Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Want To Throw In The Towel?


NiqueP

Recommended Posts

NiqueP Rookie

Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MegGFBoston Rookie
Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(

I know what you mean!!! I feel the same way. I'm just creeping out of the situational depression I have been for three months (after buying all new spring/summer) clothes since nothing fit!!

But somehow I keep reminding myself that I am healthy (if not happy) and I have to say that now after six months of gluten free things seem to be normalizing - not losing weight as quickly as I would like - but it is not going up anymore either. I basically cut out all starches - including rice, potato etc that seems to be working

Hang in there!!!

par18 Apprentice
I know what you mean!!! I feel the same way. I'm just creeping out of the situational depression I have been for three months (after buying all new spring/summer) clothes since nothing fit!!

But somehow I keep reminding myself that I am healthy (if not happy) and I have to say that now after six months of gluten free things seem to be normalizing - not losing weight as quickly as I would like - but it is not going up anymore either. I basically cut out all starches - including rice, potato etc that seems to be working

Hang in there!!!

When I first started on the diet about 13 months ago I needed to gain about 30 lbs. It took about 10 months of steady eating to do this but I did. I was depressed because I could not be active being so underweight. I started being active again about 2 1/2 months into the diet. Before I was diagnosed I never thought about eating. Now I have to remind myself every day to make sure I eat something because I am extremely active burning calories. The reason I say this is because whether we are trying to lose or gain or remain the same it is going to be something we have to work on harder than the average person. I think this is a very good test of our organizational skills. Being active and doing physical exercise either by work or play is an important part of all of our lives. Anyone strong willed enough to stick to this diet can also gain or lose whatever amount of weight they desire. Feeling sorry for yourself is also a good way not to accomplish anything. I have no doubt that if you keep a check on the amount of starches and get exercise you can get there. The ultimate happiness that you may not have now will follow. Good luck.

Tom

tarnalberry Community Regular

are you replacing gluten-filled filled with yet starchier, lower nutritional-value gluten-free substitutes? if so, you may want to give those up in exchange for fruits/vegetables. also, if you're now absorbing more of what you are eating, you may need to reevaluate your daily caloric needs, and slowly cut back on the quantity of calories you consume in day.

Becky6 Enthusiast

It is very frustrating! I had gained a bunch of weight because I was on prednisone. Now that I am gluten-free I have gained even more! I know it is because I am absorbing the nutrients now but it is frustrating! Hang in there. For me I feel so much better that I would rather be heavier than not able to get out of bed.

lovegrov Collaborator

Well, as sick as I was I know my choices are: A) be gluten free and weigh more, or B) eat gluten, be skinnier and then die.

No choice there.

richard

BRUMI1968 Collaborator
It is very frustrating! I had gained a bunch of weight because I was on prednisone. Now that I am gluten-free I have gained even more! I know it is because I am absorbing the nutrients now but it is frustrating! Hang in there. For me I feel so much better that I would rather be heavier than not able to get out of bed.

I know what you mean about the Prednisone; I was on it for about 9 months or so a few years ago - my face got moony and I gained 20 pounds. I'm glad to hear you're off it. Nasty stuff! I just read today that some folks gain weight once they go gluten free since they are getting nutrients and calories and the like. I lost 10 #s when I quit wheat - now that I am gluten free (2 weeks), I hope I don't gain it back.

Good luck to you! I'm sure you'll even out and be whatever weight is healthy for you. In America I think we're too obsessed with what the scale says versus how we feel. So long as you feel healthy, that is what counts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

I went onto this gluten free diet with a bit of tredipation.

I have a different problem, and was in need of loosing a bit of weight, and had managed to loose two stone prior to being diagnosed with celiac, that was a battle as I was always hungry.

My worry with being gluten free was maybe I would get a bit down, and let the weight creep back up and I thought I would be just as hungry.

But the opposite has happened, I found I did not gain one ounce of what I had lost, nor did I lose any, but my appetite has changed and I am no longer starving, and feel more in control of my diet.

I am still overweight, but will deal with that later, well soon.

I did eat gluten free bread for a while, but have given it up as to me it seems about as bad as eating white bread. Has anybody got any thoughts on that?

Cathy

lindalee Enthusiast
I went onto this gluten free diet with a bit of tredipation.

I have a different problem, and was in need of loosing a bit of weight, and had managed to loose two stone prior to being diagnosed with celiac, that was a battle as I was always hungry.

My worry with being gluten free was maybe I would get a bit down, and let the weight creep back up and I thought I would be just as hungry.

But the opposite has happened, I found I did not gain one ounce of what I had lost, nor did I lose any, but my appetite has changed and I am no longer starving, and feel more in control of my diet.

I am still overweight, but will deal with that later, well soon.

I did eat gluten free bread for a while, but have given it up as to me it seems about as bad as eating white bread. Has anybody got any thoughts on that?

Cathy

White bread is bad and I rarely ate it. I went for the "GOOD STUFF" Whole Grains --ha,ha- I always stay hungry. I seem to want to eat very frequently whatever that means I am not overweight. I used to rely alot on popcorn as a filler but I am going to try to avoid corn also. I haven't tried to gluten-free breads. Some of the crackers are ok. Does anyone know if staying hungry means I am not absorbing? LInda Lee

Nancym Enthusiast
White bread is bad and I rarely ate it. I went for the "GOOD STUFF" Whole Grains --ha,ha- I always stay hungry. I seem to want to eat very frequently whatever that means I am not overweight. I used to rely alot on popcorn as a filler but I am going to try to avoid corn also. I haven't tried to gluten-free breads. Some of the crackers are ok. Does anyone know if staying hungry means I am not absorbing? LInda Lee

I find eating lots of starchy, sugary stuff makes me hungry. If I keep my diet centered around meat, veggies, fruit and such that I don't get ravenously hungry. I think it is the ups and downs of blood sugar.

