Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Think I Might Have Celiac

Smunkeemom

Recommended Posts

Smunkeemom Enthusiast
Smunkeemom
Posted

i have diarrhea and constipation one or the other all the time -

brain fog depression - tired all the time rash gaining weight fast

my dad- daughter and her two daughters have it

just for info, that's my mom posting under my account up there ^ I was trying to help her register and for some reason the thing signed on under my name, guess I had posted from her house before

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Well, your symptoms sound just like mine before going gluten free. So, yes, in my opinion, there is a very good likelyhood that you have celiac disease, especially with so many people in your family having it. I say, definitely get tested!

Smunkeemom Enthusiast
Smunkeemom
Posted
  • Author

she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

CarlaB Enthusiast
CarlaB
Posted

I would agree. Your symptoms sound very suspicious, and with the family history!

Lisa Mentor
Lisa
Posted

Hey Mom:

For me it is very typical after D to have constipation. Brain fog, lack of concentration, in lah-lah-land while driving, which is scarry for me. I would certrainly entertain testing. It would be important to know, so if you are celiac, you can begin to feel better and to ward off other very critical issues.

Glad that you posted and feel free to ask away.

Lisa

CarlaB Enthusiast
CarlaB
Posted

That's a common misconception!!!! Not all celiacs get skinny! There is another thread going on about how to lose weight. Even my doctor admitted learning from me about this disease ... I'm talking about my internist, not the GI who knows everything.

KaitiUSA Enthusiast
KaitiUSA
Posted

Some people gain instead of lose and when they gain usually doctors blow it off. Your symptoms sound like they could be celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

If she had a positive blood test, then she has it! When will doctors realize that we all don't lose weight? As we speak, I would love to lose 20 lbs :D . But seriously, I would take the blood test as proof (not to mention the symptoms, which also point to Celiac), and go gluten-free. Especially with so much of this in your family ;)

Guest nini
Guest nini
Posted

hi mom, you have a positive blood test, you absolutely have Celiac. I did not lose weight before my dx either. I was extremely overweight and since going on the gluten-free diet three years ago, I have lost OVER 100 pounds! Yes you read that correctly! I was dx'ed by my positive blood test along with positive dietary response. I agree, when will these dr.s recognize that not all Celiac's are skinny before dx???!!!!!

wolfie Enthusiast
wolfie
Posted

It is starting to make me really angry that drs dismiss people if they aren't losing weight or having the "Classic" symptoms! The symptoms sound very suspect to me. If the bloodwork was positive, she has it.

On a side note here, I watch a little boy who is almost 2.5. He has had constipation issues from the time he was a baby and has been on a perscription laxative for over a year now. His Mom (my friend) finally requested a second opinion from a Pediactric GI and even though he is in the 95% for height and weight, they are running a Celiac panel on him just to rule it out. I wanted to run over and hug this dr!!! I had to beg our Ped to run the test on my 10 y/o b/c he doesn't have any weight loss issues. He does have stomach, anxiety and possible ADHD issues, though. Sorry to go off on a tangent, but I really wish more drs would look outside of the typical presentation.

penguin Community Regular
penguin
Posted

positive blood test = celiac

no question!!

I'm doing a gluten challenge after being gluten-free for 4 months because I want a biopsy, and I've gained 8 lbs in the past week! :o Not everybody gets skinny, and it is possible to have all of the classic symptoms EXCEPT wasting, or even no classic symptoms at all!

  • 2 weeks later...
Smunkeemom Enthusiast
Smunkeemom
Posted
  • Author

Okay, so her new doctor retested her blood (couldn't find the old results on her medical record) and she tested pos. on her IgA and her ttg and he said that meant she "didn't have it" and said all her symptoms were IBS...

I thought your if the ttg was pos. then you had it, isn't that the specific celiac one?

I asked him and he said that if she had celiac all would be pos. :unsure:

aikiducky Apprentice
aikiducky
Posted

My mouth just fell open when I read that a positive ttg wasn't enough for the doctor!!! AAAArgh!

Could she have a biopsy, positive ttg means there's a good chance of damage, it would be difficult to ignore THAT?

Pauliina

tarnalberry Community Regular
tarnalberry
Posted

I'm tired, so I'm going to be blunt:

her doctor is a moron - your body doesn't produce antibodies to something when it doesn't think it's a problem. she should find a new doctor, try the diet, and listen to her body.

Guhlia Rising Star
Guhlia
Posted

Ewwww.... I agree w/ Tarnalberry... No offense, but that doctor should be canned!!! You absolultely have Celiac w/ results like that. Starting the gluten free diet immediately will help prevent you from doing any further damage on your body. Good luck and please listen to the people on this board about your diagnosis. They know what they're talking about.

loraleena Contributor
loraleena
Posted

Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

Smunkeemom Enthusiast
Smunkeemom
Posted
  • Author
Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

I told her that, and she says "oh, but he went to medical school and took an oath and stuff"

I think she is in denial. I am going grocery shopping with her this weekend though, I will try to suggest gluten free foods, maybe if she see's all the food she can eat, then she will feel better about it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748
    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.