Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"im Wheat Free... But Wheat Doesnt Bother Me"

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted

OKay I wish I had time question this lady more... but I got side tracked when she said a certian bread was gluten-free that is not (ezekial). Came up in converstation with her cause we mention our son having celiac disease and she was like oh, so then you use alot of Ezkliakajlksjdaflj (how hte freak is that spelled?) bread, and I had to explain to her that and splet were not gulten free. It just struck me odd, why would you be "wheat free" for what appears to be no good reason? heh She actually said "Im Wheat free... but wheat doesnt bother me", what up with that??

Strange....but she at least knew alittle about celiac disease, that was a change. LOL!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

that is a bit wacky. I wonder if it's like me and corn. I can deal alright with corn - but I generally avoid it in quantity. (ooo... I did eat corn chips last night. they were gluten-free, but I shouldn't eat corn chips. I made my husband move them to his 'gluten-infested' shelf. :P ) or maybe she's just being silly? I dunno. I'd be really curious to hear her reason. she may have a good one, but be worried that someone would laugh about it...

Mango04 Enthusiast
Mango04
Posted

Maybe she randomly read "Dangerous Grains" and swore off wheat LOL.

Maybe she has a family member with Celiac Disease (but that family member eats the Exeaknsasdfjjz because they don't know what they're doing) and she's avoiding wheat for that person's sake.

or maybe...she has some sort of injury and avoids gluten becasue gluten causes inflammation in the body and therefore worsens her pain (sounds random yes, but my mom avoids gluten for this reason and this reason only. she doesn't actually have a gluten intolerance - it doesn't bother her in the sense that it bothers celiacs - but she still aviods it)

hey...the more wheat-free people, the better! :D

I do that with corn too...except I ate a corn tortilla this morning.. opps

CarlaB Enthusiast
CarlaB
Posted

This is just a random guess, but Ezekiel Bread uses sprouted grains, which are supposed to be easier to digest and better for you (as long as you don't have gluten intolernance). Maybe she is so convinced that all grains should be sprouted to "release" their nutritional value that she avoids regular wheat. Like I said, just a guess.

Mango04 Enthusiast
Mango04
Posted
This is just a random guess, but Ezekiel Bread uses sprouted grains, which are supposed to be easier to digest and better for you (as long as you don't have gluten intolernance). Maybe she is so convinced that all grains should be sprouted to "release" their nutritional value that she avoids regular wheat. Like I said, just a guess.

I do know a couple of people who will only eat sprouted grains...

VydorScope Proficient
VydorScope
Posted
  • Author
This is just a random guess, but Ezekiel Bread uses sprouted grains, which are supposed to be easier to digest and better for you (as long as you don't have gluten intolernance). Maybe she is so convinced that all grains should be sprouted to "release" their nutritional value that she avoids regular wheat. Like I said, just a guess.

She actaull said she was told it was "gluten free" and safe, she was sure she was told that and it took me several mins to explain to here that it was not safe for ppl with celiac disease.

Green12 Enthusiast
Green12
Posted
OKay I wish I had time question this lady more... but I got side tracked when she said a certian bread was gluten-free that is not (ezekial). Came up in converstation with her cause we mention our son having celiac disease and she was like oh, so then you use alot of Ezkliakajlksjdaflj (how hte freak is that spelled?) bread, and I had to explain to her that and splet were not gulten free. It just struck me odd, why would you be "wheat free" for what appears to be no good reason? heh She actually said "Im Wheat free... but wheat doesnt bother me", what up with that??

Strange....but she at least knew alittle about celiac disease, that was a change. LOL!

I'm a little confused, but if I understand this right it might be a case that she is just wheat free and not gluten free. Years ago I went wheat free and in that school of thought you can have wheat alternatives (like spelt and etc.) and oats. If you ever notice in the health food stores there are products that say "wheat free" but there is still gluten containing ingredients. Also Ezekiel bread is eaten by some people that are wheat free because is is made with all sprouted grains (literally the bread from the bible) and it is thought to be very easily digested and more well tolerated by those individuals.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

The owner of the health food store I go to to buy things like buckwheat, told me that I could eat that bread, because even though it was made from wheat, it was sprouted and that made it safe for people with celiac disease! That was right after I figured out I have celiac disease, and she really confused me. But I had my doubts, so I didn't buy any.

Now that I know better, I should talk to her and explain that it is NOT safe for celiacs to eat that bread. Just like that store owner of that extreme health food store in Florida, who claimed that spelt was fine. Can't do anything about her any more, but I can educate the lady in my own store.

