Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Does Igg Antibodies Matter Or Not..


HeatherG

Recommended Posts

HeatherG Rookie

My daughter had a celiac test run when she was 18 months old. Only the IgG was positive - it was 89. I was told that meant nothing. Since she still has GI issues without answers we had the test run again - she's almost 7 now. The IgG was again the only thing positive but it wasn't nearly as high this time. It was 14 - the lab ranges were over 9 is ++. I called the Celiac Center with Dr. Fasano since they are nearby to get their feedback on the results. I was told it meant she doesn't have celiac and doesn't need a gluten free diet. She said by now she would have measurable damage.

On the other hand I contacted Dr. Fine and he said that absolutely she needs a gluten free diet - even though she might not be technically celiac with villi atrophy. My DH doesn't want to turn our lives upside down (and that of our other kids) with a gluten free diet unless she's actually having a gluten problem.

So which is it???

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Susan123 Rookie

My understanding it that an IgG alone is more of a allergic response. Have you ever had her tested for food allergies. I see Dr. Fasano on a regular basis and was recently released with just a gluten sensitivity not celiac. However, I showed a very positive reaction to wheat in an allergy testing. Why not try the gluten free diet for a month and see if she feels better. I would think not having the GI issues would be better than turning the house upside down. It really is only scary in the beggining once you get used to the diet you don't really give it much thought you know it inside and out.

AndreaB Contributor

I had the IgG and IgE allergy test. From my understanding the IgG traces immune reactions over time. If she has had a food panel done and the wheat (or others) shows up high or moderate then that food should be eliminated at least for a time. If it is in the low range I was told it would be up to me what I wanted to do. I was in the moderate range for wheat/gluten/spelt and soy as well as kidney and navy beans. I have recently gone on a Gluten Free/Dairy Free/Soy Free diet. My son's eczema has all but disappeared. The test I had done shows the IgG in a bar from no reaction to high. Dr. Fine's test can show sensitivities even if there has been little damage done.

KaitiUSA Enthusiast

Did she have any other tests run for celiac? The IgG is the least accurate of the bunch of tests but is usually one of the first to elevate with celiac. It is obviously high for a reason...it does not mean nothing.

Fiddle-Faddle Community Regular

I can't offer anything helpful here, just wanted you to know that you're not alone. I have the same bloodwork--only my IgG is off the chart, everything else is normal (but I'd been gluten-free for three weeks before the bloodwork). Anybody else have the same?

I'll be very curious to hear what the final answer is here!

mbg98 Contributor
I can't offer anything helpful here, just wanted you to know that you're not alone. I have the same bloodwork--only my IgG is off the chart, everything else is normal (but I'd been gluten-free for three weeks before the bloodwork). Anybody else have the same?

I'll be very curious to hear what the final answer is here!

Both of my kids were IgG positive and everything else came back normal, my youngest IgG test came back greater than 100. We are waiting to see Dr Fusano in July to figure out what is going on, Its nice to hear of others with the same questions. I am so confused bieng they did the Ttg IGg test first and were floored at how high they were then before we go see dr fusano he wanted more tests done and thats when a week later they had the TtG IgA and the tests were normal, so one minute there was no doubt my kids had it now we are not so sure, but I would love to know what others in this situation have been told. Any info would be great bieng I have to wait and wonder until July.

TCA Contributor

My son's IgG was very high (58?) and his IgA was only slightly elevated. They did not do an IgA deficiency test, though. Many celiac patients have an IgA defiecincy which skews the results. He was very symptomatic, so we tried the diet and it has been miraculous. Is your daughter symptomatic? Did they run an IgA deficiency screen?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

HeatherG,

I suggest you try the diet for 1 month. Do it 100% strick, as perfect as you can. See if the symptons improve. Then you will know for sure.

HeatherG Rookie
Did she have any other tests run for celiac? The IgG is the least accurate of the bunch of tests but is usually one of the first to elevate with celiac. It is obviously high for a reason...it does not mean nothing.

Yes they ran the IgA, tTG and IgA deficiency. All normal. I don't get how it could be high for no reason either. Even if I wanted to see Dr. Fasano they can't see her until October and honestly I don't see the point if the nurse is already telling me she isn't celiac/gluten issues etc.

Thanks

Heather

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,237
    • Most Online (within 30 mins)
      7,748

    mrsdcb
    Newest Member
    mrsdcb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.