Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
Donna, so glad your test came out GOOD! :) i did not know of anyone having a stomach polyp, is there any concern about that? I suppose we with celiac can expect most anything since it is a bit wierd the way we cope with it!! :huh:

Thanks evie, how are you feeling? They did remove a stomach polyp on my first scope and it was biopsied, but that did come back benign...don't know what causes them in the stomach, but the doctor wasn't concerned at all about it...course I think he had this mass on his mind when I was talking to him--he didn't even mention the polyp except in passing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
VydorScope Proficient

Thats great Donna!!!

jerseyangel Proficient

Hey Celia--We understand completely!!! Enjoy that baby (I love that age :D ) and R'ville will be here waiting when you get back. :lol:B)

dlp252 Apprentice
all I see are those toothless gums all the time :lol:

Kind of like the smilie you used! :lol:

AndreaB Contributor

Babies are so precious! Glad you get to enjoy her. I still have a gummy smile since Seth hasn't broken out with his first tooth yet. :)

penguin Community Regular

There hasn't been a post on here in 30 minutes! How'd we let that happen?!?!

Um - question:

I'm beginning to have my mystery stomach muscle spasms (gluten-free or not, they're still there about every month) again, and I'm feeling really flushed. Like that's new, but my face feels hot. Anyway, I went to the b-room to check it out, and even through my glorious BE makeup, I could see the flushing on my cheeks, but the wierd thing is that it was totally symetrical. That's not necessarily wierd, but there's a dime-sized kind of triangular red spot on each cheek below the main area of flushing. It's horizontally on the same latitude as the top of my lip, and vertically in line with the outer edge of my eyes. WTF is that about?

I wonder if I flush like that every time my stomach hurts? :huh:

Mayflowers Contributor

Must be that air allergy kicking in... lol :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast
my Ana is such a sweety (she's 4 months old)...all she does is laugh at me.... all I see are those toothless gums all the time :lol:

what? no...laugh at you? How could she possibly laugh at you....I mean, are you known to be funny or something?

;):lol:;)

Chelsea - yah, definitely the air allergy, or the water.... ;) But seriously, I have no idea what would cause that weird cheek flush spot issue....someone from our cult farm will surely pipe in with some knowledge, though.

Yeah, where is everybody today.....so quiet in R-ville - - the dingos are getting restless...

Donna - - was that your Vater of something-or-other that they tested? Yay!

jerseyangel Proficient
There hasn't been a post on here in 30 minutes! How'd we let that happen?!?!

Um - question:

I'm beginning to have my mystery stomach muscle spasms (gluten-free or not, they're still there about every month) again, and I'm feeling really flushed. Like that's new, but my face feels hot. Anyway, I went to the b-room to check it out, and even through my glorious BE makeup, I could see the flushing on my cheeks, but the wierd thing is that it was totally symetrical. That's not necessarily wierd, but there's a dime-sized kind of triangular red spot on each cheek below the main area of flushing. It's horizontally on the same latitude as the top of my lip, and vertically in line with the outer edge of my eyes. WTF is that about?

I wonder if I flush like that every time my stomach hurts? :huh:

I get the hot face/flushing--but not as much as before. I know you were looking through your makeup, but I also thought of the "butterfly rash" that people with Lupus describe. Did it look anything like that?

AndreaB Contributor

Blame the thread about how we get anything done if we're on here all day. :P

I'm trying to limit myself but not doing such a good job of it. :o

A/C is running overtime so we are cool. :D

Chelsea,

I don't know either....hopefully some one else will.

Camille'sBigSister Newbie
Wow....busy night here in RVille

First off...Geese would make LOUSY cattle gaurds. They would keep flying away, and are obviously WAY too busy keeping us all safe to guard the cows!! :lol::lol:B)

No, no, NO, darlin'! You must understand: Our geese are miraculous and multi-talented!!!!! They LOVE guarding our cows, and would never dream of flying away unless their charges were safely ensconced in our barn!!!!! SEMPER FI - That's our geese! ;););)

Cissie

Minister of Defense, in charge of The Miraculous, Protective, Auxigro-Detecting Geese

penguin Community Regular
I get the hot face/flushing--but not as much as before. I know you were looking through your makeup, but I also thought of the "butterfly rash" that people with Lupus describe. Did it look anything like that?

Yeeeah, I thought butterfly rash, too. Although, it doesn't really go across my nose, my nose is just a little more pink, if that makes sense. I'm taking off my makeup now (I knew having the supermom stuffed purse would come in handy :lol: ) so I'll give it some time and see how it looks without makeup.

What with that, and the wierd totally random rashes...I don't know what to think! :unsure:

Of course, my hair isn't falling out, I'm anemic yes, but my platelets are high, not low. I'm gaining weight, not losing it...

And whatever this stomach spasming thing is about, it's definitely what I would describe as a flare. A flare of what, I do not know. Acidic food, bland food. Gluten, no gluten. Prilosec, no prilosec. Bentyl, no bentyl. Bentyl doesn't even touch it. I have to take a phenergan suppository and knock myself out to try and get rid of it. For some reason, in spite of multiple ER trips and lots of narcotics, nobody's really tried to figure out what the heck it is!!! I guess I'll ask the GI to poke around my stomach while he's in there getting biopsies.

Geez...celiac and lupus, wouldn't that be fun! <_<

mle-ii Explorer
There hasn't been a post on here in 30 minutes! How'd we let that happen?!?!