VydorScope Proficient
VydorScope
Posted
  • Author
The owner of the health food store I go to to buy things like buckwheat, told me that I could eat that bread, because even though it was made from wheat, it was sprouted and that made it safe for people with celiac disease! That was right after I figured out I have celiac disease, and she really confused me. But I had my doubts, so I didn't buy any.

Now that I know better, I should talk to her and explain that it is NOT safe for celiacs to eat that bread. Just like that store owner of that extreme health food store in Florida, who claimed that spelt was fine. Can't do anything about her any more, but I can educate the lady in my own store.

The web site says "Flourless" so maybe thats confusing ppl?

jerseyangel Proficient
jerseyangel
Posted

Speaking of spelt--recently I was watching a cooking product show on QVC :ph34r: Ahem, anyway, the host made this statement when he was presenting a waffle maker--"if you're gluten intolerant, you could use spelt flour". I emailed him and very nicely explained about Celiac and gluten intolerance. I added that a person with a wheat *allergy* may be able to use spelt. Well, he responded to me and said that his wife was allergic to wheat, but always refers to herself as gluten intolerant. He thanked me for the information, and said that thanks to me, he wouldn't make the same mistake again.

Mango04 Enthusiast
Mango04
Posted

A lot of ppl with gluten sensitivity think they can eat that E... bread. It's a common misconception.

It is true that for people without celiac or gluten sensitivity, the sprouted bread is much easier to digest.

lorka150 Collaborator
lorka150
Posted

I know a lot of people (and by that, maybe about four) who eat wheat -free (not gluten-free) because they simply feel better. In addition, a lot of people know that spelt, kamut, quinoa, amaranth are all better for you nutritionally, than wheat.

cmom Contributor
cmom
Posted

I have a coworker whose husband also has celiac. One time she told me she bought him some really good bread and she would get me some if I liked. I told her sure. Long story short - when she brought it to me, it was spelt bread. I told her we can't have it and she said that her husband ate it all the time and the doctor (HIS GI DOCTOR) said it was fine! :ph34r:

Becky6 Enthusiast
Becky6
Posted

I know that for a while they thought spelt was ok for celiacs. Not sure why but now it is a no-no and people still think it is ok.

LKelly8 Rookie
LKelly8
Posted

Spelt Raid

Here's an article on what the Feds think of "wheat free" spelt!

bluejeangirl Contributor
bluejeangirl
Posted

Being wheat free is a decision made by alot of people who want a healthy diet. I'll read alot of web sites about the paleolithic diet because it's very incouraging about the "dangerous wheat" grains along with other grain. I can see why people will stay away from it. Sprouted grain bread and sour doughs are sometimes chosen by those who follow this diet because it contains the right enzyems to take out the antinutrients wheat has that is bad for you. Something like pytic acid (can't remember) They're don't have the fears that celiacs have with wheat and I think they're probably incensitive to them. She was probably just trying to be nice.

gail

Guest nini
Guest nini
Posted

I forget where I read it, but one of the sites about the gluten-free diet specifically states that one of the dangers of learning the diet is "misinformation from Health food store employees" many health food store employees mistakenly believe that spelt or Ezekieal bread is safe for those on a gluten-free diet and continue to pass out this misinformation to so many of their custiomers. Many people unfortunately are gullible and don't question it. If a HFS employee said it IT MUST BE TRUE kind of mentality. I spend a LOT of time at my local HFS because I'm there doing mini massages trying to build up my business and you would not believe all of the misinformation I hear! Most of the HFS employees have never worked in a HFS before and really don't know anything about eating healthy other than what they are told by the customers! So, you get ONE person with bad information and it spreads like wild fire!

I do run into that very thing all the time, when I talk to people about Celiac or Gluten Intolerance and they say, "well yeah, but I can eat Spelt" or "But I eat Ezekial bread and it doesn't bother me" I just gently let them know that they don't have to be having symptoms for damage to be occurring IF they have Celiac... you should see the look of SHOCK on some of their faces! Especially the ones who tell me they have been dx'ec with Celiac and are eating spelt or ezekial bread... yep. it happens ALL the time.

scuze my typos haven't had all my coffee yet and have an ice pack on my shouldre...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,534
    • Most Online (within 30 mins)
      7,748
    Barbx4
    Newest Member
    Barbx4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NCalvo822
      Newly Diagnosed

