Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted

Donna, I think the physical only counts as a physical if you are feeling fine. If you go in for the breast pain, it will be covered like a regular doctor's appt. ... you won't get a complete physical, just the exam for the reason you went in.

I had a gyno issue last year ... same thing, two months before my appt. Seems like it would have been cheaper and easier to do the full exam at the same time, but since when does insurance make sense?

Oh, good advice on the foundation color ... it is always better to error on the lighter side than the darker side. :) If you want more color, use blush or bronzer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
dlp252
Posted

Thanks Carla! I think I'll go home today and check my journal to get my dates straight, then call and see what happens.

confused Community Regular
confused
Posted

Donna,

My mom had the same problem last yr. She was so scared. She could not even put an bra on that it hurt way to bad. She has had lumps in her boobs for years before this due to drinking pop. But when she went to the dr, they couldnt find anything wrong with her breast. She did end up having other problems in the other female area but they were not connected to the sore boobs.

paula

CarlaB Enthusiast
CarlaB
Posted

btw, I have had breast pain from Lyme, and it is one of the symptoms on the list of symptoms that my LLMD has us check over every time we go for an appt. So, it could be Lyme-related ... but it's always good to have something like that checked out.

Green12 Enthusiast
Green12
Posted

Yeah Donna, I would have to agree that this is something you should have checked out, just to rule things out and put your mind at ease.

I know nothing about insurance and such, but I am hoping Carla's thoughts on going in for a normal appt. will work in this case.

I have always had lumpy cystic breast tissue, but I only get pain at ovulation and the pms part of the cycle.

Maybe it's hormone related and your hormones are shifting?

dlp252 Apprentice
dlp252
Posted
Maybe it's hormone related and your hormones are shifting?

Maybe, but the pain is pretty constant. It's been every day for a couple of months now. I'm 52, so it could be hormonal, but wouldn't that be constant? Could also be some of the supplements I'm taking for the neurotransmitters I guess.

I've seen Evening Primrose Oil suggested on several sites for breast pain and was thinking of getting some just to see if it helps, but for some reason, Evening Primose Oil sticks out in my mind as something I might not want to take...wish I could remember why, lol.

Green12 Enthusiast
Green12
Posted
Maybe, but the pain is pretty constant. It's been every day for a couple of months now. I'm 52, so it could be hormonal, but wouldn't that be constant? Could also be some of the supplements I'm taking for the neurotransmitters I guess.

I've seen Evening Primrose Oil suggested on several sites for breast pain and was thinking of getting some just to see if it helps, but for some reason, Evening Primose Oil sticks out in my mind as something I might not want to take...wish I could remember why, lol.

I wish I knew, keep us posted about what you decide to do.

I took EPO years back, and I remember hearing something about it too that was a good reason not to take it...can't recall what it was either :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Donna,

Let us know what your doctor says.

T was on EPO until we ran out of it.

dlp252 Apprentice
dlp252
Posted

Well, I couldn't find a lot of serious side affects from EPO:

SIDE EFFECTS: Indigestion, nausea, soft stools, or headache may occur. If any of these effects persist or worsen, contact your doctor promptly. If you notice other effects not listed above, contact your doctor or pharmacist.

PRECAUTIONS: If you have any of the following health problems, consult your doctor before using this product: psychiatric disorder (schizophrenia). Liquid preparations of this product may contain sugar and/or alcohol. Caution is advised if you have diabetes, alcohol dependence or liver disease. Ask your doctor or pharmacist about the safe use of this product. This product is not recommended for use during pregnancy. Consult your doctor before using this product. Because of the potential risk to the infant, breast-feeding while using this product is not recommended. Consult your doctor before breast-feeding.

From another site:

Contraindications: Pregnant women should not take evening primrose oil due to increased risk of pregnancy complications. (10)

Adverse Reactions: Reported: Headache, GI upset, nausea, and increased risk of pregnancy complications

Herb-Drug Interactions: Anticoagulants / Antiplatelets: May have additive effects and increase risk of bleeding.

Phenothiazines (e.g. fluphenazine): Evening primrose oil may lower the seizure threshold and precipitate seizures in patients taking phenothiazines.

Green12 Enthusiast
Green12
Posted
PRECAUTIONS: If you have any of the following health problems, consult your doctor before using this product: psychiatric disorder (schizophrenia). Liquid preparations of this product may contain sugar and/or alcohol. Caution is advised if you have diabetes, alcohol dependence or liver disease. Ask your doctor or pharmacist about the safe use of this product. This product is not recommended for use during pregnancy. Consult your doctor before using this product. Because of the potential risk to the infant, breast-feeding while using this product is not recommended. Consult your doctor before breast-feeding.

