Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Still So Tired - What Is Going On?


aprilh

Recommended Posts

aprilh Apprentice

I have been gluten free since around first of July. I am doing much better but I am still tired all the time. Some times are worse than others. I went off dairy for a short time, but am back on it - very little bits. Today, for lunch I ate leftover gluten free pasta with gluten free sauce and ground beef. I have been soooooo tired since. I could go to sleep but I can't until my kids do.

My legs constantly feel so weak and tired. I have lost LOTS of weight in a short period. Everytime I weigh, I have lost more weight. I thought maybe its corn? Some gluten free pastas are made with corn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

I find I do best with a lighter lunch, anything heavy makes me sleepy in the afternoon. I always have an afternoon snack so I don't fade out before dinner. Maybe you should try the "grazing" approach, & eat several smaller meals.

marciab Enthusiast

I found out that I have to limit my processed grains. I do better on whole quinoa, buckwheat or millet.

key Contributor

It could be you are still healing and recovering. You were sick for along time. Are you sure you aren't getting gluten anywhere still? Do you still eat out?

I know I have those symptoms when gluttened.

Monica

RiceGuy Collaborator

I've also been extremely tired, but I'm now finding out there have been some things in my food choices which have been causing much of the reactions I've had. My leg weakness eventually worsened to the point where I could not walk at all, and there was a whole LOT of pain, twitching, spasms, etc. A great deal of digestive/intestinal issues as well.

But now, I think I may have narrowed down what it is (still trying to recover). It seems that nightshade foods like potatoes and tomatoes have become intolerable to my system! Triggered by what I'm not sure. Perhaps nothing triggered it, but at any rate it doesn't take too much of it to effect me. On the other hand it apparently takes several weeks to recover from the effects.

This may or may not help you at all, but I figure it might be worth considering.

Hope you feel better than I do!

jenvan Collaborator
I have been gluten free since around first of July. I am doing much better but I am still tired all the time. Some times are worse than others. I went off dairy for a short time, but am back on it - very little bits. Today, for lunch I ate leftover gluten free pasta with gluten free sauce and ground beef. I have been soooooo tired since. I could go to sleep but I can't until my kids do.

My legs constantly feel so weak and tired. I have lost LOTS of weight in a short period. Everytime I weigh, I have lost more weight. I thought maybe its corn? Some gluten free pastas are made with corn.

Being gluten-free since July is not long at all...for many folks it isn't long enough on the diet to notice any improvement. ie. myself :) You may want to keep a food/symptom journal to see if other foods are causing you issues, like the dairy. For some folks, pasta would bring on post-meal tiredness. If this is the case for you, you could always err on the side of protein. Vitamin deficiencies, ie. b12, iron etc., fairly common in Celiacs, can also cause an extra dose of fatigue. You may want to look into these if you haven't already. Either way, chances are also that you just need more time. Every person is different, like their history... I didn't notice real improvement in my energy till after a year gluten-free. And honestly, I still struggle. Good news is many folks noticed it within a few months. ...But not knowing what your system is like, I suggest stick with it and try and cope as best you can while you continue in this beginning stage of healing. It will get better!

kbtoyssni Contributor

It sounds like you're just going through the normal healing process. I did really well the first month on the gluten-free diet, then I got a slight cold and was out of commission for the next month. Give it time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Have you had your thyroid checked out? That's a possibility. Another though is some autoimmune disease, they all seem to include a lovely dose of fatigue.

Also, carbs are processed by the body rather quickly raising the blood sugar, insulin gets release which brings it back down. That drop in blood sugar makes some of us really sleepy. You can either eat another carby meal and start the cycle over again, or you can try to eat something that doesn't spike the blood sugar so much. I personally limit the amount of starchy or sugary stuff I eat and it really helps with my alertness. I focus more on proteins and natural sources of carbs that are digested more slowly, like fruits and veggies. If you're going to have starchy stuff, I wouldn't eat it until dinner time. Then you might find the sleepiness coinsides with when you want to go to sleep.

Final thought, all the stuff I'm intolerant of, dairy, soy and wheat make me feel tired and make my brain malfunction. So perhaps you're still eating something you shouldn't be.

Guhlia Rising Star

Soy is in most store-bought spaghetti sauces... Just a thought. It could be that you've developed an intolerance to soy. Many of us develop other intolerances after Celiac surfaces.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,013
    • Most Online (within 30 mins)
      7,748

    Dragon1
    Newest Member
    Dragon1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.