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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
Everyone,

I just got an email from a teacher at online school and she was so sweet, she said:

That is very sweet and refreshing. Certainly takes some of the stess off you.

I complain the store is less then a mile away that we shop at lol. I cant imagine driving 40 minutes to shop. But if we had a whole foods that was 40 miles away i might be tempted to enjoy going that far to shop lol Even tho my diet is so basic now i can shop anywhere lol

Whole Foods, Wild Oats and Lingonberries (gluten free store) are all 30-40 miles from us. We do go to a heatlh food store about 15 miles from us once in awhile.


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aprilh Apprentice

Thought I would fill everyone in on my dr. visit today.

He thinks lyme *might* be an issue although he is leaning more towards environmental exposure. If I decide to test for lyme he does use Igenex.

He thinks that I have been exposed (due to some of the stories I told him) to many enviromentals. This house has been a big factor and we moved here in 2001. I haven't been the same since it seems. The house was in terrible shape and we have done many renovations. In the living room we tore out the walls and found rot, dry rotted insulation, a million dead ants (he wonders what killed them?) and rotten walls that were wet and possible moldy. My husbands friend tore this all out creating this huge smoke cloud of dust. It was awful. I was pregnant.

Around the same time, still pregnant, my hubby tore out all kinds of old musty dusty stuff in the basement to make room for his "door shop". He was not careful in this venture either.

When we moved in here, we had these HUGE outdoor roaches coming in the house and he had a *friend* come over and do pest control and he sprinkled all kinds of toxic pesticides all in our basement and around the house. Maybe even ddt.

Later when I was pregnant, I vaccuumed this up (in the basement) and bleached the walls down there. Bad idea.

This doesn't include all the painting and other odds and end stuff I do around here.

Then, to top it off, my husband exposed us to formaldehyde by cutting it in his shop. NOw, he has a heavy duty air cleaner and dust collector down there. But one day about 2 months ago I came home and I could smell the MDF board smell. They had cut forums for doors all day out of this MDF (medium density fiberboard) and the dust particles are very fine. I turned on the attic fan which can clear the house out in a second. The smell did not go away until about 8 hours later. I had wierd dreams that night and a funny feeling in my head. It wasn't good. I layed down the law that he was NEVER to cut that stuff in our basement or yard again.

My grandparents owned this house previously (both died of cancer....hmmm...) and there is an old bag of DDT sitting on a shelf in the basement. who knows how much they sprinkled around the yard during their time here.

Also, grew up in the local lake and he said there is a bug similar to lyme that lives in lakes like that. I have also kayaked in a river in Tennessee where at the end of the river I saw a sign that said the river was contaminated and not to eat the fish. Great! :(

Okay so here is what he recommends:

*Fat biopsy for chlorinating pesticides

*Visual constrast sensitivity testing - checks behind the eyes for thickened blood

*Lyme panel - igenex

*Red Blood Trace mineral panel - to check for mineral status since chelation and mineral iv's will be done later

*Provoked Urine Challenge using dmsa - second method to help determine what other metals are going on.

*Vit D level check

**They have some type of machine in the office that I think he called UB light blood....something, can't remember. He said it helps detox and has helped people with lyme.

Also has a hyperbaric chamber??? That has an effect on lyme and other pathogens.

All of this testing is going to cost around $1930 not including the office visit today $550.00 which included lipid panel, thyroid check and other bloodwork.

My husband would FREAK if I told him I was going to spend this amount of money!!!

Any advice is greatly appreciated!

I think it would be important to know all the factors before doing the chelation treatment to ensure the best outcome. And doing ALL the testing would be the best way to determine that.

The sort of funny, maybe not so good thing, is he didn't know much about candida. He kept calling it canada. :D

Maybe thats because really there is still a root cause to all of this and its not CANADA!!! :lol:

aprilh Apprentice

Oh, he does use abx and herbs in lyme treatment.

He does iv chelation in the office.

AND he was concerned about what my children have been exposed to as well.

