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Omg...i Might Be On To Something


Rachel--24

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tom Contributor
It is one of those perfect early summer mornings

Well THAT sounds hard to beat. I love the smell of the air at any time that could make someone say that.


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tom Contributor
:ph34r: I want to eat the freshly-caught fish....

OMG YES!! I've been meaning to weigh in on this. Pretty hard to beat a fish so fresh it was still alive after the fire was started!

(Or is dingy's desire unfulfilled, victim to disciplined deprivation? Hehe but <confused> :huh: )

Since I don't think I have that dreaded mercury problem, I'll eat most fish. Not the ones most likely to be high in merc, which, last list I saw didn't incl much of what I want most anyway.

Aren't bottom-feeders worst? What w/ the 'heavy' in heavy-metal and all.

Morning all! Feeling much better today. . . . .

I DID go to my magic place . . .

Hugs and love to all! I have to work in garden this morning - gently -

Yay great to hear Pseu-zhan!!

I'd thought I FULLY understood "magic place" (and have a 26yr old quaalude scar to prove it :lol: ) but methinks yours must have the ability to compress a few days rehab into one injuriously-imposed "lazy day". :)

Garden work even! Color ME Impressed!!

dlp252 Apprentice

That lodge is someplace I might like to be right now. :P

Rinee - I'll go back and get what Andrea posted...don't try to find it, lol.

Wow, quite impressed with a whole bunch of you today. :P

tom Contributor
(tom adds - Re: Lisa/Tabasco)

I asked Scott if he knew of anyone in your area....he didnt know anyone of over there. You might have to travel a little to see someone good.

Sheeesh am I losing my mind again? I thought u both were in Phrez-gno!

:huh:

tom Contributor
hmmm....I think it's the over-excitement of finding yourself in Rachelville. See, we all enterered into it gradually.....and BAM! here you are, in the vortex. :lol:

<she said enterered>

OH!!!!!! SO unfair to typo-tease!!!!

:lol:

DingoGirl Enthusiast
I'd thought I FULLY understood "magic place" (and have a 26yr old quaalude scar to prove it :lol: ) but methinks yours must have the ability to compress a few days rehab into one injuriously-imposed "lazy day". :)

Garden work even! Color ME Impressed!!

:o um....not THAT magic of a place...:lol: I injured my back in my late teens, twisted funny during a dive and have never been the same. :( I remember having to soak in the tub for days.......heating pads...ice....the last time I had any drugs specifically for my back was in college - some type of muscle relaxants that made me QUITE goofy, I recall, at this very serious dinner that I had to attend....if any of you remember Elaine on Seinfeld when wrenched her back on that horrible fold-out bed at Jerry's parents' house......and she took the drugs....."STELLLLLLLLLLLLLLLL-LLLAAAAAAAAAAAA........." :lol::lol::lol: well it was not unlike that.........cracks me up to this day to think of it.

so have had nothing more than Ibuprofen since, for pain. Did SERIOUS further damage to my back through weighlifting.....oh how I regret that now!!! My back really ached whilst working at that wretched art store - up to 8 hours on my feet non-stop.....it is better now BUT evidently I cannot jump off a bouldering wall EVER, from ANY height! :huh: Compressed or jostled my spine, and sciata, in a VERY bad way.

So yesterday - yes, Tom, a few days' recovery into one!! The *magic pills* have to last me the rest of my life, I think. :P they are pretty fabulous, even if you feel a twinge of pain, may I just say that, you do not really care. :lol:

So the "gardening" today only consisted of mowing the lawn, some watering, and 10 minutes of weed-pulling, nothing more, friends. I do feel the pain today, but will take nothing for it, I feel it is quite necessary to feel the pain on such days so as not to twist or further injure.....I believe Andrea mentioned something like that just recently.

Gorgeous lodge....yes, Donna, we should BE there!!!!! We should ALL be there!! :rolleyes:

Well, I am off to play!!!

:)

GRUMP 1 Contributor

<pouts> I bet Carla'd let Charlie or Grump vote!

