Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat In Mascara/shampoo


stardust

Recommended Posts

stardust Rookie

Hi, I'm a new member-I finally figured out how to get registered. I am a celiac and also have DH. That is how I found out all about celiac. My wonderful doctor-whom I adore never could make the connection-diagnosed me with Lupus and other things. Finally figured it out-as apparently so many of you have-on the 'net. Today, I went to buy my tried and true ALWAYS have used it mascara--Maybelline waterproof in very black. and just as a habit, which I am NOW in the habit of checking EVERYTHING, I checked it. WHEAT GERM OIL people! I was so -- so...Well, I couldn't decide if I was so happy-or so mad, that I wanted to jump up and down. So I just jumped up and down. Let it flow, I say! I have been fighting with my eyes being so sensitive for so many years--I just thought it was because they are light. NOW I KNOW IHAVE PROBABLY BEEN "GLUTENING" myself everyday for years. Thought I was "Gluten free" for about 3 years now. Foodwise anyway-have caught so many insidious uses in SO many foods!!! Then last month--started getting sick-and just couldn't figure it out-hadn't eaten out anywhere. Well, I had run out of hair conditioner, and like anyone else, grabbed the next bottle on the shelf without reading it. Well, hydrolyzed wheat protein-duh. Clairol Herbal Essences for dry damaged hair. Took me 3 or 4 days to figure it out and by then was already getting the rash!!! I mean, am I so extraordinarily sensitive? OR what? It's only on my HAIR for 20 seconds- and then I rinse it out right?? Well I'll never do it again! I got to where I could barely put food in my mouth before it started to feel like I would pass out, or was having a panic attack!! TERRIBLE.

I am so glad I am now able to share on this forum. This info may already be on there somewhere, but I haven't read all of it, and wanted to share what I DO know. Even 3 years going-and my motto is "IF I CAN"T READ IT-I DON"T EAT IT!" even so, I still get glutened. So NOW i guess my motto is "IF I DON"T READ IT-I DON"T EAT IT-WEAR IT-SMOKE IT-BREATHE IT-BE NEAR IT!" (I say "smoke it or breathe it" because I have had reactions to off brand cigarettes, as well as dust from stripping wallpaper in our old house. (WHEATPASTE-JUST DID NOT THINK ABOUT IT WHEN WE were so exited about remodeling!!) It's EVERYWHERE people. I'm glad there is a place to share information like this. Thank God we live in an age where technology illuminates what could be a dark and isolated existence-trying to be gluten-free. Gratitude for everyone who shares, prayers for everyone affected.. Dove


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deej Newbie

I'm going simply nuts, too. I only realized recently, with an outbreak of some weird rash, that I might have a problem. I found this site today and started reading about cosmetics and shampoos. My husband and I have spent the entire day reading labels - Herbal Essence is what I've been using and it's got wheat in it! We've thrown out a mountain of bottles today and tomorrow I'm going shopping.

I'm finding that Proctor and Gamble products and websites are almost devoid of information on ingredients. It's so maddening. :angry:

I wonder if anyone can tell me if Covergirl mascara is safe?

And what about a deodorant? I've been using Dry Idea.

I was so grateful for the list of safe Neutrogena products. They're getting my patronage.

Lisa Mentor

Welcome to the forum, both of you. You both seem to have the right program and progress. It is always difficult to begin and it is truely overwhelming.

I use Dove shampoo and conditioner. Many people here use MAC make-up. Do a search on this site and pick up some of the posts. I use Clinique lip stick. I would suggest e-mailing Clinque and get their list. Deodorant has not been an isse for me, but I use Dove with no problem as it has little contact with my mouth, but have not check on ingredience.

You guys seem to have a good handle on things, but if you have further questions, that's what we are all about. Ask on.

