Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

The first couple years that I was sick I had really bad PMS and all of my symptoms got worse around that time of the month...it was heinous and I would totally dread it. I also had very light flow during that time....and my periods were very short.

When I changed my diet and stopped eating processed foods that all got better. Only about a week after my diet change I had my first normal period in over 2 years. The PMS was gone and the flow was normal. So far its stayed that way...almost 3 years now. The only thing is I get REALLY tired the day before.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
dlp252
Posted

Well girls, I got my two major goals accomplished today. Cleaned the bathroom (which could have put most single men's bathrooms to shame, lol) and FINALLY put away my Christmas stuff. :lol:

I even vacuumed the livingroom.

Well...she did tell me to stop eating them about 7 times...but that was only because I was eating ALL of them. :lol:

:lol:

I havent had any bad side effects from Alinia...so far its been ok.

I can't wait to hear of the demise of the stupid beast.

LOL! NO, that's not what I meant at all! I meant I used to buy whole bags of cookies and eat them all!!! LOL! I reachel almost EVERYTHING I eat! :lol::P

:lol: Yeah, I had a feeling you weren't talking about me, but it just fit so well. :P

mftnchn Explorer
mftnchn
Posted

Rachel, it does sound like cobra is upset...

To Cobra: we're sorry buddy, but you have to vacate our friend Rachel and since you won't do that on your own...

I am feeling better today, take extra charcoal or chlorella when I need. Also the lemon water last night (first try) REALLY helped! Thanks again, guys, for all your suggestions over the months.

I'm celebrating not having too much candida issues with making my first loaf of gluten-free bread, and making chocolate chip cookies. I found some Enjoy Life chips in a store not far from me--the first I have ever had. I tried to have a friend bring me some to China but she couldn't find them. I have been so hungry for a chocolate chip cookie!!! I'll try not to rachel them.....LOL.

Sometimes I feel worse around my period but it isn't consistent. I haven't figured out what makes the difference.

Sherry

CarlaB Enthusiast
CarlaB
Posted

Hey, Birdy and I are at Lymechat. :)

ShadowSwallow Newbie
ShadowSwallow
Posted

Hi Everyone,

I haven't been around much... life's been busy and tiring. :blink::wub:

At this point my healthy problems are starting their "down" swing again (I swear this is hormonal) and I get to expect another major allergy to show up. :(

I started humaworm on Monday, but have only "gone" twice since then. And that second time didn't really count. :ph34r: I'm taking charcoal (lots of burning pain in my stomach, and some reflux ('cause I've been skipping the prilosec :ph34r:)).

At this point we don't have many answers. I'm going to bioset more often, but I feel like it's just throwing us random puzzle pieces. Seeing the allergist and LLMD within a month, but I'm trying to see if it would be practical, or helpful, to see the nearest ART practitioner (2.5-3.5hrs away) for an appointment or two to see if we can get to the root of things to work out in bioset/with LLMD. The only problem is the distance, and the price (we spent $25,000 on medical expenses last year for our family (4) and a good portion of that was on me alone :().

Any advice on what to do? I'm going to be checking out how much it is for ART, and check again exactly how far it is to see whether it would even be an option.

ShadowSwallow Newbie
ShadowSwallow
Posted

It turns out that the ART practitioner I was looking at is 3hrs and 45min away, and he is a DO that deals mainly with pain. The person who looks like the best bet is nearly 6hrs away. :(

NoGluGirl Contributor
NoGluGirl
Posted

Dear Everyone,

I am following along! I just got caught up with my reading. The regularly scheduled column will be on here soon! Sometime this evening I should get it on here. I must go upstairs and make my memory notes, then edit. After that, I can respond!

Sincerely,

Jin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Donna,

Yay on the accomplishments today. :D

Rachel,

So long to Cobra......whenever he decides his ride is over......

Glad to hear Michelle let you have some brownies without a fight. :lol:

Birdy,

I don't know what to tell you. I think ART is very beneficial, but a good practitioner who uses it is important.

Hi Jin! I've been wondering where you were. :)

Rpm999 Contributor
Rpm999
Posted

andrea, would you happen to know how to find art practitioner location? is it possible a bioset practitioner could do it as well? i'm sure there's some other types of doctors that are prepared to do it....i tried googling and all it showed was artwork :lol: when right on the bioset site it shows certified people in every state as easy as that

mftnchn Explorer
mftnchn
Posted

Birdy, I don't know, either. The whole ART thing is new to me, but I was impressed with Dr. E. Hopefully this is going to work fo me.

Sherry

aprilh Apprentice
aprilh
Posted

Thanks for giving me that idea, Rpm.....I just went on the bioset.net site and found a practioner in my area. I am going to call tomorrow and see about doing that.

I am going to the HFS tomorrow to see if they can direct me to anyone that does ART. Shot in the dark, but what the hey - you never know!

AndreaB Contributor
AndreaB
Posted

RPM,

This is what my ART practitioner said....

As for ART, I would contact biopure, or try www.neuraltherapy.com, and get the phone number and call and see. They used to have a provider list on their site, but it hasn't been updated for forever!
aprilh Apprentice
aprilh
Posted

Bioset Question....

Is this mainly used for Finding and dealing with food allergies or intolerances?

Is this anyway similar to art?