CarlaB Enthusiast

Linda Lee, I've been five months gluten-free and no longer have the ravenous appetite. Occassionally I do, but most of the time I'm eating more normal ... still more than my husband, but a lot less than I used to.

I've gained all my weight back but the five pounds I didn't want anyway. Now I'm trying to balance eating enough with not gaining that five pounds back!

Fiddle-Faddle Community Regular

Try drinking a cup of herbal tea at the beginning of every meal, and in between every meal. That will help you cut down on the amount you're filling your stomach with). Also, as someone suggested above, be REALLY careful about the gluten-free breads and pastas--they are way heavier and more fattening than their gluten-filled counterparts.

ehrin Explorer
Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(

Geesh I know what you mean - how long have you been gluten-free? I'm in my 7th month and have put on over 10 pounds. I am already overweight so it's the last thing I need. Do you find you lack energy as well? That's my problem. Prior to my celiac diagnosis I was an avid gym goer. Exercise was a major component to keeping good control of my diabetes, however I now find that I have an almost lackadaisical approach to EVERYTHING. I have no motivation to hit the gym - I'm still maintaining good control of my diabetes, but I'm no where near as stringent as I was prior to diagnosis. I started weight watchers and have been gaining a pound a week. You'd think that'd be motivation in and of itself, but it isn't. Now I just figure I'll see how fat I can actually get :huh:

I don't know. My mother said I get P.I.A. (pain in the a$$) diseases. I couldn't agree more.

jenvan Collaborator
are you replacing gluten-filled filled with yet starchier, lower nutritional-value gluten-free substitutes? if so, you may want to give those up in exchange for fruits/vegetables. also, if you're now absorbing more of what you are eating, you may need to reevaluate your daily caloric needs, and slowly cut back on the quantity of calories you consume in day.

I 2nd was Tiffany said above. A great weight to lose weight...and to just eat anyway, is lower-carb. When you do choose a carb, go for a high fiber/high nutrition one...such as millet or quinoa vs. white rice. When I started adding on the pounds post gluten-free, I cut down on my simple carb intake and have stopped gaining weight...even lost most of what I gained. Eat protein, and as I mentioned, higher fiber, more "filling" foods.

Are you on any medications?

sjc Newbie

I am also gaining weight. I also have diarrhea. I try so hard to make sure the food I am eating is safe. It is so depressing, hard to find comfortable clothes, and don't want to see people I know because I am so embarrassed how I look. I have arthritis in both knees ( need to have knee replacement surgery) and my right foot "has issues" (tolong to describe but have already had 2 surgeries).

Warrior Woman Rookie
Before anyone else says it , I know it's better to be healthy than thin. That being said, the weight gain after going gluten-free has me wondering in (fleeting moments)if it's all worth it. Watching the lbs. go up is also as depressing as being sick all the time. I have always been an active person. I workout 2 hrs a day. always watch what I eat and it has made no difference. My weight keeps creeping up. :(

You dont mention what it is your eating or what your workout is.

Are you eating too many carbs? Are you eating enough lean protein? Are you getting enough good fat to feel full? Are you getting enough nutrients? How much fruit and veggies are you eating? Are you taking a multi vitamin?

Just because you are eating gluten-free doesnt mean it is healthy per se. A lot of the gluten-free replacements are high calorie. And if you arent drinking enough water, you may be dehydrated and not hungry. Have you tried writing down everything you eat for a week or so and see where you calories are coming from? To help find this out you can go to www.fitday.com. It is free and tracks your calories, the protein/fat/carb make up of what you are eating, the nutrients you are getting and tracks the xercise you do. That would help considerably in find out more informatiopn to your problem.

What does your workout consist of? Do you change it up? Do you have rest days or weeks built in? Why are you working out for two hours a day?

If you are working out too much, your body could be holding on to the calories that you are eating. Or if your routine is the same day in and day out, your body beciase accustomed to the workout and you arent getting the full benefit.

There are many variables to your problem. Eating gluten is not the answer. You may have to consult a nutritionist and/or a coach.

Lorraine

Guest nini

I was overweight before going gluten-free, and I've managed to lose 105 lbs in over 3 years... I've found that I have to stay away from a lot of the gluten-free substitute products and stick with foods that are naturally gluten-free. I also eat more frequent meals/snacks throughout the day so my body doesn't go back into starvation mode and hold onto the fat. I watch my portion sizes and allow myself treats in small quantities. If I want something (gluten-free of course) I allow myself to have it, just in small portions. I try to not focus on losing weight at all, but just in eating healthy. Sometimes I hit a plateau for a while and don't lose anything and even gain up to five pounds back, but after a few weeks things level back out and I start losing again. I still need to lose about 30 more pounds but I'm not stressing about it. (Can't afford to go buy another new wardrobe right now!)

Lister Rising Star

keep working at it and you will shed the pounds. i had the exact opisite from going gluten-free, withen the first 3 weeks i lost 100 pounds and have only gained back 3 so far

  • 2 weeks later...
NiqueP Rookie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.