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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted

Thanks, Andrea.

Donna, I hope your back gets feeling better soon.

Sorry it's not a good day, Rinne.

Carla,

Hello, I was wondering how long can I use the oregano oil at a time for? I used it for almost 3 weeks, and I stopped because I was glutened, and I got really sick from it. I couldn't imagine putting anything in my stomach because I was so nauseous. I thought that I remembered seeing somewhere to use it for 15 days, then stop for 15. Also, how long did it take until you noticed a difference? I feel now that I've stopped since last Wednesday, my symptoms are worse than ever :angry: I'd really like to start taking it again, but not sure if I should. Thanks, Janet

I don't know. I have been taking it continually, but I get my liver enzymes checked monthly. I don't remember how quickly I saw results, it seemed like it wasn't more than a couple weeks. I was also taking Uva Ursi and Plant Tannins along with Theralac, Ultra Flora, and VSL#3.

I ran out of a few of those, but didn't worry about it since things were still good. Things are as bad as ever again, but I think that's due to treating the Bartonella, which can cause GI symptoms.

I hope you feel better soon.

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CarlaB Enthusiast
CarlaB
Posted

New avatar ... I seldom wear my hair straight like in the old one, so I changed it.

AndreaB Contributor
AndreaB
Posted
Not a great day, kind of tired.

Sorry you're not having a great day. Do what you need to do, even if it means sleeping lots. Is this from the oxalates you think?

New avatar ... I seldom wear my hair straight like in the old one, so I changed it.

I like your new picture. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Tom,

The point I was trying to make about titanium is that there are *some* people who do react to it. Some people are allergic to that metal. Those of us who have immune systems that are in a hyperactive state have to be aware of these things.

Thats why when we get our amalgams out they do compatibility testing before putting new materials into the patients mouth....to make sure the materials used are *safe* for that individual.

I can find hundreds of articles saying that soy has multiple health benefits. Does that mean that its true for YOU??

If someone can find out how they will react to something BEFORE they put it into their body...it might actually save them from problems down the road. Being aware can never hurt...being unaware can have devastating effects. I'm sure you can relate to that.

Titanium allergy. Although titanium is considered a biocompatible metal, around 5% of patients will show a positive reaction to titanium. Studies show that titanium allergic patient will improve after removal of titanium-containing implants.

Its less than 5% of the population that develops Celiac Disease....but does that make it any less devastating for those individuals who do have it??

Before and after pictures of a person with titanium allergy can be seen here:

Open Original Shared Link

happygirl Collaborator
happygirl
Posted

Agreed---like the new picture, Carla!!!

Flor Apprentice
Flor
Posted

CarlaB, how are you finding the VSL#3 to be? I just ordered some -- it hasn't come yet.

How long have you been taking it and anything good or bad to say about it?

tom Contributor
tom
Posted

Rachel? You're not actually personally offended that there are good things to say about titanium, are you?

I must be misreading your tone.

I *am* curious about what site claims 5% of the population is allergic to the most inert metal in common use.

Could you give me the url please?

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Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel? You're not actually personally offended that there are good things to say about titanium, are you?

Why would I be personally offended?? I have no reason to be concerned about titanium for myself. I'm just passing on info.

I can see that you feel titanium is 100% safe for everyone....but if your mother had been one of the 5% that react....would you still feel the same??

As far as I know there isnt *anything* thats completely tolerated by everyone.

The chances are slim (5%) that someone is reacting to titanium but its certainly not unheard of. I would assume people who are sick and reacting to MANY things (that they were previously non-reactive to) can also become sensitive to titanium. Why not titanium??

How many people here have become sensitive to all kinds of metals in jewelry since becoming sick?? We've had this discussion a few times and as I recall it was most (if not all) of us.

Anyways...I'm not sure why you question that people can be allergic to titanium but here is the link.

Open Original Shared Link

Just because something is considered non-toxic does not mean that someone cannot be allergic to it.

Strawberries are non-toxic yet plenty of people are allergic to them.

tom Contributor
tom
Posted
I can see that you feel titanium is 100% safe for everyone....but if your mother had been one of the 5% that react....would you still feel the same??

So now somehow I'm accused of saying something is 100% safe for everyone?

This feels familiar.

I can't discuss a topic w/ someone who'll attribute fabricated opinions to me.

5% is a WILDLY over-exaggerated number, btw.

Melisa.org is the site for a foundation of companies that DO THE TEST!

