Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain


bklynceliac

Recommended Posts

bklynceliac Apprentice

Hello all. I've been on the gluten-free diet nearly two months now and am feeling a great deal of improvement. The one thing that hasn't gone away at all though is the abdominal pain. What bothers me most is I have no idea what it is. It feel like someone inflated a few long balloons and stuck them in various places in my stomach and pelvis. The most logical connection to me is gas, but I don't feel extremely gassy and don't have any problem retaining it. The pain is most noticeable at night when it's impossible for me to lie on my stomach, making it very hard to sleep. It doesn't seem to be made better or worse with different food choices. And the location of the pain seems to change daily. I'd love to hear if other people have a similar thing, and any thoughts on what it is or what I might do would be much appreciated. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



covsooze Enthusiast

Hi there. It does sound like gas to me. When you say food choices don't seem to make any difference, have you actually tried cutting out any foods for more than a few days? I know that if I have beans or lentils I get painful wind and also if I have dairy. If there's a few things contributing to the gas, it will be difficult for you to see an obvious connection with what you eat - you might benefit from doing a food diary. The other thing is, my gas reduced significantly after going gluten-free. It takes time to get the diet right and to heal - maybe you just need time?

Finally, try a hot water bottle at night :)

kbtoyssni Contributor

My pain also moves around. Sometimes it's my stomach, which usually feels like I've swallowed some razor blades and makes me want to curl up in a ball to stop the pain. Sometimes it's more in my intestines, which feels more like bloating/gas and a dull ache.

penguin Community Regular

I get three types of pain: I get pain like you describe, the balloon feeling, and for me it's gas. I take phazyme when that happens and it works wonders.

The second type of pain is a burning in my stomach, which is usually because of too much acid and not enough food.

The third type of pain, the bain of my existance, is what I call the "crunching pain". For some reason (gluten-free or not) I periodically get pyloric spasms, and it feels like my stomach is trying to eat iself, it's the only way I can describe it. It's in the stomach itself and nobody has been able to tell me why I get it. I take phenergan and sleep for a few days when it happens.

IrishKelly Contributor
Hello all. I've been on the gluten-free diet nearly two months now and am feeling a great deal of improvement. The one thing that hasn't gone away at all though is the abdominal pain. What bothers me most is I have no idea what it is. It feel like someone inflated a few long balloons and stuck them in various places in my stomach and pelvis. The most logical connection to me is gas, but I don't feel extremely gassy and don't have any problem retaining it. The pain is most noticeable at night when it's impossible for me to lie on my stomach, making it very hard to sleep. It doesn't seem to be made better or worse with different food choices. And the location of the pain seems to change daily. I'd love to hear if other people have a similar thing, and any thoughts on what it is or what I might do would be much appreciated. Thanks!

This happened to me too. After i started the gluten free diet i thought things were getting better...but then a couple of weeks into the gluten-free diet i noticed there was still all of this gas pain...like something was alive and crawling around inside of me!! After eliminating Dairy it has gotten 75% better...i highy recommend trying to eliminate dairy. I've never had any dairy troubles until the last few months because of the damage i've done to my intestines due to the gluten overload. Are you dairy free now??

sspitzer5 Apprentice

I have an on and off knawing type of pain below my belly button on the left side. I don't have it for months and then it sort of flares up again. I think it's some type of ulcer. Hopefully I'll get some clues on what going on next month when I get another endoscopy and a colonoscopy. The doctor says he'll give me a camera capsule if nothing turns up with the other tests.

S

bklynceliac Apprentice

hey there, i'm not dairy free, and in fact have been having a lot more dairy lately, as it is one of the few gluten-free things I really enjoy. But I know it's a possible irritant. I've not eliminated it because I've never noticed any causal relationship with it and my pains. I can eat a pint of ice cream and they are no better or worse. But maybe if i cut it out completely they'll chill out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishKelly Contributor
hey there, i'm not dairy free, and in fact have been having a lot more dairy lately, as it is one of the few gluten-free things I really enjoy. But I know it's a possible irritant. I've not eliminated it because I've never noticed any causal relationship with it and my pains. I can eat a pint of ice cream and they are no better or worse. But maybe if i cut it out completely they'll chill out?

OH YES!!! I'm 28 and have NEVER had any dairy issues until the last few months. I was told that 8-9 out 10 people who are glutent intolerant (and never knew) will also become dairy intolerant temporarily because of the damage we've done to our intestines along the way. The ville (i think it connects the stomach to the large intestine?) has hairs that have been damaged because of the glutent consumption over the years. Once you are dairy and gluten free for a few months (my doc said it could take up to six months) you will notice a huge difference and you will eventually be able to re-introduce dairy again once your healed :D

Green Fingered Gaelic Newbie

I think we all get lactose intolerent, to a degree, when we get the aul glutonium in the diet. The villi house the lacto bacilli. I think. Over the years I've got allot of conflicting advice and so I'm just sayin what makes sense to me, based on my gut instinct :P ;-) . Sometimes if the villi don't get too damaged they will repair and repopulate the bacilli. If they get too damaged they won't be able to house them anymore and you will be permenantly lactose intolerent.

At the moment I've got bad numb constant pains in ma belly. I was on holiday two weeks ago and am still recovering.

Other than that some times I get sharp pains that feel like they run the length of my intestine, pretty much in an instant i get this internal electric shock. Its paralises me. I just hope it never happens to me when I'm driving.

So at the moment I'm suffering from this constant ache and I have to confess that at times like this I use a the herb mj to smooth over my pains, it also helps with the appetite I find.

Other than those pains I get muscle and bone aches at different times.

Peace,

Q

PS. Diagnosed aged 2, by my gran, despite several doctors critism, am 26 now, have recently become more sensitive and hence my interest in this forum etc.

eleep Enthusiast

You know, I didn't even realize I had ongoing abdominal pain until after I stopped eating gluten -- the first time I got glutened after that, I felt these shooting pains deep in my stomach that were incredibly familiar and made me realize how acclimated to feeling crappy I had been for years!

eleep

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,913
    • Most Online (within 30 mins)
      7,748

    Jennrhart
    Newest Member
    Jennrhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.