Lisa

Guest Robbin

Yes! I knew I was having trouble with the maybelline--itching, burning, etc. --I think they changed the formula. I used it for years with no problem, however I was also eating gluten and so messed up, I couldn't differentiate what the whole picture was. Now, I am gluten-free and each time I get glutened, I am sooooo sensitive to it. Can anyone recommend a haircolor that is good? I need gray coverage and have dark auburn brown hair? I am afraid to go to the salon and use their stuff, but if anyone can recommend a product the salons use--so I can recommend it to my beautician? I can buy something at the outlet and take it to her. I get blistery sores on my scalp when I use any product with gluten.

penguin Community Regular

Just so you know...Clinique and all related companies (estee lauder, origins, and a few others) will list glutens in their ingredients in plain language, except for using the scientific names for wheat and oats)...

I asked them about the specific products I use (clinique):

Dear Ms. Chelsea,

In response to your email, Work Out All Day Makeup, Stay Matte Pressed

Powder, Water Resistant Eyeliner and Lash Doubling Mascara all do not

contain glutens.

We trust that this information is helpful to you and are glad to have been

of assistance.

Sincerely,

Darin Stechman

Global Consumer Communications

stardust Rookie
Yes! I knew I was having trouble with the maybelline--itching, burning, etc. --I think they changed the formula. I used it for years with no problem, however I was also eating gluten and so messed up, I couldn't differentiate what the whole picture was. Now, I am gluten-free and each time I get glutened, I am sooooo sensitive to it. Can anyone recommend a haircolor that is good? I need gray coverage and have dark auburn brown hair? I am afraid to go to the salon and use their stuff, but if anyone can recommend a product the salons use--so I can recommend it to my beautician? I can buy something at the outlet and take it to her. I get blistery sores on my scalp when I use any product with gluten.

Robbin

I am so happy I could cry. Thank God for this site. Thank God we have each other. (All of us) I am like you, just about the time I think I've got it figured out-I get zapped. As you said, instead of getting LESS sensitive as time goes by, which would make sense I get MORE AND MORE sensitive. It kind of worries me, and I wonder how bad it will get. Plus it's frustrating, thinking O.K. I'm so restricted in my diet, and now I have to take this other whole family of stuff out? What the hell am I gonna eat? I MAY be having trouble with corn too, although I have not tried to exclude it for long. It's tough!

I do not have a clue as far as haircolor, How much must wheat take from us? Maybe we should stay cavemen!! They didn't care if the women shaved their legs everyday or had full lips or if their hair was gray!!Who made up these standards anyway?? NOT WOMEN!! They also never paid taxes to a government that let them eat junk that was bad for them without telling that it was. Even BHT--the preservative is actually a TOXIN. Of course in small amounts, they figure it won't hurt you. Well if you eat cereal, shredded cheese, and bread all in the same day, you've gone over the allowable limit. RED # 40 is BANNED in France Germany Switzerland and other countries--but it's ok for us? Go figure. Enough venting. Good luck with your hair color. If not, Just go au naturel! Gray is probably the new black anyway!! :rolleyes: Stay Healthy! Dove

ravenwoodglass Mentor
Yes! I knew I was having trouble with the maybelline--itching, burning, etc. --I think they changed the formula. I used it for years with no problem, however I was also eating gluten and so messed up, I couldn't differentiate what the whole picture was. Now, I am gluten-free and each time I get glutened, I am sooooo sensitive to it. Can anyone recommend a haircolor that is good? I need gray coverage and have dark auburn brown hair? I am afraid to go to the salon and use their stuff, but if anyone can recommend a product the salons use--so I can recommend it to my beautician? I can buy something at the outlet and take it to her. I get blistery sores on my scalp when I use any product with gluten.

I use Loreal Casting Colorspa, that's a temp color. I believe the rep also said that Preference is also gluten-free and she mentioned at least 1 other permanent color that they make that is gluten-free, I wish I had written them down but they were very helpful over the phone, they didn't just tell me about the box I had in my hand. They are the only company that I have found that I can use as far as haircolor goes, the others all add wheat or wheat germ oil. I do make sure that ALL my DH sores are healed before I color.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Stardust--I know what you mean about the Maybelline Mascara--I used it for years, then when I had to begin to read labels, I saw the wheat germ oil :angry: . I now use Bare Escentuals Mascara. In fact, all the makeup I use now is from them. Almost all of their makeup products are gluten-free. (they have a skinCARE line that is not, though). Also, if you haven't come across this product line in your searches, I use shampoo, conditioner, soap and lotion from The Gluten Free Savonnerie (www.gfsoap.com). The stuff is free of gluten, soy, casein, nut, fragerance and colorants. Good customer service, too!

