Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Boils?


nikki-uk

Recommended Posts

nikki-uk Enthusiast

Hi all,

My son (who is 13 yrs old) is waiting to see a G.I as he has many of the symptoms of celiac disease (his Dad has it)and has had a weak positive EMA test.(He is still on gluten)

Several times he has had to go on antibiotics because he keeps getting huge boils on various parts of his body!! :huh:

Today,he's woken up with another one (on his leg),and they are quite painful for him

Just wondered if anyone else ever got these before going G.F?

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

My daughter would get up to 3 at a time - in her scalp or along her hairline and once on her back. Only one small one since going gluten-free. She was on gluten-free for about 6 months before they stopped - until her intestine healed, I am assuming.

rinne Apprentice

In my thirties I tended to get boils. I found that taking garlic oil capsules (lots) at the first sign of any swelling that was going to become a boil stopped it, the swelling receded.

I don't know if there is any relationship to Celiac.

Ursa Major Collaborator

I used to get boils regularly as a child, and once in a while since. Now only sometimes when glutened.

ravenwoodglass Mentor
Hi all,

My son (who is 13 yrs old) is waiting to see a G.I as he has many of the symptoms of celiac disease (his Dad has it)and has had a weak positive EMA test.(He is still on gluten)

Several times he has had to go on antibiotics because he keeps getting huge boils on various parts of his body!! :huh:

Today,he's woken up with another one (on his leg),and they are quite painful for him

Just wondered if anyone else ever got these before going G.F?

:)

Oh boy did we ever. The only time we get these or an 'acne' flare now is when accidentally glutened. Make sure since his skin is effected that you also eliminate gluten from non-food sources as well as food. Shampoos, soaps, etc.

Canadian Karen Community Regular

I got them as a child, got them as an adult, got them before gluten free, got them after going gluten free and STILL GET THEM!!!

I tend to get them in one location only. I find that when I have to wear Depends when my diarrhea is really bad, or if I wear pads during period, are the two things that bring them on. I am convinced that it is either a chemical or something that these products are made of that bring on the flares......

Hugs.

Karen

Guest AlabamaGirl

Yeah, I use to get these in bikini area and many rounds of antibiotics did nothing but temporarily ease the current outbreak. They completely healed within one month of going gluten-free & I have not had one since. Hoping (praying!) that going gluten-free was the cure and I don't have to deal with that again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

I used to get them a lot as a kid. Ouch!

jerseyangel Proficient

I used to get them from using sanitary pads, also. Now that I can get away with using the thinner ones for a shorter length of time, I don't get them anymore (knock on wood)

ravenwoodglass Mentor
I got them as a child, got them as an adult, got them before gluten free, got them after going gluten free and STILL GET THEM!!!

I tend to get them in one location only. I find that when I have to wear Depends when my diarrhea is really bad, or if I wear pads during period, are the two things that bring them on. I am convinced that it is either a chemical or something that these products are made of that bring on the flares......

Hugs.

Karen

Many companies use adhesives, absorbant or perfumes that contain gluten. :angry:

frenchiemama Collaborator

YES!!! I used to get them ALL THE TIME and all over, once I had one almost the size of an egg on my stomach. It was horrid. Mine were always really huge and very painful. Once I had one on the inside of my ear and they almost hospitalized me over it because they were worried about the infection spreading to my brain. And now, knock on wood, I haven't gotten a single one in over a year. They just went away almost as soon as I stopped gluten.

Ursa Major Collaborator

Karen and Patti, I used to get horrible rashes from those products, and don't have that problem now that I am using fabric pads. You should look into getting fabric pads/panties etc., or sew your own. It's not as convenient, but so worth it.

  • 7 months later...
nikki-uk Enthusiast

Well, since my original post my son has been dx'd with celiac disease and has been gluten-free nearly 5 months - but the boils are back with a vengeance! :( (which kind of disproves my theory that once he went gluten-free he'd be free of them <_< )

Poor guy just keeps getting them (and in the most delicate places! :blink: )

Gosh it seems like even every innocuous 'yellow head' or pimple goes on to become a full blown boil.

I'm not a big fan of pumping him full of antibiotics (and I'm not even sure it works :unsure: ) but he is seeing his paediatrician next week so I will mention it.

While looking on the internet for info re: boils I found that recurrent ones are usually due to the bacteria 'Staphyloccocal Aureus' living on the skin.

Now I'm sure lot's of us have this but don't get boils :blink: so I can't help but think something odd is going on with his immune system :unsure: .... but maybe I should expect him always to be 'under par' as he has Downs Syndrome :unsure:

Anyhow, I've decided to start making him have a bath everyday with an anti- bacterial soap to see if this will help any (worth a try)

Just wondered if any of you 'boil sufferers' had any luck in reducing them using the anti-bac soap??? :)

debmidge Rising Star

sometimes people with blood sugar issues get boils a lot - diabetics or pre-diabetic.

I have trouble with them too and I occasionally wash with an iodine wash from drug store......the reddish wash that they use in hospitals prior to surgery.

wowzer Community Regular

I went through a streak getting boils years ago. Big painful ones. Even had the ones in side the ear, so not fun.

Michi8 Contributor
Anyhow, I've decided to start making him have a bath everyday with an anti- bacterial soap to see if this will help any (worth a try)

Just wondered if any of you 'boil sufferers' had any luck in reducing them using the anti-bac soap??? :)

I've had some luck in the past with using Betadine for washing. My skin is really bad now (itchy "acne" and sometimes boils)...I'm hoping going gluten free will have an impact in clearing it up.

Michelle

Cuervo Rookie

It all makes sense to me now. :rolleyes: I have suffered from boils for almost 7 years. It started out as getting one every five to six months at the base of my tailbone, and escalted to the entire top of my back and always having at least two. At the worst I would have five to six with acne all around them. Unfortunely my back is now competely scared to the point where I am embarrased to wear tank tops. I have actaully grown my hair so that it covers my back. I am hoping that the Gluton free will now help me. My doctor has told me over the years that I had everything from Acne to a Blood infection, but it never cleared. He also said that it was because of my diabetes.

Does anyone have any suggestions about the scarring? How I can help that appear not as noticable?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.