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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

Rachel,

I would think the veggie fed and vegetarian fed would be the same as well, but I'm not sure.

I think I'm developing problems with eggs. I've had an obnoxious headache this last week which is better today. I last had eggs on Thursday. I'll be trying the eggs again on Tuesday probably. If I get another bad headache I'll have my answer. But maybe, it will just be that I need to buy a different brand. I always buy organic and/or free range eggs.

I'm thinking, as well, that I should go off them due to them being on the high allergen list (for Seth). That would just leave nuts on the list for the top allergens that I eat.


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AndreaB Contributor

That's interesting about your appointment Donna. At least you can add some flavor with coconut or olive oil. Maybe she'll do some food next week.

Glad you found a robe you liked.

Carla,

Good to see that you are still doing as well as to be expected at this point. It does sound like you are doing pretty good overall. :)

Rachel--24 Collaborator
I don't get how molds get in meats from eating grains. Do the livestock have leaky gut syndrome too :huh: ? I can see how meat would get mold if it's left out too long.

Claire,

Its not the mold itself...its the mycotoxins which the molds produce. All fungi and yeasts produce mycotoxins....this is what causes health problems. Its actually not "candida" itself which makes someone sick....its the toxins that are produced by Candida...there are 79 toxins known to be produced by Candida.

Same with toxic black mold growing in a building...its not the mold....but the mycotoxins produced by the mold that wil make us sick.

Mycotoxin is a toxin produced by an organism of the fungus family, which includes mushrooms, molds and yeasts. Most fungi are aerobic (use oxygen), are found almost everywhere in extremely small quantities because of their spores, and are most commonly microscopically small. They consume organic matter, wherever humidity and temperature are sufficient, indoors or out. Toxins are enzymes or proteins.

Where conditions are right, fungi proliferate, grow colonies, and mycotoxin levels become high. Toxins vary greatly in their severity. Some fungi produce severe toxins only at specific levels of moisture, temperature or oxygen in the air. Some toxins are lethal, some cause identifiable diseases or health problems, some weaken the immune system without producing symptoms specific to that toxin, some act as allergens or irritants, and some have no known effect on the human organism. Some mycotoxins cause death more among the farm animal population than in humans. Some mycotoxins hurt other micro-organisms such as other fungi or even bacteria. See penicillin.

Mycotoxins appear in the food chain as a result of fungal infection of the crop. If an infected crop is not eaten by humans, the mycotoxin is still dangerous to human health, because the crop may be given as animal feed to farm animals. Mycotoxins greatly resist decomposition or being broken down in digestion, so they remain in the food chain in meat and dairy products. Even temperature treatments, such as cooking and freezing, do not destroy mycotoxins. For example Fusarium ear diseases in cereals, or the infection of stored products. Ethanol (ethyl alcohol or grain alcohol) is produced when some yeasts (e.g. Saccharomyces cerevisiae) consume sugars under low oxygen levels.

Buildings are another source of mycotoxins. Public concern over mycotoxins increased following multi-million dollar toxic mold settlements in the 1990s. The negative health effects of mycotoxins are a function of the concentration, the duration of exposure and the subject's sensitivities. The concentrations experienced in a normal home, office or school are often too low to trigger a health response in occupants.

Food-based mycotoxins have been studied extensively worldwide throughout the 20th century. In Europe, statutory levels of a range of mycotoxins permitted in food and animal feed are set by a range of European directives and Commission regulations.

It has nothing to do with leaky gut. Mycotoxins can be found in the fat and tissue of farm animals who are fed grains with high levels of mycotoxin.

Likewise the mycotoxins would be found in our own bodies if we eat foods that are filled with mycotoxins.

Its very well known that peanuts contain alfatoxin...a mycotoxin that is carciogenic and known to cause cancer. Other foods like corn, cottonseed, sometimes dairy, nuts, etc...also contain alfatoxin.

