Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Look At This As A Blessing...


lorka150

Recommended Posts

lorka150 Collaborator

I was glutened last week, and took ten days to feel better.

Today, finally feeling normal, I came home after a wonderful morning with a friend, and ate lunch and got a high fever. It was really random, and I was frustrated that FINALLY I felt good and then a fever! (Which I seldom get).

But then I went to an open house of a friend who got diagnosed with cancer, and made a celiac disease and we had a celebration for the opening of it. Many people love this man - over 200 people showed up.

And he is dying. Of cancer.

None of us are dying. We're sick, sometimes feel like garbage, whatever. We're not dying. We've been blessed - we KNOW how to control the disease, even if we always cannot.

Let's remember how wonderful we all have it. (and slip in a prayer for my friend, if you can. :))


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KayJay Enthusiast

I am sorry for your friend. But you are so right. I had a friend die last year from cancer and I learned never to complain because he sure didn't. I will keep your friend in my prayers.

lorka150 Collaborator

Thanks. As I was driving home, I was thinking how frail and sick he looked. And I thought to myself *I* look sick and frail (I lost about 50lbs when I was dianosed, and have only gained back about 10). But I feel awesome.

He's on morphine. You know?

Sorry about your friend. Thanks again.

flagbabyds Collaborator

i do take this as a blessing every day. The number of times I have been in the hospital, and seen patients so close to dying.

This summer after jaw surgery, my 2 year old room mate had a brain tumor, and was just about to undergo brain surgery, she is still living and doing very well, but still, had a brain tumor.

Sorry about your friend.

ladyx Newbie
I was glutened last week, and took ten days to feel better.

Today, finally feeling normal, I came home after a wonderful morning with a friend, and ate lunch and got a high fever. It was really random, and I was frustrated that FINALLY I felt good and then a fever! (Which I seldom get).

But then I went to an open house of a friend who got diagnosed with cancer, and made a celiac disease and we had a celebration for the opening of it. Many people love this man - over 200 people showed up.

And he is dying. Of cancer.

None of us are dying. We're sick, sometimes feel like garbage, whatever. We're not dying. We've been blessed - we KNOW how to control the disease, even if we always cannot.

Let's remember how wonderful we all have it. (and slip in a prayer for my friend, if you can. :))

Your are so right...celiac almost killed me and I feel blessed everyday that I can actually feel like this. I was fainting at work and having heart and cheast pain and they thought I had a brain tumor and heart conditon...as well as them thinking my son had some form of rare cancer (my son even had sezures when he was a baby when he would breast feed now I am sure it was from the gluten). Imagine my releif when I found out it was all from celiac diease and we could fix it. I feel soooooooooooo blessed.

CMCM Rising Star

Yes....we are the lucky ones. As I just read somewhere, celiac disease is the ONLY autoimmune disease in which the CAUSE is known. We just don't eat gluten and we're fine. No drugs to take, no other things to worry about. We get better if we don't eat gluten. We are very lucky. I feel very fortunate that I know exactly how to make myself feel normal, feel good. I have total control over this. It's a good feeling to not have to be at the mercy of continual medical intervention with this. :)

jenvan Collaborator

good reminder...prayers for healing and courage for your friend...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Thanks for putting things into perspective. My prayers are with your friend :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.