Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is Nuts!


VydorScope

Recommended Posts

VydorScope Proficient
I'm so glad you started this thread Vincent. I have been sick too, and after reading all twelve pages of this thread, I'm thinking that I definitely eat too many carbs. Maybe I am hypoglycemic too. I have been lightheaded and almost blacking out every time I stand up. It's getting rediculous.

12 pages! I know! Isnt this a great community for support on these kinds of issues!! Learn more here then at most schools. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 294
  • Created
  • Last Reply
VydorScope Proficient

this si what my doc gave me...

http://www.vydor.net/gluten/hypo.webp

Sound reasonable to y'all?

tarnalberry Community Regular

Eh... it's alright. Nothing specifically wrong, just very standard medical "vaguely helpful" speak. :-/ (I'm never impressed by the stuff they hand out...) I also dislike the heavy discouragement of fats, particularly without *quantifying* what they heck they mean by "low" fat. "Low" in comparison to WHAT?! (Usually they mean "under 30% fat", from what I've read.... how is that low? But that's what is cited in studies that are headlined with 'low-fat' lines...) Ooops... sorry, stepping off soap box now. :-) :-P

VydorScope Proficient
Eh... it's alright. Nothing specifically wrong, just very standard medical "vaguely helpful" speak. :-/ (I'm never impressed by the stuff they hand out...) I also dislike the heavy discouragement of fats, particularly without *quantifying* what they heck they mean by "low" fat. "Low" in comparison to WHAT?! (Usually they mean "under 30% fat", from what I've read.... how is that low? But that's what is cited in studies that are headlined with 'low-fat' lines...) Ooops... sorry, stepping off soap box now. :-) :-P

Vaguely Helpfull, thats a great way to put it!

elye Community Regular

It's just dawning on me now how adversely affected so many of us are to a heavy-carb diet, the diet of our western world. Diabetics and hypos are polar opposites in etiology, yet we share the need to carefully limit carbohydrate intake. As do celiacs in our need to stay away from so many grains. Very interesting...

VydorScope Proficient

WElp I had meatloaf for breakfast... so I guess that means Im on the right track LOL.

I just need munchies that are cheap and easy. Apples and peanutbutter tastse good but does not travel well, nor store for long with out refridgeration.

aikiducky Apprentice

How about nuts and raisins? I usually carry around a little tupperware box of those.

Pauliina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

I've been following all 12 pages of this thread with much interest. I haven't felt really well in a long time. Some of my main symptoms for years now have been headache, nervousness or anxiety, sweating, dizziness, fast heartbeat, weakness and feeling faint, sometimes shakey muscles, hunger...all of those are on this list...along with frequent sinus infections. I instinctively went on a low carb diet about 4 years ago and felt much better, but was still plagued by those symptoms I mentioned if ocassionally. In September of last year I started feeling all those symptoms again, really strongly and very frequently, and got really sick. That's the reason I started looking into things like gluten intolerance and/or other intolerances. And in fact, in January I went to see my doctor because the dizziness, fast heartbeat and weakness was so bad--she basically said I had an inner ear thing and to not move suddenly and take dramamine for any nausea it caused [i had the inner ear checked after I saw her by an ENT, and inner ear was fine]. Coincidentally, around the first of the year, I started eating all kinds of sugary gluten-free goodies. So, I've often wondered if I didn't have some kind of blood sugar issue, but have not been tested for it. ETA: and, as many of you may have read, I've been trying all kinds of stuff lately to try to see if it will help, including the SCD, going corn-free, etc. I may just have to buy a home monitor kit just to see.

Victor, I'm glad your doctor has confirmed.

VydorScope Proficient
I've been following all 12 pages of this thread with much interest. I haven't felt really well in a long time. Some of my main symptoms for years now have been headache, nervousness or anxiety, sweating, dizziness, fast heartbeat, weakness and feeling faint, sometimes shakey muscles, hunger...all of those are on this list...along with frequent sinus infections. I instinctively went on a low carb diet about 4 years ago and felt much better, but was still plagued by those symptoms I mentioned if ocassionally. In September of last year I started feeling all those symptoms again, really strongly and very frequently, and got really sick. That's the reason I started looking into things like gluten intolerance and/or other intolerances. And in fact, in January I went to see my doctor because the dizziness, fast heartbeat and weakness was so bad--she basically said I had an inner ear thing and to not move suddenly and take dramamine for any nausea it caused. Coincidentally, around the first of the year, I started eating all kinds of sugary gluten-free goodies. So, I've often wondered if I didn't have some kind of blood sugar issue, but have not been tested for it. ETA: and, as many of you may have read, I've been trying all kinds of stuff lately to try to see if it will help, including the SCD, going corn-free, etc. I may just have to buy a home monitor kit just to see.