Aflatoxins are toxic metabolites produced by certain fungi in/on foods and feeds . They are probably the best known and most intensively researched mycotoxins in the world. Aflatoxins have been associated with various diseases , such as aflatoxicosis , in livestock , domestic animals and humans throughout the world . The occurence of aflatoxins is influenced by certain environmental factors ; hence the extent of contamination will vary with geographic location , agricultural and agronomic practices, and the susceptibility of commodities to fungal invasion during preharvest , storage, and/or processing periods . Aflatoxins have received greater attention than any other mycotoxins because of their demonstrated potent carcinogenic effect in susceptible laboratory animals and their acute toxicological effects in humans . As it is realized that absolute safety is never achieved , many countries have attempted to limit exposure to aflatoxins by imposing regulatory limits on commodities intended for use as food and feed .

I dont know if my senstivity to mycotoxins comes from having fungal growth (candida) along with a diet high in foods containing mycotoxin???

From what the BioSET tests are coming up with....I might *still* be just as reactive to mycotoxin....even if I get rid of the candida. It seems to be cross-reacting with Lyme. I think this means that Lyme is attaching itself to all of these antigens (either produced by candida or consumed in food) and my immune system is reacting to the mycotoxins instead of the Lyme.

I'm assuming this would have been originally started because of an overabundance of mycotoxin in my body?? Most likely because of Candida.....but then spilling over to all mycotoxins...either in the air or in my food?? So maybe my immune system isnt actively fighting Lyme as much as its actively fighting the mycotoxcins.

Thats my interpretation...its still early days though...I have alot to learn about whats really going on. :huh:

Rachel--24 Collaborator
We did oils and acids. I'm fine with coconut oil and Olive oil. But I reacted to almost 3/4 of the other oils and a few of the acids. Anyway, no bug bites or ileocecal valve came up this week, but I did see "MIASM" on one of the vials...that tested okay for me.

Donna,

I reacted to everything coconut...no matter if it was oil, butter, dried, fresh, whatever. My body hates coconut.

Now I've learned that coconut has alot of mold....so maybe thats why. <_<

I've also had so much trouble with oils and from what I read today it said all oils have mycotoxins....except olive oil.

Coconut is by far the worst oil for me....BY FAR. I get pretty messed up from it. I wonder if its got alot more mycotoxin since coconut is naturally moldy anyway. <_<

I think the "miasm" is in the last little set of vials that you do before the imprint. The one that has two short rows...there is stuff like "combo cold" or "combo grain" in there. I have no idea what those things mean...I dont ever react to them and as far as I know I havent had the "miasm" show up until last week with the Lyme/Mycotoxin stuff.

If it ever showed up before.....it might have been with Susan. I dont know that she would have explained its meaning to me the way Anna did last week...so its possible it came up before but I just had no clue as to what it was. Is that the panel where you are seeing the "bug bite"?? :huh:

My first week of candida diet is done and went well. I lost 6.5 pounds though. I think that will slow down now, but it was going pretty fast there for a while. I forgot to buy garlic, but at least I know I can have the coconut oil after yesterday's appointment, so that should help kill off some of the stupid candida.

Donna,

YAY for giving up sugar!! Congrats on getting past week one!!! :)

Rachel--24 Collaborator
Rachel,

I would think the veggie fed and vegetarian fed would be the same as well, but I'm not sure.

I dunno....to me "veggie" means vegetables....and grains are not vegetables. :unsure:

To me "vegetarian" means...no animal products.

I just cant get an answer...maybe if I contact the farm I can find out. <_<

I read somewhere that chickens eat leafy greens.....so I guess its possible some chickens could just be eating vegetables w/out grain.

The only other thing I found was this from someones website...

At one point, Pierson and I got talking about raising chickens, and he told me that when hens get too old to lay eggs, some farmers grind them up and mix the mess in with the chicken feed.

I was revolted. Chickens are herbivores. Feed them chicken or beef and then eat their eggs

happygirl Collaborator

x

CarlaB Enthusiast
Carla, Are you taking oral Vitamin C or IV Vitamin C? That is my latest decision to make (if I want to start Vitamin C and other goodies in high dose infusions) and couldnt' remember what you were doing?

I'm not taking vitamin C anymore. I was taking the salt/vitamin C treatment before I saw my doctor. He wanted me to stop that protocol because I wasn't feeling any better on it. Now I just get whatever is in my multiple vitamin.

You might ask on Lymenet which is better, it seems a lot of people there have tried both methods.