He said a lot of those chemicals are endocrine blockers and my little 7 year old's early puberty problem could very well be caused by this. I told him how her estrogen levels were normal and he said that could be a false reading because the chemicals block or mimic estrogen. Gosh my brain doesn't work!!!

He tested me with math and I was a total dufus!

mftnchn Explorer

April, this sounds thorough and makes sense, weird about him not knowing about candida though.

Perhaps the doctor could prioritize the testing and you could do a bit at a time?

No insurance coverage of any of it?

AndreaB Contributor
Thought I would fill everyone in on my dr. visit today.

That was a very thorough appointment by the sounds of it!

Environmental issues makes a lot of sense. Especially with what you and your child (firstborn) dealt with during your pregnancy and all the cleanup etc.

DDT! It sounds highly plausible that your grandparents could have had some help with pushing cancer along with toxins around the house/yard. :(

confusedks Enthusiast

April,

That sounds really expensive for some reason to me. I don't think we spent that much money on testing, but we also have had a lot of bloodwork recently from other Dr's, so maybe they just used that instead of taking more of my blood.

It sounds like a great appt. though! :D:) I'm glad. That is weird about the candida thing...is he an LLMD? Can't remember. ;)

Paula and Andrea,

Yea, I was surprised at how nice she is. I guess online school is less stressful.

AndreaB Contributor

I don't have any ideas on the testing though.

My husband and I don't like debt, although we've maxed out our credit cards.

Wouldn't your hubby understand that things will only get worse as time goes by and something needs to be started under a doctor's care to be on the safe side?


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aprilh Apprentice
is he an LLMD

No, but he does treat lyme. I don't know if you classify that as an llmd or not?

DDT! It sounds highly plausible that your grandparents could have had some help with pushing cancer along with toxins around the house/yard

That and being heavy smokers! :o But yeah, bad stuff in this house!

April, this sounds thorough and makes sense, weird about him not knowing about candida though

I am sure he *knows* about it because he didn't question me on it or act like he didn't understand it. But its not on the list of things he treats and he kept calling it CANADA! :lol:

But his specialty is in environmental toxicity so maybe he just goes straight to the testing and cleanup and skips the yeast. He understood why I was leary about taking abx though.

aprilh Apprentice
I don't have any ideas on the testing though.

My husband and I don't like debt, although we've maxed out our credit cards.

Wouldn't your hubby understand that things will only get worse as time goes by and something needs to be started under a doctor's care to be on the safe side?

He has trouble understanding why something would affect me and not him. He understands that our kids have some issues that cannot be explained necessarily.

He might be more into it seeing that he's an MD and not an ND. I'll have to talk to him without MONEY coming into the conversation cause that will steer it straight into an argument. We are having some money issues right now, so that doesn't help. But I am like you, I will charge it in hopes to feel better and get our kids straightened out.

QUESTION:

IV chelation....Your body still has to process the toxins right? Why would it work better than the other chelation methods I have tried?

Rachel--24 Collaborator
Dear Rachel

I tried also to send you a pm,your box was full.can you please tell me which brand biotin do you use?

I do recommend to check your PTH.

thanks for all the wonderful informations elisabet

Elisabet...I responded to your thread titled "To Rachel". I dont have the bottle with me...I cant post the brand until I'm home...which will be Sunday.

AndreaB Contributor
QUESTION:

IV chelation....Your body still has to process the toxins right? Why would it work better than the other chelation methods I have tried?

Rachel would probably know more about this.

I'm thinking your pathways would still need to be open. If you excrete metals during the challenge I would think you'd be ok. Just need to have the minerals checked before you do chelation so you don't have complications with losing too many minerals.

Green12 Enthusiast

Wow what an appt April!

I am sure he *knows* about it because he didn't question me on it or act like he didn't understand it. But its not on the list of things he treats and he kept calling it CANADA! :lol:

I have actually heard it pronounced this way by different Drs/practitioners, cand-di-da (rather than can-dee-da) so it comes out "Canada"

That does seem expensive for testing, yikes.

