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Do You Ever Just Want To Try It Again?

KayJay

By KayJay
in Coping with Celiac Disease

Recommended Posts

KayJay Enthusiast
KayJay
Posted

I know I have Celiac I had a whole list of problems that got better and I have been very faithful to my gluten-free diet for 3 years now. Saying that sometime I think maybe it was all a fluke. Maybe I can eat gluten and have no problem. Sometimes I just want to go to olive garden and eat a big bowl of pasta with breadsticks! Then see what happens :ph34r:

Okay So I know I would never do that but do you ever just want to :rolleyes:

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queenofhearts Explorer
queenofhearts
Posted

I'm betting if you tried that challenge once it would be the last time!

Leah

jennyj Collaborator
jennyj
Posted

I agree. I want fajitas with white flour tortillas. I won't but it is so tempting. :(

ianm Apprentice
ianm
Posted

Ain't no way in hell is gluten ever touching my lips ever again.

Heater Rookie
Heater
Posted

I know that I'd get so sick, but yeah, I still want to try it sometimes.

Katja Rookie
Katja
Posted

Totally!!! When I have been gluten-free for a longer period w/o accidents and I actually feel like a normal human being I always start thinking "hey this is all in your head" - weird!! I thought it gets better over time, but since you have been off it for 3 years I guess it won't :blink:

Ashley Enthusiast
Ashley
Posted

Nope. I'm afraid that I would react so bad that I would to have my stomach pumped. Got so sick last time that it almost had to be done. :wacko:

-Ash

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eleep Enthusiast
eleep
Posted

Ha -- not right now! Ask me in three years, though. I doubt it.

eleep

jerseyangel Proficient
jerseyangel
Posted

I have to admit, I do wonder what would happen!

Having said that, if it came down to it, I wouldn't be able to bring myself to actually eat gluten on purpose. I'm chicken! :lol:

Too sick for too long B)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Most of the time--no. I just want to make gluten-free versions of old favorites. It's confusing for me, though--I seem to react to little things like real soy sauce and oats--but the one time I did knowingly cheat (a Chinese dumpling made with wheat won ton wrappers), I didn't react at all. :blink:

taz sharratt Enthusiast
taz sharratt
Posted
I'm betting if you tried that challenge once it would be the last time!

Leah

so right leah. :P

CarlaB Enthusiast
CarlaB
Posted
Ain't no way in hell is gluten ever touching my lips ever again.

I feel exactly the same way!!! I did a gluten challenge, no way, never.

Felidae Enthusiast
Felidae
Posted

You bet! But only for a second does the thought cross my mind. I then remember how sick I was for so many years and how I would love to have that part of my life back that the sickness stole.

RKB-MD Rookie
RKB-MD
Posted

YES. Of course!

Every day I want to be "normal" and suck down a "regular" breakfast of doughnuts or a stack of short-cakes or sausage gravey over biscuts (never had it is it even that good?). Snack like a "normal" person with some gooey pastry. Eat a "regular" sandwich. Have some of that yummy smelling fresh bread with dinner.

NO! BRAIN SMARTER!

It sucks, but dying some horrible death in constant pain of late-stage small intestinal carcinoma with mets to the spine tends to eliminate the "need" to eat gluten containing foods. I've never had a "normal" diet - granted I've "cheated" in my life, but the results are never worth it.

gfp Enthusiast
gfp
Posted
Totally!!! When I have been gluten-free for a longer period w/o accidents and I actually feel like a normal human being I always start thinking "hey this is all in your head" - weird!! I thought it gets better over time, but since you have been off it for 3 years I guess it won't :blink:

I think this goes through phases.

We start off and often have doubts and sometiomes a rocky start ... then we hit a honeymoon period, we suddenly discover howe ill we were and discover illnesses dissapearing we didn't think we had, they had crept up so slowly and we thought everyone was like that...

After a while we clean ourselves out and we have no or few residual problems ... we start getting slight doubts and we have actually forgotten what real pizza or pasta or real artisanale bread tastes like ....

We slip.. we are ill and we reaffirm our faith so to speak.

tiffjake Enthusiast
tiffjake
Posted
I know I have Celiac I had a whole list of problems that got better and I have been very faithful to my gluten-free diet for 3 years now. Saying that sometime I think maybe it was all a fluke. Maybe I can eat gluten and have no problem. Sometimes I just want to go to olive garden and eat a big bowl of pasta with breadsticks! Then see what happens :ph34r:

Okay So I know I would never do that but do you ever just want to :rolleyes:

Yeah, I did that about a month into being gluten free and ended up in the hospital because my intestines had shut down and I passed out at the mall. Guess I had lost all tolerance for gluten. Doc said that pasta is strait gluten, and shocked my system......so be forwarned.

But I hear what you are saying. I went grocery shopping late tonight, and they were baking the doughnuts for tomorrow morning, and they smelled sooooo good, that I thought, for a split second, about getting one, and then I remembered what happens......yeah, not gonna do that again.....

eKatherine Apprentice
eKatherine
Posted
YES. Of course!

Every day I want to be "normal" and suck down a "regular" breakfast of...sausage gravey over biscuts (never had it is it even that good?).

I do the biscuits, sausage, and gravy thing with gluten-free biscuits and gravy made from rice flour. It's gooood....

Guest nini
Guest nini
Posted

Oh I miss Krispy Kremes so bad and when the "Hot Donuts" light is on, OMG hold me back! But it's just not worth it. I get so messed up from just cross contamination why on earth would I willingly put myself through that on purpose? Nope. Not gonna happen.

frenchiemama Collaborator
frenchiemama
Posted

Not that I would EVER do it, but I do sometimes get the urge to try it "just to see what happens."