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Rachel--24 Collaborator
And by the way, the reason you can eat eggs is because in the past week I discovered that I can't eat eggs (again). I apparently "deeded" them over to you :wub:

Sorry you lost the eggs Laura...its only been a week for me...you never know what could happen. I might just end up "deeding" them back to you. :P

I've been eating oats for about a week now too....I dont seem to be having problems with them. Yay for that. Of course they could still be feeding candida :unsure: ...but I'm thinking not so much as the ice cream was. :)

I kicked ice cream, potatoes, popcorn and apples out of my diet. There went 4 out of my 5 safe foods. :o

I've added in soymilk, eggs, oats and a few veggies.

Foods that didnt work out are avocado (kicked out for the millionth time) and Kefir. Kefir lasted for 3 days and each day I got worse swelling and fluid retention. My hands and feet started getting cramps, shoulders and neck hurting, bad headaches, etc.

BOO for losing Kefir. :(

I love that stuff.

CarlaB Enthusiast

I love kifir, too. I had some tonight, but I bought the vanilla flavor. It has sugar in it ... I guess I should be using the plain ...

Rachel--24 Collaborator
I love kifir, too. I had some tonight, but I bought the vanilla flavor. It has sugar in it ... I guess I should be using the plain ...

Yeah plain is best.

To tell you the truth...I havent bought anything "flavored" in so long....to me plain is a flavor! :lol:

It tastes good to me! :D

I have some alcohol free organic vanilla flavor. When I want a little vanilla flavor I sometimes add it to stuff.....like my soymilk. :)

I've now added nuts into my diet. I cant have nut butters and I've reacted to all the raw nuts I've bought. Those would all be high in mold...this time I bought nuts in the shell....hoping they'd be less moldy.

I ate half a bag...all different types of nuts. I didnt get a reaction.

It doesnt mean I wont react later but with the raw nuts in the bags....I react pretty much as soon as I eat one. So this is definately better. :)

AndreaB Contributor

Laura,

It's good to see you popping in here once in awhile. :)

Rachel,

I read that you kicked out 4 of your 5 foods and I was like :o:blink: then I read that you added some. :)

I'm still trying to figure out if its eggs or the millet/amaranth bread that's bothering me. I'll stay off bread and try eggs again on Tuesday. I buy organic free range vegetarian fed eggs (Organic Valley).

Gotta get the kidlets off to bed in a few. :)

diamondheart Newbie
Claire,

Its not the mold itself...its the mycotoxins which the molds produce. All fungi and yeasts produce mycotoxins....this is what causes health problems. Its actually not "candida" itself which makes someone sick....its the toxins that are produced by Candida...there are 79 toxins known to be produced by Candida.

Oooohhh :P ! Yeah, that's about as clear as mud, as we say here in the west!

I'd think that the BioSET could clear you of the mycotoxins. If I can get cleared for gluten, I'm sure you can get cleared for mycotoxins ;) !

Claire

diamondheart Newbie

And now for something completely different... :P

Rachelville reminds me of Pudgeland. I had a friend in high school who's nickname was Pudge. On one of our crazy weekend partying sprees, I invented Pudgeland, the place we went when we were doing you know what. Of course Pudge was the Prez. We appointed our friends to various offices. I can't remember them all now :huh:. Somewhere it's all written down. I was the Ambassador to Outer Pudgeland, meaning I was the one who was the link to reality for those in Pudgeland! Sadly, Pudge isn't around anymore, but it was fun while it lasted B) .

Claire

NoGluGirl Contributor
Hi NoGluGirl,

I wasn't quite sure what the situation was with your parents, so I didn't want to say anything at first :ph34r: . It sounds like they have the means to help you. I have to admit that I'm kinda mad that they aren't helping you more. But perhaps you could present them with the information you've been gathering and explain that you really need to get tests and see doctors or your situation will get worse. If your health gets worse, then you will have to spend even more time at home and the treatment gets even more costly. Maybe you could also negotiate with them some kind of financial plan that works for both of you. Either you could pay them back a certain amount, or when you are able to get a job, help pay for the groceries and bills. Maybe you just have to be honest and frank with them that waiting to get tests and treatment just doesn't work for your health situation. Then, ask them what they need from you to help out. You could negotiate what you could do to help depending on what you are able to do.