That makes their "data"/opinion no more valid than what the titanium producers' hacks would spew. (Which I would never quote)

Sure they say "There are studies . . . .. " but don't link to any, or mention who did the "studies", or provide even the slightest detail. Maybe the only studies that support their contention are their own internal studies.

It's not hard to "prove" something when you've already decided what the conclusion will be.

Melisa.org has a link to a list of hazardous substances (both elements and compounds & including many metals) and titanium isn't even on the list, tho it has ~260 entries.

The one they link to: Open Original Shared Link

The most recent one: Open Original Shared Link

:)

Let's just move on. Kassandra needn't add titanium to her list of worries.

miamia Rookie
miamia
Posted

Hey all-

Donna-

so sorry you are having a rough time . I feel you on the heating pad- My hot water water bottle is my best friend!!!!!!!!! I hope you are feeling better today. Its so great that the people at your church are so supportive that must be really nice to have.

Rachel-

thanks for the advice on the eggs. It reminds me of how i am with rice. I react to brown rice but i can handle white rice because it has been stripped of its nutrients which is bad for most people but good for me i guess. And yes when the women did the testing she tested me for dosage as well. Its crazy that if she put too much or too little of something my arm would not hold but than for the right amount i could hold my arm.

This is gonna be a long week i have alot of appts. as usual. I am very anxious to see how i will so on these new meds i am trying to go slowly but i just want to start all of them. So frustarting trying to be patient.

Miamia

jerseyangel Proficient
jerseyangel
Posted

Hi Mia :)

So nice to see you posting. I had been off-line most of the weekend so I'm not completely all caught up here yet. I hope that your treatments are progressing nicely.

I'm the same way with the rice. Brown rice upsets my stomach, but the white is fine. :blink:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
5% is a WILDLY over-exaggerated number, btw.

And you know this how?? Is it because you've studied allergy to titanium in the past and have aquired diferent results?? It sounds like you are making an assumption but do you have anything to back up the claim that the number is exaggerated??

Melisa.org has a link to a list of hazardous substances (both elements and compounds & including many metals) and titanium isn't even on the list, tho it has ~260 entries.

Never did I say that Titanium is hazardous or toxic.....all the info was posted from their site...which clearly says that titanium is non-toxic...but 5% are allergic to it. So why would it be listed with hazardous substances??

Let's just move on. Kassandra needn't add titanium to her list of worries.

My post on titanium was to Ami....I dont beleive I ever posted anything to Kassandra regarding her situation. But since you mention it....can you guarantee with 100% certainty that she or anyone else here would not be allergic to it??

Until you can I dont think you can make those assumptions.

I know that personally...I could never begin to make assumptions as to what a persons body might tolerate or not tolerate. I think it would be very irresponsible of me to make statements about what a person needs to worry about or not worry about with regards to their own health. I simply pass on info that may be helpful.

I'm certainly glad your mother did not have any problems but that doesnt mean that you can say that Kassandra or anyone else shouldnt think of the possibility.

I know that being sick has made me more aware than ever of how important it is to be proactive and aware and extra cautious when it comes to my health. I would want to know if it were me.

dlp252 Apprentice
dlp252
Posted

Thanks everyone, my back is a bit better today. I'm glad I went in for treatment yesterday though. My back was definitely out of alignment. He said my left side was definitely higher than the right (by the way, he checks this every time he sees me, so it isn't normally higher, lol). The chiropractor adjusted me, then the PT worked on the muscle for 30 minutes. They put me in traction for 10 minutes then put ice on it for another 10 minutes. The doc said to keep icing it. I can use heat, but need to follow it up with ice. They don't want me to do any strength work until this clears up.

I brought a couple of ice packs to work, since sitting seems to be the most uncomfortable...I've iced it this morning and so far it's not bad. I still can't bend or stoop well, but mostly it's better. I see the PT/doc again tomorrow.

CarlaB Enthusiast
CarlaB
Posted

Donna, I'm glad your back is on the mend.

Agreed---like the new picture, Carla!!! How is the bart treatment going?

Thank you. It's rough. I'm not back to where I was this summer yet. I'm getting around okay yesterday and today, so that's a big improvement, but I'd like to be better than I am.

CarlaB, how are you finding the VSL#3 to be? I just ordered some -- it hasn't come yet.

How long have you been taking it and anything good or bad to say about it?

I've been taking it off and on. The bad thing is the price!!! That's why when I run out I don't reorder ... but I really need to reorder as the diarrhea is back ... not necessarily because of the VSL#3, it could be because of treating another aspect of my Lyme Disease.