Deej--I use Secret Solid Unscented Deodorant--I was told by a rep. on the phone that it was gluten-free--she said that the scented ones are the ones that could be suspect.

Robbin--I use Loreal Feria Haircolor. I called and was told that it was safe. I have some gray--certainly less than 50%. It works well, and has a little vial of highlighter that you mix with the color before application. My natural color is a medium/dark brown--I use the Bronzed Brown and love that it is very natural looking with a little extra highlight/gloss.

Welcome to all of you--this board is an absolute wealth of information and support! Feel free to ask anything (and I do mean anything) :D

Deej Newbie

Thank you all so very much. I have been on a gluten free diet for nearly ten years but have had odd problems off and on. I am pretty well educated about foods and meds and we are very careful shoppers.

However, I change personal care products from time to time so one of them in use now may be causing this rash. It wouldn't have occurred to me if I hadn't visited this site and I'm willing to make any changes necessary to live a gluten free life (not just have a gluten free diet).

I really appreciate all this information. Thanks!

Guest Robbin

Patti--You just gave me all the information I have been looking for!!! Thankyou!! I have about 15% gray, but it is all in the front and my hair is so dark that it really looks baaad. I never knew that there was a company that was devoted to gluten free soaps! yay! :) Will check it all out! My hubby has a lot of gray, but of course, graying at the temples in a nice silvery color that looks -o-so-distinguished, and I just look o-so-old!!

Suzola Newbie

I use soap and shampoo from gluten free savoinere (gfsoap.com). I have used Tom's of Maine in the past but they have started using wheat in somethings. I prefer to go the route of "no contaminatio possible". Use Lavera brand mascara, though most cover girl is fine too.

Guest BERNESES

Stardust and Deej- Welcome! Glad you are here. This place is ancredible wealth of info. The cosmetic thing (and the food thing) really bums me out too because gone are the days of "oh- I like that color, think I'll buy it."

I'll share my beauty secrets with you (Yes- that was VERY tongue in cheek) :P . i use some Bare Escentuals stuff (you can get them online at sephora.com). A little pricey but all gluten-free as far as the makeup goes. I love the Mineral Veil.

If you have a CVS, they carry Lumene and all of Lumene is gluten-free EXCEPT the hydra-drops line which contains oats. It is clearly listed. I use their blush, mascara and eyeliner.

I've had pretty good luck with L'Oreal and Lancome (smae company I think). I use lancom's Dual Makeup/powder.

I use L'Oreal concealer. Never had a problem with L'Oreal lip gloss or lipstick either.

For body products- I am ADDICTED to Burt's Bees. I use their Baby Bee lotion, their lip shimmers (they taaste like peppermint and come in a bazillion shades), their toner, and they just started making shampoo and conditioner. Giovanni (I get it at a health food store) makes good shampoo and it's gluten-free.

Dove is good as it will clearly list any ingredients- I use their deodorant.

Neutrogena is good- I use a lot of their shampoos and conditioners which will also clearly list gluten. I also use their body washes too.

For hair color- L'Oreal (just double check). I use their highlighting kit no problem. Ii also believe I read that Garnier Nutrisse haircolor will list gluten as well.

That's all I can think of for now but if I think of anything else, i'll post it.

Two words- Burt's Bees- to die for!

  • 2 weeks later...
Deej Newbie

Well, my quest for a gluten-free life has moved forward. I've spent many (frustrating) hours on product websites and at the pharmacy reading labels. As a consequence, I've made a decision: I will not buy personal care products that do not list ingredients. I've thrown out a mountain of bottles and jars (it's scary how much "stuff" we put on our bodies) and bought only products I found recommended here or where I could find ingredients on the labels.

