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Omg...i Might Be On To Something

Rachel--24

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dlp252 Apprentice
dlp252
Posted

Rinne, you just have the most thought-provoking posts, thank you! Truly amazing about meeting your friend for the first time!

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CarlaB Enthusiast
CarlaB
Posted
I was thinking we need Laughing Lyme Ladies Lunching, we could have really sharp lime green hats and bags and we could have fun and we could help people understand that we can use illness as a gateway to compassion for ourselves and for the world that so much needs it.

Love and Blessings

Kind of like our own "red hat club"!!! How fun!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hey, gals--I was just getting a much-needed haircut, and the TV was on --Montel was doing a show on eosiniphilic disorders. Unfortunately, the volume was off, but I saw printed on the screen something about eosiniphilic disorder causing 20 different food allergies in one child.

I'll make a separate thread about this, just in case it helps someone!

The oddest thing is, years ago, my cat had a recurrent itchy spot on his chin that he kept scratching bloody, and the vet said it was eosiniphilic ulcerative complex. I remember working rather hard to memorize that one! (Wonder if there's such a thing as feline DH?)

jerseyangel Proficient
jerseyangel
Posted

I'm sure Laura is going to want to see this--

Open Original Shared Link

I put the link in the other thread, but wanted to post it here, too!

happygirl Collaborator
happygirl
Posted

x

jerseyangel Proficient
jerseyangel
Posted

Sorry you're feeling sick, Laura. Yes, go home and lie down :)

I plan to watch the show later--I'll let you know.

DingoGirl Enthusiast
DingoGirl
Posted

:lol: OMG LYME GREEN LAUGHING LUNATIC HAT LADIES....... :lol::lol::lol:

Just a drive-by but that was TOO funny! :lol::lol::lol:

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happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
So, in the red hat club, they were red/purple if they are over 50. under fifties wear like pink and light purple. So should we start color-coding our group....lyme-green...come on, what others should we do? :)

You get to pick for eos since you're the one being tested for it. Gluten intolerance/celiac -- shall we wear wheat brown? That's so boring. Those with Lyme can wear the green hat with a sash on it in the color of their other issues.

AndreaB Contributor
AndreaB
Posted

How bout dark green or forest green?

dlp252 Apprentice
dlp252
Posted
So, in the red hat club, they were red/purple if they are over 50. under fifties wear like pink and light purple. So should we start color-coding our group....lyme-green...come on, what others should we do? :)

Holy heck, what color is mercury, lol...silver??? I like silver....I also like lime green, but may not be able to wear lyme green. :lol:

miamia Rookie
miamia
Posted
Rinne,

Yes, I believe you are tired due to the events of the week in Calgary and getting a diagnosis. You have been getting so little sleep (in my eyes) that it would seem you are finally allowing yourself to get some much needed rest.

Rachel,

How have things been with you? When's your next appointment?

Carla,

It certainly wouldn't hurt for you to get tested for Lyme. Your new doctor would probably be willing to do that and use Igenix. Especially if you had tick bites when you were younger. We got a lot of flea bites moving into where we are, so even though they are a remoted possibility I'm going to be keeping that in the back of my mind.

Laura,

Keep posting about eos. I will also keep that in the back of my mind. I like learning things and can pass them on to others if the need arrives.

Miamia,

How have you been? When do you get the results from your tests last week.

Donna,

Yae!!! Keep it up. Glad it is easier to follow this since it is written down for you.

Julie,

You are not a lousy participant. Stop that talk!

Andrea-

how is your father?

how are you doing with the new food intolerances?

I won't have the test results for at least another week- I hate waiting- I get so impatient when it has to do with results and my health- I just wanna know so I can do something about it.

I hope youre well

Miamia

AndreaB Contributor
AndreaB
Posted
Andrea-

how is your father?

how are you doing with the new food intolerances?

I won't have the test results for at least another week- I hate waiting- I get so impatient when it has to do with results and my health- I just wanna know so I can do something about it.

I hope youre well

Miamia

Haven't talked to my father since the last time. I usually try to talk to him every week or two now. Hopefully he'll be more coherant next time. This has just made me realize that he's getting older, he's 78. Little girls daddies don't remain invincible forever do they.

We are getting through with the intolerances. A lot of mine are just over into the low side so I'm thinking I'll be ok with those. That goes for garlic. Talitha is just over on that and I'm on the line between no reaction and low. Some of them Mitch isn't too interested in testing. We'll see.

I also hate waiting for test results for anything. It's hard to sit back and wait. Hope you get some answers soon.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
You get to pick for eos since you're the one being tested for it. Gluten intolerance/celiac -- shall we wear wheat brown? That's so boring. Those with Lyme can wear the green hat with a sash on it in the color of their other issues.

