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Omg...i Might Be On To Something

Rachel--24

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AndreaB Contributor
AndreaB
Posted

I also have a joint ache in my right knee. That got better going gluten/soy free but I'm still wondering about that as well. Maybe that's the mercury too, looking at that little list you posted Rachel.

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AndreaB Contributor
AndreaB
Posted
about bells palsy:

" Lyme disease is also a common cause of Bell's palsy, especially in the northeastern United States."

Wow, that's alot of stuff that could cause bells palsy. :blink:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Wish it were clear that it was or wasn't Bell's Palsy.

I had NO droop, and NO paralysis. Just numbness of the skin, and that area of skin was slightly paler than the rest of my face.

The numbness went away the first time when my thyroid meds were adjusted, and came back just before I went off gluten, at which point it disappeared for good (I hope). (And my thyroid medicine has been steadily decreased, too :) )

Interestingly, that same patch of skin had had what the doctor insisted was a strep skin infection a couple of years before, which I thought was very odd, as I'd only had strep throat once in my life, though my brother had it numerous times. He did a culture, and said that it was negative, but he swore it looked exactly like every other case of strep skin infection that he'd ever seen. The antibiotic did clear it up, but I still think the whole thing was very odd. :blink:

My body totally refuses to do anything the "textbook" way. :ph34r:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
The "Rinne Bar" project is lots of fun and I intend on keeping it that way, thanks to everyone for your support. I'll be serving them in the Rachelville Juice Bar.

Rinne...I'm so happy for you. :D

I'm happy that you've created Rinne Bars. :)

I'm happy that you are in such good spirits. :)

I'm happy that you're back in Rachelville. :)

I'm happy that project Rinne Bars has been a success. :)

I'm happy that in Rachelville I can eat the Rinne Bars all day long...and not get sick. :D

CarlaB Enthusiast
CarlaB
Posted
I also have a joint ache in my right knee. That got better going gluten/soy free but I'm still wondering about that as well. Maybe that's the mercury too, looking at that little list you posted Rachel.

Not to alarm you, but that was my first Lyme symptom! Only for me it was the left knee.

Adam and I went for a LONG walk after dinner. We used to do this all the time, but last summer I could hardly make it around our short block. Cardio and walk in the same day! YAY!

AndreaB Contributor
AndreaB
Posted
Not to alarm you, but that was my first Lyme symptom! Only for me it was the left knee.

Adam and I went for a LONG walk after dinner. We used to do this all the time, but last summer I could hardly make it around our short block. Cardio and walk in the same day! YAY!

WooHoo!! That's great. Hopefully you'll continue feeling this good and this means you are over the worse of the herxes. That would be wonderful with summer coming up. :)

I'm keeping lyme in the back of my mind. That's another reason I want to do ART, along with finding out how big of a problem mercury (or other metals) is.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I'm keeping lyme in the back of my mind. That's another reason I want to do ART, along with finding out how big of a problem mercury (or other metals) is.

Andrea, keep in mind that ART is used in conjunction with lab work. I wouldnt recommend having a single ART session without following up with lab work. ART is more of a longterm method of testing. I would think for you getting actual labwork would be more cost efficient and more diagnostic.

Even though the bloodwork, urine or other clinical testing thats available isnt 100% reliable...ART is also only showing certain stressors on your body while you're being tested....its accuracy also relies heavily on the skills of the practitioner. Labwork should always be used to confirm the findings of ART or if labwork is inconclusive Art can then play an important role in putting the pieces together.

Its not really something you should do once and then treat based on the results of one session...ART is more longterm.

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rinne Apprentice
rinne
Posted

Decided to join the picture party but now I have to catch up on my reading. :)

AndreaB Contributor
AndreaB
Posted
Decided to join the picture party but now I have to catch up on my reading. :)

Cute! It's nice to see little girl Rinne. :)

Rachel,

So would you just suggest the mercury challenge? What bloodwork etc would I want to look into for the family? Talitha, Seth and myself being the ones I'm most concerned about, but I want to have everyone tested. Kinesiology (how ever you spell that :unsure: ) would be another option I'm sure.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So would you just suggest the mercury challenge? What bloodwork etc would I want to look into for the family? Talitha, Seth and myself being the ones I'm most concerned about, but I want to have everyone tested. Kinesiology (how ever you spell that :unsure: ) would be another option I'm sure.

I would only suggest the mercury challenge for you...not the kids. Still....it would be better to take care of the amalgams before anything. I dont think you need bloodwork unless you wanted to test for Lyme.

ART is kinesiology. Its muscle testing but a little more advanced.

If mercury turns out to be your problem then I would assume the kids intolerances are coming from that. Breast milk excretes mercury and other toxins. I actually read that breast milk can be so toxic it would be illegal to dispose of it in a landfill. :blink: That comes from mercury mainly.