Rachel--24 Collaborator
I think it would be important to know all the factors before doing the chelation treatment to ensure the best outcome. And doing ALL the testing would be the best way to determine that.

I agree...I think its a good idea to get as much testing done as you can afford. I've tested for most things that have come up...the ones I tend to skip are the ones that I feel are secondary issues...like adrenals, neurotransmitters...stuff like that. Thats because I cant afford to do *everything*.

The sort of funny, maybe not so good thing, is he didn't know much about candida. He kept calling it canada. :D

My conventional Dr. called it Canada as well. I do still have a conventional Dr.....its usually a horrible experience when I go see her. :rolleyes:

It occurred to me though that the Dr. may have been saying it correctly...its not pronunced "can-dee-da" like most people think. I still say it this way but its actually pronounced "can-did-a". When you say it as it should be said..it sounds like Canada! :o

But yeah...a few months back I posted about my Dr. calling it Canada...I thought she was pretty lame for saying that. :P

Maybe thats because really there is still a root cause to all of this and its not CANADA!!! :lol:

Yeah...seeeee thats what I've been trying to say forever now! :P

I think this Dr. sounds pretty good...if he had spent alot of time focusing on your Canada... ( :lol: ) I'd be more concerned. ;)

He tested me with math and I was a total dufus!

MY two worst "brain issues" are short term memory loss and MATH. I suck at math now! I seriously cant do *anything* that has to do with numbers. If its something that I've memorized then its fine...but anything which requires my brain to process the info and come up with the answer...forget it!

Its like I cant get to that party of my brain...I see the numbers all jumbled in my head...its very stressful. :wacko:

I read somewhere that short term memory loss and problems with math seem to be the most common cognitive problems found in people with mercury toxicity.

So yeah...I'm a total dufus too! :P

QUESTION:

IV chelation....Your body still has to process the toxins right? Why would it work better than the other chelation methods I have tried?

Theres no guarantee that it will work better. IV DMPS is known to be the most effective...but because its so effective at pulling out metals it can also cause more problems if your body cant handle it.

I had spent some time researching all of my options and theres alot of conflicting info. I mostly look at results...what seems to work the best and what are the most experienced Dr.'s using...what do patients who have recovered have to say about treatment methods, etc.

I read alot about DMSA causing more gut issues...more immune responses and more yeast....it can also put alot of stress on the liver. It may be able to chelate from the brain. The recommendation of many Dr.'s is that DMSA is better used later on in treatment....not in the early stages of treatment when the mercury burden is very high.

IV DMPS obviously bypasses the gut....so thats one reason I chose it. I also chose it because its most effective.

I also knew I could be tested for it to find out if it would work well for me...so that took some of the fear away.

I think that IV DMPS (or any type of chelation for that matter) can cause some serious problems or setbacks if more metals are mobilized than what the body is able to excrete. Some people may only tolerate a very small dose without having symptoms of redistribution. It depends on your body's ability to excrete.

You never want the dose to exceed what your body is able to handle. I think thats probably the #1 problem with people having bad reactions to this type of treatment....redistribution from more metals getting mobilized than what the body is able to excrete. Either that or having an intolerance or allergic reaction to the chelator itself.

Everyone is different and one chelator may have a negative effect on your body whereas the next one might be very effective.

Mercury needs to come out in a certain order...and certain chelators pull from specific areas better than others. Its not likely that just one chelator will get the job done all by itself. After DMPS does all that it can do for me...I will switch to DMSA...probably with R-Lipoic Acid.

If you're not being monitored in any way...there is no telling whats going on with the metals....or how well your chelation is going.

NDF didnt go over well for me...it was the first chelator I tried and right now its on my "avoid" list per ART.

DMSA tested well for me but not as well as DMPS...and I suspected a worsening of gut problems while on DMSA.

DMPS was the treatment my body responded the best to....in my own experience and also in testing (ART).

It might be the worst choice for someone else.

I think its important to start with a very low dose...complications can occur if the dose is too high.