I'm going back to my ROOM!! SLAM!!

Jin - the mystery cc is soooo annoying huh? Hope you're better tomorrow.

Hope EVERYONE's better tomorrow!!

No I did not get to vote. But I will vote for you being able to vote.

Ok all hope this all turns out right. Need to get out of here now.

Hope all have a GREAT Fathers day tomorrow. The boys and I are going to go fishing off the bank. Will let you know how it goes.

Grump


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tom Contributor
Yeah i think my father king of peanut butter- literally puts it on everything!!! Does not quite understand what its like to have to live without these things- I should say necessasities

I can say, with 100% confidence, that the 'missing out' feeling does eventually disappear completely. I first started going "obvious wheat"-free very long ago.

There's a stretch of years that didn't quite plant much in the way of permanent memories, but I was "off" wheat starting somewhere betw mid'97 & 2001.

Pretty telling admission that I can't narrow it down any further huh?

Anyway, I haven't had the slightest thought of missing the old favorites in quite awhile now. Not that there's not an occasional daydream. But no bad feelings.

It'd be as silly as feeling sad that I'm really *not* on a tropical vacation w/ Jessica Alba. :P:lol:

tom Contributor
....."STELLLLLLLLLLLLLLLL-LLLAAAAAAAAAAAA........." :lol::lol::lol:

Oh LMAO :lol::lol::lol:

Pray tell - are we talking potentially YouTube-worthy if it had existed?

CarlaB Enthusiast

Hi all! I've been busy, don't know if I'll be able to catch up.

Yeah....see this is what I had read a long time ago too. This same article written by that same Dr. explaining the Western Blots.

This is exactly why I asked Dr. Harris about my IND's....because I had *thought* they were significant.

He said that they werent....it just means they should redo the test because its inconclusive.

I don't think the two contradict each other. All the doctor was saying is that the fact that they could not say negative shows further testing needs to be done after an abx challenge. I think they're saying the same thing in different ways.

Their biggest impact song by far was a medley of sorts - "We Are The Champions/We Will Rock You". It's 30 yrs old this yr and is still played in sports stadiums nationwide and perhaps in lands beyond. I'd certainly expect their own U.K..

And not just by the stadium personnel.

When the fans stomp & clap to make that

Bomp Bomp boom!

Bomp Bomp boom!

THAT is the beginning of "We Will Rock You".

Brings back high school memories.

My homeroom teacher was the hockey coach. Our team stunk. He told them that they could not win state, but if they did, he'd eat a carnation in front of the whole school.

He ate that carnation ... we sang that song. :lol:

Yup, I was in HS in the 70's ... graduated in 81.

CarlaB Enthusiast
Hey....did anyone else here get a pm from Ron Hoggan...the guy that co-wrote Dangerous Grains??

Nope. My bet is that he only read the first post.

I saw like 30 guests on here earlier tonight. :huh:

That's cause we're famous. :P

Anyone have this waking up WAY earler than you'd like after not falling asleep forever too?

You'd think it'd be easy to sleep in.

Yes. I wear ear plugs to bed, it helps.

I asked my father if he thought when i was better I sould be able to eat jars of almond butter in one sitting- he was like "would you really want to do that?"

Some people just don't understand!

I used to crave salty things a lot. I've never really craved sweets, but I've liked to have a little something sweet after a meal (you should see how long it takes me to eat a chocolate bar ... you know those huge ones that they have at Wild Oats ... can't think of what they're called) ... I used to eat ONE piece after dinner every night. That's all I really wanted.

NoGluGirl Contributor

Dear Everybody,

I am really excited about my gift for Dad. It is really neat. I know he is going to love it! I got him a twisted Venetian glass pen from Levenger! I have been using the gift for leverage since it arrived on Wednesday! That way, he cannot irritate me!

Next year, I am going to order it sooner! Then, I can use it for leverage much longer! :lol: Yes, that is my evil plan! Hopefully by then, I will be well and moved out! I am tired of getting glutened from my parents! I know I got glutened this week, because (Scat talk warning!) my poop is floating again!

