Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice

Wow, okay, I think I can get through this without rereading, lol:

Stuporman - LOVE THAT NAME!! I didn't really have any specific symtoms that could be attributed to the vitamin thing, but in general wasn't healing well. I started by doing the SCD diet, then cut out corn, and cut down on MSG and at the same time quit all supplements. I think just staying off of them for a while has really helped. The last couple of days I've been trying to reintroduce just a couple of them and so far so good.

Cecile - love the new pic of Anna!

Christina - I'm so sorry, I agree with Susan and Vincent.

Sally - WELCOME, sorry I'm late, lol!

Julie - I am also interested in the adrenal stuff...did you post links when you first posted about it...if so I may have bookmarked them...must go look.

Rachel - you are one insane person, lol. I went out two times this weekend and all I could think of was getting back to my shorts/tank top and my couch. :lol: You should definitely come to the Stanford thingy...I'm planning on going too--it would be fun to meet up with everyone.

Robbin - wow, so sorry about the eyes.

Everyone, HELLO!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator

Susan...you were right!! Scratched up bloodied arms = good times!

One of the guys at work asked how my weekend was and I held up my arms....he was like "COOL...you had fun!". :blink:

:lol: The rest of the people just thought I was freaking out of my mind for even going outside. <_<

DingoGirl Enthusiast
Susan...you were right!! Scratched up bloodied arms = good times!

One of the guys at work asked how my weekend was and I held up my arms....he was like "COOL...you had fun!". :blink:

:lol: The rest of the people just thought I was freaking out of my mind for even going outside. <_<

:lol::lol::lol::lol:

See, good times indeed! except, the caveat is.....*I* don't go outside except for ESSENTIAL things when it's over 95---

IT"S SO HOT HERE ("how hot is it?) that I actually had to hydrate my baby wipes :ph34r: with a water mister....they were drying out...

Sally, I posted a message to Christine - I feel her pain and agree w/ Vincent - the "friend" thing usually doesn't work, or if it DOES, it's after a very long time, much distance, and healing has taken place. And, he doesn't even sound like a keeper for friend material, really.....mommy's boy.....

Rachel, Julie, I was prepping the dingos for the assigment!! Oh yes, they love special assignments and are up for anything.....but Whew! glad you're back safely from the annals of R-ville - - yes, v. scary indeed going BACK.....much too hard to search......

gotta go......too much to do....gotta make some jewelry to sell.....oh and grandma rosie's funeral is tomorrow, must take care of the family.....

Green12 Enthusiast
Julie - I am also interested in the adrenal stuff...did you post links when you first posted about it...if so I may have bookmarked them...must go look.

Donna, I don't think I posted a link, just quotes and info. about the relationship between histamine and adrenal function. I went back (yes it was scary indeed going back :blink: ) and found it on page 194. Seems like it was a lifetime ago, but it was only 2 days :lol: Life sure does move at a rapid speed here in Rachelville.

Susan, I'm so glad we have our dingos! And you are like a Jack of all Trades (is that the correct expression? :blink: ) It seems you can do anything and everything. I think that is fabulous!

You take good care of your family and my thoughts are with you and yours for tomorrow :)

Julie, I keep forgetting to address the adrenal thing. You know more about this than I do but I agree that it somehow plays a part. I had some questions I wanted to ask but dont have time right now...dont let me forget. :)

ok, I will remind you!

Daxin Explorer

Wow...that was a lot for one night to cathc up on. Good thing I took the day off from work!

Just finished cleaning off the outsideof the house, and was wondering if we could outlaw spiders in R-Ville somehow. There were dozens of webs out on the siding, and now none. :)

Anyway, I may have to go lay down...am not feeling so well today.

Robbin, sorry to hear about the eyes, and hope you can remember what it was you wanted to ask me.

HAGD all! ;)

dlp252 Apprentice

Yes Ryan, I support a spider-free cult farm. :lol: Okay, so that's auxigro histamine inflammation gluten dairy spider free cult farm. :lol: (although dairy contraband will be tolerated for Rachel and others who can tolerate it, lol)

Julie - thanks...I will go back (OH NO) and search page 194. :lol:

DingoGirl Enthusiast
Yes Ryan, I support a spider-free cult farm. :lol: Okay, so that's auxigro histamine inflammation gluten dairy spider free cult farm. :lol: (although dairy contraband will be tolerated for Rachel and others who can tolerate it, lol)

Dairy - y es - - spiders and flying insects - - NO NO NO


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

but spiders eat other insects with out them we might be over run!

jenyanderson Newbie

I looked on my computer at the temperature and it said 84....then I went outside. It's not 84. It's 184. I felt like an ant under a magnifying glass. The thought of having to go out to Blockbuster is pure torture. I wonder if my husband would find Lifetime Movie Network interesting.... :blink:

DingoGirl Enthusiast
but spiders eat other insects with out them we might be over run!