"My brother said it was a hat,

And so I put it on

Til Daddy asked, "Where the heck's

The toiler plunger gone?"

jerseyangel Proficient
jerseyangel
Posted
You get to pick for eos since you're the one being tested for it. Gluten intolerance/celiac -- shall we wear wheat brown? That's so boring. Those with Lyme can wear the green hat with a sash on it in the color of their other issues.

Carla--I can't possibly wear wheat--I would be terribly washed out :lol:

Maybe something brighter? I'm open to suggestion...

Then we could all re-do our avatars in our designated color :D

AndreaB Contributor
AndreaB
Posted

Alison..... :lol::lol::lol:

Ok, for some seriousness. Just talked to my mom who got back from vacation this weekend. She talked to a friend down in Arizona who just happened to be over visiting my dad and his wife. My mom learned that dad has a tumor on his kidney. He's in a lot of pain, hence the meds. He's not coherant, sleeps a lot. His wife is upset that he hasn't told my brother and I what's going on. I'm upset too. I would really like to go see him if his time is going to be so short. Moms going to see if she can get any more info or not since he won't talk to us about it. I guess that answers my question as to why he said he wasn't going to be around long. :(

I'm sad now......Seth is over here laughing away......can't stay sad with a smiling, laughing baby can I? :):(

jerseyangel Proficient
jerseyangel
Posted

Oh Andrea,

I'm so sorry to hear about your Dad. I'll bet he didn't want to worry you, and was just not thinking clearly. Of course you want to go and be with him now--

Anytime you need to tlak, we'll be here. PM me anytime :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Oh, Andrea :( Do they know if the tumor is malignant? Might it be benign?

miamia Rookie
miamia
Posted
Alison..... :lol::lol::lol:

Ok, for some seriousness. Just talked to my mom who got back from vacation this weekend. She talked to a friend down in Arizona who just happened to be over visiting my dad and his wife. My mom learned that dad has a tumor on his kidney. He's in a lot of pain, hence the meds. He's not coherant, sleeps a lot. His wife is upset that he hasn't told my brother and I what's going on. I'm upset too. I would really like to go see him if his time is going to be so short. Moms going to see if she can get any more info or not since he won't talk to us about it. I guess that answers my question as to why he said he wasn't going to be around long. :(

I'm sad now......Seth is over here laughing away......can't stay sad with a smiling, laughing baby can I? :):(

andrea-

i am so sorry to hear about your father- yes its hard to believe fathers aren't invincible- I don't think I will ever except that.

I'm glad you ahve your baaby with you when I am reallly down I spend time with my niece and nephew they are like a drug- I spent the whole day with them yesturday and left a completly different person.

miamia

CarlaB Enthusiast
CarlaB
Posted

Andrea, I'm sorry about your dad.

Patti, wheat would wash me out, too. How about Celiac.com blue? The darker one ... the color of the logo.

AndreaB Contributor
AndreaB
Posted
Oh, Andrea :( Do they know if the tumor is malignant? Might it be benign?

Supposedly either it is too progressed to do chemo or my dad refused it, although I think my mom said it was too far progressed. He had cancer removed 5 years ago with the other kidney and has had cat scans but I guess nothing was caught.

Judyin Philly Enthusiast
Judyin Philly
Posted

ANDREA, SO SORRY TO HEAR THE NEWS ABOUT YOUR DAD.

IT'S SO TOUGH ISN'T IT.

I'LL KEEP YOU ALL IN MY NIGHTLY PRAYERS.

THINKING OF YOU

JUDY

AndreaB Contributor
AndreaB
Posted
I'm glad you ahve your baaby with you when I am reallly down I spend time with my niece and nephew they are like a drug- I spent the whole day with them yesturday and left a completly different person.

miamia

Seth's nickname is Sunshine. Although he's getting more Stormy as he gets older and copies his older siblings.....he's still more sunshine than storm at this point though.

dlp252 Apprentice
dlp252
Posted
Alison..... :lol::lol::lol:

Ok, for some seriousness. Just talked to my mom who got back from vacation this weekend. She talked to a friend down in Arizona who just happened to be over visiting my dad and his wife. My mom learned that dad has a tumor on his kidney. He's in a lot of pain, hence the meds. He's not coherant, sleeps a lot. His wife is upset that he hasn't told my brother and I what's going on. I'm upset too. I would really like to go see him if his time is going to be so short. Moms going to see if she can get any more info or not since he won't talk to us about it. I guess that answers my question as to why he said he wasn't going to be around long. :(

I'm sad now......Seth is over here laughing away......can't stay sad with a smiling, laughing baby can I? :):(

I'm soooo sorry! Yes, just keep looking at that precious little baby of yours!

Green12 Enthusiast
Green12
Posted

Andrea, I am so sorry to hear this about your Dad. I hope you can make arrangements to get down there to be with him. You and your family are in my thoughts.

This is a fun link for picking a color based on its meaning:

Open Original Shared Link

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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