Victor, I'm glad your doctor has confirmed.

Im not sure why, but ALOT of ppl call me Victor... :D

Im glad this thread is helping ppl, I often see alot more ppl reading it then actaully reply and I hope that they are getting some help too!

One danager you should beware of... is you might have more then one issue. Trying to fit all my issues in to one nice little pigeon hole delayed me getting here, where there was indications of HypoStuff early on. For example, by seperating my anemia off turned out to be a seperate cause, which we found and "cured" so too speak. Once started paring off the symptons like that the HypoStuff became a clear possiblity again.

dlp252 Apprentice
Im not sure why, but ALOT of ppl call me Victor... :D

Im glad this thread is helping ppl, I often see alot more ppl reading it then actaully reply and I hope that they are getting some help too!

One danager you should beware of... is you might have more then one issue. Trying to fit all my issues in to one nice little pigeon hole delayed me getting here, where there was indications of HypoStuff early on. For example, by seperating my anemia off turned out to be a seperate cause, which we found and "cured" so too speak. Once started paring off the symptons like that the HypoStuff became a clear possiblity again.

Sorry VINCENT, brain fog, lol! I did just have all my blood levels checked and don't look anemic...that's another reason why I've been trying so many different things lately. Can they find hypo stuff by the "regular/normal" blood tests they run?

tarnalberry Community Regular
It's just dawning on me now how adversely affected so many of us are to a heavy-carb diet, the diet of our western world. Diabetics and hypos are polar opposites in etiology, yet we share the need to carefully limit carbohydrate intake. As do celiacs in our need to stay away from so many grains. Very interesting...

Yeah... it frustrates me that so many people are unaware of even the macronutrient proportions of their diet - or haven't been taught about the long term ramifications of 'carbo-loading'. (Even marathoners only do it just before races.) It's a combination of shocking and disappointing.

I just need munchies that are cheap and easy. Apples and peanutbutter tastse good but does not travel well, nor store for long with out refridgeration.

Plastic wrap can be used for peanut butter on rice cakes or apples to make them transportable (peanutbutter side down, for apples, cut in half or quarters only) and they'll be alright out of the fridge for two to four hours. But it does get repetative. ;-)

How about nuts and raisins? I usually carry around a little tupperware box of those.

Or other varieties of homemade trail mix. (Can even add chocolate chip bits. ;-) )

Can they find hypo stuff by the "regular/normal" blood tests they run?

Not usually, partiucularly with reactive hypoglycemia, where it's best to test about four hours after you eat, not on a 12 hour fast or more. (This is my understanding. Someone please correct me if I'm wrong, as I'm not 100% confident on this one.) Additionally, you can just be more sensitive to the swings than most, despite numbers in the 'normal' range. 'Normal' just means that a certain percentage of the population falls in that range, not that it's healthy for you per se. For me, I'm on the low end of normal, but by my symptoms, it's fairly clear (even according to my doctor). It's easier to test for than some things, but still not as clear cut as "are you pregnant?" :-)

dlp252 Apprentice

Thanks Tiffany!!! I think I'll get a home kit first then see if it warrants a doctor visit.

VydorScope Proficient
Thanks Tiffany!!! I think I'll get a home kit first then see if it warrants a doctor visit.

WHen I did the home test, this is how I did it...

First you fast for at least 8 hours (make sure have a good dose of protien and fat before you start, and it helps if you sleep most of it..), and check levels. If your NOT diabetic it should fall in the 70-110 range. After that I ate a "normal person meal", it was around 40 or 50 carbs I think. DOnt matter much should be somthing somewhat sugary, but not out of line for a so called normal person. Note the time you START eating the meal. Check your blood at one hour after that. It should be bettween 70-140. Then check at 2 hours it should be between 70-120 (remember not to eat after that meal while your testing). All that means your NOT hyper-gylicemic, but the real test will be at about 4 hours. If you sugar level drops below 70, and you get your symptons at the same time, eat something like rasins and retest in 15 mins. If your symptons get better AND your sugar goes up, thats considered completely diagonostic of reactive hypoglycimia.

The ranges are a bit fuzzy.. my reading of 146 at one hour is considerd close enough.

Make sense I hope? Remeber Im just another HypoSugarDude, and not a doctor! :D

elye Community Regular

That's what I'd do--again, they're inexpensive, and if your readings are okay you can put it away and test a year from now. We all know how these things can "suddenly" begin...

