Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy, Itchy, Itchy


westrivergirl

Recommended Posts

westrivergirl Newbie

Help. I am itchy, itchy, itchy. EVERYWHERE! However, I do not have any outward signs of hives or sores. It feels like it is coming from inside my body. I don't know if it is food or topical things like shampoo, hair coloring, soap, or other things that may not be gluten-free.

1. Does anyone else suffer from this symptom?

2. Is there any relief for the symptoms?

3. Is there a guide to the chemicals in shampoos, soaps, etc that can tell me so I can know their origin grains?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

do you have celiac disease? if so, you probably have DH, as well....that's what causes the itchy feeling...there's a section on it on the board

tarnalberry Community Regular

I definitely don't have DH, but have had that happen on occasion. Quite frankly, it feels like allergies to me, and Benadryl has always helped it. I don't know the exact cause, but I suspect it's a histamine response to something environmental (for me).

westrivergirl Newbie

I do have celiac disease, but I have never had sores, and the posting relating to DH don't seem to apply to me. Benadryl does help some, but I can only take it at night because it knocks me out and sleeping on the job is NOT a good thing.

gf4life Enthusiast

I get this, too, and it took me a long time to figure out what it was. It is most likely an food allergy, and not related necessarily to celiac disease. For me it was Soy. I found out when I was first trying to get testing for gluten intolerance, and my doctors wanted to check for food allergies. The only thing that showed positive was soy. So I started paying more attention to what I ate in relation to my itchiness, and sure enough every time I at soy (especially soy sauce) a few hours later I would get these all over body itches that would only go away with Benadryl (and sleep, since they knock me out too).

So now I avoid soy, and when I do eat some I end the day with Benadryl, sometimes a bit earlier than I normally would. :huh: But at least I know that if I knowingly eat soy that I will get itchy. I also suspect I have a problem with MSG, but was never tested for it. I avoid it, too.

You can pretty much be allergic to any food. It might be wise to got to an allergist and get tested. If that isn't possible, then try keeping a food diary and see if there is anything that stands out as possibly causing a reaction. And keep in mind that the reaction time for each person can vary from a few seconds to 24 hours (and sometimes more), so be a bit broadminded at first when doing the diary. And once you pinpoint something you will need to eliminate that food for at least a week and then try it agian with other foods that you know you don't have a problem with. If your itchies went away and then returned duing that testing period, then you know what bothers you. And sometimes it might be more than one food...

In my opinion allergy testing was much simpler than the diary method, but not always possible...

God bless,

Mariann

P.S. I also have DH and Psoriasis, and they are all very different. Don't know how some doctors could confuse any of them. <_<

YankeeDB Contributor

Also consider your laundry soap. Some of these are very irritating.

  • 1 year later...
Don C Newbie
I do have celiac disease, but I have never had sores, and the posting relating to DH don't seem to apply to me. Benadryl does help some, but I can only take it at night because it knocks me out and sleeping on the job is NOT a good thing.

I had the same itching problem for months before I was found to be celiac disease. My entire body and scalp itched and had to sleep clothed on top of my bed to stop the itching at night! I had nothing visible on the surface of the skin. No doctor knew the cause. After three weeks on a gluten-free diet the itching was completely gone. It is not DH because there are no visible signs. Itching skin is sometimes called dry or sensitive skin. Try Eucerin lotion.

I am new to this celiac disease thing, but reading the messages here indicate to me that if a person is on a gluten-free diet and gets glutenized they may get celiac disease symptoms that they never had in their pre-diagnosis days. A complete list of symptoms can be found by Googling (Celiac Disease symptoms) There are a few common symtoms that almost all doctors know, but many that are not well known such as dry skin, anxiety, and depression.

Good internet sources (search on dry skin at WebMed and Mayo Clinic).

Don C.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Yes I used to itch like a dog with fleas on my arms and back of neck!!!!!!!!!! It would just happen and I couldn't put a certain food or soap to blame it on . I used to take atarax for it as benedryl didn't help me. I now think it was a combo of many things. I don't get itchy since I changed to gluten-free and also I only bathe in Miracle II . I love this stuff I use it for everything, bathe the animals,the kids ,dishes, floors just about everything.It has no chemicals in it. I truly have reactions to all kinds of natural cleaners,soaps, smoke, perfume and so on.My skin feels better and most of all I have only itched once in two years. It lasts for ever as you only need a drop or two. I don't sell it but I know you can purchase on the web but I get it from a dealer and I think they are the best price out there so if your interested please pm me for their info.

mamaw

jerseyangel Proficient

Mamaw--I have the Miracle ll also. My sister suggested it to me--she and her husband love it. I liked it, but don't use it too often. You are the only other person I've heard mention it. Sounds like you really love it. I think I'll get it out and give it another try :)

mamaw Community Regular

JerseyAngel

by all means get that out and use it!!!! It took a few weeks before I noticed a difference. Do you have the neutralizer ? I love that as I drink that , add it to the soap when I wash my hair and so on. When I feel a stuffy nose coming on I snuff it up my nose and the stuffiness goes away. I use the gel for my hair and use it like a styling gel. My skin doesn't feel like leather anymore. Most of all no chemicals I think is the most important.....

good luck

mamaw

Claire Collaborator

I had constant itching - with no rash - for 10 years before I was tested and told that I had a Type II Delayed Food Reaction to wheat barley and rye. At that time no one was talking about gluten.