Since IV DMPS is the most powereful method of chelation....I think it'll also move things along much faster than had I continued on the DMSA. I seem to tolerate my dose very well and have had no side-effects thus far.

Rachel--24 Collaborator

April....I agree that the price of testing seems high...but I'm not sure all that he's testing.

For example...if the Lyme testing consists of Western Blots + co-infections that would raise the price significantly. I paid around $600-$650 for co-infection testing alone!

Depending on what he orders the Lyme testing alone could be close to $1000.

My insurance covers 50% so that helped out alot. I would ask him for a breakdown of what specific tests you'll be getting plus the cost of each.

Rachel--24 Collaborator

April,

I think the chemical insults definately contributed to your problems...but I also think there are very likely infections as well. Either as a result of the toxicity in your body from all the exposures...or if something like Lyme were present all along you would be more susceptible to these toxic exposures.

The chemical insults from the house might have been the last straw...but I think usually things are biulding up long before we become symptomatic. All of my Dr.'s have said that the body deals with burdens and we feel "fine"...until the point that the burdens become too great...and then we fall apart.

Thats why I think its good to really look into all of the possibilities.

CarlaB Enthusiast

Hi all, I've only been skimming while I'v been gone. :) I'm not going to go back and read it all ... you guys were busy, LOL.

Kassandra, New York used to be called New Amsterdam, so that was Dutch. The French, I believe, came down the Mississippi from Canada (not candida), thus, French Canadians and New Orleans. The Spanish were in Florida, Mexico, and South America. They also had a lot of Catholic missionaries in California, which is why so many cities out there have saint names in Spanish. New England .... English.

Don't know if that helps, or if it's too late, but that's what I remember. :)

Okay, LLMD appt. GREAT NEWS across the board!!!! I can even say it all here ....

Chloe was taken off all meds!!!! She's had two months of no symptoms, so he considers her done, but wants to do Cowden to ease her off meds. She's starting full Cowden tomorrow for about two months, then we'll go to limited.

I am taken off most meds! What a shocker that was! Really, my only remaining symptoms are insomnia and tired in the morning, except when I take Tindamax, then I feel sick again.

He thinks my body is asking for more detox and less meds. :)

He says getting the cysts is important, but we'll use grapefruit seed extract to do it less vigorously. I'm staying on minocycline, plaquenil, and Lariam.

I'm also on Full Cowden.

He wants to work on my thyroid and adrenals, so I'm Synthroid now instead of Armour because I had no change after a month on Armour. I also am on some adrenal supplements in addition to what comes with Cowden -- Xymogen Adrenal Essence.

He wants to get the remaining metals even though they are well-within range and "the lowest he's seen." So, I'm taking Zeolite by Nutramedix for that, along with NAC and ALA.

He said the ILADS protocol would have me on the full abx until two full months symptom free, but he's tried Cowden on 400 people now and thinks it's the better way to go to finish up. He said it's like using an atomic bomb ... works well in the beginning in heavy infection, but the herbs are better for the straglers.

He said to take a sauna every day ... I've been taking them 4 or 5 days per week, but not at all when I take Tindamax as they would make me feel worse. He said later we may use Tindamax again and use it right after the sauna because the sauna's heat causes the Lyme to go to the cyst form.

He said I should feel good except for the two or three days per month I flare. He said to use a glutathione cream (forgot to get the prescription for this, will have to call tomorrow) to help with the symptoms. Also coffee enemas are good to use during this, too ... he said he doesn't actually recommend coffee enemas to people ... he can't really, LOL, he can recommend saunas and other stuff, but enemas? :lol: But he's used them and his wife has ... I told him I was doing them ... he never recommended them to me, LOL.

I told him about the Humaworm. He's never heard of it and is looking it up on the internet. He was pleased that I felt so much better after it. He liked the idea that it was herbal.

So, all in all, I'm thrilled.

I did not get to see Beverly even though she was in NY today .... her appt. was longer than expected and I wanted to catch an earlier flight.