Maybe it was the liver congestion I was thinking of.

dlp252 Apprentice
dlp252
Posted

Yeah, maybe that's what I was thinking too...or maybe it was because had some surgery...I don't know, lol. I don't remember really ever checking into it before, so it was something that said don't take this if... :lol:

CarlaB Enthusiast
CarlaB
Posted

I used to take Primrose Oil ... now I'm taking fish oils from my LLMD. It could be of benefit to you. I gave it to both Morgan and Chloe as they were going through puberty ... I know Morgan really noticed a difference in her hormonal swings (read "mood swings", LOL).

dlp252 Apprentice
dlp252
Posted

Yeah, my LLMD wants me to take EFAs in the worst ways, but I haven't found any that I don't react to...may as well try this too, lol.

confusedks Enthusiast
confusedks
Posted

Does anyone have shortness of breath and really a fast heart rate? I feel like I can't breath properly...it almost feels like when I had asthma and I was having an attack. It's not air hunger I don't think, unless air hunger can last for days and days.

confused Community Regular
confused
Posted

rachel,

I was reading what u said about ttg could be other things then celiac, is that only for the stool test or is that for blood work also. If its for blood work to, is that an reason why mine is still high in blood? All of the my other numbers are normal in the celiac panel but the ttg. If so that would make so much more sense to me then trying to fgure out why that is still high. My nd did say my candida is off the charts.

paula

CarlaB Enthusiast
CarlaB
Posted
Does anyone have shortness of breath and really a fast heart rate? I feel like I can't breath properly...it almost feels like when I had asthma and I was having an attack. It's not air hunger I don't think, unless air hunger can last for days and days.

sounds like air hunger .... it's from the babs .... both the heart symptom and the breathing symptom. I HATED that.

Is it time for a herx? That was always one of my first symptoms a herx was coming on. If not, it could be the full moon .... babesia is a parasite, which is affected by the full moon.

Rpm999 Contributor
Rpm999
Posted

confused: i don't see how it could be anything other than the candida, that would make sense to me, especially since it's so high...see if it lowers when that's healed up a bit

Green12 Enthusiast
Green12
Posted
... now I'm taking fish oils from my LLMD. It could be of benefit to you. I gave it to both Morgan and Chloe as they were going through puberty ... I know Morgan really noticed a difference in her hormonal swings (read "mood swings", LOL).

I'm taking cod liver oil and I can't say enough about it either.

Cod liver oil and charcoal, who would of thought :lol:

dlp252 Apprentice
dlp252
Posted
I'm taking cod liver oil and I can't say enough about it either.

Cod liver oil and charcoal, who would of thought :lol:

Yeah, I've been wondering if cod liver oil would work. I'm afraid to buy it. I've tried fish oil capsules and I react to those. I react to flax of all kinds, um, seems like I tried one other kind of EFA, can't remember though. Oh hemp...reacted to that too.

CarlaB Enthusiast
CarlaB
Posted

Donna, I take Arctic Oils brand Omega Pure. They are mercury-free fish oil EFA's. Maybe they would test okay for you.

confusedks Enthusiast
confusedks
Posted
sounds like air hunger .... it's from the babs .... both the heart symptom and the breathing symptom. I HATED that.

Is it time for a herx? That was always one of my first symptoms a herx was coming on. If not, it could be the full moon .... babesia is a parasite, which is affected by the full moon.

It may be time for a herx. I don't really know. I haven't herxed badly at all since I started the Mepron. It may take a while. I hate the heart/breathing stuff! Ugh, I feel like I'm dying, lol. <_<

CarlaB Enthusiast
CarlaB
Posted

Kassandra, you might count back how many days ago you started the Mepron ... it might give you an idea what kind of herx schedule to expect. :)

dlp252 Apprentice
dlp252
Posted
Donna, I take Arctic Oils brand Omega Pure. They are mercury-free fish oil EFA's. Maybe they would test okay for you.

It's actually a physical reaction. I bought some mercury-free...tried a couple of different kinds too...one I got from my doctor, one from Whole Foods. But, I haven't tried cod liver oil yet--I can eat cod without reacting, so it's possible. I can't eat flax in any form, nor hemp apparently.

aprilh Apprentice
aprilh
Posted
Maybe, but the pain is pretty constant. It's been every day for a couple of months now. I'm 52, so it could be hormonal, but wouldn't that be constant? Could also be some of the supplements I'm taking for the neurotransmitters I guess.

I've seen Evening Primrose Oil suggested on several sites for breast pain and was thinking of getting some just to see if it helps, but for some reason, Evening Primose Oil sticks out in my mind as something I might not want to take...wish I could remember why, lol.

Do you think its because Evening Primrose Oil is high in plant estrogens?

Also, you might consider the new thermography. It is less invasive, less painful and doesn't put radiatio in the body. Plus it shows more abnormalities earlier.

dlp252 Apprentice
dlp252
Posted
Also, you might consider the new thermography. It is less invasive, less painful and doesn't put radiatio in the body. Plus it shows more abnormalities earlier.

Oh, thanks, I'll ask about this.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi @CC90 Ah... that is very interesting. Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time? I could be wrong, but I would not be at all surprised if they find something on the next attempt. Coeliac damage can be very patchy, as I understand...
    2. CC90
      - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi Cristiana Yes I've had the biopsy results showing normal villi and intestinal mucosa. The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.
    3. Wheatwacked
      - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives. An elevated level means your immune system is reacting to gluten. Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis o...
    4. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

      In Addison’s disease, autoimmmune adrenal cortex disease adrenal glands don't make enough cortisol. At 12, it is usually caused by an autoimmune attack. It has a strong genetic link to the HLA-DQ8 gene. After 12 gluten free and 14 years on prednisone for adrenal insufficiency (symptoms like you describe from 1984 until 2014) I recently removed all c...
    5. trents
      - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,189
    • Most Online (within 30 mins)
      10,442
    Lhughes327
    Newest Member
    Lhughes327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...