Link Between Celiac And Dvt?

[Katja]

I was doing some research on other auto immune disorders when I came accross Hughes syndrome (also Antiphospholipid syndrome) which leads to Thrombosis and is related to Protein C. Pardon my ignorance but I am not a doctor by any means, so this might all be a little convoluted.

I had severe DVT at age 20 after surgery. What was unusual at the time was that I had about 7 blood clots in both legs and only had surgery in my left leg. I was also still fairly young and at the time had only been in the hospital for 4 days.

Anyhoo, they did tests a few years ago and it turns out I have a Protein C mutation which is linked to Thrombosis.

Has anybody else had these problems and if so what kind of treatment are you following for this? Could this be linked to another autoimmune disease?

Katja

[Esther Sparhawk]

This may or may not be helpful information for you, but here goes. I had a blood clot in my leg during my pregnancy with Annie, and Annie is a celiac. Due to my genetic link to her and my own lactose intolerance, I've recently taken a blood test to see if I test positive for celiac disease, but I've never been tested for the other diseases you've mentioned. I won't find out about my bloodwork (celiac or not) until later.

I was an older mother with a tendancy toward high blood pressure, so they (doctors) weren't surprised about my blood clot during pregnancy. Maybe I should be concerned, though?

Mechelle

[Bootin'TheGluten]

I actually have a clotting disorder called Factor V Leiden Mutation. I learned it while I was pregnant with my first son and took heparin shots throughout to prevent clotting while pregnant or in delivery. During my second pregnancy, my doctor had read up more on it, and decided to hold of on the heparin because there are risks with it as well. At nine weeks along, I got a clot in my right calf and then was put on heparin.

I wear a medical bracelet while taking heparin and it also says protein C resistant, hypercoaguable state.

I don't know what all that means, but wouldn't it be strange if it was related? My dad has it and my doctor told me that it is a genetic disease. My sister also has it and is gluten intolerant also. We can't get our dad to go get tested, even though he claims he is lactose intolerant (a telling sign of gluten problems).

Tara

[bpritt]

I had a DVT in the inferior vena cava at age 29 with no etiology - no other medical conditions, no hospitalization, no accident, no sedentary life. Believe me, I was tested for everything, including a screen of genetic factors. Fifteen years later - last year - I was diagnosed with celiac disease. Is there a connection? It certainly seems possible, since nothing else explains my DVT. But I haven't seen any research linking the two. Has anyone else?

[georgie]

That's strange. I had a blood clot after minor knee surgery and was found to have FVL which is a genetic condition which leads to blood clots. I am also Protein C. I have just found out that I am GI and probably Celiac. I take Nattokinase to prevent further blood clots. Seems to work as I had a minor PE after I stopped taking Nattokinase once. Once I started taking it - my 4 month PE disappeared except for minor scarring.

I have also noticed that since taking B12 shots that I need less Nattokinase. I used to take 4 a day to prevent Post Thrombatic Pain. Now I only need 2 a day.

[daveat168]

I guess I have just become qualified to add my thoughts on this point, as it applies to me.

Over the past several years, I have been accustomed to taking a gently country run with my dog, about 5 miles, (8km) a day, if the weather is fair. My circulation has been healthy, and blood pressure, if anything, on the low side.

Yet I got a DVT, and it was a whopper! It put me out of action for over 3 months before I was allowed to take more than very gentle exercise again.

On the background, I have always had a delicate digestive system, and was very susceptible to the Aztek 2step!

Now my IBS is strongly suspected of being Celiac, and the biopsy scan report should arrive in the next several days, and I too am suspicious that there may be a link between the DVT and the Celiac condition.

There is of course one obvious link: the digestive delicacy caused by the undiagnosed condition, which can cause the 2step, will of course result in a tendency to dehydration. That is how Cholera kills!

Dehydration can make DVT more probable, indeed, I was commanded to drink water 'til it overflowed, a bit awkward, as the IBS condition makes it difficult to separate the two functions in the bathroom.

Whether there is a deeper underlying cross coupling of the conditions is another question.

All I know now is that since going gluten free, separate control is much improved.

We'll have to see how it goes.

ps I am 67, and the dog is nearly 15!

BFN

Dave.

[ravenwoodglass]

I guess I have just become qualified to add my thoughts on this point, as it applies to me.

Over the past several years, I have been accustomed to taking a gently country run with my dog, about 5 miles, (8km) a day, if the weather is fair. My circulation has been healthy, and blood pressure, if anything, on the low side.

Yet I got a DVT, and it was a whopper! It put me out of action for over 3 months before I was allowed to take more than very gentle exercise again.

On the background, I have always had a delicate digestive system, and was very susceptible to the Aztek 2step!

Now my IBS is strongly suspected of being Celiac, and the biopsy scan report should arrive in the next several days, and I too am suspicious that there may be a link between the DVT and the Celiac condition.

There is of course one obvious link: the digestive delicacy caused by the undiagnosed condition, which can cause the 2step, will of course result in a tendency to dehydration. That is how Cholera kills!

Dehydration can make DVT more probable, indeed, I was commanded to drink water 'til it overflowed, a bit awkward, as the IBS condition makes it difficult to separate the two functions in the bathroom.

Whether there is a deeper underlying cross coupling of the conditions is another question.

All I know now is that since going gluten free, separate control is much improved.

We'll have to see how it goes.

ps I am 67, and the dog is nearly 15!

BFN

Dave.

Hi welcome to the board. Just a quick note, if your symptoms are resolving on the diet stick with it no matter what the test results are. Hope your feeling great soon.