Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter And Symptoms Question


juljoh70

Recommended Posts

juljoh70 Newbie

Hi Everyone,

I am new here and have a couple of questions. My 4 year old daughter emily has had some pretty horrible health since November of 2005 and I would like to compare her symptoms to see if anyone else has the same.

She has been ill (vomiting) over 15 seperate times since november. He has leg pain almost every day, and headaches, sometimes fever but not always, we have just recently found she has two teeth rotten (molars) and she has had to have fillings as well. loose stools palish in colour. very irritable and sensitive (emotionally) and periodic nose bleeds.

These symptoms sort of come in bouts not all the time... and they seem pretty cyclic. About every 2-4 weeks she is sick again.

At first the doc said it is because her first year in kindergarten kids pick stuff up then I went back and he said it is a little excessive so they ran a general blood pannel and found that she has low blood sugar, Low everything but high inr (inflamattion) and high platelets which indicates infection.

So he mentioned celiac and we did the test for it almost two weeks ago and so far we are still waiting for the results.

I have heard a lot of symptoms but not so much about vomiting...

I am very concerned and it kills me to just be sitting waiting for results

Any insight would be so helpful..

Thanks

Julie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



juljoh70 Newbie

humm don't know how to do this...I seem to be defaulting to the last page!!

TCA Contributor

My daughter had projectile vomiting, but son had no vomiting and D. It varies with everyone. I hope the blood work is conclusive. It's hard to get an accurate diagnosis under 5. A diet trial might be the way to go. If you decided to have a scope done to get biopsies, don't try the diet until after the scope.

Tori's Dad Apprentice

Our 5 year olds primary symptom was loose fatty stools, lack of energy and she had cavaties as well.

jayhawkmom Enthusiast

My daughter had the vomitting... she was diagnosed with ulcers in her lower intestines. There was a reflux issue, not with her esophogus, that was causing the vomitting. She's been put on Prevacid, and hasn't vomitted since!

She has a billion other symptoms, and blood work came back inconclusive to Celiac, very conclusive to Gluten Intolerance, and the scope came back negative for Celiac, but positive for ulcers in the duadenum which is consistant with Celiac.

juljoh70 Newbie

Thanks for the replys...can you tell me with the vomitting was it periodic or constant...

I am allergic to milk so when I drink it I know right away but she seems fine most of the time but has bouts of vomiting. The leg pain is more often but could be growing pains. The headaches go along with the vomiting...

You wouldn't know she is so sick from looking at her.

it is taking forever to get information on her condition we are in canada...does this process normally take months?

Julie :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...