Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

mftnchn Explorer
mftnchn
Posted
Its good to have a red blood cell test to see exactly which minerals are needed....

Rachel, can you mention what lab you had? The intracellular one I had during the winter was Sprectracell, it checked lymphocyte cell levels. I'd love to get one that works that would be covered by insurance though. :huh:

Sherry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
mftnchn
Posted
1) Heal Leaky Gut

2) Check mineral levels and restore if possible

3) Test for Lyme and/or heavy metals

4) Chelation or some other process for removing heavy metals

5) Deal with candida through diet and anti fungals

6) start living a normal life again

Is this basically the process.

Any advice on my strategy would be appreciated.

Ken I agree with other posters that it is likely not going to be useful to do this on your own. Also if you do have lyme, you may have a major battle on your hands as this is a nasty bug that reeks havoc to the system.

Sherry

mftnchn Explorer
mftnchn
Posted
Sherry,

Are you coming stateside home?

Yes, June 24--to have the malabsorption tests redone. By myself this time. My daughter has decided to wait for next spring for her wedding, but will get to participate in some of the plans maybe.

Sherry

mftnchn Explorer
mftnchn
Posted

Kassandra,

Could you post again about what are the list of tests for iron? (or a link?)

I have been having so much trouble with fatigue I am thinking that is something I want to have thoroughly checked this summer.

Thanks!

Sherry

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel, can you mention what lab you had? The intracellular one I had during the winter was Sprectracell, it checked lymphocyte cell levels. I'd love to get one that works that would be covered by insurance though. :huh:

Sherry

Sherry,

It was Doctors Data.

Here is the link to the test I had done.

Open Original Shared Link

My tests through Doctors Data have been covered 50% by my insurance.

elisabet Contributor
elisabet
Posted

Rachel,

We talked about zinc to copper ratio the other day.

10 to1 must be the recommended daily amount in food or taking by supplement.

in serum it should be between.07-1,

which symptoms you get from oral supplements?

Elisabet

confusedks Enthusiast
confusedks
Posted
Kassandra,

Could you post again about what are the list of tests for iron? (or a link?)

I have been having so much trouble with fatigue I am thinking that is something I want to have thoroughly checked this summer.

Thanks!

Sherry

I will post this tomorrow. I have to look at the tests my hematologist orders for me, and I'll let you know. (I used to know off the top of my head, but Lyme brain... :lol: )

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miamia Rookie
miamia
Posted
Ok, all caught up. :lol:

You're taking reglan? :huh: My LLMD just started me on it... or, rather, he wanted me on it starting about 3wks ago but I'm having such a hard time fitting it into my med/supp schedule. <_<

Welcome, Little Miss! Yep, I'm 17. :)

birdie-

Yeah I started on Reglan a lttle while ago I was hesitant abou it but now i am just thankful that i did. Knock on wood so far its been a very good thing.

Miamia

CarlaB Enthusiast
CarlaB
Posted

Rachel and Jin, I'm glad you had so much fun at your respective outings. :)

Rachel, since I don't drink at all now, I realize how many people don't drink, or don't drink much. It's hard to see that when you're drinking (not that I was ever able to drink much!). Especially today, no one notices or cares that you're drinking water.

The only one who says something is my FIL ..... don't know WHY he can't remember I can't drink or that I'm sick. :blink:

dlp252 Apprentice
dlp252
Posted
If you have google toolbar installed, you can have a button there for google bookmarks and you can import all your bookmarks into google bookmarks and use them at homa and at work.

I have not found any way to get tmen back into the microsoft internet explorer bookmark , though, unless you export the bookmarks (you should do taht periodically anyway as a backup) and then you dan copy them over to a memory pin and copy them to the home computer and import them back into the favourites.

I think if you have firefox as a browser it is possible to get them intohte favourites of several computers by using the gmarks application. First google bookmarks and then gmarks as far as I remember.

Thanks Nora...I am going to try this!

Its just a really great feeling to be participating in life again! :)

It's great to SEE you participate in life again!!! :)

confused Community Regular
confused
Posted

Omg im in tears right now. My diamond fell out of my wdding ring and i dont know were it is at. I think i lost it yesterday, but we did so much yesterday, it is going to be hard to back track. My hubby is going to so upset.

paula

CarlaB Enthusiast
CarlaB
Posted
Omg im in tears right now. My diamond fell out of my wdding ring and i dont know were it is at. I think i lost it yesterday, but we did so much yesterday, it is going to be hard to back track. My hubby is going to so upset.

paula

I'm so sorry paula. :(

dlp252 Apprentice
dlp252
Posted

Oh Paula!! I'm so sorry! I hope you are able to find it!

aprilh Apprentice
aprilh
Posted
Haven't written in a while. Think of all of you often - as I am dealing with many of the same issues. Because of this thread, I stopped eating high oxalate foods and it really cut down on my pain as i have fibromyalgia.