I lived at home for 7 months when I was 25 after not being at home for 6 years. I had just come home from the Peace Corps and I was very sick with Hepatitis A. I basically slept for 6 weeks when I first got home. It took me a long time to get better. I had no energy for months. But, when I did started feeling better, I tried to help out around the house when I could. I would cook dinner for my parents when they were home. Maybe that is something you could do. My situation was different than yours. I was soooo happy to be home after living in a third world country for two years. I don't think I could live with my parents now, though.

If you have a good relationship with other relatives, maybe you could ask them for help too. Are your parents willing to help you go after the internet company that ripped you off?

Claire

Dear Claire,

I already tried talking to them. I do not have any idea what else to do. I am the only one that really does anything around here! I do the dishes at least five days a week, plus help take care of the Yorkie that raises his leg up on everything! The house is a total mess. There is stuff everywhere. Everytime I get the kitchen table cleaned up, or the counter, they mess it up again! I spend a lot of energy dealing with this day-in and day-out. They even wash out and reuse the washcloths half the time because they won't do laundry! I cannot stand that. It is disgusting! You cannot really get clean that way. I often help and do my father's shirts and sometimes get $10. That is good. My mother just sees me as a hypochondriac, though. She always has. It makes me so angry. Dad is definitely more supportive, but as far as money management goes, he needs help. It is like money sees my dad and runs the other way. At this rate, he will never be able to retire. He has not really saved anything. It makes me angry we can afford for them to eat out five days a week, for him to have cigarettes, and for him to get Digital cable and now HBO, but I have to just deal with the fact we cannot afford to buy me some Glutino bars, or he will complain about the cost of the gluten-free, yeast-free bread I need. That is such crap! My mother actually had the nerve to say the other day that the Yorkie is more important than me. I called her on that the other day during an argument, and she said that it was because he is nice to her! Do you believe that? I told her, she disrespected me first. Just because I am her daughter does not mean I should have to put up with being treated badly. Then of course she waves the Ten Commandments over my head about respecting your parents. I highly doubt God expects you to respect people that do not care about you. I just am tired of paying for my parents mistakes. When I try to help them fix it, they don't care. They just do what they want anyway, because it inconveniences them to give up anything that is not necessary. The stupid dog gets groomed while I never get to go to the salon. I have to dye my hair myself. He gets medical testing right away, but I have to wait. He has seizure, which can be serious. It is just, I am done being disrespected. I feel like I am cursed! I have nothing to be happy about. I cannot remember the last time I was happy. I wonder if I am cursed by my parents' bad choices and actions. I am so tired of paying the price for other people not being responsible. I have just become angry and depressed. On the bright side, I am delightfully dark and twisted! ;)

Dear CarlaB,

Thanks for the advice. I will do that! I know you are more experienced in this matter. My resume is pretty short. I do have cashier's experience, which should help. Also, we have two Starbucks on this side of town, so I could always put in for both. If one does not call, the other might.

Sincerely,

NoGluGirl

dlp252 Apprentice

Wow NoGluGirl, I'm so frustrated just reading about your home situation! I don't even know what to say except that I'm sorry!

Rachel, OMGosh, I'm so excited that you have added more foods!!! Very exciting!

Andrea - That's the brand of eggs I buy too, lol.

Pudgeland, hum, maybe we can have a subdivision of Rachelville, lol.

I'm hoping BioSET will be able to help me clear some of those myotoxins, lol. Most of the foods I reacted to are the ones associated with molds. In fact I reacted to everything (food or otherwise) that had to do with mold. Also acids and fats. If they can clear those things, a whole new world of food would open up for me. :lol:

CarlaB Enthusiast
I have some alcohol free organic vanilla flavor. When I want a little vanilla flavor I sometimes add it to stuff.....like my soymilk. :)

This is a great idea.

CarlaB Enthusiast

NoGluGirl, I would do whatever I could to move out ... do you have grandparents? Aunts and uncles? I had a bad home situation growing up, so I understand. I wasn't neglected, but the rest rings true. I eventually had to break things off with them when my kids started asking about the abuse. I had thought it was best for them to know their grandma, but it wasn't. My dad is very supportive (they're divorced). The stress is not helping you at all! Stress and depression is a bad combination for anyone, especially the chronically ill.

