Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

rinne Apprentice
I don't have to leave home to have shops be dangerous. I just need to look at my favorite ebay seller's offerings.......my custom breyers. :)

:lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
TriticusToxicum Explorer
I see you sneaking around here. :P

:ph34r: Just checking to make sure you are all behaving and that nobody is locked in the sauna ;):P

Green12 Enthusiast

People, I have lyme.

I went to my bioscan lady today and I tested for it. I asked if that meant I had lyme, and she said well I'm not allowed to say that...but this would be a very strong indication, that YES, I have lyme.

Anyway, just thought Id share.

Hope everyone is having a great day :)

AndreaB Contributor
People, I have lyme.

I went to my bioscan lady today and I tested for it. I asked if that meant I had lyme, and she said well I'm not allowed to say that...but this would be a very strong indication, that YES, I have lyme.

Anyway, just thought Id share.

Hope everyone is having a great day :)

Julie,

I'm not surprised.

I'm assuming that mercury will also be a situation with you.

CarlaB Enthusiast
:o Julie! I guess Rhonda is right ... Lyme clan! :lol: So, where do you go from here?
jerseyangel Proficient

Julie,

My goodness, I don't know what to say. :(

Green12 Enthusiast
:o Julie! I guess Rhonda is right ... Lyme clan! :lol: So, where do you go from here?

Well it's all unofficial, being that it was done on the bioscan, not testing through the lab-- but I obviously have so many of the symptoms and fit the profile, and then the lyme came up in the scan, and the lyme remedies balanced me.....so what I am going to do for now is take the homeopathic lyme remedies and see how that goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikki-uk Enthusiast
People, I have lyme.

I went to my bioscan lady today and I tested for it. I asked if that meant I had lyme, and she said well I'm not allowed to say that...but this would be a very strong indication, that YES, I have lyme.

OMG Julie,-not sure whether to offer my condolences or to congratulate you on finding an answer to your problems. :o

How do you feel??...Shocked or does it make sense??? :unsure:

rinne Apprentice

Hi Julie, I am not surprised. :ph34r: Welcome to the Lyme Clan. :)<_<:(:o:lol: How are you doing with the diagnosis? I'm assuming you were ready to hear it given that you asked, yes? Do have any idea at this point what remedies you will use?

:ph34r: Just checking to make sure you are all behaving and that nobody is locked in the sauna ;):P

:P

Green12 Enthusiast
OMG Julie,-not sure whether to offer my condolences or to congratulate you on finding an answer to your problems. :o

How do you feel??...Shocked or does it make sense??? :unsure:

Hi Nikki and Patti, thanks Carla and Andrea :D

I haven't really wrapped my head around it all yet :lol: . I knew I needed to do something and so I decided to go back to something I was familiar with and had already done, the bioscan--and my bioscan lady is really great at working together with me. I just expected to see what was going on with my body today and get homeopathic support for whatever areas needed it.

I started telling her about all you guys and all of the lyme diagnoses, especially for people who dont seem to get well no matter what they do or try, and she just started looking through all her books, whipped out everything she had on lyme and said, we will just see if it is an issue for you.

She said lyme registers for some of people she has treated but usually not as something needing to be addresses, she said it hides behind all your other issues. That sneaky little lyme.

So I am glad I brought it to her attention.

I'm just going to go with it and take everything really slowly.

Hi Julie, I am not surprised. :ph34r: Welcome to the Lyme Clan. :)<_<:(:o:lol: How are you doing with the diagnosis? I'm assuming you were ready to hear it given that you asked, yes? Do have any idea at this point what remedies you will use?

Hi rinne, thank you :lol:

She works mosly with homeopathic remedies. As we discovered in my appt today, there are alot of companies that formulate a lyme remedy. I balanced for ALL that she tested.