Sincerely,

Jin

CarlaB Enthusiast
And HERE's something I think of every time I see your header - u joined on my birthday! :)

I joined on my hubby's birthday ... I find that odd ... but at the time he was living in Ohio with five of the kids and I stayed back in Indiana until our oldest graduated from HS, so we couldn't have gone out or anything for his b'day.

No I did not get to vote. But I will vote for you being able to vote.

Nope, you are here for our entertainment. You men may vote amongst yourselves, but it has no weight in Rachelville. You will need to fight for men's suffrage.

NoGluGirl Contributor

Dear Rachel,

Thank you for the info on ART. :D That is interesting stuff you have been posting. I also like what you posted about mercury filling removal. I have read about Hal Huggins D.D.S. and wish I could go to a biological dentist. We actually have a shortage of dentists in general here.

The good thing is, I have no mercury fillings. I only just got a root canal last summer. I made sure it was a composite filling. I need two more root canals, but am not sure if I should get them pulled instead or not. :unsure: I will need a partial if that is the case. They can have mercury as well.

I guess Ron Hoggan did not get the chance to read the entire thread! :lol: Gee, I wonder why? It is only 1200 plus pages! That should not take too long, right? :lol: Compared to reading Shakespeare, this should be easy!

Dear Donna,

Oh no! How did the geese get poisoned, then? The investigation revealed they were poisoned by Auxigro and their food. Now what are we going to do? :o Well, at least you liked the story! However, these new finding warrant a new investigation. :blink:

Dear Mia,

I am so glad you like your new therapist! He sounds so capable! Plus, he seems like he could really help you! :) You are not a nerd, either! It is great you have a healthfood body! That is why you are a Rachelville chef! You should be proud of yourself for having such willpower!

I understand why you do not like G.I. doctors. I hate them. All of the ones I have seen are rude. They also think they know everything there is to know. <_< "You could not possibly be Celiac," the one said. We know how that turned out! :rolleyes:

Dear Patti,

I cannot have gluten-free doughnuts either! :( They always have yeast! I get D from it! Stupid yeast! :angry:

It messes up everything for me!

Dear tom,

Alaska sounds nice! Fishing is something that scares me because of the worms. I hate worms! I like to eat fish, though. You catch it, I will cook it!

I was happy to see the information on Queen. A lot of people do not know anything about them. Like you said, they probably thought they were a one-hit wonder. They had plenty of great songs. The group just never got the credit they deserved for them.

I have difficulty sleeping as well off and on. There are times I am tired, but hardly sleep at all. I may have three or four days straight where I can only sleep a few hours. Then, I will have a few days where I sleep as many as twelve hours.

My sleep schedule is really messed up as well. I will be on a normal schedule for a while, where I will go to sleep at 10pm and sleep until the next morning. Other times, I am waking up at midnight and going to sleep the next day at around noon!

Dear Susie,

I agree that eating only a quarter of a doughnut a week is pure insanity! :lol: That cannot be normal. There is just no way. I bet Dr. Phil would agree. Carla could be certifiable! :lol: (Just teasing of course, Carla!)

I am glad you enjoyed the trial coverage! :lol: It is so rediculous, but it was fun to make up! I cannot even believe I made it up! I cannot blame Percoset. It is good you came out of your coma, so you could be back here with us again! ;)

Elaine on Seinfeld! :lol: That is hilarious! Too bad that Susie episode was not on tape! Those pain meds can really do weird things to people! I really only take Tylenol or a sinus pill when needed.

Dear Carla,

Your restraint is definitely admirable. I wish I could say the same for myself! :lol: I am doing better about eating healthy, but get stuck in a food rut. I may need to do a rotation diet. Some of this trouble could be from other allergies. I heard Celiacs often do not notice other allergies and sensitivities until they have been gluten-free for a while.