April

Rpm999 Contributor
Rpm999
Posted

i called and all they did was e-mail the outdated internet site....UGH why can't i find anything, i can't find one thing on the internet, i called a hospital for a reference and they had no clue what it was

Green12 Enthusiast
Green12
Posted
i called and all they did was e-mail the outdated internet site....UGH why can't i find anything, i can't find one thing on the internet, i called a hospital for a reference and they had no clue what it was

Rpm,

ART is an alternative healing modality, so it's not a surprise you got that response from the hospital.

I am working on getting some more info for you, but in the meantime I am wondering if you could email somebody on that referral list at neuraltherapy and ask for a feferral for your local area? just a thought.

Rpm999 Contributor
Rpm999
Posted

that's a good idea, i'll try when i get a chance...there has to be something near here, ART is the next test i want to have because i didn't feel too comfortable with my, so i'd be interested to see what's going on in my body/what effect it's having before i continue with him...my body is all off and antibiotics never do anything for me, which surprisingly i've heard people say on here...better to get the whole picture before going around in circles with and just getting worst, i'd rather wait before i take anything since it's been so long with a lot going on

aprilh Apprentice
aprilh
Posted
that's a good idea, i'll try when i get a chance...there has to be something near here, ART is the next test i want to have because i didn't feel too comfortable with my, so i'd be interested to see what's going on in my body/what effect it's having before i continue with him...my body is all off and antibiotics never do anything for me, which surprisingly i've heard people say on here...better to get the whole picture before going around in circles with and just getting worst, i'd rather wait before i take anything since it's been so long with a lot going on

rpm,

I'll pm you all the emails and such that I emailed looking for an ART practioner. Everyone replied quickly. You might have better luck than me finding one in your area

dlp252 Apprentice
dlp252
Posted
Bioset Question....

Is this mainly used for Finding and dealing with food allergies or intolerances?

Is this anyway similar to art?

BioSET is electrodermal testing and ART is muscle testing. Pretty different in what they do. BioSET "desensitizes" and ART reveals what is going on in the body...what is making it weak so to speak. It reveals things in layers, so what is stressing the body most is what will show up in any session. For me lyme showed up the strongest.

BioSET is not just food but anything that the body has become sensitized to. It is a desensitization tool, but it was really helpful for me in knowing exactly which foods were causing me problems. That gave me a base to start with. I'd been trying an elimination diet, but couldn't get anywhere because all the base "safe" foods were causing me to react. BioSET identified safe foods for me. They desensitized me to the problem foods, but I continued to avoid or limit most of them for quite a while. I've eventually added some of them back in now.

BioSET didn't find lyme for me the first two times she tested me for it. That's, I guess, because my body hadn't become sensitized to anything in the basic panel she had used. She eventually used a more specific detailed panel, and some lyme issues came up.

aprilh Apprentice
aprilh
Posted

Thanks Donna, That makes sense to me now...... :)

dlp252 Apprentice
dlp252
Posted
Thanks Donna, That makes sense to me now...... :)

You're welcome! BioSET was also helpful in clearing my detox pathways...my doctor wouldn't even consider treating me until he had seen that my pathways were cleared, lol. (He knows my BioSET practitioner and has a great deal of confidence and respect in and for what she does.)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

After a month of worrying about how Alinia will go...its been pretty uneventful. :rolleyes:

I never got any horrible die-off or any other problems. The first pill gave me the burning sensations/itching...but the rest of the pills gave me no noticeable reaction...other than fatigue.

I was hoping to see cobra in his grave...I was gonna throw some beef and peas on him. :P

No such luck though...Is it possible he could die and disappear without me ever seeing him?? :unsure:

Since I'm on the C side...I wonder if it might take longer to pass anything....(if there is anything to pass).

I wonder how long it should take for me to notice improvement if the med killed anything off.

dlp252 Apprentice
dlp252
Posted

I bet it's going to take a while. It may not come out in one whole piece either. :unsure:

Rpm999 Contributor
Rpm999
Posted
You're welcome! BioSET was also helpful in clearing my detox pathways...my doctor wouldn't even consider treating me until he had seen that my pathways were cleared, lol. (He knows my BioSET practitioner and has a great deal of confidence and respect in and for what she does.)

so, does BioSET directly show if there's issues with the detox pathways? that'd be great if it could find out if it's blocked up/overwhelmed or whatever

dlp252 Apprentice
dlp252
Posted
so, does BioSET directly show if there's issues with the detox pathways? that'd be great if it could find out if it's blocked up/overwhelmed or whatever

Yes, mine were not the worst she's ever seen (Rachel might be close to having THAT honor, lol), but they were blocked to a certain degree. They were retested a couple of months ago and were okay.

Rpm999 Contributor
Rpm999
Posted

i asked rachel, but let me ask this to you too since your illness list looks like an essay LOL

i've said this many times, but i had a cat scan dye (radioactive medicine) and since then i've been really sick, with some things like flushness, sleep issues, increase of neuro issues...even some new things....and that was about a month ago...could a possibly be if i had impaired detox pathways? cause i can't see what else, an allergic reaction would be far gone so it must be still in my system since it's like the same flushness i had when it was injected into me...may sound strange but hey, what can i say...i ALSO first started getting sick much long ago when i had a severe swallowing attack that stir up an acid reflux attack, so it wouldn't surprise me if that could have backed up in places like the liver too and i guess that from the get go could have effected that....i'm just so lost, i was at least going out before i had the dye but it messed me up so bad that i'm just totally out of it and have no clue what it could be/what to ask....but that's the most sensible thing to me at least

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    3. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    5. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,358
    • Most Online (within 30 mins)
      7,748
    Lorna Wynter
    Newest Member
    Lorna Wynter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.