I recently had to stop taking my thyroid meds which I have to take as I have Grave's and then radioactive iodine and am now hypo. I started getting a horrible reaction, anxiety, splitting headache, crying jags, tightness in the chest. After much research I found Dr. Larry Wilson who is doing hair tests on me. I am, I guess, a slow oxidizer and every medicine I attempt to try, I get a toxic reaction. I can do without Nystatin, etc, but I can't do without my thyroid medication. It is a catch 22 and horrible for me. My naturopath etc, had me on T4 and T3, but I can't take T3 at all anymore so I am dealing with a very underactive thyroid for 8 weeks now and have gained 15 lbs which is the least of my worries but still a pain in the you know what.

So, my naturopath tested my copper along with other minerals and metals from blood serum levels and nothing unusual popped up. Do any of you think the copper may still be the problem? I was very discouraged to see nothing but I am still holding out hope for the hair analysis.

In the meantime as I wait for the hair analysis, my naturopath and I discussed the philosophy of only doing treatments to boost my system as opposed to anything to subtract from my system. Any time I try to subtract, like Nystatin OR the h-pylori protocol with Mastica and a charcoal complex activated my IBS-, I get horrible reactions that make me sicker than when I started. The only subtracting that doesn't hurt me is the subtraction of offending foods.

Which leads to another subject. In terms of Candida, has anyone tried the Specific Carbohydrate Diet? I know that when I stay away from starches and sugar (of course, but it is hard) I do feel a lot better energy wise.

I know this posting is all over the place. Sorry!

Nancy

Nancy,

You are in the right place!

Sounds like you might need to get your liver detox pathways checked. Your ND should be able to order this test. I had a similar problem. Everything I would take would start causing reactions. I found out through my Liver Detox Profile that my phase II pathways were sluggish and therefore normal everyday herbs, vitamins, ect would build up to toxic levels. I take specific nutrients that have worked wonders for me in that regard!

Rachel has posted a LOT of useful information about the liver pathways, also. You might check her posts in the last month or so.

April

aprilh Apprentice
aprilh
Posted
I will try the dehumidifier. Im willing to try anything to survive in this house. Yesterday i was in and out so much that i was feeling really good. But then when i stayed in the house for the rest of the day, I got sick all over again. So i know its the house lol. Could i get mold floatign around from the house next door. I guess since I did go over and talk to them for aboue an hour, i could of breathed extra mold in.

All i know is i better find someone ASAP, or im going to be going crazy lol.

I only put a few drops in the water. Maybe 4-5 at the most.

paula

Paula,

I am so sorry about this mold problem. that must be so scary.

For mold to flourish it must have a source of moisture and a food source. Food sources can of course be wood, drywall, ect. If you run the dehumidifier constantly, you may reduce the moisture source, of course until you find out where the moisture is coming from.

If you can, keep the windows open to allow fresh air to come in. That's probably why you feel better when you are in and out of the house - you reduce your exposure.

Do you have a air cleaner yet? I think the one on Dr. Mercola's site kills mold bacteria in the air.

Is your house very shaded? Do you think the pipes are still leaking?

April

aprilh Apprentice
aprilh
Posted
Omg im in tears right now. My diamond fell out of my wdding ring and i dont know were it is at. I think i lost it yesterday, but we did so much yesterday, it is going to be hard to back track. My hubby is going to so upset.

paula

So Sorry Paula! Did you have it insured? :o

April

confused Community Regular
confused
Posted
So Sorry Paula! Did you have it insured? :o

April

I think I did, but it has been 11 years since we got it. I was going to call the jewler, but he is closed on mondays. Do they cover the diamond just falling out? And wont i just get what it was insured for then, not what it is worth now? I finally called hubby and told him. He was like honey its ok, we will find out. If not i will buy a new one. But it isnt the same.

paula

aprilh Apprentice
aprilh
Posted

Finally caught up on reading!!!

How do you guys put multiple quotes in one reply??? I cannot figure this out!

I have been tired all week. Its really starting to get on my nerves.

I am really confused right now. The dr. said he was sure I didn't have lyme, although there is a slight chance. I feel like something in my body is always causing me to have symptoms. My symptoms are not as bad as everyone else's, but still - symptoms. I manage them with herbs, vitamins, minerals, acupuncture, ect, but if I was "normal" I wouldn't always be needing to "manage" a symptom. What else would cause my lymph system to have little pains here and there. It's wierd. I have to go to acupuncture every week to stay feeling normal. That is costly. I do like going though and it does help. But, what is causing me to have "issues" that I need to go for in the first place?

