Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto Immunde Diseases


Lister

Recommended Posts

Lister Rising Star

so celiac is considerd a auto immune disease correct? ok so abriveated its aids so that is a little confusing... does this meen that people with celiac are more easaly subject to get things like cancers and just in general health problems or are we healthy?? just a little confused


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Yes, Celiac is considered an autoimmune disease. In an autoimmune disease, the body attacks it's own tissue. In Celiac, the gluten triggers an autoimmune response that in turn attacks the small intestine. In undiagnosed or untreated Celiac, there is a greater risk of Intestinal Lymphoma--being strictly gluten-free lowers that risk, and after 5 years, our risk returns to that of the general population. I have also read that if a person has one autoimmune disease, they are a greater risk for another one. Bottom line--it's vitally inportant for us to be as close to 100% gluten-free as possible.

Lister Rising Star

wish the doctor would let me know things like this

minibabe Contributor

Okay so here is my theory on the whole thing.....

When you have a recation to a food or somthing like that your body has an inflmation. Acutally, I believe that any auto immune dieases cause an inflamation which naturally makes the body weaker. When you body has an inflamation you are more suseptable to things. And I believe that this is because your is weak and your immune system is weak. I have had converstions about this with people and I have books on it at home. I am at work right now, but when I get home I will rummage through the books.

Hope that this helps :)

Amanda NY

Katie O'Rourke Rookie

Hi. I've heard that coeliacs are more prone to bacterial or fungal infections, and over here coeliacs are supposed to have a pneumonia jab, to reduce the chance of catching it. The way I look at it is this, you're body is so used to attacking itself, that it is slower to respond to actual invading organisms, and is less able to cope with them compared to other people's. I've heard coeliacs also have a lower infective dose as far as things like bacterial food poisoning are concerned. However, and I'm not sure if this is just me and my dad or coeliacs on the whole, but I find I am actually totally immune to viruses of all kinds including influnza, as long as I have not eaten gluten. Recently everyone at my work who I sit near to every day has been off for at least a few days with flu which turned into chest infections, laryngitis or gastro-flu, all of which were very nasty, and I totally didnt get any of these, and I was the only person. However, I think the reason I get them if I have eaten gluten, is becasue your body is so busy attacking itself it doesnt notice the virus invading, so may get it worse than everyone else. However, I find the exception to this rule is the Herpes zoster virus - chickpox, as this is always dormant in your spinal cord after first infection, and can come back when you're run down, usually in the form of shingles. I personally have had chicken pox 5 times :(

I know this may not help you, but eating a wide variety of fruit and veg shouldhelp keep you healthy, as well as staying gluten-free, obviously :)

Lister Rising Star

yeah, im just checking since after reading that its a uto immunde disease the first thing that ran thru my head is omg im gonna get like cancer or something before im 30 but i also always think on the most negative aspects of things, i too have noticed even though im not fully healed that i dont seem to catch bugs that are going around,

a form of influenza, the one that comes from beeing on boats hit our town about week and a half ago, killed about 30 elderly 2 children and infected over 200 including every one of my co-workers and i managed to not get it

shai76 Explorer

You would think that gluten intolerance would bea lot like allergies; atopic people who have lots of allergies, which is actually the immune system attacking things it shouldn't all the time, are less likely to have cancer, and other infections, such as the cold and flu.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor
yeah, im just checking since after reading that its a uto immunde disease the first thing that ran thru my head is omg im gonna get like cancer or something before im 30 but i also always think on the most negative aspects of things, i too have noticed even though im not fully healed that i dont seem to catch bugs that are going around,

a form of influenza, the one that comes from beeing on boats hit our town about week and a half ago, killed about 30 elderly 2 children and infected over 200 including every one of my co-workers and i managed to not get it

WELL AT LEAST YOU DID NOT GET SICK :D:D

lorka150 Collaborator

every single person in my family and extended family has an autoimmune disorder and no one has cancer... if that makes you feel better.

Lister Rising Star

just after reading that its a auto immune disorder it got me really worrying about other ilnesses that i thought i may be easy to get, but now that i think about it, yeah are bodys attack ourselfs if we eat gluten but other then that, with our eating habits and what not we are more healthy then most, even though most celiacs that i have seen around here where i live are all pale skinny and look like there going to break if u tuch them but i think probably they where very late in diagnosis also

queenofhearts Explorer

Just to clarify, Lister, the initials are confusing, but AIDS is actually Acquired Immune DEFICIENCY Syndrome, which is not at all the same as an Auto-Immune disease. Lots of folks mix these up-- I've even heard of people being afraid they could catch Celiac.

I'm not a doctor, by the way, but I do know that the medical definitions are very different. After all, our immune systems are going overboard! With AIDS one loses the normal immune response. More or less the opposite mechanism.

Not to say that Celiac isn't a little scary in its own way, but much less dangerous than AIDS.

Hang in there, you'll be fine!

