Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Watch What You Say

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

Many on this board, including me, have expressed that we would never want most of our freinds and family to come on this site and read our posts, as they may not be so nice at times and could hurt the feeling of those we care for. Well something interesting just happened when I was searching online for gluten-free places to eat for an upcoming trip. My own post from here appeared about that town/visit. Now I had not said anything that would offend anyone but that is not always the case of course.

For instance, if one of your family members decdided to locate a place for you to eat while visiting with them, they could end up reading a post about how worried you are or that you're dreading the trip. Just thought I'd share what happened to me because I really was taken aback when I got a match that was a post of mine from this site. It's like we think we're just sharing with each other but of course we are sharing with the world.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


oceangirl Collaborator
oceangirl
Posted
Many on this board, including me, have expressed that we would never want most of our freinds and family to come on this site and read our posts, as they may not be so nice at times and could hurt the feeling of those we care for. Well something interesting just happened when I was searching online for gluten-free places to eat for an upcoming trip. My own post from here appeared about that town/visit. Now I had not said anything that would offend anyone but that is not always the case of course.

For instance, if one of your family members decdided to locate a place for you to eat while visiting with them, they could end up reading a post about how worried you are or that you're dreading the trip. Just thought I'd share what happened to me because I really was taken aback when I got a match that was a post of mine from this site. It's like we think we're just sharing with each other but of course we are sharing with the world.

Excellent point. I've always thought of the Internet as a completely public space. My kids were annoyed for years because I would not get a computer, then would not get on the internet. (We don't have television either) It's good to be reminded.

lisa

tarnalberry Community Regular
tarnalberry
Posted

Yep. While some blogs have privacy filters, or at least filters that allow posts to not be indexed by search engines, this isn't a blog, and this doesn't have such a filter. It's always best to imagine that you're saying whatever you're saying to everyone you know now, and could meet in the future. It gives an interesting perspective on self-censorhip, I've learned the hard way.

ehrin Explorer
ehrin
Posted

try googling your name, your friends names and your family members names

you'll be amazed at what you find!

CarlaB Enthusiast
CarlaB
Posted

Except that I have a very common name and there are thousands with it!!! Sometimes it's an advantage, usually it's a problem, like when trying to buy a house and suddenly my credit shows I owe thousands to someone ...

Carriefaith Enthusiast
Carriefaith
Posted

That's a really good point. Anyone could read what we say here if they wanted and most of us have pictures so it's easy to tell who it is!

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


schuyler Apprentice
schuyler
Posted

I actually found this board by doing a search for gluten-free bread.

Thank goodness I did, because I don't know what I'd do without this board.

Guest BERNESES
Guest BERNESES
Posted

I just googled my name and my hubby's and it turns out that he is deceased lead singer of Nirvana who just happens to have a cousin with my first name. Weird!!!!

Guhlia Rising Star
Guhlia
Posted

Thanks for the reminder... Now if only I could get a member of my family to actually do some researching on the subject!

Errrr... Becky, if you read this, I didn't mean you. :)

Idahogirl Apprentice
Idahogirl
Posted

My mom has celiac and reads this site regularly, so that keeps me accountable. :D In fact, she is able to go to my user and read all of my posts! It makes me think about what I type a little more since I know I'm not totally anonymous!

Lisa

jenvan Collaborator
jenvan
Posted

Oh, that's very true Tiffany! I had someone from my local Celiac group e-mail me that she found a post I wrote on a doctor....she was researching him. Another woman I didn't know found something I had written about a specific medication and e-mailed me b/c she just moved to my town. We had lunch together :) The internet makes it a "small world." I try to be consistent in character here online as I am in person so that I don't have to be worried about anything I write.

Rikki Tikki Explorer
Rikki Tikki
Posted

I googled my first name and it took me to the page that had all the information about me. Now I am thinking I should change my sign on name for here. The problem is my name is so unusual. Any ideas?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.