I bet that was a great assembly! :lol: I wonder if the carnation was tasty? We had a fun assembly where some male teachers cross-dressed as the Spice Girls! Then they had to dance in front of the school! It was so funny!

Dear Charlie,

Thank you for your thoughts on the copyright issue. I am sure even in other industries besides the video game industry, you pretty much have it tossed into the trash if there is no submission form. I know for a fact Marvel warned about this. Intellectual property can be a difficult case in court. I want to have my ducks in a row.

It sounds like you have dealt with this type of thing. It can be very unpleasant. My trouble is, I am emotionally attached to everything. That is problematic. My art portrays my feelings, frustrations, and hopes. Letting go of that is like relinquishing my right to be an individual.

I am sorry to hear about the writer's block. Inspiration often comes to me at the strangest times. However, I have found writing with a pen that writes in purple is great to get the creative juices flowing. It sounds quirky, but it works! Whenever I am at a road block, this really helps. Try it! ;)

Dear Rinne,

That garden of yours sounds so heavenly! I would love to see a picture! I love pansies! They are one of my absolute favorite flowers! Those flowers just look so happy, like they are looking up and smiling at you!

Dear Lisa,

I understand feeling screwed no matter what you do or do not do. It feels like a major risk either way. I am not surprised about the severity of your symptoms considering the amount of mercury fillings you had. No wonder you are so sick! Ten fillings! That is a nightmare!

Trust me, you will feel much worse if you keep them in. As Rachel said, it is difficult to deal with the symptoms of detox. She has been there. She also survived. Mercury has been linked to Alzheimer's and many other issues. You do not want to end up like that. My grandmother is lucky to know anything. She is always scared and confused.

Dear Andrea,

It makes sense to me that you do not want T or the others undergoing treatment they do not need. If they are able to get the bad stuff out of their system with supplements, I do not see why anything else should be done. I hope you guys do not have to scrimp too much. That is so hard to do. You should not have to reduce your food. You are already limited in that respect.

Thank you for providing the information on Dr. Sheehan. I have the link bookmarked now. I can go back to it when I need to. That is a good thing to have readily available. I have no idea how I could find someone here or near here that does this type of stuff. If I e-mail Scott, he might be able to help.

Dear Grump,

I bet you and your sons have a great time! It will be good for you! Maybe you will catch a huge fish! Perhaps a relative of Carla's attack bass her daughter caught! We will love hearing about it!

Sincerely,

NoGluGirl

P.S. Judy, Julie, Bev, and Laura --- Hi! Where are you guys?

rinne Apprentice

I am having something truly strange happen and wonder if any of you have had anything like this experience.

The peripheral vision in my right eye is like a ferris wheel of light though I'm only seeing half of the wheel. :unsure: Before it started happening I felt almost as if I was going to faint.

.......

Seriously--how could anyone misconstrue anything you post as being irritating? :blink: You have a very kind, gentle way with your words.

Thanks Pattii, how sweet of you to say. I can be a brat though. :P:lol:

Hehehe couldn't help but think of last year in Alaska when 3 of the days were spent at a hotel w/ no in-room fridge, and over an hour from any store whatsoever - much less a store w/ anything useful to ME - and I survived on primarily almond butter, w/ a few rice tortillas, and some apples.

Great spot tho. Also a very popular bar & restaurant. Visited it w/ my brother Pat every time I'd been in Alaska. Last time, about 2-3 hrs into the ride, we parked the snowmachines (snowmobiles to non-alaskans) on the 6-8ft snowpack and strolled in for his favorite, thick spicy chili - sure to warm up any intrepid winter traveler.

His memorial was held there, as it was the only place big enough w/out heading all the way back to Anchorage. Still wasn't big enough.

.....

I'm glad you shared this story. :)

Well THAT sounds hard to beat. I love the smell of the air at any time that could make someone say that.

:)

......

I used to crave salty things a lot. I've never really craved sweets, but I've liked to have a little something sweet after a meal (you should see how long it takes me to eat a chocolate bar ... you know those huge ones that they have at Wild Oats ... can't think of what they're called) ... I used to eat ONE piece after dinner every night. That's all I really wanted.