      By NCalvo822 · Posted

      Thank you.  Very helpful.
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Migraines can be caused by Thiamine deficiency.  Thiamine is a B vitamin that becomes depleted quickly because it can't be stored long.  All the  B vitamins work together to make energy, ATP, which is used to fuel all the cell activity.  Without Thiamine, the energy production cycle doesn't even get started.   There's studies done on mice showing thiamine deficiency affects the offspring of thiamine deficient mothers and fathers.  The offspring have fewer thiamine receptors and are prone to becoming thiamine insufficient quickly.  They have a higher metabolic need for thiamine.  Supplementing with extra thiamine helped them  tremendously. Migraines have run in my family for several generations, too.  Once I started taking TTFD, a form of thiamine that can enter cells without using thiamine transporters, my migraines have vanished.  TTFD is tetrahydrofurfuryl disulfide. Benfotiamine is another form that can improve migraine frequency, too. Thiamine is safe and nontoxic even in high doses.  There is no upper limit because thiamine has never caused a death even in high doses.  It is excreted via kidneys if not needed or not absorbed.
    • knitty kitty
      Lymphocytic Colitis with Celiac

      By knitty kitty · Posted

      Thank you, @Oldturdle, I greatly appreciate that.  I've always been a curious kitty.  I wanted to figure out why I didn't feel well because I knew it wasn't all in my head like they told me.  It pleases me to be able to help others in the same boat. Yes, alcohol prevents the absorption of thiamine and stops thiamine from working properly.  This can lead to Wernicke's Encephalopathy and Korsakoff syndrome, where thiamine deficiency severely affects brain function.  Doctors are trained to look for the triad of symptoms: opthalmoplegia (nystagmus), ataxia, and altered mental state.  However, not all people present with all three symptoms.  Many (80%) don't get diagnosed until their autopsy.   Alcohol has to be processed through the liver.  If there's insufficient thiamine, Alcoholic Fatty Liver develops.  In thiamine insufficiency, calories are turned into fat and stored in the liver instead of being turned into fuel ATP for the body.  Alcohol also prevents absorption of calories from food and other nutrients.   Non-alcoholic Fatty Liver can develop in nonalcoholics, storing excess calories as fat in the liver.  However, excess calories can also be turned into fat and stored in the abdomen, hence the increase in obesity.   In Celiac disease, we don't absorb sufficient nutrients like thiamine from our food.  If we eat a diet high in carbohydrates, we can run out of vitamins like thiamine and the other Bs needed to turn those calories into fuel ATP.  For every extra thousand calories of carbohydrates consumed, our bodies require 500 to 1000 mg of additional thiamine to process them into fuel, ATP,  the "bitcoin" of energy in our bodies.   Wernicke's encephalopathy can occur in non-alcoholic people, but doctors can miss the symptoms because the patient doesn't drink, and doesn't have all three symptoms of the classic Triad of symptoms seen in Wernicke-Korsakoff syndrome.  My doctors failed to diagnose me with thiamine deficiency, Wernicke's Encephalopathy,  because I didn't drink alcohol, although I had ataxia and an altered mental state.   Doctors don't think outside the box!   I went home and took thiamine.  I had improvement in my symptoms within an hour.  High doses of thiamine are required to correct Thiamine deficiency.  Thank God I had studied nutrition, microbiology, and the research of Dr. Derrick Lonsdale and Dr. Chandler Marrs.  ("Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition" is Drs. Lonsdale and Marrs' book.).  And I've kept learning and sharing that knowledge to help others.   It's wonderful you've been supplementing with vitamins so long!  Don't worry about the bright yellow urine.  That's excess Riboflavin B 2.  Interesting note, Riboflavin glows under black light!  Those lights used to detect where pets have soiled outside of the box, that's the Riboflavin in urine glowing.  Riboflavin can be put in sugar syrup when making rock candy and it will glow under black light.  Fun for Halloween. I hope you feel better, @Oldturdle.  If I can be of further help anytime, you can send a personal message here.  Thanks for reading my posts.  P.S. Thiamine deficiency and Wernicke's Encephalopathy are completely reversible if treated promptly with high dose Thiamine.
    • DebJ14
      Newly Diagnosed

      By DebJ14 · Posted

      Migraines ran in my family, on my father's side.  All of my female first cousins on that side, and our grandmother suffered from Migraines.  Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007.  The dermatitis herpetiformis rash is a blistery, super itchy rash.  When they do the biopsy they take it from non-involved skin that is next to the rash.  If done wrong, the results may not be accurate.  Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy.  But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.  
    • trents
      Newly Diagnosed

      By trents · Posted

      Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
×
×
  • Create New...