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kessea

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kessea Newbie
:D Hi I am new here and just getting started. I am so happy there is a support group!

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carriecraig Enthusiast

Hi, and welcome! Look forward to speaking with you through this board.

jerseyangel Proficient

Hi Kessea--Welcome! So glad you found us. Hopefully, you've had a chance to read through some posts, and come away with some useful information. This board is an absolute wealth of info. on everything from the gluten-free diet to dealing with friends and family about the disease. Feel free to jump in with questions or suggestions--there's a great group of people here and there's not much we don't discuss! :)

Rusla Enthusiast

Hi Keesea,

Welcome to the board. This is a great place to learn and not feel alone. Great support here we are like an extended family who know what you are going through.

RoseNNJ Apprentice

Welcome Keesea! And Welcome to anyone else I missed :):)

mouse Enthusiast

Welcome Kessea. You will gain a lot of useful information to help you along this gluten-free path. We also consider that there are no dumb questions. Sometimes we have a kind of sick humor and that is how so many of us cope with this so hopefully you will not be offended. Again, WELCOME.

KaitiUSA Enthusiast

Welcome to the board...I am sure you will find everyone very kind and helpful. Feel free to email me with any questions...nothing is too dumb to ask. It gets so much easier when you learn the ropes.


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TCA Contributor

Welcome! This board is a LIFESAVER, as you will soon find out. Let us know what you need!

whitball Explorer
:D Hi I am new here and just getting started. I am so happy there is a support group!

Welcome kessea! I am new also and I have found alot of valuable info on this site. The support has been awesome!

Tara

Stardust Valerie Newbie

Hi I am a new member too. I have been reading this board for a while. There is wonderful information and support here.

My husband and children were diagnosed with celiac disease and mine is an intolerance. We were diagnosed March of this year.

tiredofdoctors Enthusiast

Welcome Kessea and Stardust Valerie! I know you will be so happy that you found this forum. I have not had my computer for awhile, and I didn't realize how much I relied on this group for support, information, lots of laughs, you name it! This is a group of truly amazing people. Just wait, you'll see . . . . . ! Lynne

flagbabyds Collaborator

Welcome, we might seem a little weird in some posts, but this is a very good resource.

Sis Rookie

Welcome. I am new to all of this as well. look forward to talking with you on th board.

Sis

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    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
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