Maybe the kids are genetically slow detoxers making them more susceptible to it??

So I think you should find out the status of your own health and then if mercury is a big issue work with a good Dr. on possibly detoxing the kids. They arent sick so if they're having mercury issues its not severe and they should be able to take some kind of gentle detox.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Decided to join the picture party but now I have to catch up on my reading. :)

OMG Rinne...that picture is so adorable. :)

Very cute.

The Rachelvillians sure were an adorable bunch in childhood!! B)

Actually...we're still quite an attractive group of people who cant eat a whole lot. :P

christine 25 Newbie
christine 25
Posted
:blink:
rinne Apprentice
rinne
Posted

Rachel, your photo is very cute, you look like trouble. :lol:

And Donna so mischeivious. :)

Lymecentric! :lol:

:lol:

I am very punchy and tired todya, awoke this morning, drenched in sweat, from a dream in which I was studying very heavily for my FBI test, and then later, was at Maria Shriver's wedding parade.... :huh:

:lol:

OMG - - I'm goign to get kicked out of Rville just as soon as I'm back in........

.....

Ferritin level at time of dx when I was tested was around TWO. At the six-month mark, it was 6, and now, fourteen months after initial dx, it is TWENTY-TWO. :rolleyes: [Normal for my size is 25 to 200. ] Can you imagine how much better I"m feeling? Hemoglobin was around 7 - it's now up to 13. Blood cells were seriously shrivelled when I was diagnosed (is that hematocrit?) and they are now totally normal size. Tissue transglutaminase at time of dx was literally OFF THE CHARTS - - it was greater than 100 and they don't measure past 100. IT is now down to THREE!!!!!!!!!!!!!!!!

Fabulosa.

Judy...you know we love you :wub: ....and YES...we do want you here!!! Its nice when you visit...but its even nicer whaen you stay awhile. :)

I completely agree. :) Judy I can't remember what I might have said other than they are a chocolate, banana and almond frozen treat, did a launch of them this week and I now have some orders starting to come in. I'm working on my home caterer's licence and finding a space for production. I'm still thinking about how I want to proceed but basically feel I have created a completely unique product that there is a demand for. I think that if I am smart about it you may be able to buy it sometime in the future. It is not only gluten and dairy free but totally delicious, most of the people who want to purchase it can eat gluten and dairy.

RACHELVILLE NEWS

Today there were new additions to the dictionary. They are:

Weed-eating pigs - pigs which consume marijuana and become intoxicated

Lyme-Centric - Centered around, related to Lyme Disease

The trial date for the Auxigro Lawsuit has been set. It has been arranged some of the Redneck Deer defending the town shall testify. Buck is the first to volunteer. His comment was "Git-R-Done!" Bongo, my favorite purple glittery bat wanted to testify, but I explained to him that the pink glittery berry scented tirds are not allowed in the courtroom by law. He was very disappointed. I told him he can make the statement to the press, though. He was happy. :lol:

Thanks for the updates. :)

Rinne, please say your new bars don't have coconut in them.....either way, I wish you much luck with them :)

Of course not, you know that in Rachelville the food is perfect. :lol:

Interesting about the fibroids--the one I had was 8 centimeters (grapefruit sized). So many women have them--there has to be more to it than meets the eye.....

I've got them.

Rinne...I'm so happy for you. :D

I'm happy that you've created Rinne Bars. :)

I'm happy that you are in such good spirits. :)

I'm happy that you're back in Rachelville. :)

I'm happy that project Rinne Bars has been a success. :)

I'm happy that in Rachelville I can eat the Rinne Bars all day long...and not get sick. :D

Thank you Rachel.

diamondheart Newbie
diamondheart
Posted
Interesting about the fibroids--the one I had was 8 centimeters (grapefruit sized). So many women have them--there has to be more to it than meets the eye.....

Stupid fibroids :angry: !

You'll be having me test for Lyme next :rolleyes: !

One thing I didn't mention was that at my doctor's visit in March he said my uterus was larger than it should be and asked if that was normal for me. I told him I didn't know. :blink:

I'm hoping it's not fibroids, but I'm hoping if it is that taking care of the amalgams and chelation will take care of it.

I agree that there has to be something that is causing these and that there are so many women that have them.

Andrea, I'd get it checked out. A simple transvaginal ultrasound will let you know. Better to know what your dealing with than not. In my case, my stupid doc who originally diagnosed me with fibroids said they were small and I didn't need to worry about them. Then, they got so big, I had to have them surgically removed :angry: . Once was enough for me! Most of the time, I don't think fibroids go away on their own and I haven't heard about any connection with mercury. I wouldn't be surprised if a virus or bacterial was the cause, but no one knows.

