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Gluten-eaters Annonymous

MallysMama

By MallysMama
in Coping with Celiac Disease

Recommended Posts

MallysMama Explorer
MallysMama
Posted

"Hi. Take a seat. Welcome to the Gluten-Eaters Annonymous meeting. Let's all take a turn to introduce ourselves and tell our weakness that brought us to this GA meeting."

"Hi. My name is Karleena and I'm a 'closet Celiac'. I don't like to be different. My biggest weakness is not eating a sandwich or a piece of pizza - it's the dreaded M word. Malt. Yes, that's the one! I struggle with maltodextrin, malt flavoring and malt extract. I can't help it - I'm addicted to cereal!"

( :lol: Feel free to join the GA meeting -all in fun- and share "your story"!)

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chrissy Collaborator
chrissy
Posted

maltodextrin is ok----you have one less addiction to worry about! LOL!!

christine

Guest Viola
Guest Viola
Posted

:lol::lol::lol:

My struggle is with 'wanting to walk into a coffee shop and ordering that yummy cinnamon roll with coffee when I stop while driving several hundred miles' :ph34r: Shhhhh don't tell.

:lol: The problem with that of course is that I would have to steal their toiled for the back of the van too :lol:

MallysMama Explorer
MallysMama
Posted
  • Author

:lol::lol: I don't know about stealing their toilet (then you'd have to go to a Stealers Annonymous meeting)....but I'd let you borrow my daughters "royal" potty if you're desperate! (She's not ready for it yet anyway!) ;)

Since when is maltodextrin okay?!?! I thought that was a no-no equal to regular Malt?

Guest Viola
Guest Viola
Posted

Actually, it isn't rye at all, but the name is confusing.

Maltodextrin

A hydrolyzed carbohydrate made from corn starch.

Hope this helps :D

mommida Enthusiast
mommida
Posted

I joined a gluten free cult. :lol:

L.

frenchiemama Collaborator
frenchiemama
Posted

Viola is correct. I have to sample (taste) malto on a nearly daily basis at work. I can assure you that it is gluten-free.

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tarnalberry Community Regular
tarnalberry
Posted

And there's lots of gluten-free cereal out there. (I like it dry as a tasty crunchy snack.)

Guest nini
Guest nini
Posted

I haven't actually given in to the cravings, but man oh man do I crave Krispy Kreme donuts and a really good croissant!

elye Community Regular
elye
Posted

While we're on the subject of malt, I'll share the biggest frustration I have as a celiac: not the missed take-out pizza or New York Bagels or meatball subs, but the hands-off Kellog's cereal, many of which are completely gluten-free until you get to the last ingredient--malt flavoring! AUUUGGGHHH! How frustrating...SOOOO close to gluten-free. Such teasing exhausts me...

chrissy Collaborator
chrissy
Posted

and just how much does malt really contribute to the flavoring anyway!!!!!!

christine

penguin Community Regular
penguin
Posted

I'd give a pinky toe for a McDonald's double cheeseburger...

I never even liked them that much! :rolleyes:

Lollie Enthusiast
Lollie
Posted

I'm with Nini- Krispy Kreme, croissants, and Einsteins Bagels!!!! And I really miss cholcolate malts and malted milk balls! I haven't given in or anything, but man, I do covet them. Especially when my kids have them and I can smell them.....

lollie

Guest Viola
Guest Viola
Posted
and just how much does malt really contribute to the flavoring anyway!!!!!!

christine

I was told that although malt does add to the flovour, it also makes the texture better. Don't know how true it is, but a whole lot of stuff has malt in it. :(

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

:lol:

I must confess...