Leah

Hair Detective Newbie

In the 2006 book - Celiac Disease - A Hidden Epidemic....the author Dr. Green from Columbia University who runs the Celiac center....says that Celiacs have a 30% odds of getting an autoimmune disease versus the rest of the population which is 3%. Cancer is 2X as likely to occur if you have celiac. Inflammation is the bodies response to an outside invader...parasite, flu bug, food poisoning, and gluten if you're celiac. So the body responses...like firefighters would to a 911 call. The problem is if you've ever cleaned up after a fire...the water and chemical sprays can be as damaging as the fire. So image you're body is doing a 911 drill everytime you eat gluten....lots of fire damage :-)

Lister Rising Star

gah 2x likely :( colon cancer runs in the family now thats just great :( o well to early in my life to start worrying i guess

phakephur Apprentice

Here's an article from this site about autoimmune disease and celiac

kb8ogn Rookie

I have several auto immune diseases and have just recently been diagnosed with Celiac. Now, my rheumy told me that I am more suseptible to other auto immune diseases and when I get things like a cold or the flu, I feel it a lot worse than others because of the the autoimmune diseases.

My first dx was Lupus, then RA and Raynaud's, then Severe Vitamin D deficiency, now possibly fibro and the last was Celiac. I am also being tested for sjogrens.

Now, I did have uterine cancer, but that was also before all of my other issues and that also runs in my family. Those problems also started when I was very young.

Lister Rising Star

well so i guess we all are just playing a waiting game to see what we get next then :(

elye Community Regular

Since I was first diagnosed with celiac (eight months ago), I have often wondered if there is any connection to it and the fact that I so rarely get a cold or the flu...now I wonder more, because it sounds like a number of other celiacs have the same situation. Yep, people around me can be dropping like flies, and I remain the lone one standing. I would suspect that our immune systems are particularly STRONG, not weak (witness the damage it does!), but as my endocrinologist put it, it is "twisted", i.e., responding when it shouldn't. Maybe that's why I'm never sick...my immune system has had so much practice attacking things, and it gets such regular "workouts" that it is stronger than any threatening virus. :)

Lister, I've gone through all the autoimmune stats with my endo: one in eight celiacs will develop type one diabetes, and one in ten (the number's higher for women) will develop hypothyroidism. I've got all three. Now, I'm assuming that those are celiacs who have been undiagnosed and had a lot of damage. All the more reason to avoid gluten!

Lister Rising Star

yeah its great to hear that we probably wont get viruses but at the same time we get stuck with the crap that makes us feel sick all day long... i just want to feel "normal" again its been so long im starting to forget what it feels like

it feels like i have been on a mild mushroom trip for the past 2 months. and i hate mushrooms

ravenwoodglass Mentor
well so i guess we all are just playing a waiting game to see what we get next then :(

Lister, if you stay Gluten Free these other autoimmune problems are not going to appear. They appear because the body is fighting the gluten response which takes place in any organ that gets blood. In attempting to protect us from the gluten our immune response starts to activate on the organs also. I believe this occurs because the gluten gets into all body fluids and perhaps even cells. If you do not consume gluten and get to a gluten free workpalce (are you still at Burger King?) you will not develop these other responses. No Gluten EVER IN ANY FORM will keep the other autoimmune problems from developing. IMHO There are exceptions of course like diabetes but in general we are more healthy than the rest of the population IF we are diagnosed young enough which you were

it feels like i have been on a mild mushroom trip for the past 2 months. and i hate mushrooms

This could be from CC. The obsessive thought patterns you mentioned in another post could be also.

Hummingbird-Hill Newbie

Dear KB: My first DX was celiac and that was 15 years ago. Since then I have been DX'd with Sjogrens, fibromyalgia, connective tissue disorder, and finally diabetes one year ago. I think the celiac was just a precurser to all the auto immune stuff that I finally ended up with. Sort of like a trial run. I look at it like it was God's little test to get me used to the idea that there was some bumpy roads ahead. I learned how to deal and cope with celiac so when the really debillitating stuff came around it was easier to cope with. If you look at it, celiac is treated by diet, which is self administered, and all up to us really. How we feel is totally in our own hands. Or mouth. But the other diseases we haved to deal with in the auto immune family is so much more complicated and diffiuclt, it makes celiac look like a walk in the park. That is how I look at it anyway. And I feel so totally blessed. I feel like I could have gotten some disease that was a death sentence and only got an disease that is hard yes to deal with, but mostly an inconvenience. Now how lucky are we? :D

  • 1 month later...
au natural Newbie
<_< I have had my thyroid out before I was diagnosed. (They found cancer starting). Was also diagnosed with severe chronic idiopathic neutropenia ( unable to keep a healthy white count) before the celiac diagnosis. Have a few other food allergies. The more you keep on the diet hopefully the more you can remain healthy.
moonmaiden Newbie

I have Hashimoto's Thyroiditis. I notice that whenever anything at all challenges my immune system, be it a cold, flu or bug bite - my immune system seems to go into "overkill" and my Hashi's symptoms get worse. moon

loraleena Contributor

Lister,

If colon cancer runs in your family, I would suspect others in your family had or have celiac as well. I would urge your family members to be tested. Lister, your mind can have an enormous affect on your health and well being. You can actually damage your health and make yourself sick, by having such negative thoughts. You should rent the movie What the Bleep to we Know? It talks about this. Try not to dwell so much on all those scary thoughts and picture yourself healthy!!

Nancym Enthusiast

AIDS is not short for autoimmune disease, it is short for Acquired Immune Deficiency (if I remember correctly).

You're more likely to get other autoimmune diseases if you're gluten sensitive. I've had two diagnosed so far. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.