I learned some very interesting things with the birth intuitive today, and some of it was connected to the area where I had my fibroids. But I'm too tired to discuss it tonight. What an intense day it's been!

:blink:

Christine, I feel that way too sometimes ;) !!

AndreaB Contributor
AndreaB
Posted
I completely agree. :) Judy I can't remember what I might have said other than they are a chocolate, banana and almond frozen treat, did a launch of them this week and I now have some orders starting to come in.

These sound really good. Unfortunately for us, banana's don't like us. Also I'm assuming the chocolate has soy lecithin in it.

I learned some very interesting things with the birth intuitive today, and some of it was connected to the area where I had my fibroids. But I'm too tired to discuss it tonight. What an intense day it's been!

I'll be looking for your update when you feel up to posting it.

I don't have any pain or anything with the uterus. Wouldn't fibroids cause pain?

miamia Rookie
miamia
Posted

- I love everyones pictures!!

NoGluGirl Contributor
NoGluGirl
Posted

Dear Rachel, Andrea, Rinne, Patti, Bev, and Donna,

You guys are all so cute! I need to get a pic of me on here from when I was little. I will have to look around for them. There is bound to be a good one somewhere! I just have to find it!

Dear Rachel,

Slower is better with treatment! I am glad you found out what made you sick last week. It is frustrating having to do a slower treatment, but at the same time, you know it is the best option. You did not become ill in one day, and you will not get well in one. This is difficult to accept. In the long run, it is the wisest move.

That is so neat about your heritage! I had a friend whose mother was of Italian descent. There are many cool mixes in our culture. It was rumored we have Cherokee on my mother's side. We cannot trace it, though. They did not record it due to Native Americans being discriminated against.

Dear Donna,

Your heritage is really interesting as well! As far as I know, we only have Irish, English, and Scottish. Many people think I look exotic. :lol: A lot of people confuse me for Chinese. I have not idea. My theory is, it is in there really far back. All I know is, my great-grandmother and I look exactly alike with the exception of my hair length and eye color.

Dear Laura,

Thanks for the info on mycoplasm. I had never heard of that before. It is something you do not hear about every day! :lol: Hopefully, no one else has it! That is a nasty thing to have.

Dear Carla,

I agree that the Lyme Clan should dress individually. We all have our own style. Rachel needs to show her rachelness, and you need to show your carlaness. ;) All of us are special in our own way! The Lyme green nail polish would be fun to use! Can we paint Charlie's toe nails! :lol:

Dear Andrea,

That is so funny about you taking the horses through the McDonald's drive-thru! :lol: I love that! I bet that was so hilarious! People probably were like "What the...?" It had to be a blast!

Sincerely,

NoGluGirl

dlp252 Apprentice
dlp252
Posted

Rinne - adorable picture!!!!! And those bars....oh, sign me up, lol. :lol:

This mornings picture is of me and my cousin Deb. I can't have been more than 1 although I look younger, and Deb must have been new born since we're one year apart. That's my mom holding Deb.

I don't have any pain or anything with the uterus. Wouldn't fibroids cause pain?

Not necessarily, many people don't even know they have them. Mine did because they were big and there were more than 20 of them...they were pressing on all my organs and such by that time.

jerseyangel Proficient
jerseyangel
Posted
One thing I didn't mention was that at my doctor's visit in March he said my uterus was larger than it should be and asked if that was normal for me. I told him I didn't know. :blink:

I'm hoping it's not fibroids, but I'm hoping if it is that taking care of the amalgams and chelation will take care of it.

Andrea, I was found (on the pathology report after surgery) to have had a condition called adenomyosis. It is most frequently discovered on a post surgery report because it's difficult to diagnose. It happens when endometrial cells infiltrate the uterine wall. It causes the uterus to be larger than normal--mine was the size of a 14 week pregnancy. It is not necessarilily painful, but can cause heavy periods, cramping and clots. It is also more common in women who have had C-sections--one school of thought is that the incision lets the cells in initially, although they don't know what exactly causes it.

Fibroids don't always cause pain--it all depends on which type they are, the location and size. Many women never require treatment for them.

Of course not, you know that in Rachelville the food is perfect. :lol:

Yippee! I just read that they were almond, banana and chocolate based. I can't wait to be able to order them! :D Did I say yippee!!!! I miss frozen treats....

Your picture is so cute :D

AndreaB Contributor
AndreaB
Posted
That is so funny about you taking the horses through the McDonald's drive-thru! :lol: I love that! I bet that was so hilarious! People probably were like "What the...?" It had to be a blast!

Yep. :D

This mornings picture is of me and my cousin Deb. I can't have been more than 1 although I look younger, and Deb must have been new born since we're one year apart. That's my mom holding Deb.

