Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Mwmber,new Diagnosis


caandahl

Recommended Posts

caandahl Newbie

I have a 13 yr old that has had type 1 diabetes for 5 yrs,and was just dx'd w/celiac,last month.

I also have a 4 yr old w/severe autism and other things,and a mostly typical 5 yr old.

I would aprriciate any suggestions,on making the family gluten-free,and any info.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

welcome to the board. The easiest way to take your family gluten-free, is to stick with foods that are naturally gluten-free. Plain meats and proteins (seeds and nuts), Simple dairy products, fresh fruits and vegetables, starches like potatos, rice and corn... there are so many healthy foods that are naturally gluten-free... and with a few gluten-free staples like a good gluten-free pasta (like Tinkyada rice pasta) you can make just about any family fave dish.

Feel free to ask any questions. There are a lot of mainstream products that are also naturally gluten-free, so you can still have some junk foods and things like salad dressings, sauces and even candy...

I can e-mail you a newbie survival kit that I have put together, it's a collection of files I wish I had when I was first dx'ed. Just e-mail me at nisla@comcast.net and put "request newbie survival kit" in the subject line. I will send the files on to you as soon as I can.

Canadian Karen Community Regular

Hi! Welcome to the board!

Once you get the hang of it, the gluten free diet really becomes second nature - in fact, I can hardly remember what it was like eating gluten-filled stuff! LOL!

Is your whole house going gluten free? If that is the case, you don't have to worry about any cross-contamination issues. It makes life alot easier, especially with children. In my family, I am the only one with celiac, and I have four children and a husband who all eat a regular diet. When I am making food for the kids, sandwiches, etc. or giving out cookies, I am forever wiping gluten-filled crumbs off of the counter!

I would suggest first and foremost getting yourself a copy of the delphi gluten free list. It is invaluable - a must have!

Firstly, go here: Open Original Shared Link

Then on the left hand side, click on Health & Wellness. The first (sometimes second) forum that comes up is the Celiac Disease On-Line Support Group, click on that. (You will need to register, but it is free..)

Once you are in there, you scroll down until you see "Gluten Free Products List". Click on that. You will be absolutely amazed what mainstream items we can have. And it's listed in convenient categories, making it so much easier when we are out shopping. There is a section you can go into to download it and print it off.

Also, there are companies that are very celiac friendly. Kraft is one of them. Kraft will always list if there is a gluten ingredient in it. We are very loyal to Kraft!

You have probably read up and discovered that there is documented proof that there is a link between gluten and autism. There have been many documented instances where there was a vast improvement once the gluten free diet was started......

I am sure others will pipe in, just wanted to welcome you and say "Glad you found us!"

Hugs.

Karen

Guest nini

you don't have to go through all of that to get the Delphi list, it is part of the Newbie kit I put together, so I can e-mail it to you if you want...

Canadian Karen Community Regular
you don't have to go through all of that to get the Delphi list, it is part of the Newbie kit I put together, so I can e-mail it to you if you want...

You are so good, nini!!! You rock!

Guest nini
You are so good, nini!!! You rock!

lol Karen, I just try to make it as easy as possible for the newbies!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,542
    • Most Online (within 30 mins)
      7,748

    CC324
    Newest Member
    CC324
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.