Um - question:

I'm beginning to have my mystery stomach muscle spasms (gluten-free or not, they're still there about every month) again, and I'm feeling really flushed. Like that's new, but my face feels hot. Anyway, I went to the b-room to check it out, and even through my glorious BE makeup, I could see the flushing on my cheeks, but the wierd thing is that it was totally symetrical. That's not necessarily wierd, but there's a dime-sized kind of triangular red spot on each cheek below the main area of flushing. It's horizontally on the same latitude as the top of my lip, and vertically in line with the outer edge of my eyes. WTF is that about?

I wonder if I flush like that every time my stomach hurts? :huh:

How about Niacin (B-3) flushing? Are you taking that?

Rachel--24 Collaborator

Donna,

Awseome news today!!! I'm so happy for you. No more Endo's...no surgeries!!! YAY!!! :D

rinne Apprentice

Donna, that is wonderful news.

Robin, congratulations on letting go of misery.

Julie has a regal beauty and a regal grace in her postings, definitely Queen material. I agree but does this mean we are going to be looking for a King? :ph34r: I'm definitely leaning in the direction of a matrilineal succession. :lol:

Patti, I'm glad to hear the spring water is working for you. I am using Aquafina but ran out, was on the road, etc. and so have not been consistent.

Andrea, what an amazing job you are doing keeping track of all the positions, thanks.

Chelsea, how does it look with your make-up off? Is this a new make-up for you?

Rachel, I know that overall I can't handle dairy but there were a couple of times I had some strawberry ice cream and it didn't seem to bother me as long as I didn't over do it. I will say though that after reading the DrJ articles on wheat, dairy and soy I will make the effort to avoid dairy from now on. Oh, and soy too.

Mango, I will look forward to hearing about your down under adventures.

Celia, I can feel your happiness, how wonderful.

And Vincent, yes we need an official rulebreaker though don't be surprised to find yourself surrounded by unoffical rule breakers. :lol::lol:

Jean-Luc Rookie

Well we will have a new arrival in December to Rachelville. An ultrasound was done today, so ....

A bouncing baby girl! Am I in trouble! :lol::P:D

Camille'sBigSister Newbie

Hi, Y'all!

I'm all caught up on the posts, and trying to remember who said what, without quoting your individual posts.

PATTI - Is your Poland Springs water flat or with bubbles? (I can't remember what the fizzy water is called.) The only kind I've found here in Georgia is the bubbly kind, and I don't like it.

RACHEL - I think you're absolutely right about ice cream!!! :) I used to think I was lactose intolerant, but after I learned about MSG and all the other crap that's in ice cream, I found some that's junk-free. Yea! Thanks to this incredible string of yours - No problems!! :):):)

JULIE for Queen - I vote aye!

DONNA - I'm so happy to hear your good news about benign biopsies!!! You must be on Cloud Nine! :D:D:D

CHELSEA - Hmmm . . . Flushing and spots? Reaction to MSG, red wine, niacin, or anti-biotic? My niece has the same symptoms if she drinks red wine. :( I think the butterfly rash of lupus goes across the bridge of the nose, and you said you didn't have that. Oh, and how about rosacea?

Cissie

AndreaB Contributor
Well we will have a new arrival in December to Rachelville. An ultrasound was done today, so ....

A bouncing baby girl! Am I in trouble! :lol::P:D

Congratulations Picard!!!! I love babies, I do hope you'll share a picture.

And yes, I think you are in trouble. :lol::P:D

When the due date....my daughter was born Dec 22.

Jean-Luc Rookie
Congratulations Picard!!!! I love babies, I do hope you'll share a picture.

And yes, I think you are in trouble. :lol::P:D

When the due date....my daughter was born Dec 22.

Thanks due date is December 8.

Too many women in my family.

rinne Apprentice
Well we will have a new arrival in December to Rachelville. An ultrasound was done today, so ....

A bouncing baby girl! Am I in trouble!

Congratulations Picard to you and your partner, what wonderful news.

VydorScope Proficient

I am SOOOOOOOOO happy we had a son. I would not know what to do with a baby girl. :huh:

DingoGirl Enthusiast
Thanks due date is December 8.

Too many women in my family.

Congratulations Picard!

I'm December 9th...close to Christmas but not too heinously so.....

penguin Community Regular

Congratulations, Picard!!!! You can never have too many women in the family :)

Not that I'm biased...

I just "took" some phenergan, so I'll be passing out and become incoherent pretty soon. Doesn't take that long to get from the butt to the head :rolleyes:

Yeah, still don't know what it is, my mom is both worried and at a loss. This has been going on a long time and robs me of at least a day's worth of spoons. :(

OK, I'm done whining :unsure:

VydorScope Proficient
Congratulations, Picard!!!! You can never have too many women in the family :)

Not that I'm biased...

I just "took" some phenergan, so I'll be passing out and become incoherent pretty soon. Doesn't take that long to get from the butt to the head :rolleyes:

Yeah, still don't know what it is, my mom is both worried and at a loss. This has been going on a long time and robs me of at least a day's worth of spoons. :(

OK, I'm done whining :unsure:

I'd be happy to give you a spoon.... if I just new how! *hugs*

Camille'sBigSister Newbie
Julie has a regal beauty and a regal grace in her postings, definitely Queen material. I agree but does this mean we are going to be looking for a King? :ph34r: I'm definitely leaning in the direction of a matrilineal succession. :lol:

I'm definitely leaning in the same direction!!! :lol::lol::lol:

Cissie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

    2. - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    3. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    5. - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.