With the widespread itching topicals were not a practical option. I used Solarcaine. I sprayed myself from head to toe - every night so I could sleep. I am gluten-free now and only get a touch of that problem if I get gluten accidently. I do not have celiac. Claire

jerseyangel Proficient
JerseyAngel

by all means get that out and use it!!!! It took a few weeks before I noticed a difference. Do you have the neutralizer ? I love that as I drink that , add it to the soap when I wash my hair and so on. When I feel a stuffy nose coming on I snuff it up my nose and the stuffiness goes away. I use the gel for my hair and use it like a styling gel. My skin doesn't feel like leather anymore. Most of all no chemicals I think is the most important.....

good luck

mamaw

Thanks! Yes, I do have the neutralizer, too. I bought it last summer when I had a terrible case of poison ivy. I believe it helped it to heal faster. I agree about the chemicals--there are so few ingredients in there as it is. I will definately try the neutralizer as a hair gel--I can't find a natural one that I like. :)

  • 2 weeks later...
Mme Newbie

Vinegar baths and switching to eco laundry and household products(e.g., Seventh Generation, Ecover) can really help itchiness and contact allergies, as well as allergic asthma. You can also put vinegar in your laundry in the rinse cycle: it helps a lot with sheets and things you wear next to your skin (undies, socks).

I've never had the all over itchiness that was described, but I get weird rashes, eczema, and general skin bizarro behavior.

Oh, use organic apple cider vinegar, if you can. The white stuff is derived from petroleum.

Good luck and speedy calming!

Mme

PS The neutralizer sounds great. Must try.

plantime Contributor
Oh, use organic apple cider vinegar, if you can. The white stuff is derived from petroleum.

??????? This I have never heard. I was always told the white vinegar was derived from wheat.

Mme Newbie
??????? This I have never heard. I was always told the white vinegar was derived from wheat.

The best article I've found on this is an article on kosher vinegar fermentation because the base of the vinegar affects the categories of kosher that it falls under. According to this article, white vinegar is most commonly made from a base of petroleum derivative or from grains, which can be rye/barley/wheat/spelt or rice and corn. There are also other sources. The article gives the example of New Zealand, where white vinegar is fermented from whey.

Open Original Shared Link

This is Open Original Shared Link It suggests that corn is more prevalent as a basis for grain vinegar. It also talks about whether biochemistry of fermentation and whether vinegar can contain gluten (basic answer according to the articles I've seen: no way, no how, e.g. Open Original Shared Link that classifies vinegar reactions as a sort of gluten-free urban myth).

Clearly this is a bit of a pickle, pun intended. I knew the vinegar sourcing problem from the natural food community, which was very worried about petroleum derivatives and foodstuffs. I'm just getting into the gluten free community and its questions about vinegar safety.

  • 1 month later...
BRUMI1968 Collaborator

I had the itchies,mostly on the back of my head,on my spine, and down my rib cage. I thought maybe it was from where the chlorine was hitting me when I take hot showers (which in the winter, I do probably twice a day from being cold, probably from severe anemia). Anyway, I started puting lotion on after I get out of the shower, but I think being gluten free for over a week has been the clincher. Even the scaly skin on my ankles is gone. My doctor said the reason the bony parts of me are itching more than the others is because they don't have a layer of fat.

Anyway, good luck. You might want to get a shower head filter to make sure it is not chlorine.

Cape Newbie
I do have celiac disease, but I have never had sores, and the posting relating to DH don't seem to apply to me. Benadryl does help some, but I can only take it at night because it knocks me out and sleeping on the job is NOT a good thing.

I have the itchy legs, underarms, back and so on. Apples. Big problem. Everything with apples in them makes me itch. It's just been since I've been gluten free that I noticed it. There are a ton of other fruits that cause the itch though. Strawberries and pineapple are other culprets. I am not allergic to any foods; I am highly sensative and intolerant to many now, which I attribute to Leak Gut Syndrom (LGS).

Hope this helps.

I just got off of the Corn topic. How could I forget corn being one of my biggest itch culprets! Corn is in everything, vitamins, OTC meds like the ibuprofin drugs, and salt, not sea salt, though. I suggest you read the corn topic. Robin and others have so much helpful information.

Cape

ajay Newbie
JerseyAngel

by all means get that out and use it!!!! It took a few weeks before I noticed a difference. Do you have the neutralizer ? I love that as I drink that , add it to the soap when I wash my hair and so on. When I feel a stuffy nose coming on I snuff it up my nose and the stuffiness goes away. I use the gel for my hair and use it like a styling gel. My skin doesn't feel like leather anymore. Most of all no chemicals I think is the most important.....

good luck

mamaw

OK, not to be a cynic or anything, but I found this on the FDA site:

"Use of Products Could lead to Severe Infections

The Food and Drug Administration (FDA) is advising consumers not to use Miracle II Neutralizer and Miracle II Neutralizer Gel products manufactured by Tedco, Inc., in West Monroe, Louisiana because the products are bacterially contaminated and have not been proven to be safe and effective. Use of these products could pose a risk of serious adverse events such as infections, particularly in children, the elderly, and individuals with weakened immune systems who are particularly susceptible to illness. "

I couldn't find out which bacteria they referred to, and I think that makes a difference.

My only other concern is that I also can't find an ingredient list for the stuff, which always makes me nervous. Anyone know what's in it?

Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,876
    • Most Online (within 30 mins)
      7,748

    Karin Majdecki
    Newest Member
    Karin Majdecki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.