INsect-free Gluten-Free Dairy-For-Some Paradise Cult-Farm ;)

dlp252 Apprentice
but spiders eat other insects with out them we might be over run!

I'm pretty sure I could single-handedly get rid of all the pesky insects....I mean help them relocate to a better farm. :lol:

I looked on my computer at the temperature and it said 84....then I went outside. It's not 84. It's 184. I felt like an ant under a magnifying glass. The thought of having to go out to Blockbuster is pure torture. I wonder if my husband would find Lifetime Movie Network interesting.... :blink:

:lol::lol::lol:

penguin Community Regular
INsect-free Gluten-Free Dairy-For-Some Paradise Cult-Farm ;)

So, I guess our organic, non-GMO, auxigro-free vegetables are also capable of pollenating themselves? :blink:

Green12 Enthusiast
I'm pretty sure I could single-handedly get rid of all the pesky insects....I mean help them relocate to a better farm. :lol:

:lol::lol::lol:

:lol: Donna

jenyanderson Newbie
So, I guess our organic, non-GMO, auxigro vegetables are also capable of pollenating themselves? :blink:

The dogs' tails can do it when they walk/run by. Hey anything can happen in R-ville!

Green12 Enthusiast
The dogs' tails can do it when they walk/run by. Hey anything can happen in R-ville!

:lol: jeny, that's creative thinking. When in doubt, the dingo dogs will get er done!

DingoGirl Enthusiast

Very clever Jeny - - - and exactly what will happen in R-ville! Yup, the dingos will git 'er dunn....... :lol::lol:

Julie - your hair - - you look great - please tell us that one took hours too and you don't just emerge from the shower magically like that.....

my hair - - we are so not friends today - - and I put Jojoba oil on it - - - not a good idea......will try the coconut oil.....

Daxin Explorer
So, I guess our organic, non-GMO, auxigro-free vegetables are also capable of pollenating themselves? :blink:

No...we have the ever over-tasked Geese and Dingos! :lol::blink:

jerseyangel Proficient

Julie--I just saw your new pretty picture on another thread. I love your hair in it! :)

Green12 Enthusiast
Very clever Jeny - - - and exactly what will happen in R-ville! Yup, the dingos will ....... :lol::lol:

Julie - your hair - - you look great - please tell us that one took hours too and you don't just emerge from the shower magically like that.....

my hair - - we are so not friends today - - and I put Jojoba oil on it - - - not a good idea......will try the coconut oil.....

:lol: "git 'er dunn" :lol:

That's my favorite phrase from the hilarious, fabulous, and way hunky duo from While You Were Out - Evan Farmer and Jason Cameron.

:lol: about the jojoba oil Susan, I'm thinking it was too much? So sorry, or what about leave in conditioner? I guess you will have to ask our hair/beauty expert nikki-uk about this....

no, I didn't emerge from the shower like that :lol: I long for wash and go hair.....if I washed and went, believe me, it wouldn't be pretty.

Julie--I just saw your new pretty picture on another thread. I love your hair in it! :)

ahhh Patti, you are always too kind :)

I have a question for you about claritin, does it increase your appetite or cause any noticable side effects for you? I am trying to look for the side effects on-line for any information but I can't find any....

Clark Bent as Stupor-Man Contributor

so it looks like there are a number of you who have felt better after stopping all vitamins/supplements even when they didn't have any identifiable "bad" ingredients... I can't help but think I'm just bugging out by worrying about the possibility of negatively reacting to supplements but there's a part of me that wants to say I was feeling better a few months ago prior to introducing these vitamins/supplements, which I've taken on and off again since then... can't really tell much at the moment anyway since I'm taking an antifungal to treat the candida...

unfortunately, there are no easy answers, as I'm sure you all know... but say, for instance, I am taking a probiotic right now, which I've been told and read in numerous sources is essentially necessary while taking an antifungal to eliminate candida... I don't want to stop it but at the same time, I'm not positive it doesn't make me feel worse although it's hard to tell what could be related as the symptoms I'm currently feeling could simply be candida detox symptoms.. who knows..

what's up julie... I remember that you similarly negatively reacted to the metagenics ultra clear shakes, which is the only supplement I'm nearly positive I reacted to... so you felt better after stopping the pure vitamins, huh? they're supposed to be pretty much top of the line, cleanest vitamins, no?

