Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Happened?


penguin

Recommended Posts

penguin Community Regular

I was doing so well these last two months, the D was virtually gone, I wasn't getting the crawly heartburn feeling that made me sit up really straight, and I didn't have pain...

And now, my stomach is starting to feel like it's digesting glass again, though I doing a decent job of keeping it at bay, at least until I get home from work. It hurts to eat or drink anything, I get a pain in the middle of my back every time I swallow. Now, I just had probably the most significant D I've had since starting the diet. Sorry for detail, but it looks like I'm not digesting again (spinach in my eggs at breakfast came out the exact same way they went in). And the D is a lovely color of strained squash. (sorry again) WHAT THE HECK!! :angry:

Sometimes I wonder if this diet is helping me at all, and then I remember what happens when I get glutened and how I was *finally* having some normal bm's after 3 years.

What's going on? I think it has something to do with the Tequin (antibiotic) I was on for cellulitis last week, it seems my stomach hasn't been "on" since. Not to mention all of the gluten-free alcohol and the cc glutening on Sunday. I was fine yesterday though, except for the pain in my back. I haven't had these problems with glutening before. I'm drinking a lot of water today (trying to get back in the habit), would that have something to do with the D?

Help! Please, what's going on? Is it normal to have a "flare up" after a while on the diet? Any thoughts?

Thanks...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Chelsea--Sorry you're feeling crummy :( --a similar thing happened to me. After I went gluten-free last June, after getting the diet and everything else in place, I had several months where I felt good--I thought if I just kept doing this, I'd be fine. Well...around mid December, some of my old symptoms came back--D, brain fog, nausea, painful digestion. I also began experiencing reflux for the first time, ever. I was not doing anything different. For me, it has taken until recently to figure out I began to react to rice and other grains and starches. This is in addition to the other intolerances I already was aware of. In your case, the antibiotic could very well have a hand in it. I doubt that drinking the extra water has a lot to do with the D--except it could be helping by "flushing" everything along a little faster. Have you given any thought to other foods that may be becoming a problem for the first time? I know (from experience, and reading here) that when a person is gluten-free, other intolerances can show up. Hope you get to the bottom of it soon--does not sound like fun :angry:

eleep Enthusiast

One possibility: antibiotics really mess with your digestive system -- they kill the "good" bacteria in your intestines. I recommend a probiotic supplement -- or at least plain yogurt with some live cultures. The probiotics seem to be more powerful, though, and they've been recommended for healing celiacs. You'll probably want to keep replacing that bacteria for a while -- but I'm not an expert on this.

jenvan Collaborator

How much alcohol? Are you drinking fairly frequently?

penguin Community Regular
How much alcohol? Are you drinking fairly frequently?

Haha, no. I drink too much maybe once every four months, if that. Maybe an occasional glass of wine or margarita inbetween, I'm not a big drinker. My dad and uncle both died of alcoholism and drug abuse, so I generally stay away from it.

Last weekend I was at a bachelorette party at a ladies-only club (I think you know what kind I mean ;) ) and drank appropriately. I was pretty much fine the next day, pretty sure I wasn't glutened at the club but I WAS glutened at breakfast.

My stomach doesn't like alcohol much anyway, especially too much, but those affects are usually gone within a day. I think that might be part of my reflux problem I'm having right now.

Carriefaith Enthusiast

I was sick off and on like that for about six months on the gluten-free diet. My symptoms started improving after six months, but I never really felt 100% better until approximately one year after I started the gluten-free diet. There were problems during my first year on the diet, such as dairy and the fact I was eating gluten-free Humpty Dumpty chips that were contaminated <_< But, I really think that I needed that long to heal.

plantime Contributor

It sounds to me like a combination of the glutening on Sunday and the antibiotic. I agree with probiotics or live-culture yogurt to restore balance, and lots of water. I hope it passes quickly for you, so you can start feeling better again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

I am eating yogurt, I try to at least once a day, but I don't know if I'm getting enough cultures. I'm eating Cascade Fresh yogurt (btw, the green apple pie flavor rocks!), which has 8, but I didn't eat any over the weekend. I think I'm going to go the probiotic route and see if that helps.

As far as I know, my only food problems are gluten and tree nuts (oral allergy). Well, and a glass of milk bothers me, but not yogurt or cheese. I think it's the temporary lactose intolerance thing. I'm kind of approaching this as "one crisis at a time" and worry about other intolerances once I have the gluten-free thing down pat.

mookie03 Contributor

Chelsea- I've been there too, i think we all have. for me, i think it was a bad rxn to getting glutened where my body just took a little extra time to get back to normal-- sometimes when i am glutened, its a one shot deal, sometimes its a little worse and my body will react to EVERYTHING for the next week or two. And just like you described. Hang in there, and u should feel better soon. And i agree that antibiotics are VERY hard on the tummy, so see how you feel when you are off them too. I think u are doing everything right, it just takes some time :)

mart Contributor

Chelse, sorry you feel so sick. By your description, I can now understand what my poor 7 year old son goes through. Though he's been gluten-free for almost 8 months now, he still feels the same way from time to time. And it is so frustrating because I know he's not getting cross contaminated. I've devoted my life to feeding this child. I even take his lunch to school and feed him outside on a bench rather than risking the contamination of the school's cafeteria. I guess what Carriefaith says is true. Maybe it justs takes about a year to get all better. I agree with the others that the antibiotics may have played a hand in this (gluten-free or not). I always get D when on antibiotics. Anyway, hang in there...this too shall pass!

key Contributor

Chelse,

THe same thing happened to me, exactly. For me though, I think I was getting small amounts of cross contaminated food. I have felt better now that I quit eating certain things with a risk for CC. I have felt great for two weeks finally and I am thrilled!! I was having horrible heartburn and went on prilosec.

ONe thing I can say, is that if I am gluttened my digestion can suffer for days afterwards.

HEre are some things I think I was gluttened from. Kettle chips, Bob's Redmill Mighty Tasty hot cereal, my lipstick. Also I gave up coffee, which seems to have helped and I gave up tea. I didn't give up all caffeine. I still drink mountain dew some. I think you have mentioned being gluttened by these products. I don't know what else to tell you to try. I did start taking something called Bone Up from Jarrow Formula's and I am taking a different probiotic by Natural Factors. I also gave up the Stonyfield Farms yogurts and I don't eat out.

The description of undigested food, This has happened to me after being gluttened badly several times. Very gross. AFter that I end up with C and all sorts of digestive issues.

I am happy to report I am feeling much better lately. Actually great! So there is hope and I know alot of others have had this same experience. I don't fully understand it. I felt great for like 4 months before it started with me feeling worse. I was almost sorry that I had gone gluten free, but I forgot how nasty I felt before. Being gluttened is an aweful reminder that I didn't have a choice! Definitely I think our bodies become more sensitive to gluten the longer we are gluten free.

I have not given any more grains up or dairy and I am fine with these things, as long as I haven't been gluttened and there is gluten in them of course.

Monica

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    3. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

    4. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

    5. - Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      I am not aware of an air detector for gluten, but Nima Partners sells a device that can detect gluten in minutes in a small sample of a meal or food that you eat. They are also a sponsor here for full disclosure: https://nimanow.com
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.