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Rachelville 2

Rachel--24

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Rikki Tikki Explorer
Rikki Tikki
Posted
Tavi--have you cried yet? If so did it help?? Gosh, I can so relate and am sorry. Guess it's the price we pay as Mom's for helping to give our kids wings...hugs.

Judy

No, not yet. I know it's a good thing that she is off on her own and time for that. It's just so far away. I was thinking that when we moved in here there were 5 of us and now there is one. It's just really weird. I told my oldest daughter that now she will be like an only child, just what she always wanted. She never really forgave me for bringing the other 2 home from the hospital :lol::lol::lol:

Anyway, life moves on and I suppose this is what the empty nest thing is all about. It's just so strange, never imagined they would grow up. I had 3 in 3 years and remember thinking I would never get any sleep again, go to the bathroom by myself, not refree fights etc. and now it's just over, in a blink in the eye. I could sleep all day if I wanted, only I can't sleep. Ok Judy, here comes the tears :huh:

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TinkerbellSwt Collaborator
TinkerbellSwt
Posted

OH morgan that sounds like such fun.

Judy- i was up until 330am. I couldnt sleep. I had to take extra meds to help me sleep. I feel like a zombie today.

I got glutened last nite too. That maybe why I couldnt sleep. I used a plastic cutting board that used to be used for gluten sandwiches. The board hadnt been used in forever, and I put it in the dishwasher and thought it would be safe. I knew as I was using it it wasnt a good idea, but I did it anyway. Kinda asked for the glutening. phooey.

Chelsea- I am sorry that you didnt get a positve on your test.

Thanks for all the compliments on my avatar. I never get tired of hearing how cute my son is!

Judyin Philly Enthusiast
Judyin Philly
Posted

Hi All

Promised myself i'd be off here and outside at 12:00 but Tavi...had to post to esp.

:( sorry your crying now but hope you'll feel better afterwards.

Just had a call from CA from son and had another 'honest' conversation.

I'm in tears now too. I miss him so much and he misses us and can't afford to move from there. Says Hollywood is just too phony for him ...

It was a hard phone call so going to go out INTO THE SUNSHINE AND DIG IN THE DIRT.

THANK GOD HE GAVE US DIRT ..DON'T KNOW WHAT I'D DO W/O IT.

PM ME IF YOU NEED.

LOVE tAVI

AND TO ALL THE REST ON BOARD..BIGS HUGS WILL TRY TO WRITE LATER.

J

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hi everyone! :)

Molly, that sounds really fun! I hope you guys win it all! :D

What do you mean you have no class spirit?? It sounds to me like you have alot of spirit. You get involved in everything...schoolwork, camp, airbands, the Stanford Celiac conference. It seems to me like you have TONS of spirit....I can tell just by excited you sound in your posts. :D

Tavi....I know I couldnt have held back tears as long as you've managed. I'd be dragging out picture albums...all kinds of stuff to torture myself. Even though I dont have kids I know I would do this...I do it when all of my relationships ended. You'll feel alot better afterwards...I promise. :)

Morgan, How cool that you're having so much fun! Wont you be needing tennis shoes for raquetball though?? :P

Stephanie,

Yup...you're boy is such a cutie!

I'm gonna try to go to bed around 4pm today. I hope I'll be able to fall asleep that early. :unsure:

I wanna go into work at about 1am. I'm excited about my doctor appt...nervous too. I'm going to a doctor who specializes in mercury toxicity tomorrow morning. My doctors think I might have this and I've always felt I do so maybe I'll finally get answers. :)

flagbabyds Collaborator
flagbabyds
Posted

Im not on SEC (student executive council) or i don't do clubs and im not involved in all that stuff, i do dress up for homecoming themes but i do not dress up for spring fling themes and stuff like that.

and i don't go to football games

if you want to see how bad our football team is go to www.gunntitans.com

we suck!!

Judyin Philly Enthusiast
Judyin Philly
Posted

Rachel.

didn't know you were ck'n on this.

Are you still see that first set of dr's?

good luck and post what he says

hugs

Judy

morganb Newbie
morganb
Posted
Morgan, How cool that you're having so much fun! Wont you be needing tennis shoes for raquetball though?? :P

Yeah I have some....I just don't like them and only wear them when I need to, like tonight.

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Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel.

didn't know you were ck'n on this.

Are you still see that first set of dr's?

good luck and post what he says

hugs

Judy

Judy,

I've been posting about this on the OMG thread. I'm gonna post about my appt. sometime tomorrow. The drs. I had been seeing came to the conclusion that based on process of elimination, circumstances and timing of onset of symptoms and symptoms being consistent with that of mercury toxcity....that I should see a specialist who treats this. They're sending me to this new Dr....who I'll see tomorrow.

Remember me talking about this way back? I really feel its whats made me sick but no doctor would acknowlege it or help me. The Dr.'s at the clinic werent willing to consider it either but now they've come full circle and set me up with this Dr. We'll see what happens.

Judyin Philly Enthusiast
Judyin Philly
Posted

Thanks Rachel

I do remember this.

Is this from teeth fillings?

Were you the one who had all the trouble after root canals..?

Thought it was you and I too had 1 root/c and 2 teeth pulled before dx.

Hoping for some answers.

Hugs

Judy

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

No....my troubles stared when they put gold crowns above amalgam fillings. It caused "galvanic reaction"....supposedly this would leech large amounts of mercury out of the fillings. I had a root canal later on due to major pain and non-stop problems since they put the crowns in. Even after the root canal I was still having major pain in the "dead" tooth. They ended up pulling the tooth and the pain stopped.