Another cute photo. :)

Andrea, I was found (on the pathology report after surgery) to have had a condition called adenomyosis. It is most frequently discovered on a post surgery report because it's difficult to diagnose. It happens when endometrial cells infiltrate the uterine wall. It causes the uterus to be larger than normal--mine was the size of a 14 week pregnancy. It is not necessarilily painful, but can cause heavy periods, cramping and clots. It is also more common in women who have had C-sections--one school of thought is that the incision lets the cells in initially, although they don't know what exactly causes it.

Fibroids don't always cause pain--it all depends on which type they are, the location and size. Many women never require treatment for them.

Hm, that makes sense. He didn't say how big but did ask me about cramping and clots. I always used to have some back pain PMS but haven't lately. No big clots and heavy periods have been since the get go. They are actually better now than we I was younger.

I've had 3 sections and I was talking to Mitch about it after the appointment, wondering if the incision could be making things bigger in there.

My doctor didn't recommend anything else, so he must not be concerned at this point. He does recommend thermal scans instead of mammograms though. :)

CarlaB Enthusiast
CarlaB
Posted
Can we paint Charlie's toe nails! :lol:

Absolutely NOT! :lol: He can wear a man's Lyme green hat.

I actually haven't worn it lately ... right now my toenails are purple ... they're always painted ... year around!

Mtndog Collaborator
Mtndog
Posted
Exotic?? Me??? :unsure:

:lol::lol: Thats funny!!

My mom is Spanish/Italian and my dad is Hispanic (Mexican)

Yes, you look EXOTIC silly! You have that beautiful dark hair, eyes and skin. I was thinking Spanish. Shall we call you Penelope Cruz? Rachel Cruz? I've got it! Racquel 24!!!!!!!!!!

Andrea- how fun is it that you rode your horse through the drive-thru! So cool!!!!!!!!!!!!!!! He was beautiful...must have been hard to let him go. Spoons wasn't mine, I just rode him and showed him. He was actually a pony (big for a pony) but he was so good for me!!!!!!! We just did like training level dressage. I miss Mr Spoons :wub:

Patti and Donna- You guys are too cute! Donna- I bet you were a handful! Patti- I bet you were a saint!

Diamondheart- i want to hear mopre abouth this birth intuitive stuff.

SusieQ- My God- that is awesome that you are so much healthier! I am so excited for you! We need healthy people around us to remind us that it can be us sooner or later. Plus you are hysterically hilarious!!!!!!!!!!!! Speaking of which, if you go to the Tickle Me Elbow thread Nikki-UK had to get glasses and she wrote "Well, blow me if I didn't need new specs!" I almost died laughing. Only in Britain can you say that and not :ph34r: get looked at like a pervert. :ph34r:

Rinne- I'm so excited for you and your bars!!!!!!!!!! Ddo they taste like banana? Or just like dairy? They sound so good!

Rachel and Carla- I am AMAZED by all the knowledge you've accumulated and how persistent you've both been about beating the crap outta those Lymey yucks!

If I get diagnosed with Lyme, I will not wear a lyme green hat either. It's not my color. I will wear black in honor of those mean evil black flies that tried to eat me alive. Wait- what am I saying- I will wear a white hat in PROTEST!!!!!!!!!!!!!!!!!!!!!!!!! with black letters on it that say "Black flies must die"

I'm kind of cracking up here because babesiosis/babesia could be my nickname. My initials are BAB (now that I'm married they are BABO) but some of my friends still call me Babs. Now they will have to call me BABesia!!!!!!!!!!

Going to watch the Red Sox Yankees game today. :ph34r:

<-------------------------------------- New avatar. First dance recital- I think I was 4.

CarlaB Enthusiast
CarlaB
Posted

Beverly, you are so funny, too! It's so good to have you and Susan back!

Let's hope you don't have babs, too, even if it's a good fit with your name and all ... it makes it more difficult to kill the bugs!

And the things it does to my brain! I can tell a herx is coming by how mean I get! My son said to me recently that I'm reasonable with mistakes the kids make, but then sometimes they'll do something that is really nothing and I'll get so terribly mad about it! And it's true ... that's the first sign a herx is coming -- weepy and irritable.

I'm enjoying feeling better now ... I'm hoping the new meds won't make me feel too bad. It's pretty common to feel worse with new meds.

CarlaB Enthusiast
CarlaB
Posted

OMGOSH!! What a great picture!!!

My Dad gave my sister's husband (at the time, fiance) a picture of her in a dance costume like that!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Ok...I got 2 new pics up.

My avatar is from when I was 3 and my personal pic is me and my brother. I'm 5 and he's 4. :)

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      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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