Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

tiredofdoctors Enthusiast

Beverly -- you seriously accepted a position as a prof -- with tenure? Are you kidding, have I missed a joke? If this is serious, I am so happy for you!!!! If it's part of Rachelville . . . well, oops, I did it again (Me and Brittany Spears . . . . eeeeeeeewwwwww) I hope you are feeling better soon . . . this has been a really long stretch for you . . . . Love, hugs, prayers, good wishes, and congrats (if they're in order!) . . . Love, Lynne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor

Bev,

Your hubby would be welcome. He's got to answer the questionairre I posted for Dave a few posts ago.

Same stipulations for anyone not totally gluten free. Our town will not be infiltrated but if spouses, friends and family will agree to go through the decontamination chamber process....it's workable.

I sure hope you get to the bottom of this soon. Do you eat soy?

Green12 Enthusiast
Andrea: Mayor; Teacher; Treasurer

Andrea, you must add "Mother Hen" to your job description :)

Hi Bev, good to see you! Of course your husband can join us. He can go over the hill to the mall with Rachel and Mango and the others, where there just might be a KFC. So sorry you have not been feeling well, you have had a rough time of it the last several months. Have you had a check up? Hope you getting lots of rest and taking good care of yourself.

Susie Q!!! Good morning to you and the dingo girls. I also was impressed with Celia's scince posts, very scientificness of her.

Dave could be our town hottie :lol:

DingoGirl Enthusiast
Dave could be our town hottie :lol:

town hottie OR village idiot.... :lol::lol::lol:

Hi julie! great photo - - did you see my post that you looked like a hot rocker chick? or did you choose to ignore it....ha ha

Green12 Enthusiast

Patti, I forgot to mention,

If you hear back from the Terra company about the Red Bliss Potato Chips, I would love to hear the response.

penguin Community Regular

Is there some reason we can't have a gluten-free KFC? I mean, hell, if gluten-free Big Macs exist in the world, can't the colonel help us out? :huh:

Has anyone ever notice that the word colonel is made up mostly of the word COLON? Actually, that makes a lot of sense :P

I feel deprived, I only have two jobs :P

And between food and politics, I need another, more wholesome job to balance out the evil! B)

Green12 Enthusiast
Hi julie! great photo - - did you see my post that you looked like a hot rocker chick? or did you choose to ignore it....ha ha

Thanks Susie, no I didn't see your post. I am so far behind on reading I just jumped in and didn't go back. You know how scary it is going back in Rachelville, lions, tigers and bears....

Rocker chick? :lol::lol::lol:

If you only knew. I was the preppy girl at all the rock concerts, penny loafers, plaid. Love the music, but don't look the part.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
Has anyone ever notice that the word colonel is made up mostly of the word COLON? Actually, that makes a lot of sense :P

Man you have the cute inncocent looking avatar, then BAM you drop that :lol::lol::lol:

AndreaB Contributor
Andrea, you must add "Mother Hen" to your job description :)

Julie,

Done. I'll post as soon as I know what Dave and Bev's husband want to do....providing the answer the application questions.

Is there some reason we can't have a gluten-free KFC? I mean, hell, if gluten-free Big Macs exist in the world, can't the colonel help us out? :huh:

Has anyone ever notice that the word colonel is made up mostly of the word COLON? Actually, that makes a lot of sense :P

I feel deprived, I only have two jobs :P

And between food and politics, I need another, more wholesome job to balance out the evil! B)

This is Rachelville....anything is possible.

COLONel. :lol::lol:

What would you like to do Chelsea?

penguin Community Regular
What would you like to do Chelsea?

I don't know, what would balance out politics and gluttony? :P

Jean-Luc Rookie
Picard,

Have you thought of going through the expense of enterolab. It costs $369 for the whole gluten panel which includes the gene test. Much more sensitive than blood tests and more reliable than biopsies. Open Original Shared Link

Yes, I have considered it. I am a bit hesitant as I am concerned with the results getting back to my insurance company.

Picard - an attorney AND a Navy Diver - lots of stress and clearly a very driven personality! Whoever suggested Enterolab had a good idea, I think. Interesting that it could be tropical sprue, but your mother's history sounds indicative of Celiac.

Sometimes I can be driven, it depends. I just adapt to want is around me and move on. The idea of tropical sprue came about due to my traveling when I was in the service. Interesting that I did not think of it until recently.

Ryan, I wish you the best in Greenland. Is it a mandatory transfer? I remember optional one year isolated duty to Diego Garcia and Gitmo. But afterward you had your choice of duty station. Is your deployment along those lines?

VydorScope Proficient
I don't know, what would balance out politics and gluttony? :P

Stand up comic and diet coach?

AndreaB Contributor
Yes, I have considered it. I am a bit hesitant as I am concerned with the results getting back to my insurance company.