It's apparent that they don't believe you're sick and that they're frustrated that they're still supporting you. I'm afraid they've labelled you as "lazy" (I used to hear that a lot myself) ... I'm sure if they believed you, things would be different.

AndreaB Contributor

Noglugirl,

Hugs. I don't know what else to say. Carla pretty much summed things up.

Donna,

I'm following your bioset with interest as well. I ordered some probiotics so we are going to see how those go for us (mainly Mitch). At some point we may look into bioset for some of us. Not in the near future though. We've still got to dig ourselves out of debt with the testing last year and I still have to figure out when and what to do with my teeth still.

Talked to my Dad this weekend. No biospy scheduled yet that he's aware of. I told him they'd call him the day before to remind him. :lol: Anyway, he'll let me know what comes up with that, good or bad.

Judyin Philly Enthusiast

Talked to my Dad this weekend. No biospy scheduled yet that he's aware of. I told him they'd call him the day before to remind him. :lol: Anyway, he'll let me know what comes up with that, good or bad.

ANDREA-THANKS FOR POSTING RE UPDATE ON DAD.

KEEP US POSTED OK?

LOVE JUDY

diamondheart Newbie
He gets medical testing right away, but I have to wait.

Ok, that's pretty messed up :angry: .

I don't know what else to say, but use some of that anger to do whatever you have to do to help yourself! I hope things get better for you soon.

Claire

NoGluGirl Contributor
NoGluGirl, I would do whatever I could to move out ... do you have grandparents? Aunts and uncles? I had a bad home situation growing up, so I understand. I wasn't neglected, but the rest rings true. I eventually had to break things off with them when my kids started asking about the abuse. I had thought it was best for them to know their grandma, but it wasn't. My dad is very supportive (they're divorced). The stress is not helping you at all! Stress and depression is a bad combination for anyone, especially the chronically ill.

It's apparent that they don't believe you're sick and that they're frustrated that they're still supporting you. I'm afraid they've labelled you as "lazy" (I used to hear that a lot myself) ... I'm sure if they believed you, things would be different.

Dear CarlaB, Donna, and AndreaB,

Thanks for the hugs. As Carla said, it is exactly like that. I do not mean to be cold, and do not want to be. It is just, how do you not get that way when I, love, and you are only three hollow words. My grandparents are very ill on Dad's side. Grandmom and I used to be so close, but I cannot even bear to see her in the state she is in. She has Alzheimer's. She is not herself anymore. It is so emotionally painful to see this happen to her. I cannot even drive, so getting anywhere is hard.

My mother says she wants me to drive, but since she uses my car (which she does not take care of) when would I get to use it? Plus now she is getting old. The Groovy Ruby Mobile is not a spring chicken anymore. I do not know how long she will make it. My mother takes God knows how many pills a day, which is making her completely stupid, and she says she is still nervous and does not want to take me driving even if I got my permit. Dad has to take care of my grandparents, and work. I do feel like they have labeled me as lazy. They act like they have been carrying to world on their shoulders or something. Nothing I do counts. They never notice until it is not done. My mother's side of the family treats me like everything is my fault and that I am just an ingrateful brat. My brother is less than supportive on a lot of things, because he is negative about everything. He and my mother do not support my religiousness either. Even worse it is out of their own selfishness, and they do not even care to know the truth about my faith. You see, I am Wiccan. No one understands this, nor do they care to. I never talk about it, for fear of being accused of being a devil worshipper. No one knows it is actually a nature based religion and has absolutely nothing to do with that at all. I am so tired of hiding that. I should be overjoyed to share it with people, but cannot. I have not forsaken Christianity, either.

I combine the two. Despite this, it is sacred only to me. I trust you all to be nonjudgmental and indiscriminate. That is why I know I can tell you. Anyway, there is bound to be a way to get out of these circumstances. I think I know what it is, but still do not have all of the stuff for the ritual I need to perform. I read about generational curses, and I think that is the trouble. The sins of the father go down to the son, it says. Apparently, it goes to the daughter and anyone else as well. Thank you for your support. I know I have a family in you guys.

