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Funky Vision

NOBREAD4ME

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NOBREAD4ME Rookie
NOBREAD4ME
Posted

my quest to find a cure for my unknown illness, now dx as celiac disease, started with my weird vision problems.

Blurred vision, pressure, crusty feeling, focus difficulties. All sorts of other symptoms too but this is really a pain in the you know what.

Can anyone relate??

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chrissy Collaborator
chrissy
Posted

my son is having these problems, but i haven't been able to get him to spend the money to get tested yet.

christine

Ursa Major Collaborator
Ursa Major
Posted

Yes, I had those same kind of problems before going gluten (and many other things) free. It's much better now than it was. Somehow my vision has changed, though, and I'll have to get my eyes tested. I feel like my glasses aren't quite right any more (and I only got a new prescription 15 months ago).

casnco Enthusiast
casnco
Posted
my quest to find a cure for my unknown illness, now dx as celiac disease, started with my weird vision problems.

Blurred vision, pressure, crusty feeling, focus difficulties. All sorts of other symptoms too but this is really a pain in the you know what.

Can anyone relate??

nobread4me, I exeperience what the doctor called a visual migrane. That was the first sign I went to the doctor for before being diag. w/celiac. Now I know when I have been glutened because my visiion gets weird. My perscription changed also. My doctor is having a hard time understanding the changes. He is not familiar with Celiac and how it relates to vision. Oh, well. The good part is my sight is getting better. Good luck. Stay gluten free and hopefully your vision and other symptoms will go away.

Rachel--24 Collaborator
Rachel--24
Posted

I had all those eye symptoms too. Sometimes it felt like I couldnt move my eyes...like they were stiff and dry. They hurt and for awhile I couldnt drive at night because of sensitivity to lights. I wore sunglasses all the time too. I had blurred vision periodically. They did tons of tests on my eyes but nothing came up and my vision was good. They did a catscan and an MRI and all they could tell me was I had dry eyes and to use drops. The drops intensified the pain. When I went off gluten my eye problems went away. I think my eyes were affected by both gluten and Graves Disease...so while both were occurring at the same time I had unbelievable eye pain like I wanted to die. When the Graves Disease was treated the eye problems were less severe but still there until I went on the diet.

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      - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
    • trents
      Help!

      By trents · Posted

      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.
    • junell
      Help!

      By junell · Posted

      I've been gluten free for 5 years, as well as being intolerant to gluten, my list of intolerances is growing.. from dairy, eggs, soya, yeast, to mushroom, garlic, onion, spinach and quite a few in-between, basically my diet is gluten-free cornflakes, rice, banana, almond milk and fish anything else causes bloating, severe abdominal pain, mucousy diarrhoea, lethargy, muscle and joint pain, kidney pain, headaches, and mouth ulcers. I've been told it's IBS, I think it's more than that... I've been sent to a gastroenterologist who tested for coeliac, if course it came back negative because, as I told him, I haven't eaten gluten for 5 years, he's asked me to eat gluten for 4 weeks and redo the blood test, so I've tried small amounts of crispbread for 3 days and am in agony, I can't do this for 4 weeks and then however long it'll take to recover. Has anyone got any suggestions, and is multiple food intolerances a common side effect of coeliac? I'm struggling! And struggling to be taken seriously 😒 
    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time.  Thankfully he is a fantastic GI, with  a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously!  But I needed my mind to be put at rest as my symptoms didn't seem to go away overnight as I'd hoped they would.  Initially I recall he recommended I went Dairy Free for three weeks, and he told me it would take that time to see an effect.  At that time, even lactose free milk went straight through me, so it is important, I would say, to even avoid that during a Dairy Free trial. My ongoing symptoms were bloating which did respond a bit to that trial.   However, within about 18 months there was a return to a very sore stomach, plus various aches and pains.   It turned out some gluten was sneaking in with my iron supplement (I was buying Floradix instead of Floravital), but I also think the dishwasher, the oven and eating out were contributors, too. Before my numbers normalised (from memory, about eight years!) I had several follow up appointments and a few more tests, but things gradually did get better.  Having read many accounts on this forum over the years, I don't think it is uncommon for symptoms to get a bit worse before getting better, that was certainly the case with me.  Your gut is damaged so you may well have issues digesting other food in the short term. But do try to be as scrupulously gluten free as you can possibly be as a first step, and I'd definitely try a three week Dairy Free trial.   Your villi because they are damaged are not able to create the lactase required to digest dairy at this time so you may well see some improvement if you come off dairy for a while.  Perhaps keeping a food diary of what you eat, where you eat it, whilst a bit onerous to do, will help identify foods that are causing issues.  For a while, apart from oats, I found peas, lentils and soya products hugely aggravating.  Things should calm down.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
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