They do not bill insurance companies and send the results to you. The only way your insurance would know about it is if you filed a claim for reimbursement.

Jean-Luc Rookie
They do not bill insurance companies and send the results to you. The only way your insurance would know about it is if you filed a claim for reimbursement.

I would not file for reimbursement butsome insurance companies require disclosure of all known medical conditions and ask for family hx. It could cause a problem.

rinne Apprentice

I am sitting here laughing out loud, this is the best medicine.

I'm F-I-N-E FINE. (which at this point stands for frustrated, impatient, neurotic and emotional). Don't know what to do.

I'm so sorry to hear that. I know how it feels.

Welcome Dave - Village Idiot, I don't know about that, it seems to me you have to be quite brilliant just to appreciate the job. :lol:

Andrea, I love our jobs list, thank you again for doing it, oh and Rachel's criterion for getting into Rachelville is hilarious although I think I missed something in between no bats and the bats turning purple. :lol:

I feel better today after keeping a simple diet for a few days. It is becoming very clear to me that it takes just a little to overload my body with too much, that too many ingredients and particularly processed ingredients at one time causes overload/agitation/inflammation. It seems like everytime I start to feel a little better I immediately start pushing to see if I can have a little more variety and as soon as I do that I'm in pain again. I will learn, I will .... :lol: I'll just wait awhile before I have my banana icecream with chocolate and nuts on it again. :lol:

Green12 Enthusiast
Stand up comic?

Vincent, perfect! Chelse, deliverer of the one-liners :lol:

rinne Apprentice
You know how scary it is going back in Rachelville, lions, tigers and bears....

:lol: Yes, if you are going BACK it might be a good idea to leave word with someone.

dlp252 Apprentice
Donna, how about some earrings to go with those bracelets?!

I now have 25 new bracelets and one more just waiting to be strung. :ph34r::lol:

Thanks a lot! I'm just Rachel's friend, not her Boss though....I don't think she has a Boss, kind of her own Boss; hence, President. :D

Well, welcome anyway TheDave, Rachel's friend-but-not-boss (stealing from Penguin cuz I liked it too much, lol).

Green12 Enthusiast
I feel better today after keeping a simple diet for a few days. It is becoming very clear to me that it takes just a little to overload my body with too much, that too many ingredients and particularly processed ingredients at one time causes overload/agitation/inflammation. It seems like everytime I start to feel a little better I immediately start pushing to see if I can have a little more variety and as soon as I do that I'm in pain again. I will learn, I will .... :lol: I'll just wait awhile before I have my banana icecream with chocolate and nuts on it again. :lol:

Glad you are feeling a little better today rinne. I have lived and learned many times over, lots of mistakes with my food choices and feeling really lousy as a result. The diet I am following now is going really well though so maybe something has finally clicked in my brain that I just can't eat certain things :lol:

You'll get there!

One thing that struck me is the banana ice cream w/chocolate. Those are both on the list of high histamine content/histamine releasing foods. Just a thought.

DingoGirl Enthusiast
OKAY this is just funny, I know that I am not one to talk about typo's/spelling, but when you call your self a language teacher, then misspell DIET thats pretty funny! :lol:

just noticed that he misspelled "teacher" too..... :lol::lol::lol:

Ryan - was it you that posted something about Blue Diamond Nut Thins? Welllll.....finally tried them last night and am rubbish today (spinached) - - feel like lead and can hardly move....BTW they taste almost exactly like Trader Joe's Savory Thins - but, I don't think you have Trader Joe's in Canada.

Donna - - why can't I be that motivated to make jewelry? :o Get on over here and let's have a jewelry party......I am too busy right now painting everything (BY MYSELF!!! :angry: lost my helpers so it's slow work) and then re-doing floors...ugh.....

Rinne - lovely to see you - - did I mention how envious I am about your little plot of land for 1K? IN what state are you living that something was priced that low?? Holy cow....Also I understand what you mean about too many ingredients and processed foods - - ugh..... :( And sugar - - I don't think sugar makes me feel fantastic, either.

Judy - - dang you said something SO funny in your post pages back, I haven't the strength to find it but it just made me hoot and guffaw - -

yup, the laughter here is so good for us! :)

AndreaB Contributor
I feel better today after keeping a simple diet for a few days. It is becoming very clear to me that it takes just a little to overload my body with too much, that too many ingredients and particularly processed ingredients at one time causes overload/agitation/inflammation. It seems like everytime I start to feel a little better I immediately start pushing to see if I can have a little more variety and as soon as I do that I'm in pain again. I will learn, I will .... :lol: I'll just wait awhile before I have my banana icecream with chocolate and nuts on it again. :lol:

Rinne,

I couldn't help but notice the correlation between you and Rachel. She goes on an ice cream binge, tries veggies she know causes problems and feels miserable. Take things slow, add only one item at a time with at least a week in between, preferably longer.

