Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Does Igg Antibodies Matter Or Not..

HeatherG

Recommended Posts

HeatherG Rookie
HeatherG
Posted

My daughter had a celiac test run when she was 18 months old. Only the IgG was positive - it was 89. I was told that meant nothing. Since she still has GI issues without answers we had the test run again - she's almost 7 now. The IgG was again the only thing positive but it wasn't nearly as high this time. It was 14 - the lab ranges were over 9 is ++. I called the Celiac Center with Dr. Fasano since they are nearby to get their feedback on the results. I was told it meant she doesn't have celiac and doesn't need a gluten free diet. She said by now she would have measurable damage.

On the other hand I contacted Dr. Fine and he said that absolutely she needs a gluten free diet - even though she might not be technically celiac with villi atrophy. My DH doesn't want to turn our lives upside down (and that of our other kids) with a gluten free diet unless she's actually having a gluten problem.

So which is it???

Heather

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Susan123 Rookie
Susan123
Posted

My understanding it that an IgG alone is more of a allergic response. Have you ever had her tested for food allergies. I see Dr. Fasano on a regular basis and was recently released with just a gluten sensitivity not celiac. However, I showed a very positive reaction to wheat in an allergy testing. Why not try the gluten free diet for a month and see if she feels better. I would think not having the GI issues would be better than turning the house upside down. It really is only scary in the beggining once you get used to the diet you don't really give it much thought you know it inside and out.

AndreaB Contributor
AndreaB
Posted

I had the IgG and IgE allergy test. From my understanding the IgG traces immune reactions over time. If she has had a food panel done and the wheat (or others) shows up high or moderate then that food should be eliminated at least for a time. If it is in the low range I was told it would be up to me what I wanted to do. I was in the moderate range for wheat/gluten/spelt and soy as well as kidney and navy beans. I have recently gone on a Gluten Free/Dairy Free/Soy Free diet. My son's eczema has all but disappeared. The test I had done shows the IgG in a bar from no reaction to high. Dr. Fine's test can show sensitivities even if there has been little damage done.

KaitiUSA Enthusiast
KaitiUSA
Posted

Did she have any other tests run for celiac? The IgG is the least accurate of the bunch of tests but is usually one of the first to elevate with celiac. It is obviously high for a reason...it does not mean nothing.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I can't offer anything helpful here, just wanted you to know that you're not alone. I have the same bloodwork--only my IgG is off the chart, everything else is normal (but I'd been gluten-free for three weeks before the bloodwork). Anybody else have the same?

I'll be very curious to hear what the final answer is here!

mbg98 Contributor
mbg98
Posted
I can't offer anything helpful here, just wanted you to know that you're not alone. I have the same bloodwork--only my IgG is off the chart, everything else is normal (but I'd been gluten-free for three weeks before the bloodwork). Anybody else have the same?

I'll be very curious to hear what the final answer is here!

Both of my kids were IgG positive and everything else came back normal, my youngest IgG test came back greater than 100. We are waiting to see Dr Fusano in July to figure out what is going on, Its nice to hear of others with the same questions. I am so confused bieng they did the Ttg IGg test first and were floored at how high they were then before we go see dr fusano he wanted more tests done and thats when a week later they had the TtG IgA and the tests were normal, so one minute there was no doubt my kids had it now we are not so sure, but I would love to know what others in this situation have been told. Any info would be great bieng I have to wait and wonder until July.

TCA Contributor
TCA
Posted

My son's IgG was very high (58?) and his IgA was only slightly elevated. They did not do an IgA deficiency test, though. Many celiac patients have an IgA defiecincy which skews the results. He was very symptomatic, so we tried the diet and it has been miraculous. Is your daughter symptomatic? Did they run an IgA deficiency screen?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

HeatherG,

I suggest you try the diet for 1 month. Do it 100% strick, as perfect as you can. See if the symptons improve. Then you will know for sure.

HeatherG Rookie
HeatherG
Posted
  • Author
Did she have any other tests run for celiac? The IgG is the least accurate of the bunch of tests but is usually one of the first to elevate with celiac. It is obviously high for a reason...it does not mean nothing.

Yes they ran the IgA, tTG and IgA deficiency. All normal. I don't get how it could be high for no reason either. Even if I wanted to see Dr. Fasano they can't see her until October and honestly I don't see the point if the nurse is already telling me she isn't celiac/gluten issues etc.

Thanks

Heather

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.