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Lister

Fading More Each Day

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alright so i think i have lost the war that my body has been fighting, everyday seems to be a step more back, yes my stomic is not hurting near as much, but i have lots of spasims in my instines, my bathroom movements have moved back to a C like state, but stuff comes its just hard and very slimy also comes with what looks like snot. my brain fog has been getting worse each day and only very rarely lifted, and i am getting more and more tired every day. I really dont see myself getting better i tried to talk to my doctor about it and he keeps saying its from beeing gluten sensative and wont see me. i think something else is wrong none of this is right or feels right. and to make matters worse(very personal) i have a lump coming off my left boy, looks like a bunched up earth worm no clue what this is but my doctor does not seem to be concernd and wont look at it. gah everything is just constantly falling apart

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As has been said before, there are many ups and downs in the healing process. You will have times where you feel like crap. I had about 3 weeks there where I could barely function because I was so tired. Hang in there, you're probably just detoxing and healing. Make sure everything is gluten-free. You may have other intolerances as well.

As for the lumpy nut, you probably should have it looked at. The earthworm you feel is most likely your epididymis, which may feel like a lump if you're not used to examining yourself. You are in the age range (usually 20-39) for testicular cancer (not to scare you) but if it feels suspicious, insist that it gets checked out.

Here's a link: http://tcrc.acor.org/tcexam.html


Alright, don't worry even if things end up a bit too heavy

We'll all float on, alright

Well we'll float on good news is on the way...

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Lister,

Are your parents near by and do you have contact with them? Do they know your health concerns? Surely you are not traveling this road by yourself. Do you have any support other than this site? You need some personal contact people that you can talk to as well as here. Ya got some buds close to you?


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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You are obsessing over everything. You need to not get caught up in little details. Step back and let the big picture start to happen before you rush to judgments.


Nothing

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Lister, my friend, you are not crazy. You have had to cope with a lot of change in a pretty short amount of time. It's easy to obsess about these things when we are desparately trying to feel better, and easy to get discouraged when we don't see progress. Right now, you need to be concerned with keeping yourself gluten-free. You are doing great with that! Worring about what may or may not happen in the future is not doing you any good. Don't dwell on that--you're lucky in that you are still young. You caught this before it could do a lot more damage. I have probably 20 years worth of damage from being undiagnosed for so long. I'm doing better after a year--I most likely have another year of healing to go. Sometimes after feeling better for a while, other intolerances can crop up. Do you eat a lot of dairy or soy or corn? Those can be a problem to some people, especially dairy while healing. Just something to think about.

Regarding the lump--has the doctor seen it, or is he just brushing you off? If he has not seen it, make an appt. and demand that he take a look. This is not something you want to fool around with.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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after finally having proper directions on how to examine myself it turned out it was a false alarm and is a vain that does stuff and nothing bad, i am slightly concsernd though today i seem to have developed 3 red bumps there small but there still there and there on my skin to my boys ( yeah i know i get to peronal) are these red bumps bad or should they just go away on there own im thinking maybe a agrivated hair? i would ask my doctor but hes not in tell wensday i am already trying to get ahold of him for other things

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Guest nini

I was going to suggest (or I AM suggesting) that if you are not happy with the care that you are getting from this Dr., and it sounds like you are not, fire him and get a new one... I know that's not easy, but even though you may be obsessing about every little thing, you have the right to be taken seriously and not ignored by your Dr. remember, HE works for YOU!

You've really got to try to take a step back, breathe and relax a little, a lot of what you are going through is the healing process, some of it is that now you are just more hyper aware of every little thing your body is doing, and if you weren't paying attention to it before, a lot of it can seem weird and frightening!

but still, you should have a Dr. that doesn't dismiss you all the time... He should at the very least take the time to calm your fears...

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I was going to suggest (or I AM suggesting) that if you are not happy with the care that you are getting from this Dr., and it sounds like you are not, fire him and get a new one... I know that's not easy, but even though you may be obsessing about every little thing, you have the right to be taken seriously and not ignored by your Dr. remember, HE works for YOU!

You've really got to try to take a step back, breathe and relax a little, a lot of what you are going through is the healing process, some of it is that now you are just more hyper aware of every little thing your body is doing, and if you weren't paying attention to it before, a lot of it can seem weird and frightening!

but still, you should have a Dr. that doesn't dismiss you all the time... He should at the very least take the time to calm your fears...

Sorry for injecting humor, I actually agree, its just I keep having flashbacks to the Seinfeld episode where Elaine tries getting the Dr. to see her and end up having her medical records passed from Dr. to Dr.


Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

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Sorry for injecting humor, I actually agree, its just I keep having flashbacks to the Seinfeld episode where Elaine tries getting the Dr. to see her and end up having her medical records passed from Dr. to Dr.

