Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-eaters Annonymous

MallysMama

By MallysMama
in Coping with Celiac Disease

Recommended Posts

MallysMama Explorer
MallysMama
Posted

"Hi. Take a seat. Welcome to the Gluten-Eaters Annonymous meeting. Let's all take a turn to introduce ourselves and tell our weakness that brought us to this GA meeting."

"Hi. My name is Karleena and I'm a 'closet Celiac'. I don't like to be different. My biggest weakness is not eating a sandwich or a piece of pizza - it's the dreaded M word. Malt. Yes, that's the one! I struggle with maltodextrin, malt flavoring and malt extract. I can't help it - I'm addicted to cereal!"

( :lol: Feel free to join the GA meeting -all in fun- and share "your story"!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

maltodextrin is ok----you have one less addiction to worry about! LOL!!

christine

Guest Viola
Guest Viola
Posted

:lol::lol::lol:

My struggle is with 'wanting to walk into a coffee shop and ordering that yummy cinnamon roll with coffee when I stop while driving several hundred miles' :ph34r: Shhhhh don't tell.

:lol: The problem with that of course is that I would have to steal their toiled for the back of the van too :lol:

MallysMama Explorer
MallysMama
Posted
  • Author

:lol::lol: I don't know about stealing their toilet (then you'd have to go to a Stealers Annonymous meeting)....but I'd let you borrow my daughters "royal" potty if you're desperate! (She's not ready for it yet anyway!) ;)

Since when is maltodextrin okay?!?! I thought that was a no-no equal to regular Malt?

Guest Viola
Guest Viola
Posted

Actually, it isn't rye at all, but the name is confusing.

Maltodextrin

A hydrolyzed carbohydrate made from corn starch.

Hope this helps :D

mommida Enthusiast
mommida
Posted

I joined a gluten free cult. :lol:

L.

frenchiemama Collaborator
frenchiemama
Posted

Viola is correct. I have to sample (taste) malto on a nearly daily basis at work. I can assure you that it is gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

And there's lots of gluten-free cereal out there. (I like it dry as a tasty crunchy snack.)

Guest nini
Guest nini
Posted

I haven't actually given in to the cravings, but man oh man do I crave Krispy Kreme donuts and a really good croissant!

elye Community Regular
elye
Posted

While we're on the subject of malt, I'll share the biggest frustration I have as a celiac: not the missed take-out pizza or New York Bagels or meatball subs, but the hands-off Kellog's cereal, many of which are completely gluten-free until you get to the last ingredient--malt flavoring! AUUUGGGHHH! How frustrating...SOOOO close to gluten-free. Such teasing exhausts me...

chrissy Collaborator
chrissy
Posted

and just how much does malt really contribute to the flavoring anyway!!!!!!

christine

penguin Community Regular
penguin
Posted

I'd give a pinky toe for a McDonald's double cheeseburger...

I never even liked them that much! :rolleyes:

Lollie Enthusiast
Lollie
Posted

I'm with Nini- Krispy Kreme, croissants, and Einsteins Bagels!!!! And I really miss cholcolate malts and malted milk balls! I haven't given in or anything, but man, I do covet them. Especially when my kids have them and I can smell them.....

lollie

Guest Viola
Guest Viola
Posted
and just how much does malt really contribute to the flavoring anyway!!!!!!

christine

I was told that although malt does add to the flovour, it also makes the texture better. Don't know how true it is, but a whole lot of stuff has malt in it. :(

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

:lol:

I must confess...

