Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

lonewolf Collaborator
lonewolf
Posted
Dear lonewolf,

I am not sure where you live. However, I was poking around on Google and found this forum, Open Original Shared Link which talks about dentists who remove metal amalgams. I also found some good sites about the dangers of mercury toxicity. I will send those URLs to you in a future post if you want. Just say the word! The people on this forum might be able to help you locate a dentist in your area doing this type of work.

Sincerely,

NoGluGirl

Thanks! I'm at work, so I'll check this out tonight. Any information you can give me will be much appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
lonewolf Collaborator
lonewolf
Posted
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

Yikes is right! :o

I dont rememeber my bill but I only had 2 fillings removed and it was done in one visit. I did have two other composites that were put in by the regular dentist (that I dont like :angry: ) and since we didnt know what materials were used he removed those and used materials that I tested compatible with.

I know my bill had to of been around $1000....not much more or not much less. I had to pay about $350 for the compatibility test which was done by an outside lab.

I probably could have gotten some or all of it paid for by insurance but I was too sick to figure stuff like that out. :huh: I just wanted the fillings removed.

Yeah...I would say I was beyond desperate. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

AndreaB Contributor
AndreaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

I know the guy we bought stuff from doesn't sell anything like that. I had mentioned the kids and baths. I would assume no because bath spouts are all different sizes.

For Seth's baths I just use the showerhead to fill up his tub. Could you do that with your baths?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Open Original Shared Link

Carla...that is an awesome list of mercury free dentists!!

Why couldnt I find anything like that when I was desperately searching?? My brain wasnt working all that well but I would have been really happy to have a list like that in front of me!! :o

I did end up with a good dentist though...looks like there are quite a few in my area...I'm happy with who I got. :)

I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

jerseyangel Proficient
jerseyangel
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

How about filling up the bath from the shower? :P

dlp252 Apprentice
dlp252
Posted
:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Yes, and keep in mind that that included replacing 5 crowns which are way more expensive. On almost all of them he had to put in a "post" whatever that means, which also cost more. And, several of the teeth were so drilled out to begin with that he had to build some of them up. Stupid amalgams. :angry:

My dentist was able to give me an estimate before we began of what my share would be. The posts and build ups were not part of that because those were things he couldn't tell until got in there.

Also, he told me that even porcelain crowns contain metal...at least the ones put in by my "regular" dentist did, so even those would not necessarily be good if there is still amalgam under there (which was the case for me).

dlp252 Apprentice
dlp252
Posted
I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

Me too, lol. He has quite the sense of humor, lol.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Thanks Patti!

I wonder if they have these kinds of things at Bed Bath and Beyond or places like that....I'm gonna look around. I might end up ordering from this site if I dont find anything in the store. This gives me a better idea of what I'm looking for. :)

Anyone know about how long they last??

AndreaB Contributor
AndreaB
Posted
Anyone know about how long they last??

Mine lasts six months.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Mine lasts six months.

Thanks Andrea. I just did a serach and OMG...this is not as difficult as I thought it would be. :rolleyes:

The one Patti posted seemed pretty easy to use....no installation even. I found a bunch more...they are just balls that hang from the bath and the water passes over it while it runs. After the bath is full you kind of drag the ball through the water a few times. (I guess this collects the clorine and other bad stuff). The prices vary from site to site.

I also found some crystals that you can pour into the bath which remove chlorine as well.

Open Original Shared Link

One of the sites said it lasts 300 baths or 1 year.....not bad.

Do these things really work?? I think it would really help since I read that NDF works alot better on the metals when you remove chlorine from the water.....since it will always bind with chlorine first.

Also...It seems like chlorine is not good for us!

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Laura, hang in there, this is good progress. Your mystery illness is identified and you are treating it. It's a tough pill to swallow, and I sometimes still can't believe it myself, but it's really good to know what it is so you can fix it.

What abx is he starting you on?

AndreaB Contributor
AndreaB
Posted
Just wanted to give you a quick update....made a big change today.

Had an app't with my doctor and based on my symtpoms, my equivocal testing, my + RMSF, + mycoplasma, that we are going to start treating for LD and its other issues. I actually was able to start today.

Thanks for the update Laura. I've been wondering how you were doing.

What is RMSF?

Keep us posted on how the IV goes.

We are here for your support as well, if you need it. :wub:

CarlaB Enthusiast
CarlaB
Posted
What is RMSF?

Rocky Mountain Spotted Fever

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Omnicef? I just started that one Friday.

Judyin Philly Enthusiast
Judyin Philly
Posted

PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, Yes, I think thats the one. I am going to start it probably over the weekend.

I jumped in at the full dose on Friday night, started herxing Saturday. I'm still feeling bad now. You might want to start slow. I'm on so many things though, when I started all the first stuff I didn't herx for a month.

Keep us posted. I'm actually excited for you that you FINALLY know what's going on.

Has your doc started you on probiotics?

happygirl Collaborator
happygirl
Posted

x

dlp252 Apprentice
dlp252
Posted
xoxo

Wow, thanks for the update and I'm so happy that at least you have a diagnosis and can start treatments. It sounds like a great plan to start your meds as few at a time as possible to know which one is the culprit if you react.

dlp252 Apprentice
dlp252
Posted
PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

Hi Judy! Anything new with YOUR testing?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

      I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    2. Scott Adams
      - Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

      While it seems unlikely to contain intentional gluten ingredients--and based on the ingredients you provided, this canned Wendy's chili appears to be gluten-free, but with a very important caveat: it cannot be considered certified or guaranteed gluten-free due to the potential for cross-contamination and the ambiguous nature of "natural flavors."
    3. Scott Adams
      - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    4. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Guinness, can you drink it?

      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have...
    5. maryannlove
      - maryannlove commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

      I have same question as trents above. After I mentioned how much I liked Wendy's chili, a neighbor gave me a can b/c I didn't know could buy it in a can. Is gluten free in Wendy's restaurant, but can doesn't say gluten free so afraid to eat it. (Can says provides 50% Daily Value of protein, another plus.) Below are ingredients on can. Would the experts...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,272
    • Most Online (within 30 mins)
      7,748
    SLowe
    Newest Member
    SLowe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Going for upper endoscopy today

      By RMJ · Posted

      I’m glad you have a clear answer.  Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    • Scott Adams
      Going for upper endoscopy today

      By Scott Adams · Posted

      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might.
    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.