This is all I have available to me at this time, as far as a healthcare professional and treatment, so I am going to give it a go.

rinne Apprentice

It takes time to absorb it, I don't think I have really.... <_<

AndreaB Contributor

Julie,

I'm so glad you asked her about it. :D

I don't know how I would feel in your guy's shoes but I'm assuming it's a relief just to know so you can go forward with treatment and feeling/getting better.

I balanced for ALL that she tested.

Can I ask an ignorant question.......what does that mean?

Green12 Enthusiast
Can I ask an ignorant question.......what does that mean?

Oh sorry Andrea :lol: I guess I should elaborate!

I'm not even sure I totally understand it, let alone be able to explain it...but I will try. It is bioenergetic lingo. It invovles glass vials with the substances in it, or remedies, like what Rachel has described and it is tested against your body. In my case with the bioscan (vs Rachels bioset) specific points are tested with a pointer, while you hold a metal wand. The appt starts out scanning the entire body to look for the areas of weakness, stress, etc- and then the whole idea is to use specific remedies to balance those areas that need support. So when I say ALL the lyme remedies balanced me, it means that I need the lyme remedy, basically. There is so much more to it, and I am just not very good at explaining it, plus my brain is tired at the moment :lol:

Sorry, the above makes no sense....

rinne Apprentice

No Julie, it makes perfect voodoo sense. :lol:

I am sitting here feeling rather stunned. I know I threw out the Lyme Clan half seriously and half humorously and now I am wondering if it might be truer than I thought. Just think, that is three of us plus Carla, I'm pretty sure you are, plus .... <_<

I really wonder about our health histories.

I had mono when I was 17, anyone else?

CarlaB Enthusiast
No Julie, it makes perfect voodoo sense. :lol:

I am sitting here feeling rather stunned. I know I threw out the Lyme Clan half seriously and half humorously and now I am wondering if it might be truer than I thought. Just think, that is three of us plus Carla, I'm pretty sure you are, plus .... <_<

I really wonder about our health histories.

I had mono when I was 17, anyone else?

No, I've never had mono ... but I've had more bacterial infections that I can count. I seem to attract them.

happygirl Collaborator

x

Rachel--24 Collaborator
People, I have lyme.

:o:o:o

OMG...I totally almost fell out of my chair. :blink:

Julie...Lyme sucks but I'm gonna make an assumption here and go ahead and say Congrats. :)

I know you've been sick alot longer than I have.....so its gotta be somewhat of a relief for you.

I'm not at all surprised by this but when I opened up the new page and saw "People, I have Lyme".....I got kinda thrown for a loop... :blink: ....was expecting another joke from Donna or something. :huh:

So how is BioScan different from BioSET??? Is it because there is no computer? :unsure: Most of Bioset is done on a computer.

After reading about Lyme and getting all freaked out by the statistics.....I thought alot of us Rachelvillians could definately be Lyme Ladies. So now we have went from one Lonely Lyme Lady to a whole Lyme Clan.

All I can say is.......OMG! :o

We will have to make sure that Rachelville is not just gluten free but TICK free as well. Rachelville is a NO-TICK ZONE.

The craziest thing is that when I met all of you....here on this thread....and we started sharing our common symptoms....in the back of my mind I wondered if the answer was found, could it be the same answer for ALL of us??? :unsure:

Now....its really looking like it could turn out that way! How CRAZY is that??? :blink:

I'm totally blown away.....and yes, I think Carla will be the 4th member of the Lyme clan. ;)

I'm still stupified by Julies announcement....will have to get it together and post something useful. :ph34r:

Rinne, is the Samento and other natural stuff considered homeopathic...or is it different?? :unsure:

What about co-infections....does the natural stuff get rid of those to?? I've read so much about people not getting better because of undiagnosed co-infections.....this is mainly with antibiotic treatment though. Because of the co-infections responding to different treatments then the Lyme. Is the samento and salt/vit C suppossed to work for everything??

