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Funky Vision


NOBREAD4ME

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NOBREAD4ME Rookie

my quest to find a cure for my unknown illness, now dx as celiac disease, started with my weird vision problems.

Blurred vision, pressure, crusty feeling, focus difficulties. All sorts of other symptoms too but this is really a pain in the you know what.

Can anyone relate??


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chrissy Collaborator

my son is having these problems, but i haven't been able to get him to spend the money to get tested yet.

christine

Ursa Major Collaborator

Yes, I had those same kind of problems before going gluten (and many other things) free. It's much better now than it was. Somehow my vision has changed, though, and I'll have to get my eyes tested. I feel like my glasses aren't quite right any more (and I only got a new prescription 15 months ago).

casnco Enthusiast
my quest to find a cure for my unknown illness, now dx as celiac disease, started with my weird vision problems.

Blurred vision, pressure, crusty feeling, focus difficulties. All sorts of other symptoms too but this is really a pain in the you know what.

Can anyone relate??

nobread4me, I exeperience what the doctor called a visual migrane. That was the first sign I went to the doctor for before being diag. w/celiac. Now I know when I have been glutened because my visiion gets weird. My perscription changed also. My doctor is having a hard time understanding the changes. He is not familiar with Celiac and how it relates to vision. Oh, well. The good part is my sight is getting better. Good luck. Stay gluten free and hopefully your vision and other symptoms will go away.

Rachel--24 Collaborator

I had all those eye symptoms too. Sometimes it felt like I couldnt move my eyes...like they were stiff and dry. They hurt and for awhile I couldnt drive at night because of sensitivity to lights. I wore sunglasses all the time too. I had blurred vision periodically. They did tons of tests on my eyes but nothing came up and my vision was good. They did a catscan and an MRI and all they could tell me was I had dry eyes and to use drops. The drops intensified the pain. When I went off gluten my eye problems went away. I think my eyes were affected by both gluten and Graves Disease...so while both were occurring at the same time I had unbelievable eye pain like I wanted to die. When the Graves Disease was treated the eye problems were less severe but still there until I went on the diet.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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