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List For The Newly Diagnosed

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NoGluGirl Contributor
NoGluGirl
Posted
does anyone know offhand certain health and beauty products that are gluten free...such as soap, shampoo, makeup and toothpaste?

Dear Jacklyn1981,

I called about Revlon LipGlides and they are g.f. Also, Crest Whitening Expressions are safe, but the Crest Pro Health Rinse is not safe. Palmolive dish soap is safe. Check out Amanda's Mommy's blog on this site. It has a lot of great stuff. That is where I got a lot of my foods that were allowed! Good Luck!

Sincerely,

NoGluGirl

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kb8ogn Rookie
kb8ogn
Posted

thanks to all of you for all of this wonderful information. it really makes everything seem less overwhelming.

shelli

Matilda Enthusiast
Matilda
Posted

..

Adelle Enthusiast
Adelle
Posted

As a gluten-free veteran of 1 whole month, I would add to allow MUCH extra time at the grocery store (at least at first). And don't forget a little junk food. Those first few weeks would have been MUCH harder w/o dorritos. Not a TON of junk, but just a few tidbits to make u feel less deprived.

Remember that u have the RIGHT to be healthy and that u have a support system here!! Yay!

Oh and making a list of foods/ingredients u can't have to keep with u. I went to a restraunt (for a horse club meeting thing) and the waiter took a good 15-20 min talking to me, recomending dishes, and he double checked EVERY ingredient. I did NOT get sick. And I gave a list to my fam (who have accidentally cc'd me) they r trying realy hard.

And remember, finding out what was wrong is a GOOD thing! Yay! It's not "in ur head", u aren't a medical mystery. Ur gonna be ok!!! YAY!!!

  • 3 weeks later...
bridgergirl13 Newbie
bridgergirl13
Posted

Thanks for this thread. I've just been diagnosed and have a lot to learn about the hidden gluten out there. Thankfully, I have a Whoel Foods market on the way home. They provide a list at customer service detailing all of their gluten-free products. Also, our local health food store is awesome when it comes to explaining different ingredients, customer favs, etc. It's hard but I have hope. Thanks for helping me to feel that I can handle this.

Mary Contrary Rookie
Mary Contrary
Posted

This is a great thread and a fantastic forum with lots of good people...I noticed so far everybody has a pretty good sense of humor as well...

I need to check on my thyroid meds and blood pressure pills I rather imagine, good advice, so many things to be aware of, coming here is going to help immensely...

vampella Contributor
vampella
Posted

Thanks for the info everyone....I now have a question that I am panicing about.

I made Emmah rice crispy squares the other day with nature's path organic crispy rice gluten-free cereal and mashmellow and vanilla. After reading a tread about preschool snacks and some said watch marshmellows I ran to the marshmellow to read it. *MODIFIED CORN STARCH* is this safe did I accidently give Emmah gluten without knowing? OMG There are so many thing to learn. I knew alot going in but there is a HUGE amount I still don't know. I hope someone answers about the modified corn starch if not it's ok. I have an appointment with the dietician (sp) tomorrow afternoon. Geez, now I feel so bad.

Char

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breann6 Contributor
breann6
Posted

Thank you so much for making this list! this is super helpful for me as a super newbie!

thanks!

Ginny Rookie
Ginny
Posted

Thanks so much for all of this information. There is so much to learn for us newbies! Does anyone know if MAC make-up products are okay? I am addicted to their lipstick, and I really hope I don't have to give it up!

Ginny

debmidge Rising Star
debmidge
Posted

We also were told by Crest over the phone that their Pro Rinse may not be gluten-free.

  • 3 years later...
Ozwizard182 Newbie
Ozwizard182
Posted

Yes, I think reitterating number 1 is important - I am one of those people who has to have things done her way and done NOW, but I've come to realize after (trying to) be gluten-free for a month now, with no improvement, that this is a very slow learning process. I jsut now realized I've been using lipstick with wheat in it every day, not realizing I was poisoning myself more! :P

I have determined that it took me about 5 years to get diagnosed, so it will probably take about half that time for me to really figure out all the sources of gluten in my life :lol:

After your diagnosis; then after ditching the lipstick! how soon did you see results? What were your symptoms and what finally got you to the doctor?

Thank you.

gluten-freedom Newbie
gluten-freedom
Posted

2. Sit down and make a list of all the things you CAN eat.

This is a great idea!

To it, I would add this tip that has helped me:

I typed up, in very fun fonts, a wide variety of snacks that I can have. It says "Want a Snack?" at the top, and then it has three columns below: Sweet, Savory, and Filling. Then I listed a bunch of gluten-free snacks in each column. This helps me a lot when I have an attack of the munchies! :P It helps me not to feel restricted or limited, because I have in front of me a sizeable list of yummy goodies.

AlysounRI Contributor
AlysounRI
Posted

I made Emmah rice crispy squares the other day with nature's path organic crispy rice gluten-free cereal and mashmellow and vanilla. After reading a tread about preschool snacks and some said watch marshmellows I ran to the marshmellow to read it. *MODIFIED CORN STARCH* is this safe did I accidently give Emmah gluten without knowing? OMG

Char:

Don't panic.

As I have understood (and someone who knows differently please correct me ...), it's anything that says "Modified FOOD starch that you have to avoid. That is very much wheat ... unless it specifies corn in which case it will say "Modified food starch (Corn)" or as your label read "Modfied corn starch"

Look on packages of jelly beans. They all have modified food starch in them. But if when I looked on the label of a box of candy valentine hearts (the one with the sayings on them) they read "Modified food starch corn" so I bought a package. They were sickly sweet and pretty gross but I knew that I could eat them as I am not sensitive to corn. Of course the corn was probably corn syrup which is not good for you but they didn't make me sick.

If I just spouted wrong info please let me know.

And correct it here.

Otherwise, I hope that's a good and clear answer for you, Char.

Happy marshmallowing :)

~Allison

  • 1 year later...
psawyer Proficient
psawyer
Posted

As I have understood (and someone who knows differently please correct me ...), it's anything that says "Modified FOOD starch that you have to avoid. That is very much wheat ... unless it specifies corn in which case it will say "Modified food starch (Corn)" or as your label read "Modfied corn starch"

While it once was true that "modified food starch" was possibly (but very rarely) wheat, it is no longer true.

For years now, in both Canada and the US, if it is wheat that must be clearly disclosed either in the ingredients list, or in a "Contains: Wheat" notice following the ingredients.

MFS is usually tapioca or corn.

This topic was started in 2006--some information may be out of date.

Archived

This topic is now archived and is closed to further replies.

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  • Recent Activity

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      Gluten free nuts

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    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
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