Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jaw Pain?


Turtle

Recommended Posts

Turtle Enthusiast

When I went to bed last night I had a slight pain in my jaw. I didn't really think much about it, just thought it would go away. I woke up several times in the night and the pain had increased. It doesn't hurt when I brush my teeth (my teeth are not sensitve or anything like that). It all seems to be in the jaw. If I open my mouth wide it hurts, if I eat it hurts, if I move my face/jaw around it hurts....anyone have any ideas what on earth this could be???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hi Turtle,

I don't know what causes it, but I get it periodically.......

But then again, my jaw clicks every time I chew, so perhaps it just get aggravated......

Hugs.

Karen

Turtle Enthusiast

Thanks for trying to help. The whole thing is WEIRD. And of course painful.

mouse Enthusiast

Go to a dentist and have him look for TMJ. I wear a mouth piece to bed at night and it keeps my jaw pain under control. I clence (sp) my teeth during my sleep and am not even aware that I am doing it. Some people grind their teeth in their sleep. It is worth a shot. Good luck.

Turtle Enthusiast

I just talked to my dentist friend and he mentioned TMJ as well. He told me to put a hot compress on it for 20-30 min off and on all day today and then see where that leaves me. I just moved so I don't have a new dentist yet (go figure) so i'll have to hope for the best and then locate someone here to see....

jerseyangel Proficient

It sounds like it could be TMJ Disorder to me. I was diagnosed with it by an ENT several years ago. I had the same pain in the jaw as you describe, and also neck pain that was much worse in the morning. Sometimes, even my shoulders and ear would ache. I also clenched my teeth at night while sleeping (bruxism). The doctor sent me to my dentist to have a bite guard made. I wear it at night on my lower teeth. At the beginning, I had to wear it as much as possible. Using a warm compress, and eating soft food while it's the most painful can sometimes help. You can also locate and massage the joints by placing your fingers on each side of your face where your teeth come together. Bite down a few times, and where you feel the joint move in and out is the place--massage those spots gently. Hope you get some relief soon! :)

plantime Contributor

You could also try stretching your neck muscles. I get pain in my lower jaw, and finally found out that the pain in my jaw, ear, and shoulder was all caused my spasmed muscles in my neck. Stretches relieved the pain in the most miraculous way!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Turtle Enthusiast

I think you're on to something jerseyangel...i've had headaches and some neck/shoulder pain but just associated it with other things but after reading more about TMJ and reading your post and the others it's all coming together now...

I can't get a break...earlier in the week I was having my cervix handed to me and now this...AGH!!!

Somehow, someway I WILL put down a gluten-free pizza tonight to make me feel better. HAHA!

Lister Rising Star

yeah i can assoisated with your jaw pain slightly, my jaw lately pops really easaly, and now has been sore but not hurting for about 4 days :(

jerseyangel Proficient
I think you're on to something jerseyangel...i've had headaches and some neck/shoulder pain but just associated it with other things but after reading more about TMJ and reading your post and the others it's all coming together now...

I can't get a break...earlier in the week I was having my cervix handed to me and now this...AGH!!!

Somehow, someway I WILL put down a gluten-free pizza tonight to make me feel better. HAHA!

I know how you feel, Turtle! It's always something :angry: ! But if you have TMJ Disorder, it is easily dealt with. The only time I have any mild pain at all now is if I don't wear my mouth guard for a while. Kind of a "gentle reminder". Enjoy that pizza :D

eKatherine Apprentice

When I was about 30 a dentist said to me that grind my teeth, which was the first I'd heard that this might be the case, though if you look at the tops of my teeth, you can see that they are ground flat.

It turns out I have always always held my jaw tight. When it got to the point where my jaws were starting to ache, I forced myself to think about it and make my face relax. It hasn't gotten worse, cross my fingers.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.