Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better

TCA

Recommended Posts

VydorScope Proficient
VydorScope
Posted
Just heard from Vandy about an hour ago. Surgery is a go for 7/25. I was relieved to hear this, but I think I'm going to throw up at the same time. This isn't an easy thing for any child to have to go through, especially your own. Please pray for this to go as perfectly as it can. Thanks for all the support. I think I'm just overwhelmed right now.

Okay Tanya, thanks for the update, and rember keep our #'s handy, we are here for you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 882
  • Created
  • Last Reply
Judyin Philly Enthusiast
Judyin Philly
Posted

Tanya,

You got it....If there is anything beside prayers, please please let us know.

Love

judy

Matilda Enthusiast
Matilda
Posted

..

jerseyangel Proficient
jerseyangel
Posted

Tanya--You and little Meg are on my mind so much. Gosh, I do know that relieved but going to throw up feeling. Many years ago, Matt had to have surgery when he was 18 months old. Nothing terribly serious, but he had to have general anesthesia. He did fine--I was a mess! You have a strong, brave little girl there with a lot of folks pulling for her :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hi, Tanya,

Just wanted to say goodnight, and I hope everybody (including the pooch) sleeps well! That's one remarkable dog you've got. I bet if you take her to the surgery, she'll make sure nobody makes any mistakes!

evie Rookie
evie
Posted

[quote name='Fiddle-Faddle' date

Hi, Tanya,

Just got online & your message, Tanya came up about sure date for surgery on 7/25, know what you are going thru, sort of. One of our girls had a rough few years @ first but she seems to be the healthiest now!!

Count on prayers from here too. Hope all of you at your house have a "good" night. :) evie

TCA Contributor
TCA
Posted
  • Author

Thanks everybody. Shar Pei is doing well. Megan is getting another molar in, so she's not so happy, but she didn't sleep quite as much today. We've been working towards surgery for so long now, I feel almost lost now that it's about here. I guess that sounds crazy. Part of me just wants to run away with her so they can't put her through that pain again. I know I can't, but part of me really wants to. Watching your child suffer is enough to drive you mad. Most of you know exactly what I'm talking about. I just hope it's easier this time. I pray to God constantly that it is.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

Ugh, Tim is getting his last few molars now, thats enough trouble by itself, never mind with all Megan has on top of it!

Cheri A Contributor
Cheri A
Posted

((Tanya)) ~ hoping that last night was better for your family. You and Meg are going to have such a strong testimony and will hopefully be able to use all this knowledge and experience to help someone else along the way. I'm covering you in prayer today!

mouse Enthusiast
mouse
Posted

Thank you for the updated posting on the surgery date. I can understand that you are relieved that you now have a firm date, but want to throw up at the same time. I cannot compare to what you are going through, but there have been times in my life that I have felt the same way - relief and also frightened of what is ahead. Many prayers and certainly lots of hugs. Hope you got some much needed sleep last night.

TCA Contributor
TCA
Posted
  • Author

Thanks for the prayers and hugs! I'm feeling better today, just busy trying to get everything in order. I spent most of the day trying to get family lined up to give blood for her.

Meg's still fussy with teething today. I think that's it, but it's always hard to tell. She seems to be doing about the same, though.

Cheri, I pray the same thing all the time. I know God will use all of this to help some other people. He already had done that in helping some people we know get diagnosed with celiac disease. It's amazing how it all works together.

I also wanted to let all of you know that I've started a website for her on caringbridge.org. Click on the visit selection and type meganandrews to get to her site. I'm going to be posting how she's doing after surgery there. That way everyone who is following her can find info at one place. There are also some pics of her.

Hugs,

Tanya

Rachel--24 Collaborator
Rachel--24
Posted

Tanya,

I'll be saying lots of prayers for Megan. I think about her upcoming surgery everyday and I know she'll have many many people praying for her on that day. Thanks for posting the info. for Megan's website.

AndreaB Contributor
AndreaB
Posted

I'll be sure to bookmark and check that site. Thank you Tanya. Will continue praying for your family and the doctors and staff in charge of her.

Tony'sMom Rookie
Tony'sMom
Posted

I will continue to keep you and your family in my prayers.

Hugs.

VydorScope Proficient
VydorScope
Posted
Thanks for the prayers and hugs! I'm feeling better today, just busy trying to get everything in order. I spent most of the day trying to get family lined up to give blood for her.

What blood type? I am a Regular donner to RedCross, I am O+ . I would be HONORED to donate for Megan, I am over due for my next donation! Just tell me when, and how!

