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Ok, I Gotta Ask This...


JerryK

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jerseyangel Proficient
Hey, I have those vertical ridges, too! I wonder if they'll go away?

After 1 year, mine did--as well as the horizontal dips I had in both thumbnails. This diet has been very good to my hair and nails! :D


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penguin Community Regular

I never knew that wasn't normal! I'd love for the dips and divots to go away from my nails, also!

I wish the diet would stay out of my hair, though! The last thing I need is THICKER hair!!! I already have the hair of 4 people! :blink:

megzmc3611 Rookie
I apparently looked sick. Now I have people comming up to me saying how much better I look. I know that everyone thought that I was anorexic. Too bad they didn't tell me when I looked sick, they just told each other. :blink:

Same with me! Now people tell me they were really worried about me being anorexic.

Now that I am healthy...everyone is telling me how good I look and how I was way too skinny before.

lovegrov Collaborator

I looked perfectly healthy (I was slim but within a normal weight for my size) until I got so sick I had to be hospitalized for 11 days and miss 10 weeks of work. Although I had been somewhat tired from what turned out to be anemia, I was pretty much OK until I got so sick I couldn't function. I hope it doesn't take that to convince your doctor.

richard

jennyj Collaborator

Almost two years ago, before I found out I was Celiac, I was extremely anemic. I was in the hospital waiting room waiting for my brother (who just got home from Iraq) to get out of surgery. His doctor came in and asked for his sister and I motioned to him. When he came up to me he said "Oh my god. Are you ok? Has someone been abusing you?" at which time he removed my glasses and stared into my eyes and felt my face. I told him no I was just severely anemic and asked him about my brother. He said that that could wait and if I needed help. Again I told him I was ok. He told me about my brothers surgery but also gave me his card.

Mango04 Enthusiast

I was always about 5-10 pounds overweight and bloated before going gluten-free. My face always looked really puffy. That went away when I changed my diet. I don't know if I have celiac or just gluten intolerance though.

I do have those ridges on my nails. I didn't know that wasn't normal....

debmidge Rising Star

My husband has looking anexoric and sickly (gray pasty coloring on face, deep dark circles around eyes) for many years and doctors would look past that and rely on blood tests (a celiac disease blood test was never done until 2003) and since blood work was normal they'd think he was well (despite looking like a walking skeleton). One gastro from a very large prestigious group here in North Jersey told him he needed psychological counseling as nothing was wrong with him. Are looks that deceiving? I guess the doctor was Dr. Magoo....

On another topic, I've had a viral flu several years ago and got 3 prescriptions: an anti biotic to prevent a bacterial secondary infection, an anti viral medication and a third for the bronchial symptoms as this flu affected my breathing (I am a non smoker too).


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lindalee Enthusiast
I looked perfectly healthy (I was slim but within a normal weight for my size) until I got so sick I had to be hospitalized for 11 days and miss 10 weeks of work. Although I had been somewhat tired from what turned out to be anemia, I was pretty much OK until I got so sick I couldn't function. I hope it doesn't take that to convince your doctor.

richard

What were your symptoms? Do you have to go to the dr. to see if you are low on iron or anemic? That may be why I have been without energy. I am looking for a dr. I know I have celiac disease (was diagnosed as a baby but thought I outgrew it. Now I trying to get totally gluten-free. Thanks, LindaLee

schuyler Apprentice

Apparently I looked pretty sick prior to my diagnosis, but I didn't notice it (and no one bothered to tell me). My appearance hasn't changed much, I'm still incredibly pale (but I've always been pale)and thin, with dark circles under my eyes and I'm covered in bruises. It's funny how before my diagnosis, no one bothered to tell me how sick I looked, but now, they can't shut their mouths about how sick I look.

About the fingernail ridges and dips, I never realized those were not normal! I've had those for so many years.

eleep Enthusiast

Well -- I've always had the "so thin people think I'm anorexic" problem, the dark circles (I'm a concealer addict) and fingernail ridges and paleness. At times, I was pretty clear that there was something decidedly wrong -- I went from being thin to having a gaunt face -- which I knew wasn't right.

I've also been a workout-person for the last eight years, so I think that people mistook some of the muscle mass for absolute health -- I know my ex-boyfriend did -- it makes me shudder to think about the fact that I was so sick at times and he found me so attractive -- or claimed to -- I think that was part of the reason he found it so hard to believe the celiac diagnosis and split.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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