If you have candida, you might want to start out REALLY slow. I didn't have any problems with it at all, but you could if you have candida overgrowth. Maybe start with half a packet and see how you do, then increase to a whole packet. It's potent stuff.

Are you under a doctor's supervision with this?

Flor Apprentice
Flor
Posted

No doctor's supervision with the VSL3 -- just trying it out.

Though I am working on getting a first appointment with a wholistic MD in Ashveville who has some experience with chronic gut problems.

I just bought two small boxes of the stuff and will take it slow.

Am also doing the LOD, calcium citrate, glutamine, biotin, zinc, fish oil, MSM and a multi-vitamin.

Will keep you posted!

dlp252 Apprentice
dlp252
Posted

Carla - forgot to mention how much I like the new avatar!

AndreaB Contributor
AndreaB
Posted
This is gonna be a long week i have alot of appts. as usual. I am very anxious to see how i will so on these new meds i am trying to go slowly but i just want to start all of them. So frustarting trying to be patient.

Hope this week doesn't tire you out too much, but I'm excited for you and the progress that is being made with your appointments. :D

I know that personally...I could never begin to make assumptions as to what a persons body might tolerate or not tolerate. I think it would be very irresponsible of me to make statements about what a person needs to worry about or not worry about with regards to their own health. I simply pass on info that may be helpful.

We took the info on titanium to have in mind if things don't clear up for Mitch. I doubt that it's a probelm for him and would suspect the scar if anything around his knee is troublesome.

Just like the low oxalate diet. I'm skimming posts on the other thread. I don't believe I have a probelm with them but will keep it in mind. I like keeping things in mind to be a possible help to others I may run across........just need to keep everything straight. Lately I haven't felt like processing all the info which is why I've been skimming posts.

I brought a couple of ice packs to work, since sitting seems to be the most uncomfortable...I've iced it this morning and so far it's not bad. I still can't bend or stoop well, but mostly it's better. I see the PT/doc again tomorrow.

Glad you had a good apointment and are feeling better. I'll be looking for an update after tomorrow's appointment.

Green12 Enthusiast
Green12
Posted
I've been taking it off and on. The bad thing is the price!!! That's why when I run out I don't reorder ... but I really need to reorder as the diarrhea is back ... not necessarily because of the VSL#3, it could be because of treating another aspect of my Lyme Disease.

Carla- You're in my thoughts, hope these symptyms pass quickly for you. VSL#3? May I ask what this is?

Donna- So sorry about your back. Boy, when it rains it seems to pour :( The last thing you needed right now..... I wish I caught you earlier to say alternate the heat and the ice (mom's professional advice :D )

I do hope the pain and discomfort is alleviated soon.

Mia- Good to see you post! Please keep us posted about all your appts this week, I am anxious to hear everything.

Regarding the titanium issue, thanks Rachel for the info on reacting to titanium as a possibility for Ami's symptoms. It sounds like it very well could be a possibility for her with all she describes she's experiencing.

Tom, and I don't speak for anyone else, but I understand Rachel's concern for someone like Kassandra, whose system is clearly compromised, not taking the possibility of reacting to titanium lightly.

What concerns me more is Kassandra is only 17, no? :unsure: I am surprised this type of surgery is recommended to someone so young......

Rinne, I am also very interested in the info about the scars, I was not on the ball when Rachel first posted and didn't get it copied over, this means we must go back to fetch it... :ph34r: Scary!

My brain has been working over time and the oxalate issue confuses me, is a low-oxalate diet something you have to stay on indefinitely?? Rachel with your added info that aspergillus is connected, would it mean that someone sensitive to oxalates is actually reacting because they have an aspergillus problem and then once they clear it up the oxalates in foods are no longer an issue??

CarlaB Enthusiast
CarlaB
Posted
No doctor's supervision with the VSL3 -- just trying it out.

Though I am working on getting a first appointment with a wholistic MD in Ashveville who has some experience with chronic gut problems.

I just bought two small boxes of the stuff and will take it slow.

Am also doing the LOD, calcium citrate, glutamine, biotin, zinc, fish oil, MSM and a multi-vitamin.

Will keep you posted!

Good luck with it all! I'll look forward to hearing how it works out for you.

Carla - forgot to mention how much I like the new avatar!

Thanks. :)

Carla- You're in my thoughts, hope these symptyms pass quickly for you. VSL#3? May I ask what this is?