Sincerely,

NoGluGirl

NoGluGirl Contributor
Ok, that's pretty messed up :angry: .

I don't know what else to say, but use some of that anger to do whatever you have to do to help yourself! I hope things get better for you soon.

Claire

Dear Claire,

I think I have figured something out. All I need to do is hope to get that job at Starbuck's. That is all I have to go on right now. Meanwhile, I could photocopy some stuff and mail it to a couple of local businesses. Maybe they will be interested in something. I feel the wrong deeds of my family may have caused this. It is like their bad karma biting me in the rear. I know how to fix it, I think. All I need to do is get all the supplies for my prayer.

Sincerely,

NoGluGirl

miamia Rookie
Sorry you lost the eggs Laura...its only been a week for me...you never know what could happen. I might just end up "deeding" them back to you. :P

I've been eating oats for about a week now too....I dont seem to be having problems with them. Yay for that. Of course they could still be feeding candida :unsure: ...but I'm thinking not so much as the ice cream was. :)

I kicked ice cream, potatoes, popcorn and apples out of my diet. There went 4 out of my 5 safe foods. :o

I've added in soymilk, eggs, oats and a few veggies.

Foods that didnt work out are avocado (kicked out for the millionth time) and Kefir. Kefir lasted for 3 days and each day I got worse swelling and fluid retention. My hands and feet started getting cramps, shoulders and neck hurting, bad headaches, etc.

BOO for losing Kefir. :(

I love that stuff.

Rachel-

I am so happy for you and your new foods. Soy Milk? That was a shocker- what kind are you drinking? The egg thing is very interesting I may have to look into that it would be so cool if i could eat eggs I don't even like them that much but it would still be really great. I wish I could handle kefir I am scared to even try it. Which vegees did you finaly find that you could tolerate?

Andrea thanks for the update on your dad. How are you holding up?

AndreaB Contributor
Andrea thanks for the update on your dad. How are you holding up?

I'm doing good, thanks for asking. A little tired today as Seth had a rough night.

Are you done with your antibiotics or do you have one more week?

Rachel--24 Collaborator
Rachel-

I am so happy for you and your new foods. Soy Milk? That was a shocker- what kind are you drinking? The egg thing is very interesting I may have to look into that it would be so cool if i could eat eggs I don't even like them that much but it would still be really great. I wish I could handle kefir I am scared to even try it. Which vegees did you finaly find that you could tolerate?

Miamia,

Its only one kind of soymilk....Edensoy Organic Unsweetened.

I cant have any other box milk. They all have carrageenan, oils, enriched with vitamins, sweetened with stuff, etc. I think I cant have anything enriched because of the B-Vitamins being yeast derived.

This one only has reverse osmosis water and organic soybeans. I noticed Trader Joes has one too....with only purified water and organic soybeans.

Theres not alot of vegies I'm eating...mainly lettuce, tomato, italian parsely, bell pepper....thats about it. I'm adding stuff in really slowly.

I'm not too sure on the eggs anymore. <_<

I started having real bad headaches. It could have been from butter....but I was only using it to grease the pan. :huh: Butter gives me headaches though.

I dunno....my friend said that veggie-fed means they're probably eating grain....and probably corn....which would have the most mycotoxins. She said chickens eat grains. I still dont know for sure though. <_<

The nuts didnt go over well at all. :angry:

I thought maybe in the shell they would have less chance of mold?? Some of them actually tasted moldy to me!

I had all diferent kinds.....brazil nuts were the worst...and then walnuts. I reacted to the brazil nuts right away. :(

Yesterday I did some reading and came across this...

Nuts and the oils produced from these nuts are heavily laden with contamination. In fact, one study found as many as 24 different forms of fungi in peanuts alone. The one thing worth mentioning here, peanuts, and other nuts we consume, often are in the shell, and there is no good way to even begin to eliminate these fungi and mycotoxins from the shell nuts. So, when you eat nuts still in the shell, there is a direct intake of fungi and mycotoxins produced by these fungi.

So yeah....I guess I should have read FIRST...before I bought 3 bags of nuts. :ph34r:

I wonder if this is why I also react to so many oils. :huh:

Heres a link for the whole article about the top fungi infested foods...

Open Original Shared Link

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    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
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