But then you are Carla of carla-ing. :P:lol:

The eye thing seems to be clearing up. Truly bizarre. For a while I thought it was just the light hitting the keyboard but when I got up I realized it was me.

I'm thinking brain lesions. :o

Bad bugs. :rolleyes:

tom Contributor
This is exactly why I asked Dr. Harris about my IND's....because I had *thought* they were significant.

He said that they werent....it just means they should redo the test because its inconclusive.

I asked him if it meant that the tech *saw* something....not strong enough to be "clearly" positive...but still *something* there??

He said no....it means the tech couldnt get anything "clear" either way. He wasnt comfortable to call it negative and not comfortable to call it positive....its not a weak positive. Its inconclusive.

I'm pretty sure IND is short for Indeterminate.

It's pretty common lab jargon, in my experience.

Any good lab practitioner knows, in far more detail than the end-user of the results needs to know, all the ins&outs, limitations, possible sources of deceptive results (equipment precision, humidity variation, material purity/variability etc), and just about all other possible circumstances (& combinations thereof) that can cause the signal/noise aspect of the results to force admission of a "heck *I* can't really say" result.

Like a marble in a box - u can shake it, tilt it etc and be pretty darn sure it's a marble, and that it's ONE marble. But until u can open the box and look, its color is IND.

(See I don't have to *just* be goofy!! :lol: )

P.S. Sure wish I could use the QUOTE button. It just doesn't work on this phone.

tom Contributor
He ate that carnation ... we sang that song. :lol:

:lol::) gotta smile @ prompting a memory as fun as that!

tom Contributor
I am having something truly strange happen and wonder if any of you have had anything like this experience.

The peripheral vision in my right eye is like a ferris wheel of light though I'm only seeing half of the wheel. :unsure: Before it started happening I felt almost as if I was going to faint.

It might be what's called photopsia. Not the almost fainting part. I'd have to guess that whatever caused that also caused the ferris wheel.

Mine was pretty small and temporary and not at all carnival-related.

NoGluGirl Contributor

Dear Rinne,

I have some strange things going on with my vision as well more recently. Some of it is due to the Thyroid. However,

I think you might want to get an MRI or something. That sounds like it could be very serious. I have not have an MRI, and am worried about the vision issues I have been having.

Dear tom,

I agree that IND means indeterminant. The lab jargon can be really weird. Doctors like to make up stuff so they sound smart. What egos they have! Meanwhile, the rest of us laugh at their stupidity!

Some of these labs are not very reliable, either. That is so unfortunate. You spend hundreds or thousands of dollars for mediocre (at best) lab work. Many labs have been found to be less than proper about their testing procedures. My doctor is very cautious in relying to heavily on lab testing for the most part.

Sincerely,

Jin

tom Contributor
Yes. I wear ear plugs to bed, it helps.

It's pretty quiet around here. The slow falling asleep isn't new.

The strange new part is that upon 1st waking, "back to sleep" doesn't seem to be an option anymore. Even after only 3-4 hrs!

This week I got more than 5 just once - the night after a tiring Monday following ~4hrs Sun nite sleep. (Oh wait last night got 5-6)

Regardless of how much more sleeping should be done, once I'm conscious the brain "wants out" like a poorly-trained Big Dog.

"Stay" doesn't work.

jerseyangel Proficient

Rinne,

I have the lights in the corner of my eye sometimes but mine isn't associated with feeling faint.

I'm glad yours seems to have passed :)

Bad bugs, indeed! :angry:

tabasco32 Apprentice

Hi everyone

How is everyone today? Wow didn't wake up till 2 pm today thought it was like 12 or something. Hey dingogirl that avatar you have are you crying with that glass of wine

or are you really just very very constipated? :D

Because Magnesium Citrate can clear that right up for you.:)

dlp252 Apprentice

Hum, I don't need pain pills to go to my happy place apparently, :lol: Actually give me one drink and I get pretty goofy...sick as a dog, but goofy. :P:blink:

No I did not get to vote. But I will vote for you being able to vote.

