Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
Donna, so glad your test came out GOOD! :) i did not know of anyone having a stomach polyp, is there any concern about that? I suppose we with celiac can expect most anything since it is a bit wierd the way we cope with it!! :huh:

Thanks evie, how are you feeling? They did remove a stomach polyp on my first scope and it was biopsied, but that did come back benign...don't know what causes them in the stomach, but the doctor wasn't concerned at all about it...course I think he had this mass on his mind when I was talking to him--he didn't even mention the polyp except in passing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
VydorScope Proficient

Thats great Donna!!!

jerseyangel Proficient

Hey Celia--We understand completely!!! Enjoy that baby (I love that age :D ) and R'ville will be here waiting when you get back. :lol:B)

dlp252 Apprentice
all I see are those toothless gums all the time :lol:

Kind of like the smilie you used! :lol:

AndreaB Contributor

Babies are so precious! Glad you get to enjoy her. I still have a gummy smile since Seth hasn't broken out with his first tooth yet. :)

penguin Community Regular

There hasn't been a post on here in 30 minutes! How'd we let that happen?!?!

Um - question:

I'm beginning to have my mystery stomach muscle spasms (gluten-free or not, they're still there about every month) again, and I'm feeling really flushed. Like that's new, but my face feels hot. Anyway, I went to the b-room to check it out, and even through my glorious BE makeup, I could see the flushing on my cheeks, but the wierd thing is that it was totally symetrical. That's not necessarily wierd, but there's a dime-sized kind of triangular red spot on each cheek below the main area of flushing. It's horizontally on the same latitude as the top of my lip, and vertically in line with the outer edge of my eyes. WTF is that about?

I wonder if I flush like that every time my stomach hurts? :huh:

Mayflowers Contributor

Must be that air allergy kicking in... lol :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast
my Ana is such a sweety (she's 4 months old)...all she does is laugh at me.... all I see are those toothless gums all the time :lol:

what? no...laugh at you? How could she possibly laugh at you....I mean, are you known to be funny or something?

;):lol:;)

Chelsea - yah, definitely the air allergy, or the water.... ;) But seriously, I have no idea what would cause that weird cheek flush spot issue....someone from our cult farm will surely pipe in with some knowledge, though.

Yeah, where is everybody today.....so quiet in R-ville - - the dingos are getting restless...

Donna - - was that your Vater of something-or-other that they tested? Yay!

jerseyangel Proficient
There hasn't been a post on here in 30 minutes! How'd we let that happen?!?!

Um - question:

I'm beginning to have my mystery stomach muscle spasms (gluten-free or not, they're still there about every month) again, and I'm feeling really flushed. Like that's new, but my face feels hot. Anyway, I went to the b-room to check it out, and even through my glorious BE makeup, I could see the flushing on my cheeks, but the wierd thing is that it was totally symetrical. That's not necessarily wierd, but there's a dime-sized kind of triangular red spot on each cheek below the main area of flushing. It's horizontally on the same latitude as the top of my lip, and vertically in line with the outer edge of my eyes. WTF is that about?

I wonder if I flush like that every time my stomach hurts? :huh:

I get the hot face/flushing--but not as much as before. I know you were looking through your makeup, but I also thought of the "butterfly rash" that people with Lupus describe. Did it look anything like that?

AndreaB Contributor

Blame the thread about how we get anything done if we're on here all day. :P

I'm trying to limit myself but not doing such a good job of it. :o

A/C is running overtime so we are cool. :D

Chelsea,

I don't know either....hopefully some one else will.

Camille'sBigSister Newbie
Wow....busy night here in RVille

First off...Geese would make LOUSY cattle gaurds. They would keep flying away, and are obviously WAY too busy keeping us all safe to guard the cows!! :lol::lol:B)

No, no, NO, darlin'! You must understand: Our geese are miraculous and multi-talented!!!!! They LOVE guarding our cows, and would never dream of flying away unless their charges were safely ensconced in our barn!!!!! SEMPER FI - That's our geese! ;););)

Cissie

Minister of Defense, in charge of The Miraculous, Protective, Auxigro-Detecting Geese

penguin Community Regular
I get the hot face/flushing--but not as much as before. I know you were looking through your makeup, but I also thought of the "butterfly rash" that people with Lupus describe. Did it look anything like that?

Yeeeah, I thought butterfly rash, too. Although, it doesn't really go across my nose, my nose is just a little more pink, if that makes sense. I'm taking off my makeup now (I knew having the supermom stuffed purse would come in handy :lol: ) so I'll give it some time and see how it looks without makeup.

What with that, and the wierd totally random rashes...I don't know what to think! :unsure:

Of course, my hair isn't falling out, I'm anemic yes, but my platelets are high, not low. I'm gaining weight, not losing it...

And whatever this stomach spasming thing is about, it's definitely what I would describe as a flare. A flare of what, I do not know. Acidic food, bland food. Gluten, no gluten. Prilosec, no prilosec. Bentyl, no bentyl. Bentyl doesn't even touch it. I have to take a phenergan suppository and knock myself out to try and get rid of it. For some reason, in spite of multiple ER trips and lots of narcotics, nobody's really tried to figure out what the heck it is!!! I guess I'll ask the GI to poke around my stomach while he's in there getting biopsies.

Geez...celiac and lupus, wouldn't that be fun! <_<

mle-ii Explorer
There hasn't been a post on here in 30 minutes! How'd we let that happen?!?!