I dream about wedding cake! [giggle] :wub:

tiredofdoctors Enthusiast
tiredofdoctors
Posted
I haven't actually given in to the cravings, but man oh man do I crave Krispy Kreme donuts and a really good croissant!
OMG -- I miss Krispy Kreme doughnuts almost more than anything. When my kids were little, in the summer we would go for midnight Krispy Kreme runs so that we could get them when they were coming off the conveyor. My mouth is watering as I write this. I even have a Krispy Kreme T-shirt! In 9 months, I have not once cheated on this lifestyle (said diet first, but decided it's a lifestyle), but if I were to give in to ANY gluten, it would be Krispy Kreme doughnuts! We also had this bakery where my office used to be -- they made the BEST croissants. Their chicken salad (with walnuts, pineapple, grapes) on those croissants were to die for.
NicoleAJ Enthusiast
NicoleAJ
Posted

In 21 months I have never cheated though I once had a chocolate croissant in my hand and could smell its flaky goodness and feel it crumble before I snapped out of my gluten-lust haze and handed it over to my boyfriend, who kindly informed me that it was stale and lackluster anyway.

I would also give anything for chicken fingers with a really thick and crunchy but soft coating--I've tried to make my own, but they just don't match up. And stuffing with gravy as well (the two I've tried haven't been so good). If you have any tried and true recipes for any of these things PLEASE let me know.

francelajoie Explorer
francelajoie
Posted

I WANT A BIG MAC REAAAAALLLLLLYYYYY BAD :(

AND A CANNOLI FOR DESSERT :huh:

jerseyangel Proficient
jerseyangel
Posted

A Wendy's single hamburger with ketchup, mustard and pickles, french fries and a pepsi would make me very happy right now. I know there are subsitiutes I can do at home--but they are not the same! :angry:

Mandy F. Apprentice
Mandy F.
Posted

I drove past Krispy Kreme today and they smelled so good!!!! I about died! I've been craving just about every recipie I know made with Campbell's Cream of Mushroom... and chocolate cake... Never liked bread, but I could eat chocolate cake like anyone else eats bread....

Lollie Enthusiast
Lollie
Posted
I drove past Krispy Kreme today and they smelled so good!!!! I about died! I've been craving just about every recipie I know made with Campbell's Cream of Mushroom... and chocolate cake... Never liked bread, but I could eat chocolate cake like anyone else eats bread....

i feel your pain 9 about the Krispie Kreme) I think they must have big fans that pump that smell out to get us to want to go get one. I love chocolate cake too. I make the Namste cake---It's really good. I put my grandma's recipe for fudge frosting on the top! It is excellent, if I don't say so myself!

Lollie

Rachel--24 Collaborator
Rachel--24
Posted

I miss everything McDonalds...mainly Big Macs (my all-time favorite). I want cheeseburgers, nuggets, Egg McMuffins, fries...I want it all!!

I haven't actually given in to the cravings, but man oh man do I crave Krispy Kreme donuts and a really good croissant!

Nini,

You're not gonna believe this but even though I'm a donut lover I've never had a Krispy Kreme donut. :huh:

Maybe thats a good thing cuz I have no idea what I'm missing. I miss donuts in general...especially jelly-filled ones but the last donut I ever had gave me such a severe reaction...I'm just plain scared of them now.

Guest Robbin
Guest Robbin
Posted
:D Hey, great thread! Really, a good way to let off a little frustration at it all. I agree with Rachel on the McDonalds--anything sounds great--Pizza Hut and Arby's-Supreme Pizza with extra parmesan sprinkled on and a big ole' beef and cheddar sandwich from Arbys. Oh, and a jamocha shake. Weird, but, I don't think I even ate at those places that often before, but now when we drive by or see commercials, I literally drool. I think I am too hungry all the time! :blink:
tiredofdoctors Enthusiast
tiredofdoctors
Posted
In 21 months I have never cheated though I once had a chocolate croissant in my hand and could smell its flaky goodness and feel it crumble before I snapped out of my gluten-lust haze and handed it over to my boyfriend, who kindly informed me that it was stale and lackluster anyway.

I would also give anything for chicken fingers with a really thick and crunchy but soft coating--I've tried to make my own, but they just don't match up. And stuffing with gravy as well (the two I've tried haven't been so good). If you have any tried and true recipes for any of these things PLEASE let me know.

I found some gluten-free chicken fingers at Whole Foods. Haven't tried them yet -- will put them in the convection oven to cook them, but will let you know if they're any good! . . . Lynne

Rachel--24 Collaborator
Rachel--24
Posted

Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

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    • captaincrab55
      Finding gluten free ingredients

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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
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      High DGP-A with normal IGA

      By rei.b · Posted

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

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