Pretty good job on the quoting...but you still do not get to vote. :lol: Carla is right...vote amongst yourselves, but it carries no weight. :P

I am having something truly strange happen and wonder if any of you have had anything like this experience.

The peripheral vision in my right eye is like a ferris wheel of light though I'm only seeing half of the wheel. :unsure: Before it started happening I felt almost as if I was going to faint.

Oooh, maybe bad bugs indeed. I have been reading of similar things (although don't remember the fainting thing) on lymnet. Do you get migraines? Sounds a bit like an ocular type of migraine.

Any good lab practitioner knows, in far more detail than the end-user of the results needs to know, all the ins&outs, limitations, possible sources of deceptive results (equipment precision, humidity variation, material purity/variability etc), and just about all other possible circumstances (& combinations thereof) that can cause the signal/noise aspect of the results to force admission of a "heck *I* can't really say" result.

Yep, which is what happened on my biopsies for my bile ducts last year...three labs on two different biopsies couldn't decide if it was PREcancer or not. Sheesh. :lol:

It's pretty quiet around here. The slow falling asleep isn't new.

Yep, see I usually fall asleep fairly quickly, but I wake up at 12, 1, 2 and 3. On a workday if I wake up at 3 there is no hope of falling back to sleep...weekends it's about a 50/50 thing. Ocassionally, I can't fall asleep right away, THEN still wake up at 12, 1, 2 and 3. :P

dlp252 Apprentice
Because Magnesium Citrate can clear that right up for you.:)

:lol: You are killing me! :lol:

tom Contributor

JIN!!!

I hit REPLY to your post w/ a multitude of responses to a bunch of us, but in the box it only had the "dad's gift" post.

How strange.

Maybe this could happen if I hit REPLY on a non-refreshed page that's been edited, but Jin, I can't believe you'd edit out all the stuff I can see. It's a LOT!

So I've cut&pasted what SHOULD be in the reply box.

Dear Donna, Oh no! How did the geese get poisoned, then? The investigation revealed they were poisoned by Auxigro and their food. Now what are we going to do? Well, at least you liked the story! However, these new finding warrant a new investigation.

Did I see something that there was a "kernel" (HA!) of truth in the arena of poisoned goosefeed?

They also think they know everything there is to know. "You could not possibly be Celiac," the one said. We know how that turned out!

I've had both a Stanford jackass (head of their Gastro dept & advisor to celiac.org I believe) and a Phx GI (advisor to PhxCeliacs group) tell me I didn't have it. In spite of childhood diag and confirmed grandmother & niece, uncle w/ DH, sister who stopped eating wheat in Jr High, mom wheat-avoiding for as long as I can remember & gluten-free for a couple yrs now!

<grumble grumble>

Dear tom, Alaska sounds nice! Fishing is something that scares me because of the worms. I hate worms! I like to eat fish, though. You catch it, I will cook it!

Jiiii-iiiiiiin!! Summertime AK stream/river/creek salmon fishing is MADE for u! Once they leave the ocean they've already stopped eating. Bait would only get in the way! I was so shocked my 1st time. Everyone throws out lines w/ bare hooks, hoping to snag one in the mouth!!

Utterly ridiculous to me having grown up baiting hooks & using lures, trying to fool a hungry one.

It's technically illegal to keep one that's not hooked in the mouth, but even my otherwise VERY extreme stickler Park Ranger brother says "the head or darn close is good enough".

I agree that eating only a quarter of a doughnut a week is pure insanity! That cannot be normal.

I still say it's destined to become a myth or fable. Future celiacs will say their cousin's teacher's daughter's friend knew someone (who was a friend of hers from choir) who SWORE she'd cyber-met this woman who could make a gluten-free donut last 3 wks!! :lol::lol::lol:

<"she swore it was true">

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    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
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