Judyin Philly Enthusiast

JULIEM..WELL, WELL, WELL, :blink:

DON'T KNOW WHAT TO SAY JULIE... ;)

SO YOURS AND RACHEL'S TESTING IS THE SAME BUT DIFFERENT>

THAT DOES MAKE SENCE IN A WAY.

I DON'T GET THESE 2 TESTING THINGS AT ALL

DO YOU GUYS HAVE LINKS TO BOTH METHODS ON THIS THREAD?

i JUST CAN'T SO BACK AND LOOK BUT AM INTERETED ESP. THAT YOU GUYS CAN GET WELL THIS WAY.

BIOGENICS..I THINK THEY MAKE THE SUPPLEMENT I TOOK FOR LEAKY GUT THAT HELPED SO MUCH BUT LICORISH IN IT MADE MY LYMPHEDEMA LEG SWELL SO HAD TO GO OFF IT.

CHIRO IS LOOKING FOR SOMETHING W/O THE LICORISH.

HUGS TO YOU JULIE..I'M GLAD IF YOUR GLAD..AT LEAST A ALMOST POSTITIVE DX.

OH MY,.....WHAT A BUNCH WE ARE ON HERE

BUT AGREE WITH RACHEL...WHEN THIS THREAD STARTED AND WE WERE ALL COMPARING NOTES/SYMPTOMS SO MANY WERE SO ALIKE.

LOOK AT ALL THE RESEARCH THAT HAS BEEN DONE ON HERE.

I BET MORE THAN OUR DRS. HAVE DONE!!!! ;)

HUGS TO YOU ALL

JUDY

AndreaB Contributor

I'll be the cheerleader as best I can with the lyme clan.

I seriously doubt I have it unless I've gotten it from fleas.

I know with not being chronically ill that I don't understand everything, but I do try.

Love you guys. :wub:

Rachel--24 Collaborator
I had mono when I was 17, anyone else?

Not me...I was FINE...never had any viruses or infections or nothing. <_<

Even the Lyme got shut down by my immune system for 2 years....until I got OVERLY stressed out from my stupid relationship....and then the idiot dentist decided to expose me to mercury in every way possible.....then BAMN....I became allergic to the world. B)

Honestly, I dont even feel sick now. My symptoms all seem to come from my reactions to everything around me. They dont seem to be coming from the Lyme....but rather the Lyme is stressing my immune system so much that its totally lost all sense of whats safe to eat and breathe and whats not. Its gone haywire on me and it must be "retrained". <_<

My immune system I think is VERY strong. I'm thinking it might actually be keeping the Lyme and co-infections at bay....BUT...its highly stressed and seriously has forgotten that *some* things are OK....not *everything* needs to be attacked. :rolleyes:

OMG....I hope the BioSET ladies can fix this. :unsure:

Rachel--24 Collaborator
i JUST CAN'T SO BACK AND LOOK BUT AM INTERETED ESP. THAT YOU GUYS CAN GET WELL THIS WAY.

Judy,

My BioSet treatments dont address the Lyme....that is for my Dr. to do.

The Bioset is for getting some things that are "broken" back into working order. Also.....of course....the main thing is eliminating all these chemical and food sensitivities. Thats what the BioSet treatments are for. Ulimately, by getting my immune system to calm down and not react to all of these innocent food and environmental things....it will take a huge load off of my immune system. It will give it more energy and strength for fighting the Lyme. :)

My Dr. is still waiting for more bloodtests to come back from Igenix. He hasnt started me on treatment for the Lyme yet because he is waiting to see what co-infections I have. I see him in a couple weeks so then I might actually start *doing* something to actively treat the Lyme.

rinne Apprentice
After reading about Lyme and getting all freaked out by the statistics.....I thought alot of us Rachelvillians could definately be Lyme Ladies. So now we have went from one Lonely Lyme Lady to a whole Lyme Clan.

All I can say is.......OMG! :o

....

