Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

lonewolf Collaborator
lonewolf
Posted
Dear lonewolf,

I am not sure where you live. However, I was poking around on Google and found this forum, Open Original Shared Link which talks about dentists who remove metal amalgams. I also found some good sites about the dangers of mercury toxicity. I will send those URLs to you in a future post if you want. Just say the word! The people on this forum might be able to help you locate a dentist in your area doing this type of work.

Sincerely,

NoGluGirl

Thanks! I'm at work, so I'll check this out tonight. Any information you can give me will be much appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
lonewolf Collaborator
lonewolf
Posted
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
As far as cost...my portion of the whole process (for 11 amalgam removals--5 crowns) was around $8,000 I think. I only have a $2,000 dental benefit each year and even then I couldn't use all of it.

Yikes is right! :o

I dont rememeber my bill but I only had 2 fillings removed and it was done in one visit. I did have two other composites that were put in by the regular dentist (that I dont like :angry: ) and since we didnt know what materials were used he removed those and used materials that I tested compatible with.

I know my bill had to of been around $1000....not much more or not much less. I had to pay about $350 for the compatibility test which was done by an outside lab.

I probably could have gotten some or all of it paid for by insurance but I was too sick to figure stuff like that out. :huh: I just wanted the fillings removed.

Yeah...I would say I was beyond desperate. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

AndreaB Contributor
AndreaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

I know the guy we bought stuff from doesn't sell anything like that. I had mentioned the kids and baths. I would assume no because bath spouts are all different sizes.

For Seth's baths I just use the showerhead to fill up his tub. Could you do that with your baths?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Open Original Shared Link

Carla...that is an awesome list of mercury free dentists!!

Why couldnt I find anything like that when I was desperately searching?? My brain wasnt working all that well but I would have been really happy to have a list like that in front of me!! :o

I did end up with a good dentist though...looks like there are quite a few in my area...I'm happy with who I got. :)

I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

jerseyangel Proficient
jerseyangel
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
Can you get those chlorine filter thingys for the bath (not showerhead)?? :unsure:

Anyone know??

How about filling up the bath from the shower? :P

dlp252 Apprentice
dlp252
Posted
:o:(

Yikes! We have a $1500 max each year. I don't think I have 11 amalgams left though. This will be spread out over several years if it's this expensive. Good thing I'm not so sick I feel desperate.

Yes, and keep in mind that that included replacing 5 crowns which are way more expensive. On almost all of them he had to put in a "post" whatever that means, which also cost more. And, several of the teeth were so drilled out to begin with that he had to build some of them up. Stupid amalgams. :angry:

My dentist was able to give me an estimate before we began of what my share would be. The posts and build ups were not part of that because those were things he couldn't tell until got in there.

Also, he told me that even porcelain crowns contain metal...at least the ones put in by my "regular" dentist did, so even those would not necessarily be good if there is still amalgam under there (which was the case for me).

dlp252 Apprentice
dlp252
Posted
I would recommend Dr. Adams to anyone who's looking in the Bay Area. :)

Me too, lol. He has quite the sense of humor, lol.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Here's a company that has one--it looks simple enough, and not terribly expensive. I assume you could use it without the bubbles....

Open Original Shared Link

Thanks Patti!

I wonder if they have these kinds of things at Bed Bath and Beyond or places like that....I'm gonna look around. I might end up ordering from this site if I dont find anything in the store. This gives me a better idea of what I'm looking for. :)

Anyone know about how long they last??

AndreaB Contributor
AndreaB
Posted
Anyone know about how long they last??

Mine lasts six months.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Mine lasts six months.

Thanks Andrea. I just did a serach and OMG...this is not as difficult as I thought it would be. :rolleyes:

The one Patti posted seemed pretty easy to use....no installation even. I found a bunch more...they are just balls that hang from the bath and the water passes over it while it runs. After the bath is full you kind of drag the ball through the water a few times. (I guess this collects the clorine and other bad stuff). The prices vary from site to site.

I also found some crystals that you can pour into the bath which remove chlorine as well.

Open Original Shared Link

One of the sites said it lasts 300 baths or 1 year.....not bad.

Do these things really work?? I think it would really help since I read that NDF works alot better on the metals when you remove chlorine from the water.....since it will always bind with chlorine first.

Also...It seems like chlorine is not good for us!

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Laura, hang in there, this is good progress. Your mystery illness is identified and you are treating it. It's a tough pill to swallow, and I sometimes still can't believe it myself, but it's really good to know what it is so you can fix it.

What abx is he starting you on?

AndreaB Contributor
AndreaB
Posted
Just wanted to give you a quick update....made a big change today.

Had an app't with my doctor and based on my symtpoms, my equivocal testing, my + RMSF, + mycoplasma, that we are going to start treating for LD and its other issues. I actually was able to start today.

Thanks for the update Laura. I've been wondering how you were doing.

What is RMSF?

Keep us posted on how the IV goes.

We are here for your support as well, if you need it. :wub:

CarlaB Enthusiast
CarlaB
Posted
What is RMSF?

Rocky Mountain Spotted Fever

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Omnicef? I just started that one Friday.

Judyin Philly Enthusiast
Judyin Philly
Posted

PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, Yes, I think thats the one. I am going to start it probably over the weekend.

I jumped in at the full dose on Friday night, started herxing Saturday. I'm still feeling bad now. You might want to start slow. I'm on so many things though, when I started all the first stuff I didn't herx for a month.

Keep us posted. I'm actually excited for you that you FINALLY know what's going on.

Has your doc started you on probiotics?

happygirl Collaborator
happygirl
Posted

x

dlp252 Apprentice
dlp252
Posted
xoxo

Wow, thanks for the update and I'm so happy that at least you have a diagnosis and can start treatments. It sounds like a great plan to start your meds as few at a time as possible to know which one is the culprit if you react.

dlp252 Apprentice
dlp252
Posted
PRAYERS FOR ALL YOU LADIES..

SO MUCH GOING ON HERE. JUST WANT YOU TO KNOW I CARE.

LAURA, WOW AFTER ALL THIS TIME..FINALLY A DX.

JUDY

Hi Judy! Anything new with YOUR testing?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    3. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    4. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    5. Lkg5
      - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

      Thank’s for addressing the issue of mushrooms. I was under the impression that only wild mushrooms were gluten-free. Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative. In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken. Major mistake!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.