I had banana sorbet with chocolate chips last night. I'm mildly allergic to bananas so don't have them more than once a week.

dlp252 Apprentice
My hubby wants to come live with us too but he had a request. You guys would like him- he could be part of the town band or he could be the town computer geek. He's pretty much gluten-free except when he eats out. He actually had a special request though. If there could be a KFC outside the city limits. I said "NO WAY" but then I though if it had a special decontamination chamber that removed all offending substances from you before you left so you couldn't come back into R-ville and contaminate anyone, MAYBE it wouold be OK. I'll let the town vote. On the KFC.

KFC is over the hill at the mall where Rachel and I will get our shopping fix...I suppose the KFC could be there, lol. :P

To everyone who is feeling yucky- I hope you feel better. It's been three weeks for me and i still feel poopy. First it was C diff, then the flagyl and now I don't know what the heck is going on. The big D, headaches, neck aches, chills, nausea. Can't get my butt out of bed before 11 am because I'm so tired and achey. I'm actually getting scared. :( I'm wondering if it's my thyroid or Lyme's or some dengue fever. Yuck! i'm trying to make the best of it but as I tell my husband I'm F-I-N-E FINE. (which at this point stands for frustrated, impatient, neurotic and emotional). Don't know what to do.

I did have fun yesterday though. I've been MAKING myself do something every day even if I feel crappy because if I sit home doing nothing I just get depressed (I'm on summer break from school). Hubby and I went up to visit friends who are at a beautiful lake about an hour from us so we went up there and just hung out by the lake and swam (the water was so warm- for here anyway where the ocean is freezing!).

But then I wake up at 3 am today crying because I had a horrible night mare and then I wake up at 5 am with D and a headache. Kinda at my wit's end.

Yes- suggestions are greatly appreciated :D as are hugs, love and anything else you care to send my way. I'm going to drag my butt into the shower and try to wake up (yes- I know it's noon here, but it's a start).

No suggestions really, except that by being here in this thread you just might stumble upon something that will click with you. That's how this whole thing started...a bunch of us trying to figure out what the heck was making us feel so bad...some of us are actually improving, so there's hope!!!! {{{hugs}}}

Guest Robbin

:) Hi, checking back in between laundry loads-Bev, you have had enough, dear professor. I think maybe some of the scientificness facts found here in R'ville might help you. Corn, tapioca, water, vitamins-these are topics that have come up that may interest you. They are interspersed (sp?) in the hills of R'ville. Patti has made some interesting discoveries regarding water filters-seems that they have coconut hulls or fibers and it was making her water a problem. She has found Poland Springs to be a good safe one and I have switched to that too. Produce was discovered to have problems with auxigro-even organic-by our dear president, Rachel. Corn and tapioca are biggies for a lot of us here too. Julie and rinne have made excellent research discoveries on problems with vitamins as well. We must find safe food. Cecile/Celia has decided to grow her own in frustration and I support that idea wholeheartedly. Perhaps you can find a farmer's market where you can get produce and question the grower directly on the chemicals used.

I remember going to the feed mill in our little town and seeing the seed corn and beans on display for gardeners to plant and they had coatings on them to fight fungus/disease that were pink. I wonder what role that plays with our problems. It is right at the start of the whole growing process. Makes ya wonder. We will try our bestus to help you get well! We are all in this shaking boat together!

Susan-Watch out for Rocky Mtn. spotted fever-carried by ticks as well and is as bad as Lyme. I hope you can whip this headache soon. I forget, but can you eat ice-cream? Eating ice-cream or popcicles or anything frozen sometimes helps. Eat it SLOW though, don't want an ice headache on top of it. Take care, we miss you when you are gone.

Does anyone remember the play, "Harvey"? It is a movie, too with Jimmy Stewart. There is a psychiatrist whose fantasy is to go to a grove of trees in Akron, Ohio, lie in the shade and have a lovely woman sit at his side and listen to all his life story and hold his hand and say, "Oh, you poor dear. Poor, poor dear." That is all he wants her to say! I think we need a hand holder like that in R'ville. A couple of them-one nice male and one nice female.

How about being the hand-holder for the guys penguin?! Sounds like that would balance out the jobs for you!! :)

Gotta fold laundry--bye for now!!

dlp252 Apprentice
Is there some reason we can't have a gluten-free KFC? I mean, hell, if gluten-free Big Macs exist in the world, can't the colonel help us out? :huh:

Good googly moogly, what page was this on??? :D Did I miss a discussion about gluten-free BIG MACS, lol. :lol:

jerseyangel Proficient
Patti, I forgot to mention,

If you hear back from the Terra company about the Red Bliss Potato Chips, I would love to hear the response.

You got it :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    5. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,358
    • Most Online (within 30 mins)
      7,748

    Lorna Wynter
    Newest Member
    Lorna Wynter
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.