Rinne, is the Samento and other natural stuff considered homeopathic...or is it different?? :unsure:

What about co-infections....does the natural stuff get rid of those to?? I've read so much about people not getting better because of undiagnosed co-infections.....this is mainly with antibiotic treatment though. Because of the co-infections responding to different treatments then the Lyme. Is the samento and salt/vit C suppossed to work for everything??

OMG right back at ya!

Open Original Shared Link

Samento is an herbal supplement and the form I am taking is the extract. I know there are people who swear by the salt/c and say that it will take care of all the co-infections but many people on the salt/c are doing Samento too, so <_< There are also people who think the Samento alone will work but I don't know. Stephen Buhner in "Healing Lyme" says the study most often quoted to back this up is flawed because people were using other healing modalities.

I am thinking there is no one answer.

He does talk about the ability of Samento to increase the CD57 white blood cell count and that those who have used antibiotics to treat the Lyme have lower counts. I wonder if all of us who have taken antibiotics over the years also have a low CD57.

He also talks about the prevention of Lyme with specific herbs. I haven't spent much time on that part of the book. :P:lol:

Rachel--24 Collaborator
Rachel....do you remember, before I "knew" you :P that I used to always tell you that you should be a nutritionist or dietitian or something? well now we know what your destiny is....LAUGHING LYME BIOSET LADY!!!!! ;)

:lol::lol:

Yeah...I remember!!

I remember thinking......"Ummm...I am SOOOO the least likely person ever to become a nutritionist!" :blink:

Yeah....me with all my "Racheling" habits and daily pints of ice cream. :lol::lol:

Rinne......just carefully and calmly remember how to get yourself OUT of the sauna, the dinogs are occupied today and can't be sent out! :lol:

ROFL

:lol::lol::lol:

Yeah.....Rinne be really cool, calm and collective when approaching the door. :lol:

Green12 Enthusiast

I did not have mono either, that I know of. I got really sick, and I mean really, a couple months into my first year of college (1990). I went to the health center and they just gave me antibiotics for it. They didn't even test me for anything and chalked it up to living in a dorm and being in a college setting (could have been mono :unsure: ) But anyway, that is just a short time after I was forced to get a measles immunization in order to be admitted. I was never really the same after that.

I don't remember ever spotting a tick on myself. So, not sure what to think about that...

But I have always had lots of infections, my whole life, lots of strep, sinus infections, and was on lots of antibiotics early on for this as well as acne. And digestive difficulties, which match up with celiac symptoms, began for me oh around 6 grade/middle school age and progressively got worse.

Laura, thanks so much for your post. You are right, I have a great source of information and support in Rachel and rinne, as well as everyone else on this thread. I am thinking of you too and hope you can find answers for yourself :) I wish that for everyone here!

Rachel, can you believe it?? :lol::lol: I'm actually very calm and collected about it. Maybe it is the calm before the storm :blink: . The bioscan is a computer as well, yes, when you describe the bioset there are so many similarities. Again, I am very glad to have you and everyone here in this thread for support.

Judy, thanks, you are so sweet. The bioscan is a mode of Bioenergetics. It's based on acupuncture principles, and while I dont quite understand everything about it, it always seems to be right on. I am not sure if there is a link on it, but I will look for you to see what kind of info I can find :) Main stream medical definitely frowns upon it, although some are coming around, but there are a lot of critics.

Andrea, we will always need you as our cheerleader :wub:

Rachel--24 Collaborator
I know with not being chronically ill that I don't understand everything, but I do try.

Love you guys. :wub:

Awww Andrea :wub:

We love you too......you are the BEST cheerleader!! :D

I DON'T GET THESE 2 TESTING THINGS AT ALL

Judy....me either. :unsure:

The good news is that when I become a BioSET lady.....I'll be able to go into full scientificness about the whole thing. :D

Hmmmm.....I wonder if being a BioSET lady means I could treat myself!! :huh: That would be WAY cool......and WAY cheaper too! :o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.