:D That episode went thru my mind more than once when I was making the "doctor rounds" while trying to figure out why I was sick all the time--I would try to sneak a look at my chart, to see of there were any "personal observations" on it! They don't really do that, do they? :blink:


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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its not that im not happy with the service, hes a great guy and he really is trying to help me out without robbing me of my wallet. Its just im looking for answers for things and whenever i am looking for answers he seems to be out for another convention ( granted most lecquores and conventions hes been going to are about celiac and gluten sensativity so he can better assist me and others, but its like i dont know whats going on with myself and hes one of the few people that can tell me something that could calm me down u know? family/friends have no clue whats going on nor do they understand in really any way

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Lister in regard to the bumps do they hurt or itch? Have you had them before? I would get that checked out. It could just be your body detoxing from not eating gluten, but you should make sure.

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I still go through periods when I obsess about everything. My hubby dropped a food storage container on the floor and was going to still use it without wiping it out or anything, he ended up throwing it into the sink and getting fresh. I was trying to find out what new thing was making me so sick and having to live on imodium for a month and there he goes, not being careful.

Anyway, we all go through that occasionally. I found my brain fog was due to too much sugar and even a small amount now will make me crash - almost litterally pass out. You will get all this worked out.


-Kate

gluten-free since July 2004

Other Intolerances:

Strawberries and Banannas (2007)

Nitrates (April 2006)

Yeast (which includes all vinegar so no condiments) (Oct. 2004)

Peanuts (Nov. 2004)

Soy (Oct. 2004)

Almonds (Sept. 2004)

Corn (Sept. 2004)

Lactose/Casein (1999)

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im thinking as have felt very ill today with lots of heartburn the olive oil was to blame to much oil. as for hte bumps they slightly itch but dont burn

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lister, you remind me just a bit of my oldest son----and myself when i was in my days of severe anxiety. i worried about everything (as does my son) i finally realized that there were certain thing i had to do to make myself feel better---regardless of what other people thought, or how irrational they seemed to other people. just one example-----i would get feeling like i had a lump in my throat. i knew there was nothing there, but i needed the doc to look in my throat and tell me everything was ok----then the physical sensation would go away. you are dealing with plenty as you try to recover from celiac damage------a little reassurance about physical things will probably go along way in helping you right now. maybe you could find another doc that you feel comfortable with to fill in on the times when your regular doc is gone?

my son quite often will mention symptoms he has to me and wants to know if these things are normal----and most of the time i am able to reassure him that everything is OK.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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if i could afford to go to another doc i would, but this current doc sees me for free now, and lets me call him when hes working ot have over the phone talks when he can without having to see me, and even then he slips me past the front office to avoid me having to pay the upfront 50 doller fee. I hope everything is alright with me, i dont personaly know i meen the poping noises anyone get those? its like i can hear and feel pops inside me and drips, its really wierd. ugh today was crappy felt like crap all day until around 2 when i think ( a massive backup of stuff) finally came out of me and i felt way way better some how the stools lodged in me where making me physicaly ill and i could not get them out. im feeling pretty good right now though besides some miner stomic irretation but its becoming so daily that im almost ignoring it now. anyways time to go figure out what doc bills to start paying this month

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I was trying to find out what new thing was making me so sick and having to live on imodium for a month and there he goes, not being careful.

As long as it's not Imodium liquid, I just heard it wasn't gluten-free. I lived off the stuff for years.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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already had a bactera/parasite stool culture nothing showed up abnormal. as for the vein yeah thats what im thinking also, but now i have 5 red dots on my scrotum and going up towards shaft, like almost like zits but with no heads, not really sure wtf that is, thinking maybe a heatrash but its been 2 days now and they have not gone away

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You're probably feeling the epididymis and/or vas deferens. Here's a lovely diagram of them http://www.nlm.nih.gov/medlineplus/ency/imagepages/19073.htm

The red dots may be broken capillaries, and they'll go away after a while. Do your kitties have fleas, by chance? Their bites leave red marks :blink:


Alright, don't worry even if things end up a bit too heavy

We'll all float on, alright

Well we'll float on good news is on the way...

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yes the kitties have fleas, but i dont have any flea bites anywhere on me, besides unless thats what those are, and if so lol, why did the fleas go for me nuts, also the red bumps dont itch or burn so they are really confusing me

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alright so now i worry again, the bumps have not gone away but also know, on the side, where the thigh attachs to the area where your sexual organs are ( not sure what area is called) on the right side it is sore to the tuch, does not hurt but if i tuch it it does. feels like under the skin in that area is inflamed :( man i really hope nothings wrong

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