupperware, but for my family I didn't want to chance it. I got rid of all of the old stuff (which we had spent a small fortune on) and invested a relatively small amount of money into Gladware. I got a big pack at Costco with all different sizes, plus some really large ones for storing big meals and such. It is disposable, but also extremely reusable. We have reused ours now for 2 years and we always wash them in the top rack of the dishwasher. My husband has a set that he uses daily and has used for over 3 years, even though his sometimes go on the bottom rack of the dishwasher! He has only had to throw out one lid, because it cracked. I feel we have totally gotten our moneys worth. You might want to check into this. You can get a set of 3-5 containers for around $4.

I hope you (and your family) feel better real soon. Are you sure you just aren't geting sick from the same bug the rest of the family has?

And I understand the NO CAPE! Makes you wonder about Batman, Superman and all those other caped superheros. How did they last so long! :huh:

penguin Community Regular
penguin
Posted

Well, I asked my geeky chemical engineering DH who specializes in polymers and plastics,

(his grad research is something about some kind of polymers and drug delivery and it makes my eyes cross :blink: )

Anyway, I asked him about the whole teflon and gluten thing, and I was like, that's not porus enough to hold a gluten protein, right? He said, "oh yeah, gluten proteins can fit in there, but they eventually come out with washing"

I was ready to go out and buy a whole new set of pans (though I love the ones I have, a wedding gift, and only 6 mos old), but he said it would wash out over time and not to worry. Engineers are also notoriously cheap :rolleyes:

unless it's star wars paraphinalia, then they're all over it...

But I digress...

Plastics are about the same, especially if there are knife slices in it and whatnot. Wash it enough, the glutens come out. I have no idea how many times that is, though :P

jerseyangel Proficient
jerseyangel
Posted

I tossed out the old plastics that had scratches and also bought some Gladware in various sizes. We wash them over and over in the dishwasher, and they're still fine. Also, we have a grocery store - Shoprite--that has their own brand of reusable plasticware that is even a better deal. Maybe your local chain has something similar?

mommida Enthusiast
mommida
Posted

Well, Popeye had spinach. <_< Super dad has ... Altoids! :D Or the thought of future Altoids. ;)

Laura

VydorScope Proficient
VydorScope
Posted
  • Author
Plastics are about the same, especially if there are knife slices in it and whatnot. Wash it enough, the glutens come out. I have no idea how many times that is, though :P

Only an engineer would be satified with "enough" as a form of measure :lol:

Can he put a range on it? Like not less then 20 trips through a diswasher? UGh: all my joints hurt, nasues, light headed, ugh had to focus ehough to figure this out. :(

Guest BERNESES
Guest BERNESES
Posted

Vincent- I'm sorry you and everyone else feels so crappy. I know that for me, at one point I was getting glutened mysteriously and light dawned on Pearl Harbor. I realized it was my cookware. It had scratches in it and that was the only thing I could pinpoint. So i got new stuff and haven't had THAT problem again since. Washing gets it out and supposedly a dishwasher sterilizes- but I think gluten knows no boundaries and likes to lurk. I'd just chuck the stuff and buy new ones that are just for gluten-free stuff. Hope everyone feels better soon. Beverly

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VydorScope Proficient
VydorScope
Posted
  • Author
Vincent- I'm sorry you and everyone else feels so crappy. I know that for me, at one point I was getting glutened mysteriously and light dawned on Pearl Harbor. I realized it was my cookware. It had scratches in it and that was the only thing I could pinpoint. So i got new stuff and haven't had THAT problem again since. Washing gets it out and supposedly a dishwasher sterilizes- but I think gluten knows no boundaries and likes to lurk. I'd just chuck the stuff and buy new ones that are just for gluten-free stuff. Hope everyone feels better soon. Beverly

Already reaplced all my bakeware, and all my cookware. Ugh, I need sell more books if this keeps up! :blink::(

VydorScope Proficient
VydorScope
Posted
  • Author

picked up some of the kroger brand of those containers till can afford somthing better....

Judyin Philly Enthusiast
Judyin Philly
Posted
picked up some of the kroger brand of those containers till can afford somthing better....

Vincent-hope your all feeling better soon :( sorry for you. Going to make some p/b bananna muffins. wish i could bring some to you all.

Hugs, judy

VydorScope Proficient
VydorScope
Posted
  • Author
Vincent-hope your all feeling better soon :( sorry for you. Going to make some p/b bananna muffins. wish i could bring some to you all.

Hugs, judy

:ph34r: Sure! Id be happy to try your versoin of them! See ya in an hour? :lol:

Mango04 Enthusiast
Mango04
Posted
:ph34r: Sure! Id be happy to try your versoin of them! See ya in an hour? :lol:

Too bad we all can't compare our versions of the pb bananna muffins. Those are the best :D

Lollie Enthusiast
Lollie
Posted

Hey Vincent,

Sorry all of ya'll are feeling bad! :( Both of my little girls did the cold then pink eye thing last week, and now my littlest is still getting over the goopy eye! :rolleyes: Luckily, of all the germs floating around out there, pink eye is at least treatable and doesn't involve the fever! Hope your feeling better soon, too!

Judy, you have to send me your recipe, those muffins sound like heaven right now.....do you think Texas is too far to get a warm one? :D

-Lollie

tiredofdoctors Enthusiast
tiredofdoctors
Posted

ChelsE: My husband is a Naval Architect (read: engineer). You nailed the engineering personality! "Enough" and "Cheap" -- I was reading this out loud to my husband, and he was howling laughing!!! :lol: We just had this discussion!

Vincent -- sorry you're having such a horrible time. Did like, however, the reference to Mr. Incredible -- in the words of Edna Mode "It's my way or the runway"

Hope everything is in altoids shape soon! :P Lynne

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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