I dream about wedding cake! [giggle] :wub:

tiredofdoctors Enthusiast
tiredofdoctors
Posted
I haven't actually given in to the cravings, but man oh man do I crave Krispy Kreme donuts and a really good croissant!
OMG -- I miss Krispy Kreme doughnuts almost more than anything. When my kids were little, in the summer we would go for midnight Krispy Kreme runs so that we could get them when they were coming off the conveyor. My mouth is watering as I write this. I even have a Krispy Kreme T-shirt! In 9 months, I have not once cheated on this lifestyle (said diet first, but decided it's a lifestyle), but if I were to give in to ANY gluten, it would be Krispy Kreme doughnuts! We also had this bakery where my office used to be -- they made the BEST croissants. Their chicken salad (with walnuts, pineapple, grapes) on those croissants were to die for.
NicoleAJ Enthusiast
NicoleAJ
Posted

In 21 months I have never cheated though I once had a chocolate croissant in my hand and could smell its flaky goodness and feel it crumble before I snapped out of my gluten-lust haze and handed it over to my boyfriend, who kindly informed me that it was stale and lackluster anyway.

I would also give anything for chicken fingers with a really thick and crunchy but soft coating--I've tried to make my own, but they just don't match up. And stuffing with gravy as well (the two I've tried haven't been so good). If you have any tried and true recipes for any of these things PLEASE let me know.

francelajoie Explorer
francelajoie
Posted

I WANT A BIG MAC REAAAAALLLLLLYYYYY BAD :(

AND A CANNOLI FOR DESSERT :huh:

jerseyangel Proficient
jerseyangel
Posted

A Wendy's single hamburger with ketchup, mustard and pickles, french fries and a pepsi would make me very happy right now. I know there are subsitiutes I can do at home--but they are not the same! :angry:

Mandy F. Apprentice
Mandy F.
Posted

I drove past Krispy Kreme today and they smelled so good!!!! I about died! I've been craving just about every recipie I know made with Campbell's Cream of Mushroom... and chocolate cake... Never liked bread, but I could eat chocolate cake like anyone else eats bread....

Lollie Enthusiast
Lollie
Posted
I drove past Krispy Kreme today and they smelled so good!!!! I about died! I've been craving just about every recipie I know made with Campbell's Cream of Mushroom... and chocolate cake... Never liked bread, but I could eat chocolate cake like anyone else eats bread....

i feel your pain 9 about the Krispie Kreme) I think they must have big fans that pump that smell out to get us to want to go get one. I love chocolate cake too. I make the Namste cake---It's really good. I put my grandma's recipe for fudge frosting on the top! It is excellent, if I don't say so myself!

Lollie

Rachel--24 Collaborator
Rachel--24
Posted

I miss everything McDonalds...mainly Big Macs (my all-time favorite). I want cheeseburgers, nuggets, Egg McMuffins, fries...I want it all!!

I haven't actually given in to the cravings, but man oh man do I crave Krispy Kreme donuts and a really good croissant!

Nini,

You're not gonna believe this but even though I'm a donut lover I've never had a Krispy Kreme donut. :huh:

Maybe thats a good thing cuz I have no idea what I'm missing. I miss donuts in general...especially jelly-filled ones but the last donut I ever had gave me such a severe reaction...I'm just plain scared of them now.

Guest Robbin
Guest Robbin
Posted
:D Hey, great thread! Really, a good way to let off a little frustration at it all. I agree with Rachel on the McDonalds--anything sounds great--Pizza Hut and Arby's-Supreme Pizza with extra parmesan sprinkled on and a big ole' beef and cheddar sandwich from Arbys. Oh, and a jamocha shake. Weird, but, I don't think I even ate at those places that often before, but now when we drive by or see commercials, I literally drool. I think I am too hungry all the time! :blink:
tiredofdoctors Enthusiast
tiredofdoctors
Posted
In 21 months I have never cheated though I once had a chocolate croissant in my hand and could smell its flaky goodness and feel it crumble before I snapped out of my gluten-lust haze and handed it over to my boyfriend, who kindly informed me that it was stale and lackluster anyway.

I would also give anything for chicken fingers with a really thick and crunchy but soft coating--I've tried to make my own, but they just don't match up. And stuffing with gravy as well (the two I've tried haven't been so good). If you have any tried and true recipes for any of these things PLEASE let me know.

I found some gluten-free chicken fingers at Whole Foods. Haven't tried them yet -- will put them in the convection oven to cook them, but will let you know if they're any good! . . . Lynne

Rachel--24 Collaborator
Rachel--24
Posted

Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.