Thank you. VSL#3 is a heavy duty probiotic. It has 450 billion organisms per packet!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rinne, I am also very interested in the info about the scars, I was not on the ball when Rachel first posted and didn't get it copied over, this means we must go back to fetch it... :ph34r: Scary!

Julie...I'll try to find the scar info. for you and Rinne today when I get off work. Dont try to go back!! :o

My brain has been working over time and the oxalate issue confuses me, is a low-oxalate diet something you have to stay on indefinitely?? Rachel with your added info that aspergillus is connected, would it mean that someone sensitive to oxalates is actually reacting because they have an aspergillus problem and then once they clear it up the oxalates in foods are no longer an issue??

Julie....to me it seems like its a diet to manage the symptoms. I would imagine you'd have to stay on it indefinately. I'm assuming that without addressing the underlying issues the symptoms would return if the foods were added back in.

I'm not sure if there are any people that have resumed a normal diet...after going on the LOD for awhile. I havent heard anything about it resolving the health issues completely.

It seems like its related to the fungi/metal/dysbiosis/leakygut issues. So I imagine until those things are taken care of LOD makes us feel better.

I dont think its just related to aspergillus specifically....candida produces oxalates as well. I think its a fungal thing.

As we know the yeast/molds bind with metals. The yeast isnt really going far with the metals still in the body. It can be brought down with diet/treatment but the problem remains and as soon as we stray from the diet...its gonna come right back.

In mercury toxic people the yeast is there wherever the mercury is. They are bound. Oxalates seem to surround the yeast and have some ability to bind with metals as well. All of the toxins tend to accumulate together so I imagine the oxalates are contributing to that toxic overload.

Probably the worse the metal situation...the worse the fungal issues....and the worse the fungal issues...the worse the oxaltes problem becomes.

Thats my guess.

I do believe that if theres an infection...whether its candida, aspergillus, both, or something else entirely... treatment of those underlying issues should allow healing and the resolution of the food problems.

The biggest problem is the heavy metals though....because if those are the reason for the infections....nothing is gonna resolve until the metals are removed. Its my understanding that mercury is one of the biggest reasons for allergies and food intolerance. Most people seem to get over these things when they get rid of the mercury as well as the infections. Then they are back to eating a normal diet....or close to it.

UR Groovy Explorer
UR Groovy
Posted

Hello everyone,

Carla,

Love the hair - looks great.

Donna,

Been watching - hope you're feeling better every day.

Well,

Wish me luck. Tomorrow - 2 amalgams are going away - safely, I hope. Glad I came across you guys. I trust that this guy knows what he's doing. I saw all the equipment last time I was there. I've cut down the smoking substantially and have been bulking up on anti-oxidant foods - also been taking Chlorella.

Anyway, take care of yourselves

k :)

UR Groovy Explorer
UR Groovy
Posted

Adding to previous post.

BTW,

after my trip I have decided that I MUST get in to see a holistic practitioner or LLMD or something. Need to do some homework and find someone with a good rep. I'm really looking forward to this. Curious about the candida thing and what might be done for that in my case.

Take care

k

AndreaB Contributor
AndreaB
Posted
The biggest problem is the heavy metals though....because if those are the reason for the infections....nothing is gonna resolve until the metals are removed. Its my understanding that mercury is one of the biggest reasons for allergies and food intolerance. Most people seem to get over these things when they get rid of the mercury as well as the infections. Then they are back to eating a normal diet....or close to it.

That's my hope. I don't know if you remember that T had come up with aspergillus in her first ASYRA. That cleared with her fungal LED. All of us have problems with mercury and various fungal/yeast issues. Dr. E didn't put us on an anti-candida diet so the supplements together must be designed to handle everything.

Wish me luck. Tomorrow - 2 amalgams are going away - safely, I hope. Glad I came across you guys. I trust that this guy knows what he's doing. I saw all the equipment last time I was there. I've cut down the smoking substantially and have been bulking up on anti-oxidant foods - also been taking Chlorella.

Kat! Good to hear from you. Hope all goes well and I'm so happy you've cut down on the smoking! :D

dlp252 Apprentice
dlp252
Posted

Hey K, congratulations on cutting back on the cigs and for being a bit closer to amalgam free!

CarlaB Enthusiast
CarlaB
Posted

Thanks, Kat. Good luck at the dentist tomorrow!

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      how much gluten do I need to eat before blood tests?

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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