Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

TCA Contributor

I never thought I'd be to the point that I'd be afraid to drink bottled water!!!! :blink:

Thanks so much for the prayers over the past few weeks and in prep for the scope. All of you are a great support in my life and Megan's life. You help me think of possibilities, give me hope, and lift us up in prayer. I couldn't ask for better.

Love,

Tanya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
mouse Enthusiast

Tanya, I have the prayers highlighted for Megan tomorrow. Have a safe trip.

About the bottled water - ugh - we buy cases of it as you never leave the house without one in your hand. Not here in Arizona. I wish someone would remember which ones are safe to drink. I just buy the ones on sale.

AndreaB Contributor

OK you guys...I just emailed a person who might remember which brands were the good ones. Don't know when she'll get back to me. I also informed her about Megan so she can pray for her as well.

Guest Robbin

:) I don't know if this is helpful, but we had spring water delivered by jugs for our son that was from a spring in PA. He still only drinks bottled water (Dannon) and has never had flouride. The pediatrician told me that a calcium supplement and a multivitamin would do more for his teeth. I have to say he had the hardest baby teeth with very long roots and just lost the last one (he's 13!) He only had two small surface cavities in his life, and I blame that on lazy brushing habits and a gummy bear addiction. (He has kicked that one thank god -now has braces :blink: )

I saw where the shuttle took off --yay! And many prayers for you tomorrow from VA :)

Cheri A Contributor

Up early in MN and praying for you, Tanya, for your trip, for wisdom for the drs, and for little Megan as she has the scope done today.

AndreaB Contributor

Tanya and the rest of you interested in bottled water.

Aquafina is the better of the brands out there. There were a few others but she uses aquafina as it was one of the lesser expensive ones. Some of the more expensive ones are worse. There were only 3-4 bottles out of probably around 15 that scored low.

Tanay,

I hope all is going well for you guys and Megan this morning. Our thoughts and prayers are with you.

eKatherine Apprentice
How do you know that the bottled water is better than normal tap water? I saw a 20/20 or such show that tested a bunch of the well known waters, store brand waters etc and they really weren't any better for you than tap waters...

I'm not all that particular. As long as it isn't fluoridated and tastes good (our city water tastes nasty with the chlorine compounds they add to it) it's good enough for me. So I just buy a store brand in jugs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shai76 Explorer

I love the more expensive waters. But I only buy them as a special treat once in awhile, I hate paying a lot for water! But which of the more expensive ones are bad and what exactly is in them???

I'm imagining someone filling bottles up from their tap in a swanky New Jersey apartment, labeling it and then shipping it to the store where I buy it for a hiked up price and think it is great for me. I have a few OCD problems and my mind wanders off.

Hope everything has gone okay with Megan.

VydorScope Proficient

WEll my cellphone has not rung yet, and since she is gonna call if hters a problem that means no problem yet! :D

TCA Contributor

Just wanted to let everyone know that the scope went great and we're back home, surprise! The IV was barely able to get her through surgery and they weren't able to start TPN before they lost it, so we got to go home. Nothing was visible on the scope, so that's good news. We'll hear from the biopsies next week. Thanks so much for all the prayers!!!!!!! They've paid off so far. Plus she's gained 13 oz!!!!!!!! amazing how prayer works!!!!

Fiddle-Faddle Community Regular

I've been thinking of you on and off all day. I'm so glad she's gained (nearly a pound!) and that you're home. Hope everything else from here on is smooth sailing! (But will still keep up the prayers!)

jerseyangel Proficient

I kept checking in today to see if you had posted. So relieved to hear that it went well :) Great news about the weight gain, too. What a little trooper!

AndreaB Contributor

That's great news all around Tanya!

I bet the doctors are happy with her weight gain. Does that make things better for surgery next month?

Cheri A Contributor

Yay!! Glad that it went so well AND that she gained weight! What an answer to prayer!

Tanya ~ I hope that you do get to go see another space shuttle launch before it's discontinued. My boys came home today and they are still on cloud nine after their experience with the whole thing. They have amazing pictures and yesterday got to eat lunch with an astronaut, Mike Mulane. Got a picture and a signed copy of his book. Did the robot experience thing about 4 times. Nick got to do some interactive Mad Science show. Way cool!

mouse Enthusiast

Tanya, you have made my day. Glad the scope went well and that MEGAN HAS GAINED 13 OZ'S. I had to yell about the weight gain :lol: . Well done Mommy.

penguin Community Regular

Awesome, awesome, awesome!! I was worried about her today, good job!!!!

Judyin Philly Enthusiast

WOW THE POWER OF PRAYER AND GOOD DRS. AND LOVING MOM'S AND DADS.

SO HAPPY YOUR HOME AND IT'S BEHIND YOU

PRAYED FOR YOU GUYS ALL DAY FROM THE FIRST THING WHEN I WOKE UP

SO THRILLED FOR YOU

LOVE

JUDY

shai76 Explorer

What a relief! I'm glad she tolerated it so well and that everything appears okay. :)

VydorScope Proficient

YAHOOO!!!!!!!

Guest Robbin
:) Thank God. I am so relieved to hear the news and 13 oz. gained!!! Yay Megan!!!
jenvan Collaborator
Just wanted to let everyone know that the scope went great and we're back home, surprise! The IV was barely able to get her through surgery and they weren't able to start TPN before they lost it, so we got to go home. Nothing was visible on the scope, so that's good news. We'll hear from the biopsies next week. Thanks so much for all the prayers!!!!!!! They've paid off so far. Plus she's gained 13 oz!!!!!!!! amazing how prayer works!!!!

Wonderful news--so glad!

nikki-uk Enthusiast

I love good news!!! :):):)

Nic Collaborator

Nice to hear the good news. If you are still interested in the name of the disease my friends daughter had, here it is. I don't believe I am spelling correctly but phonetically, it sounds like, eocinaphilic gastrointeristis.

Fiddle-Faddle Community Regular
Nice to hear the good news. If you are still interested in the name of the disease my friends daughter had, here it is. I don't believe I am spelling correctly but phonetically, it sounds like, eocinaphilic gastrointeristis.

I'm guessing that might be "Eosiniphilic gastroenteritis?" Here is a link, don't know how good it is: Open Original Shared Link.

schuyler Apprentice

That's awesome news Tanya!!! Way to go Megan!!!!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.