Oh, oh, oh, AND, I don't have to go to NY anymore unless I have to start back on all the meds .... we can do it over the phone now. :) Chloe won't need monthly phone consults ... but we do have to talk in one month to see how we're doing off meds (almost off for me).

aprilh Apprentice

I think I'll call the office tomorrow and get more exacts on the lyme testing. I do want to be checked for co-infections as well. I am thinking bart just because of breathing issues (i think its bart??).

I have a lot of questions. Of course, I think of all of this after I LEAVE! Now I'll have to schedule another appointment to ask them.

I brought home the dmsa challenge urinalysis. I think I will go ahead with this. I really should have done that a long time ago.

The Red Blood test also checks for mineral status. So, that way if I require iv minerals then he will know what I need.

Do you know much about edta iv chelation? I don't know what he uses. Another good question. I will insist on a small dose because I do not detox well. The problem he doesn't use any muscle testing that I know of to determine what is good for a person.

He has some type of light ray thingy-mi-bob that helps assist in detox. I wish I could remember the name so I could research it. But it sounded like LED in a way.

I agree with you Rachel, I think there were many factors in what led me to where I am. I would love to get as much testing as possible to help determine the best solution.

I think I'll call my insurance company and see if I can get an answer on what they will pay for the lyme testing. I really need to get the co-infection too.

I was pronouncing it Can-did-a and he kept saying Canada. :o I feel like my doc needs to know about canDIDa!!! Oh well.....

His math test was 99 - 7 = 92, 92-7=85, and so on. Who in the HE** can do 7's! That's a hard number! I can do math but 7's sent me into total DUFUS mode. :lol:

I couldn't think of the river that I kayaked in that was contaminated, I think with Mercury. Now i know - it was the Pigeon River. UGH! BRAIN! :(:huh::lol:

confusedks Enthusiast

Wow Carla! That's GREAT!!! I am so happy for you and Chloe! I hope I will be where you are in a year!!!! :D

Thanks for the info about history, it's not too late...no deadlines. Nothing is ever too late. :)

Green12 Enthusiast

Carla, welcome back :)

Excellent update, for you and Chloe both!!!

I am beyond words, just so happy for all the progress you have made.

CarlaB Enthusiast
I am beyond words

Me, too, actually .... :) Thanks.

Green12 Enthusiast
His math test was 99 - 7 = 92, 92-7=85, and so on. Who in the HE** can do 7's! That's a hard number! I can do math but 7's sent me into total DUFUS mode. :lol:

You can use Nyxie's slogan:

"I can't brain today, I have the dumb"

Just a suggestion, write down all of your questions and keep adding them as you think of more. Then you won't forget them for next time.

Is there anyway you can call the front desk and let them know you have questions before you are able to make your decisions? That is what I would do, often times they will take down some of the questions and get back to you with the Drs answers.

confused Community Regular

Carla.

That is so great about you and chloe im so happy for you both.

April,

sounds like a good appt, im happy for you. I hope you get answers soo,

I get some results back tommorow, so im sure ill be up all night tossing and turning.

paula

AndreaB Contributor
Okay, LLMD appt. GREAT NEWS across the board!!!! I can even say it all here ....

Wow!!!!! :D :D :D

You can't ask for better than that. I'm so happy for you two! :D

I get some results back tommorow, so im sure ill be up all night tossing and turning.

Can't wait to hear your results either. :)

Rachel--24 Collaborator

Carla...GREAT news!! :)

I know you'd been looking forward to getting on the herbs....looks like you got your wish sooner than you'd thought! Thats really exciting news...both you and Chloe have some celebrating to do! WOO-HOO!! :D

Julie...yeah I love that slogan!! :lol:

"I have the dumb"...that part cracks me up! :lol::lol:

Too bad it applies to me way more than I'd like. :P

confusedks Enthusiast

Yea, Carla that really is great! I am SO jealous! LOL!! :D;) We're not going to lose you, are we? :huh:

