Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My One Year Follow-up Test Results

jenvan

Recommended Posts

jenvan Collaborator
jenvan
Posted

Hey friends! Just thought I would share... I got back the results from my 1 yearish follow-up biopsy etc. The biopsy and blood work (Celiac panel and liver enzymes etc) are normal! :D So good news there... My question is for any of you who have had a follow-up biopsy. The biopsy itself if normal, there is no scalloping or mosaic pattern upon viewing the SI, however, it is still flat and has lost the folds. My GI said it may always be flat. Anyone else here anything about this? It wouldn't totally surprise me, as I have had Celiac for many many years...possibly my entire life. Thanks !

OH, ps--I plan to get my food intolerances tested again at some point. I will post that info as it may interest some of you... I am treating it as a sort-of experiment in leaky-gut theory :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Jen--Wow--great news about your tests! Way to go! :D Can't help on the follow-up biopsy, haven't had one yet. I am looking forward to your findings regarding food intolerances and leaky gut ;)

elisabet Contributor
elisabet
Posted

Wonderful news,good for you.

as I posted before ,my son s teacher said that she was celiac and after 4 years in a Gluten-free Casein-free diet,she could have them in moderation ,I don t know if she had any biopsy or not but I can ask her and post it here.

best of luck

Jnkmnky Collaborator
Jnkmnky
Posted
Wonderful news,good for you.

as I posted before ,my son s teacher said that she was celiac and after 4 years in a Gluten-free Casein-free diet,she could have them in moderation ,I don t know if she had any biopsy or not but I can ask her and post it here.

best of luck

She could have "them" in moderation... ? Do you mean gluten - in moderation? Just curious. :)

  • 2 months later...
elisabet Contributor
elisabet
Posted
She could have "them" in moderation... ? Do you mean gluten - in moderation? Just curious. :)

Yes she says she can have bread and cheese in moderation.

mart Contributor
mart
Posted

Good news Jen! Hallelujah! You are obviously doing a great job on your diet!

wolfie Enthusiast
wolfie
Posted

That is great news! :)

I am interested to hear about the food intolerance testing and leaky gut as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted
Yes she says she can have bread and cheese in moderation.

How can she have gluten in moderation? I thought that if you had celiac, it never went away. Does she really have celiac or just gluten intollerance? I'm new to this, so if there is hope out there that I can once again enjoy my baked goods (normal baked goods that actually taste good!) that would make me so happy! :D

AmandaD Community Regular
AmandaD
Posted

That's very, very cool Jen - you give me hope for when I have my follow-up biopsy. If I were you I'd just call the doc and have them reiterate what it meant...but sounds like you're doing terrific!

Guest nini
Guest nini
Posted

If you have Celiac, the gluten-free diet is for LIFE. Regardless of if you have no symptoms or lots of symptoms when you consume gluten, you need to avoid it for life. No IF'S, AND'S, or BUT'S about it, even if there are no symptoms when you consume gluten after being gluten-free for a while, you are still doing damage to your insides. Cheating increases your risk of intestinal lymphomas and other autoimmune disorders. Anyone that believes that they can have some every once in a while is decieving themselves. When you have Celiac, the only cure is strict adherence to the gluten-free diet for life. Period.

Judyin Philly Enthusiast
Judyin Philly
Posted

Jen, so happy for your good report

judy

laurelfla Enthusiast
laurelfla
Posted

that's great! i'm so happy for you to get good results!

jenvan Collaborator
jenvan
Posted
  • Author
How can she have gluten in moderation? I thought that if you had celiac, it never went away. Does she really have celiac or just gluten intollerance? I'm new to this, so if there is hope out there that I can once again enjoy my baked goods (normal baked goods that actually taste good!) that would make me so happy! :D

Wow--was surprised to see this thread up again :) Dionnek--as Nisla says, gluten-free is gluten-free for life if you are a Celiac--you won't be able to eat the conventional baked goodies again. However, there are some wonderful gluten-free ones out there! I made gluten-free/cf chocolate chip cookies with the tollhouse recipe that are great!

BTW--I wrote my contact at the Chicago celiac disease Center about my question over recovering intestinal folds... She confirmed that it is unlikely I will ever gain them back, but that the biopsy is still be negative/normal even so. That also makes sense since I have had celiac disease for so long, and am older. Does make me think that a slight absorptive disadvantage will continue b/c of it though...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    2. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    3. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    5. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748
    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.