ALSO you can use this shortcut to get to her page :D

Open Original Shared Link

Guest Robbin
Guest Robbin
Posted

Thank you for the update, Tanya and the information on her website. Praying hard for "our little Megan" :) I don't remember, maybe you said, but I hope the Ronald McD House is available to you. A friend of mine stayed at one in Cincinnati when her daughter had a liver transplant and it was so wonderful. I hope you and Megan can get restful sleep tonight. :)

Vincent, that is so cool that you donate. Your blood type is the most desired, I believe it is the universal donor, am I right? I was told not to donate blood because of liver enzyme problems, or I would fly down and give her any of mine she needed. Thank God for people who can and do donate. It is a precious gift. btw-little Timothy looks like a beautiful cherub in that pic--even looks like a halo with the light on his curls!!

VydorScope Proficient
VydorScope
Posted
Vincent, that is so cool that you donate. Your blood type is the most desired, I believe it is the universal donor, am I right?

I can donate to MOST ppl, but O- is the true universal that can donate to anyone. My blood type is highly desired by the RedCross though since most ppl can take it.

TCA Contributor
TCA
Posted
  • Author

thanks so much everyone. I replied to your PM Vincent, Thanks again! I think we've got it covered, but may call you tomorrow if things fall through!

Tony's Mom, I saw recently where your little one was just diagnosed with diabetes. I've been meaning to PM you, but haven't made time - sorry! I hope everything's going well. My husband is type 1, but ws 20 when it developed. I'll keep you in my prayers. Thanks for thinking of me during your difficult time!

Rachel, Robin, and Andrea, and everyone else - Thanks so much for all the support you show ALL the time. this board is so blessed to have caring people like all of you.

VydorScope Proficient
VydorScope
Posted

Got your PM, if you do not need anymore upfront, I will hold off any donations till after you take Megan home, and a lttle time pases just in case....

Tony'sMom Rookie
Tony'sMom
Posted
Tony's Mom, I saw recently where your little one was just diagnosed with diabetes. I've been meaning to PM you, but haven't made time - sorry! I hope everything's going well. My husband is type 1, but ws 20 when it developed. I'll keep you in my prayers. Thanks for thinking of me during your difficult time!

How sweet you are! With everything that you're going through right now, you took the time to think of my family. Thank you so much :)

Hugs.

Cheri A Contributor
Cheri A
Posted

I'll go bookmark the caringbridge site for when Meg is having her surgery!

Hoping that today was a good day!

TCA Contributor
TCA
Posted
  • Author

this afternoon Meg seems to feel some better - thankfully. Last night was ROUGH, so no one slept much around here.

I'm trying to get us packed and stressing! The gluten-free thing is not going to be easy, especially for our son. I'm praying that we get into Ronald McDonald house. I bought a new toaster and I've been gathering stuff to take for him, but if we don't get in on Monday, then we'l lhave to find a hotel that we can set up camp in, then move. I really need to be able to get him set up for the grandparents to help rather than depending on them to do it. They're all well intentioned, but clueless. Getting in is a minor thing in the big scheme of things, but it would definately reduce the stress level!!!

Our dog is doing great, BTW.

Thanks Vincent for waiting. We just may have to call on you!!!

VydorScope Proficient
VydorScope
Posted
this afternoon Meg seems to feel some better - thankfully. Last night was ROUGH, so no one slept much around here.

I'm trying to get us packed and stressing! The gluten-free thing is not going to be easy, especially for our son. I'm praying that we get into Ronald McDonald house. I bought a new toaster and I've been gathering stuff to take for him, but if we don't get in on Monday, then we'l lhave to find a hotel that we can set up camp in, then move. I really need to be able to get him set up for the grandparents to help rather than depending on them to do it. They're all well intentioned, but clueless. Getting in is a minor thing in the big scheme of things, but it would definately reduce the stress level!!!

Our dog is doing great, BTW.

Thanks Vincent for waiting. We just may have to call on you!!!

No problem! If we can help in any ohter way, please call! We will help in any way we can.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Tanya, if there are other things that need to be bought, let us know, and we can purchase them from wherever we are and overnight them to you at home or to Vincent near Vandy.

I'm so glad the dog is better--wish she could come with you to Vandy!

Hang in there--you're on the home stretch.

Love, prayers, and star wishes,

Alison

jerseyangel Proficient
jerseyangel
Posted
Tanya, if there are other things that need to be bought, let us know, and we can purchase them from wherever we are and overnight them to you at home or to Vincent near Vandy.

I'm so glad the dog is better--wish she could come with you to Vandy!

Hang in there--you're on the home stretch.

Love, prayers, and star wishes,

Alison

Tanya--This goes for me, too. Anything I can do--really. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    2. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    3. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    4. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
    5. Kirita
      - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748
    Dorfor
    Newest Member
    Dorfor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.