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      Beans in desserts are a fantastic way to add moisture, structure, and protein while keeping recipes gluten-free. Black bean brownies are a classic, but other beans like adzuki and pinto can also work well—adzuki beans are naturally sweet and often used in Asian desserts, making them great for cookies or cakes. Lentils, especially red lentils, blend smoothly into batters and can replace flour in recipes like blondies or muffins. Since you’re allergic to chickpeas, you might try navy beans or cannellini beans for a milder flavor in vanilla-based desserts. For less crumbliness, blending cooked beans into a paste helps bind the dough, and adding a bit of xanthan gum (if tolerated) can improve texture. If you’re experimenting, start with recipes that replace half the flour with bean purée before going fully flourless. Have you tried using aquafaba (bean liquid) as an egg substitute? It works wonders in gluten-free baking too!
    • lmemsm
      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
    • knitty kitty
      Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease.  My doctors didn't recognize nutritional deficiencies either.  I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having.   Poor absorption of essential nutrients is caused by the damage done to the intestines by Celiac Disease.  The gluten free diet can be low in essential nutrients, so supplementing to boost your absorption is beneficial.  New symptoms can develop or worsen as one becomes more and more deficient.   There's eight essential B vitamins that our bodies cannot make, so they must come from our food and supplements.  These eight B vitamins work together, like instruments in an orchestra.  They need to be supplemented together with essential minerals like magnesium.   Deficiencies in the B vitamins can have overlapping symptoms.  Some symptoms can be traced to specific B vitamins.  OCD can be traced to low Pyridoxine Vitamin B 6.  Yes, I had OCD and washed my hands until my skin cracked and bled.  ADHD symptoms can be traced to low Thiamine Vitamin B 1.  ADHD is something one is born with.  People who are born with ADHD have a metabolic problem with getting sufficient thiamine into their brain cells.  People who develop symptoms of ADHD later in life are more likely to be low in Thiamine.  The same symptoms appear if one is not getting sufficient thiamine from the diet.  Yes, I developed symptoms of ADHD.  These symptoms improved and disappeared after supplementing with Thiamine and the other essential nutrients. I was diagnosed with Type Two Diabetes.  99% of diabetics of both types are deficient in Thiamine because our kidneys don't re-absorb thiamine properly.  Thiamine is needed to make insulin and digestive enzymes in the pancreas.  Poor digestion (floating, undigested stools) can result with insufficient pancreatic enzymes.  The gall bladder (upper right quadrant) needs thiamine to make and release bile which also helps with digestion.  Constipation is also a symptom of Thiamine and magnesium deficiencies.  The thyroid is another organ that uses lots of Thiamine, too.  Low thyroid hormones can be due to insufficient thiamine, selenium, iron, and iodine.  Swelling of hands, face and feet are also symptoms of thiamine insufficiency.   Our bodies use thiamine to make energy so organs and tissues can function.  Thiamine cannot be stored longer than three weeks.  If our stores are not replenished every day, we can run out of Thiamine quickly.  If we do get some thiamine from our diet, symptoms can wax and wane mysteriously, because a twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function and symptoms.  Thiamine interacts with all the other vitamins in some way.  Many other vitamins and their metabolic processes won't work without thiamine.  In Celiac Disease you are apt to be low in all the essential nutrients, not just thiamine, but thiamine deficiency symptoms may appear first. Talk to your dietician about eating a nutritionally dense gluten free diet.  Keep in mind that processed gluten free foods do not contain sufficient vitamins to be useful.  Processed gluten free foods are filled with saturated fats and excess fiber (that could explain your constipation).  Dairy products, milk and cheese can cause problems because Casein, the protein in dairy, causes the same autoimmune reaction that gluten does in some.  Your current restricted diet is dangerous to your health.  I followed the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  It's a Paleo diet that promotes intestinal healing.   Discuss with your doctors about correcting nutritional deficiencies as soon as possible.   Interesting reading... https://pubmed.ncbi.nlm.nih.gov/34165060/ https://pubmed.ncbi.nlm.nih.gov/21816221/#:~:text=Lipid-soluble thiamin precursors can,and attention deficit%2Fhyperactivity disorder.
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