Proctor and Gamble have lost my business. I didn't realize how many of their products I was using but NONE of them list ingredients. So out it all went.

I bought Garnier Fructose hair products (I tried Neutragena but it didn't work for me), L'Oreal face cream, a Covergirl foundation and Lubriderm lotion and Secret deodorant. I think (I wish I was 100% certain) that all of this is now wheat/gluten-free. If anyone thinks I've gone wrong, I'd appreciate you letting me know.

This site has been a tremendous help to me. Thanks!

Rusla Enthusiast
I'm going simply nuts, too. I only realized recently, with an outbreak of some weird rash, that I might have a problem. I found this site today and started reading about cosmetics and shampoos. My husband and I have spent the entire day reading labels - Herbal Essence is what I've been using and it's got wheat in it! We've thrown out a mountain of bottles today and tomorrow I'm going shopping.

I'm finding that Proctor and Gamble products and websites are almost devoid of information on ingredients. It's so maddening. :angry:

I wonder if anyone can tell me if Covergirl mascara is safe?

And what about a deodorant? I've been using Dry Idea.

I was so grateful for the list of safe Neutrogena products. They're getting my patronage.

I use Tom's natural deoderant but I am also starting to make my own. I make all my own shampoo's, soaps, fabric softener, I am now working on makeup. I am so sick of finding wheat in everything, now I know it will be safe because I know what is in these things.

Guest BERNESES

Rusla- That's awesome. When you come up with your own line let us know! It would be great to have custom made body products. Or if you want to share how you do it, that would be great. :rolleyes:

I too will NOT purchase anything (body/cosmetic wise) that does not list ingerdients. when I first went gluten-free I gave away a lot of my stuff to friends because I wasn't going to touch it. Some companies that clearly list gluten are Neutrogena, Dove and Burt's Bees. I absolutely love Burt's Bees and it's been popping up everywhere lately- even my local New hampshire grocery store has a huge rack of their products (including makeup).

marypelly Newbie
Rusla- That's awesome. When you come up with your own line let us know! It would be great to have custom made body products. Or if you want to share how you do it, that would be great. :rolleyes:

I too will NOT purchase anything (body/cosmetic wise) that does not list ingerdients. when I first went gluten-free I gave away a lot of my stuff to friends because I wasn't going to touch it. Some companies that clearly list gluten are Neutrogena, Dove and Burt's Bees. I absolutely love Burt's Bees and it's been popping up everywhere lately- even my local New hampshire grocery store has a huge rack of their products (including makeup).

Does anyone know if Mary Kay products have gluten in them? Preferably the make up and skin care line?

I have been using it for over 20 years and so far it has not bothered me...but I am curious if anyone knows.

Mary Pelly :ph34r:

Felidae Enthusiast
I use Tom's natural deoderant but I am also starting to make my own. I make all my own shampoo's, soaps, fabric softener, I am now working on makeup. I am so sick of finding wheat in everything, now I know it will be safe because I know what is in these things.

I use Tom's deoderant too. I've got my husband hooked on it now too. Let me tell you, if it works for me, it'll work for anyone.

Rusla Enthusiast
Rusla- That's awesome. When you come up with your own line let us know! It would be great to have custom made body products. Or if you want to share how you do it, that would be great. :rolleyes:

I too will NOT purchase anything (body/cosmetic wise) that does not list ingerdients. when I first went gluten-free I gave away a lot of my stuff to friends because I wasn't going to touch it. Some companies that clearly list gluten are Neutrogena, Dove and Burt's Bees. I absolutely love Burt's Bees and it's been popping up everywhere lately- even my local New hampshire grocery store has a huge rack of their products (including makeup).

I will let you know. I am not a chemist but I will keep doing it till I get it the way I like it. They are not tested on animals, just on me. :D

Does anyone know if Mary Kay products have gluten in them? Preferably the make up and skin care line?

I have been using it for over 20 years and so far it has not bothered me...but I am curious if anyone knows.

Mary Pelly :ph34r:

I could never use Mary Kay, of course I have very sensitive skin and tons of allergies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.