Just a hint for some...there are, I believe, still some glucometers out there that allow you to use a strip that's been cut in half. I used to do this twenty-five years ago when machines were first available to us and the strips were larger. Over the years, tho, the strip manufacturers obviously got wise and have rejigged the design so that most machines now require a whole strip. But I've heard there are some still machines that will allow this...So try it! :)

VydorScope Proficient
Or other varieties of homemade trail mix. (Can even add chocolate chip bits. ;-) )

UMMMM Choloclate chips AND rasins??? Seems like that be poison, but tasty :D

dlp252 Apprentice

Thanks Emily and Vincent! Vincent, it made sense! I'm sitting here now, it's been about 3.5 hours since I've eaten and I'm starting to get a bit light headed, lol. Of course, now, everything I read seems like it fits me, but this would sure explain a lot. :D

Oh, and the homemade trail mix...hum. I made a bunch when I went to Disneyland in February and I used little gluten-free/dairy-free chocolate chips in it and it was fantastic! :)

VydorScope Proficient
Thanks Emily and Vincent! Vincent, it made sense! I'm sitting here now, it's been about 3.5 hours since I've eaten and I'm starting to get a bit light headed, lol. Of course, now, everything I read seems like it fits me, but this would sure explain a lot. :D

Oh, and the homemade trail mix...hum. I made a bunch when I went to Disneyland in February and I used little gluten-free/dairy-free chocolate chips in it and it was fantastic! :)

WEll you could test at 4 hours right now if you have the testor ready... you still should go back and do the whole test run to rule out hyperglycemia. Oh and if you get a low sugar score (say below 60), DONT wait to see how low it goes, eat. :D

dlp252 Apprentice

I wish I had the tester now, lol. I'm really thinking this might be something though...I usually don't get this dizzy at this time of day, but this morning I had my usual apple with hazelnut butter, but afterwards I had half a Tropical Source chocolate bar. So that might explain why I'm so dizzy now. I just ate one of my lunches...ground buffalo patty, broccoli and a pear, maybe I should have eaten the pear first, lol.

VydorScope Proficient

UMMMMMM question... is there like a min carb count I should be hitting (not a number, but a concept of one)? I dont think I have had more then like 2 or 3 carbs all day... and starting to get symptons... had meatloaf for breakfast (Wife's specail gluten-free homade recipe), hard boild egg for second breakfast then was snacking on cheese and to full to eat lunch so skiped it...not eaten in prbly 4 hours or so... only been drinking 0cal flavored water.....erf I thyink I messed up. :huh:

Mango04 Enthusiast

You might have overamped on the protein. As a general rule of eating, every time you eat something you should have some protein, some fat and some carbs. Maybe add some fruit and veggies to the egg and cheese? Or...maybe the cheese is bothering you (dairy). I know that's a whole separate issue though.

VydorScope Proficient

just foreced my self to eat a banana and a protein bar, ug hope it helps soon.. I think I need lay down...

tarnalberry Community Regular

I agree, it doesn't sound like your meals were very balanced. The key is balanced! :-) Think of those old time scales, only with three arms instead of two. Balance, balance balance. :-) You don't want to avoid all carbs, you just don't want to overload on them either.

elye Community Regular
UMMMMMM question... is there like a min carb count I should be hitting (not a number, but a concept of one)? I dont think I have had more then like 2 or 3 carbs all day... and starting to get symptons... had meatloaf for breakfast (Wife's specail gluten-free homade recipe), hard boild egg for second breakfast then was snacking on cheese and to full to eat lunch so skiped it...not eaten in prbly 4 hours or so... only been drinking 0cal flavored water.....erf I thyink I messed up. :huh:

Yeah, you've gotta include SOME carbohydrate, I think, at every meal. The diabetic diet espouses 4-6 "starchy choices" (carb foods) a day for me. Since you've done Atkins, you probably have an idea of what a single carb serving of most foods is. Sounds like you haven't had ANY carbs yet today...depending on how much oats or other grains was in the meatloaf. Nuts and raisins, quick! ;)

VydorScope Proficient
Yeah, you've gotta include SOME carbohydrate, I think, at every meal. The diabetic diet espouses 4-6 "starchy choices" (carb foods) a day for me. Since you've done Atkins, you probably have an idea of what a single carb serving of most foods is. Sounds like you haven't had ANY carbs yet today...depending on how much oats or other grains was in the meatloaf. Nuts and raisins, quick! ;)

No grains at all in the meat loaf. Its a recipe from the Atkins days LOL. GRRR no raisns eaither did not buy them this week to limit tempation....

cant sit up anymore, gonna lay down and hope the banana+proten bar works...

VydorScope Proficient

HELP Im puking up anything I try to eat and sugar already low :( out of test strips now too .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.