Um - question:

I'm beginning to have my mystery stomach muscle spasms (gluten-free or not, they're still there about every month) again, and I'm feeling really flushed. Like that's new, but my face feels hot. Anyway, I went to the b-room to check it out, and even through my glorious BE makeup, I could see the flushing on my cheeks, but the wierd thing is that it was totally symetrical. That's not necessarily wierd, but there's a dime-sized kind of triangular red spot on each cheek below the main area of flushing. It's horizontally on the same latitude as the top of my lip, and vertically in line with the outer edge of my eyes. WTF is that about?

I wonder if I flush like that every time my stomach hurts? :huh:

How about Niacin (B-3) flushing? Are you taking that?

Rachel--24 Collaborator

Donna,

Awseome news today!!! I'm so happy for you. No more Endo's...no surgeries!!! YAY!!! :D

rinne Apprentice

Donna, that is wonderful news.

Robin, congratulations on letting go of misery.

Julie has a regal beauty and a regal grace in her postings, definitely Queen material. I agree but does this mean we are going to be looking for a King? :ph34r: I'm definitely leaning in the direction of a matrilineal succession. :lol:

Patti, I'm glad to hear the spring water is working for you. I am using Aquafina but ran out, was on the road, etc. and so have not been consistent.

Andrea, what an amazing job you are doing keeping track of all the positions, thanks.

Chelsea, how does it look with your make-up off? Is this a new make-up for you?

Rachel, I know that overall I can't handle dairy but there were a couple of times I had some strawberry ice cream and it didn't seem to bother me as long as I didn't over do it. I will say though that after reading the DrJ articles on wheat, dairy and soy I will make the effort to avoid dairy from now on. Oh, and soy too.

Mango, I will look forward to hearing about your down under adventures.

Celia, I can feel your happiness, how wonderful.

And Vincent, yes we need an official rulebreaker though don't be surprised to find yourself surrounded by unoffical rule breakers. :lol::lol:

Jean-Luc Rookie

Well we will have a new arrival in December to Rachelville. An ultrasound was done today, so ....

A bouncing baby girl! Am I in trouble! :lol::P:D

Camille'sBigSister Newbie

Hi, Y'all!

I'm all caught up on the posts, and trying to remember who said what, without quoting your individual posts.

PATTI - Is your Poland Springs water flat or with bubbles? (I can't remember what the fizzy water is called.) The only kind I've found here in Georgia is the bubbly kind, and I don't like it.

RACHEL - I think you're absolutely right about ice cream!!! :) I used to think I was lactose intolerant, but after I learned about MSG and all the other crap that's in ice cream, I found some that's junk-free. Yea! Thanks to this incredible string of yours - No problems!! :):):)

JULIE for Queen - I vote aye!

DONNA - I'm so happy to hear your good news about benign biopsies!!! You must be on Cloud Nine! :D:D:D

CHELSEA - Hmmm . . . Flushing and spots? Reaction to MSG, red wine, niacin, or anti-biotic? My niece has the same symptoms if she drinks red wine. :( I think the butterfly rash of lupus goes across the bridge of the nose, and you said you didn't have that. Oh, and how about rosacea?

Cissie

AndreaB Contributor
Well we will have a new arrival in December to Rachelville. An ultrasound was done today, so ....

A bouncing baby girl! Am I in trouble! :lol::P:D

Congratulations Picard!!!! I love babies, I do hope you'll share a picture.

And yes, I think you are in trouble. :lol::P:D

When the due date....my daughter was born Dec 22.

Jean-Luc Rookie
Congratulations Picard!!!! I love babies, I do hope you'll share a picture.

And yes, I think you are in trouble. :lol::P:D

When the due date....my daughter was born Dec 22.

Thanks due date is December 8.

Too many women in my family.

rinne Apprentice
Well we will have a new arrival in December to Rachelville. An ultrasound was done today, so ....

A bouncing baby girl! Am I in trouble!

Congratulations Picard to you and your partner, what wonderful news.

VydorScope Proficient

I am SOOOOOOOOO happy we had a son. I would not know what to do with a baby girl. :huh:

DingoGirl Enthusiast
Thanks due date is December 8.

Too many women in my family.

Congratulations Picard!

I'm December 9th...close to Christmas but not too heinously so.....

penguin Community Regular

Congratulations, Picard!!!! You can never have too many women in the family :)

Not that I'm biased...

I just "took" some phenergan, so I'll be passing out and become incoherent pretty soon. Doesn't take that long to get from the butt to the head :rolleyes:

Yeah, still don't know what it is, my mom is both worried and at a loss. This has been going on a long time and robs me of at least a day's worth of spoons. :(

OK, I'm done whining :unsure:

VydorScope Proficient
Congratulations, Picard!!!! You can never have too many women in the family :)

Not that I'm biased...

I just "took" some phenergan, so I'll be passing out and become incoherent pretty soon. Doesn't take that long to get from the butt to the head :rolleyes:

Yeah, still don't know what it is, my mom is both worried and at a loss. This has been going on a long time and robs me of at least a day's worth of spoons. :(

OK, I'm done whining :unsure:

I'd be happy to give you a spoon.... if I just new how! *hugs*

Camille'sBigSister Newbie
Julie has a regal beauty and a regal grace in her postings, definitely Queen material. I agree but does this mean we are going to be looking for a King? :ph34r: I'm definitely leaning in the direction of a matrilineal succession. :lol:

I'm definitely leaning in the same direction!!! :lol::lol::lol:

Cissie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.