I don't really have stomach issues with the vitamins/supplements.. maybe here and there but that's not what I'm concerned about... the symptoms that concern me are more general body aches and weakness, leg pain, brain fog, and the feeling I sometimes get running through my body almost as if there's something coursing through my veins...

I'm on the fence now about what to do... my nutritionist really wants me to take a whole bunch of supplements and I'm questioning the limited number I do take... I might give it a trial run while trying to keep everything else constant but it's generally hard for me to ascertain what I'm reacting to..

as for my user-name, thanks... gotta have a sense of humor to get through this.. but it looks like you guys already have over 200 pages under your belt in that department

dlp252 Apprentice

I agree Charlie, it's so hard to know what exactly is causing it all. I tend to have delayed reactions so it's hard for me to tell too. It's really hard to keep a detailed enough journal sometimes, and I have kept a daily health journal for the past 4 years, but I still find it hard to be detailed enough. I thought all my supplements were pretty good quality and I tried to make sure they were free of at least the major allergins...I think it was just that my body was so overloaded and irritated. I wish I had something that would help you.

We can always use more humor in Rachelville! :P

jerseyangel Proficient

Hi Charlie, Sorry, I meant to answer you before. I do have problems with a lot of suppliments that I have verified gluten-free. Freeda Vitamins comes to mind--they caused me stomach upset right away. I have yet to find a digestive enzyme or probiotic that agrees with me. I used Culturelle (probiotic) and became nauseous with got D within a few days. I tried Whole Foods brand digestive enzymes--marked gluten-free. Same thing. I take (surprisingly) a Centrum Advanced every morning, and am fine with it. My system is pretty sensitive--I'm intolerant to a lot, so I feel that I'm just better off with not taking a lot of suppliments. Good luck with finding the right combination for you :)

jerseyangel Proficient
I have a question for you about claritin, does it increase your appetite or cause any noticable side effects for you? I am trying to look for the side effects on-line for any information but I can't find any....

Julie, I've used Claritan for years and have never noticed any side effects from it. According to my allergist, the older, non-sedating antihistimines can cause an increase in appetite.

Mango04 Enthusiast
Yeah....in my search I saw a post from Mango....it made me realize that she must be gone now??? :unsure:

Hopefully we will hear something from her soon...I hope she doesnt forget about her Koala mission. :P

I've been here briefly on and off for the past few days...with not much time to post :wacko:

I must bid you all farewell for a short while as it's time to venture to the far off lands. I'll be sure to seek out very talented and magical koalas, since it just wouldn't be right to have miraculous, protective, auxigro detecting geese...and just plain old koalas....

I'll be looking forward to seeing what kind of relevations you're all having when I come back to check in (which will probably be soon. I mean, my R'ville job title states I must report back with all the news and information from the far off lands - whatever that may be :lol: ).

Goodbye for now. :(

:):):)

penguin Community Regular

Patti- I'm the same way with vitamins, I can't tolerate ANY OF THEM, not even centrum. Ever since I got mono, my body's not having it. I found a liquid food based iron that I can take, but that's it right now. I'll worry about vitamins later.

Meredith- Have a safe incredibly long flight! I wish you many memorable adventures and delicious pavlovas!! Made with something other than whipped cream...

Maybe the magical koalas can pollenate our organic, non GMO, auxigro-free, bug-free fruits and veggies. The dingo's and geese have enough to do. :rolleyes:

Um, my hair is kind of falling out. I had my hair in a ponytail today and when I took it down there was quite a nest of hair on my hair thingy. I've definitely dropped more than 100 hairs today :o

My mom blames it on malnutrition and our incredibly thick hair. Even so, it freaked me out. I'm not going to be surprised with anything else wierd that happens with my body :rolleyes:

Oh, and the smaller of the two culinary schools in town got back to me, they are familiar with celiac, but don't think they'd be able to teach me :(

Apparently there is a vegetarian/vegan culinary program around here, but that would be no fun. I'm a meat eater and they use lots of gluten, too. I'm also not paying $10,000 for a program that's not even accredited.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.