Judyin Philly Enthusiast
Judyin Philly
Posted
No....my troubles stared when they put gold crowns above amalgam fillings. It caused "galvanic reaction"....supposedly this would leech large amounts of mercury out of the fillings. I had a root canal later on due to major pain and non-stop problems since they put the crowns in. Even after the root canal I was still having major pain in the "dead" tooth. They ended up pulling the tooth and the pain stopped.

They did this to me too and I've had those pulled.

Is the mercury still in our systems??? :o:blink::huh: Holy Crap!

judy

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

hmmm.. no one around again? I hope everyone is alright!

AndreaB Contributor
AndreaB
Posted

Hi Stephanie!

We are fine. Busy with homeschool. Maybe since summer is over everyone is back to the humdrum of whatever normal living is. :lol:

I'm cutting my time here on the board but always read.

2Boys4Me Enthusiast
2Boys4Me
Posted

GAAAAAAAAAAAAAAAAHHH! The leaves are changing colour and it's getting dark at 8:20! I'm not ready yet!

nikki-uk Enthusiast
nikki-uk
Posted
GAAAAAAAAAAAAAAAAHHH! The leaves are changing colour and it's getting dark at 8:20! I'm not ready yet!

I know ,I know.

I hate it.The whole ''gotta think about buying winter coats ''

Boo hoo!! :(

I need to live in warmer climes....

Green12 Enthusiast
Green12
Posted

Hi All,

Just a drive by post.

Stephanie, I posted in your thread, sending good thoughts your way about your son's appointment tomorrow I hope it goes well.

I love this time of year, it's my favorite, so I am ready for the changes :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

NOOOO....please dont let summer end. I never even got to wear my new summer dresses. :(

I have to admit though...I do like the season changes. Not so much the drop in temp. but I like the *feel* of fall and winter....the holidays and the "cozyness" of it all. :)

flagbabyds Collaborator
flagbabyds
Posted

rachel is it hot where you are cause it's over 95 today and reallyreallyreally HOTTTTTTTTT

bleghhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh

AndreaB Contributor
AndreaB
Posted

Molly,

Don't forget, Rachel LOVES heat. She thinks 85 is too cool. :P

nikki-uk Enthusiast
nikki-uk
Posted
NOOOO....please dont let summer end. I never even got to wear my new summer dresses. :(

I have to admit though...I do like the season changes. Not so much the drop in temp. but I like the *feel* of fall and winter....the holidays and the "cozyness" of it all. :)

But you live in California-so not such a dramatic change in temperatures!!

Us Brits have to put up with endless grey rain,sleet ,snow,ice....BRRRRR!!!

I'd rather be in California for the winter!! :lol:

:)

debmidge Rising Star
debmidge
Posted

I've been on vacation for a while, so I missed some

Tavi, sorry you're feeling down about your situation.

Penguin, Happy for your weight loss news for you.

Judy, always glad to see you around. You're always such an "upward motivating" person to us. I wish I could have your cheeriness.

Chelsea: hope you are feeling better

Rachel, Carla: send some warmer weather our way!

To all I missed here, Hi! Hope all is well.

I've heard about mercury fillings being dangerous to your health. I don't know if I ever got any in my life....I'm sure I have but I have had "re-fills" over the past 10 years and I don't think the new stuff is mercury-based.

Let's demand that Summer not end!

I hate change, especially bad change. Our local ACME is closing after 30 years; this is bad for us because my husband was able to walk there (less than a block away) while I had the car at work.

The change will mean that we will have to do food shopping when I get home from work or weekends.....we are down about this new development.

Our choices now are: go into hock to buy a second car? or move to a more expensive apartment, but is close to many different stores and could be a good decision in the long run? Which is best?

Well gotta run & get ready for work.

Jean-Luc Rookie
Jean-Luc
Posted

wow, I really am buried with work, a toddler and my refereeing, not enough day light. :angry:

In any event, I hope all is well. I posted awhile back that my dad was geting some surgery. For those interested it went well.

I am starting to get nervous about these restrictive diets and breath tests. I think someone else mentioned they were going for them -MiaMia?

I wound up experiencing the same upper abdominal pain I had that first started this whole ball of wax. But it passed, I will be happy to get a diagnosis or something. :lol:

As for those lamenting about winter, I am sitting in my office at 6 pm and it is already getting dark out. The high today was around 71. This weekend will be nice, but old man winter is coming back , However, NOAA insists the NE will have a mild winter. I can only hope.

Everyone take care.

Green12 Enthusiast
Green12
Posted
In any event, I hope all is well. I posted awhile back that my dad was geting some surgery. For those interested it went well.

Hi Picard :)

Glad to hear your dad's surgery went well.

AndreaB Contributor
AndreaB
Posted
wow, I really am buried with work, a toddler and my refereeing, not enough day light. :angry:

In any event, I hope all is well. I posted awhile back that my dad was geting some surgery. For those interested it went well.

I know it's hard....but you need to take some time for rest and relaxation. :)

Glad to hear about your Dad. When do you have your tests. Isn't that next month?

morganb Newbie
morganb
Posted

Just a drive by hello :) . It took me a while to find Rachelville, but I don't have any time to look at the other hot new topics.

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  • Recent Activity

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      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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