I'm just like that in general though, I always want to test things just to see what happens. I can assure you that the outcomes are not always good. (I'm the kid who would want to stick a fork in an outlet, just to see what happens. And the more I'm warned away from doing something, the more I want to do it.)

eleep Enthusiast
eleep
Posted

I watched my mother die a very hard and lonely death from lung cancer a few years ago. It really changed my life -- although I wasn't fully aware of it at the time. It was less the lung cancer than the fact that the rest of her life had been so hard -- and, I suspect, she wasn't actually bipolar or schizo-affective or whatever they argued she was. She definitely wasn't bipolar because they had her on meds that would contra-indicate that for the last two years of her life -- if she was, she'd have gone into mania, and that didn't happen.

I'm pretty sure she was at least gluten-intolerant, if not fully celiac -- this may or may not have had to do with her lifelong psychiatric problems -- she had her first institutionalization when she went away to college and had a lifelong on-off issue with what seemed to be delusions -- I've never experienced anywhere near that kind of dissociation from reality and I've always been able to take care of myself -- therapy, yes, but the need for institutionaliztion, no. Even the few times I was on psych-meds they seemed like overkill after a while and the doctors took me off of them after 3-6 months. The last time I was seeing a psychiatrist about possible anxiety meds he made me feel very frustrated because he wanted me to wait for a few months before giving me a prescription -- luckily, those few months were what it took to find the celiac. Now I've just got some emergency drugs in my glutening kit that I haven't had to pull out yet.

Anyway -- what I keep remembering is that she'd developed a hump by the end of her life -- this was shockingly noticeable to me because I'd had to cut off all contact with her for many years and it was only a few years before her death that I reconnected. The celiac genes run on both sides of my family and, I suspect she was in advanced osteoporosis.

I've spent a lot of time since her death trying to deal with the fear of becoming my mother and ending up as she did. It's taken me on some not-good detours, but I've done my best to listen to my body and stay the course -- even when it meant that I seemed like I was ignoring my boyfriend's concern (I didn't know how to convince him that I wasn't going mad until I had the proof about what was wrong with me).

That's the thing that most makes me not want to eat gluten again -- it's a very powerful motivator -- and I've also gained so much good stuff from getting healthy that I just don't miss the gluten anymore! Although I have had intermittant dreams that someone's offering me a platter of cookies I can't eat -- never was a big cookie person before, but these sure have been intense dreams!

Oh -- and I'm also a week into quitting smoking -- wish me luck, folks!

eleep

schuyler Apprentice
schuyler
Posted

Honestly, I have moments where I think about what it would be like to eat gluten again. However, I will never purposly eat gluten.

KayJay Enthusiast
KayJay
Posted
  • Author

oh I am sorry to hear that eleep. But good luck with quitting smoking. You can do it.

I am with you guys too. I would never try gluten again. But I really do wish I could have a day. It makes since to when people say live like today is your last day and enjoy it. I wish I could go back and enjoy my last slice of Pizza or pasta and know that this was the last time I would be able to eat it. Maybe I could have enjoyed it a little more. (probably not since I was so sick :rolleyes: ) But I wish I knew that it would be my last.

It's funny someone mentioned forgetting about what real food taste like. My granny always says gluten-free taste like dirt. My aunt and I always eat it up thinking it is great :D We don't remember what good it anymore :lol:

oceangirl Collaborator
oceangirl
Posted
oh I am sorry to hear that eleep. But good luck with quitting smoking. You can do it.

I am with you guys too. I would never try gluten again. But I really do wish I could have a day. It makes since to when people say live like today is your last day and enjoy it. I wish I could go back and enjoy my last slice of Pizza or pasta and know that this was the last time I would be able to eat it. Maybe I could have enjoyed it a little more. (probably not since I was so sick :rolleyes: ) But I wish I knew that it would be my last.

It's funny someone mentioned forgetting about what real food taste like. My granny always says gluten-free taste like dirt. My aunt and I always eat it up thinking it is great :D We don't remember what good it anymore :lol:

I did a gluten challenge and got so sick, I'm PARANOID about gluten! But, yes, a hot buttered homemade toast sure would be nice. eKatherine, sure do wonder about those biscuits you mentioned- could you share the recipe? I don't know if that's "off-topic", sorry.

lisa

laurelfla Enthusiast
laurelfla
Posted

i want to try it again!

i was at Outback with my boyfriend the other night and as i perused the gluten-free menu, i thought, "this is silly! this diagnosis dropped out of the sky! i'd never even heard of Celiac. maybe it's all in my head!" sometimes it just seems like the randomest thing.

and i do want to try something. i have been religiously, very carefully, neurotically gluten-free since a year ago (celebrated my one year anniversary of the diagnosis on Aug. 3 -- yay, Laurel!) and in all that time i've never felt "glutened" like people describe it on the board. now, i think it's very unlikely that in 12 months i didn't eat one little bit of gluten -- everybody makes mistakes; it's a hard diet to learn, what with reading labels and all -- so that makes me think that i don't react much, if at all. and *that* makes me want to test my theory and eat a little bit just to know if i react or not. i haven't done it yet because people keep telling me that's crazy and i know the risks, but i just think it would be useful to know if i would know if i ate gluten. am i making sense?

and eleep, good luck on the quitting smoking! i'll be thinking about you.

oh, and i would eat bread. i have anxiety dreams about eating biscuits and realizing too late that they weren't gluten-free! the good part is i can taste them in the dreams. :D

prinsessa Contributor
prinsessa
Posted

I sometimes think about eating something with gluten (especially pizza), but I know it is not worth it. I have been gluten free for about 6 months and I slipped a couple of times on purpose. It just wasn't worth it. What is worse is when you get glutened and don't know from what. I always think "man for that I could have had a slice of pizza".....but I would never do it.

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