I know its not candida. I have it under control. My heavy metal test was not crazy looking. I do think I chelated metals and sent them straight to my liver last summer. (that time I ate a bunch of cilantro for like 5 days straight). Haven't really been the same since. Maybe that's my problem?

My Red Blood Cell analysis only indicated low calcium. Not severly low, but low enough. I have been taking my magnesium every night and my nails are looking much better!

I just don't get it. I don't really know where to go next with this.

I was thinking of ordering the nutramedix package and see how I feel. I don't have any major immune system issues. I hardly ever get sick from colds or viruses.

Anyway, This has been on my mind, lately.

I need someone knowledgable to look at my igenex test results and give me their opinion. Do you guys think I could post the results on lymenet and get a good analysis?

April

CarlaB Enthusiast
CarlaB
Posted
I think I did, but it has been 11 years since we got it. I was going to call the jewler, but he is closed on mondays. Do they cover the diamond just falling out? And wont i just get what it was insured for then, not what it is worth now? I finally called hubby and told him. He was like honey its ok, we will find out. If not i will buy a new one. But it isnt the same.

paula

They'll cover the diamond falling out. It will be covered for what it's insured for. That should have adjusted over the years. It's not covered under homeowners, you would have to have a personal articles policy.

The thing is, most of the time we're covered for what the stone is worth. However, most jewelers will discount their jewelry, so you should be covered even if it was only insured for what it was worth 11 years ago.

aprilh Apprentice
aprilh
Posted
I think I did, but it has been 11 years since we got it. I was going to call the jewler, but he is closed on mondays. Do they cover the diamond just falling out? And wont i just get what it was insured for then, not what it is worth now? I finally called hubby and told him. He was like honey its ok, we will find out. If not i will buy a new one. But it isnt the same.

paula

If you have it scheduled under your homeowners policy then it would be covered for "mysterious dissapearance". They would pay for the stone to be replaced.

If you filed the last mold claim under insurance, this most likely "could" jeopardize your coverage - meaning you could get cancelled on next renewal. But there are always excess markets that will cover people with these type situations. The premiums are sometimes higher. They look back 3 years.

CarlaB Enthusiast
CarlaB
Posted

April, yes, post the results along with a description of your symptoms on LN. Also post them here ... many of us know a little about IGeneX. :)

confused Community Regular
confused
Posted
They'll cover the diamond falling out. It will be covered for what it's insured for. That should have adjusted over the years. It's not covered under homeowners, you would have to have a personal articles policy.

The thing is, most of the time we're covered for what the stone is worth. However, most jewelers will discount their jewelry, so you should be covered even if it was only insured for what it was worth 11 years ago.

Ok thanks carla. I guess i will have to wait til tommorow and talk to the guy lol. I have been cleaning and thinking and im 99 percent positive i insured it when we got it.

If you have it scheduled under your homeowners policy then it would be covered for "mysterious dissapearance". They would pay for the stone to be replaced.

If you filed the last mold claim under insurance, this most likely "could" jeopardize your coverage - meaning you could get cancelled on next renewal. But there are always excess markets that will cover people with these type situations. The premiums are sometimes higher. They look back 3 years.

It isnt insured under the house, tg. It was insured under the jewlery guy. So that is a bright light. If it was under my house, i wouldnt claim it, cause then they would cancel me for sure lol

paula

dlp252 Apprentice
dlp252
Posted
How do you guys put multiple quotes in one reply??? I cannot figure this out!

At the bottom right of each post there are some buttons "+ quote" and "reply". If there are several posts you want to quote, hit the "+ quote" button. Nothing happens except that the + turns to a - and the button turns red. Keep doing that until you have chosen all the posts you want to reply to, then at the bottom of the page hit the main reply button. All the posts you selected should turn up in the window. You ahve the choice of then deleting out the text of each quote that you don't want (but make sure to leave the quote tags intact)...then you just reply beneath that particular quote.

April, yes, post the results along with a description of your symptoms on LN. Also post them here ... many of us know a little about IGeneX. :)

Yes, and I'll add them to our spreadsheet! :)

AndreaB Contributor
AndreaB
Posted

Paula,

I'm so sorry about your diamond. When we had our rings we had them insured through our jeweler. We had to renew the policy every year or two....I forget now.

April,

Yes, post your results here too please. We keep track of everyone here who's had and Igenex test done.

jerseyangel Proficient
jerseyangel
Posted

Paula,

Maybe things have changed or laws for this vary by state, but a number of years ago, I lost a diamond pendant--put it on and a few hours later, looked down and it was gone :(

Anyway, our homeowner's insurance covered it for the current (at the time) appraisal. Might be worth a try....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748
    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.