If The Diet Isnt Working........

[Tasha2004]

Just returned from a trip to the primary care dr. with my Mom.

Mom has all the signs that gluten is creeping in somewhere after 20 years on the diet.

The doctor said there is no way to test to see if this is happening, despite my having articles which said otherwise. I suggested we move Mom back to a gastro, as she had not seen one for awhile anyway.

I expected the doctor to say that very thing, but had articles on refractory sprue and other situations which suggested to run some antiboday tests.

So, am venting a bit though the doctor was fairly reasonable after I let her know I had found legit information on this very thing.

[ravenwoodglass]

Just returned from a trip to the primary care dr. with my Mom.

Mom has all the signs that gluten is creeping in somewhere after 20 years on the diet.

The doctor said there is no way to test to see if this is happening, despite my having articles which said otherwise. I suggested we move Mom back to a gastro, as she had not seen one for awhile anyway.

I expected the doctor to say that very thing, but had articles on refractory sprue and other situations which suggested to run some antiboday tests.

So, am venting a bit though the doctor was fairly reasonable after I let her know I had found legit information on this very thing.

I would get the antibody testing as a starting point and also check and make sure that any thing she comes in contact with is gluten-free. I am trusting you have eliminated gluten from toiletries and shampoos, lotions, hair dye, are careful with pet foods etc. In addition are there any hobbies she has taken up? Glues, paints, plasters, clays and such can be hidden gluten sources as can drywall dust if she is remodeling. She could also have developed a secondary intolerance like lactose, casein or soy.

I hope you get some answers soon.

[Tasha2004]

We're really trying to think of everything. My Mom had bought a weird Chinese tea, she takes tons of vitamins and we are even questioning the contents of a microwave bag you heat up for muscle pain.

We're looking hard......

Now we're having a rough time getting an appointment with the gastro.

[AndreaB]

It's expensive but have you thought of enterolab. www.enterolab.com You don't have to be on gluten to take the test and if gluten has been sneaking in her levels will still be up there. They also test for dairy, soy, egg, and yeast.

[Tasha2004]

Andrea it's a good idea, but we dont have the money and today I had a hard time getting her to pay 75 cents for a can of green beans..............eeesh.

[aikiducky]

Is it a microwave bag of some kind of seeds that you heat up for joint or muscle pain? That could very well be filled with wheat, they often are!

Pauliina

[Tasha2004]

Pauliina: Yes, it is, and the stupid company wont write me back and let me know what their bag is filled with. Indeed it could be wheat or something with wheat germ oil.

[penguin]

I thought most of those were made from buckwheat or feed corn

Both are gluten-free...